2 Wk Window to Discuss Here 2 Autism Documentaries

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Marybird
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22 Oct 2013, 6:19 pm

littlebee wrote:
Also, what is the functional value in the instance of "autism" of putting people on a spectrum? Explain that, please. There are these two obviously different kinds of people, as seen in these two documentaries, and you can probably see this contrast in many current documentaries easy to find on the web. These people do share certain characteristics, I suppose, such as repetitive behavior. I get the idea of calling certain patterns autism, but I do not understand the functional value of grouping people who cannot speak at all or at most, whose mouth and jaw armature cannot even physically form the sounds, and/or whose brains cannot connect with the mouth in such as way as to be able to without very great difficulty form the sounds, with people who are articulate, even eloquent speakers and writers--and then saying all of these people are born this way and it is hard-wired into their brains.That is ridiculous/ It just makes no sense, especially from the perspective of the articulate group who are forming various autism cultures around thinking this way about themselves.. Imo it is very self defeating. And then many people from this latter high functioning group, as I mentioned before, get angry at people from the general population for grouping them with the former group, which of course the general public is going to do because the latter group is not so recognizable,,and then a lot of energy is spent to make a documentary pointing out that the latter group is also "autistic." But what is autistic? It just makes no sense, or only a little sense. As I see it, this method of sorting and grading leads to chaos, though superficially it may seem to be sorting things out, whereas, as mentioned, the documentary Best Kept Secret does appear to have a functional value. Will write on this next time....

Maybe the functional value of putting people on a spectrum is to emphasize the similarities, and by association, the similarities to non-autistic people. There is a line I like from the movie 'wretches and jaberers', "more like you than not".
Many people who cannot speak can write very eloquently.
There is so much variation among individual people on the spectrum, both low functioning and high functioning, and that is why it makes more sense to think of it in terms of a spectrum. The similarities, along with the differences, are prevalent from one end of the spectrum to the other.



wozeree
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22 Oct 2013, 6:26 pm

It's the same disease. It's the same old problem, don't associate me with those dummies. Nobody ever wants to call mild diabetes and severe diabetes by two different names.



btbnnyr
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23 Oct 2013, 1:09 am

For awhile, I was interested in autistic culture, like the blogs where people post things and people comment on posts about autism-related issues, and website like thinking person's guide to autism where various people post, but over time, I found that autistic culture was system of the "correct" beliefs that you were supposed to have with even a bunch of buzzwords that you were supposed to use, and I was not interested anymore.


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littlebee
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23 Oct 2013, 1:55 pm

Marybird wrote:

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Maybe the functional value of putting people on a spectrum is to emphasize the similarities, and by association, the similarities to non-autistic people. There is a line I like from the movie 'wretches and jaberers', "more like you than not".

Yeah, right. There probably is some kind of functional value from the angle you mention, but this is kind of stretching it?...in terms of qualitative value:-)

Many people who cannot speak can write very eloquently.
There is so much variation among individual people on the spectrum, both low functioning and high functioning, and that is why it makes more sense to think of it in terms of a spectrum.

It does make some kind of sense, but imo not that much sense in term of any individual becoming smarter and happier. What sense does it make in this regard from either end of the spectrum to group high functioning and very low functioning "autistics" together? I do not find it makes that much sense. Generalizing can be of value but it can also be a cop out, and I see it as more of the latter in this case and verging on a social disorder. I guess I will be writing about this in detail and explaining my point of view, and others with differing points of view are of course welcome to dialogue here.

The similarities, along with the differences, are prevalent from one end of the spectrum to the other.

Here is a question regarding one characteristics, special interest, which is greatly played upon, and which no one who is autistic or who knows an autistic would deny is very real and surely does relate to one area of brain function: Does anyone ever ask why??? Maybe some do, but I have been on WP for seven months and have never seen this question.I am in no way saying you are not asking why, but to me it is very stupid for people to keep harping the tune that they are born this way and they are on a spectrum.

This is about sorting and grading and the functional or non functional value of doing it one way or another.
.

....



babybird
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23 Oct 2013, 2:00 pm

That's a long two weeks littlebee. :wink:


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littlebee
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23 Oct 2013, 2:22 pm

babybird wrote:
That's a long two weeks littlebee. :wink:

I know, ha ha. What happened is that this thread got picked up by a major search engine and jumped up a few thousand hits in a day or so, though previously the volume was (and now again is kind of low) , so I decided to stick with it and will eventually be extending some shorter videos that are available online, plus these original two videos will eventually come back on line.......Yes, time can be interesting...one person called it "the unique subjective..."



Marybird
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23 Oct 2013, 8:42 pm

littlebee wrote:
Marybird wrote:
Maybe the functional value of putting people on a spectrum is to emphasize the similarities, and by association, the similarities to non-autistic people. There is a line I like from the movie 'wretches and jaberers', "more like you than not".

Yeah, right. There probably is some kind of functional value from the angle you mention, but this is kind of stretching it?...in terms of qualitative value:-)

I think the only functional value it was intended to have was for medical and diagnostic reasons, and that's why it was lumped together as a spectrum.
I do understand what you mean. Apart from the intended reasons, it may cause confusion because the two subgroups present differently.
But are you saying that it is the label of autism that doesn't have qualitative value in the way it is applied to a spectrum, or is it people's understanding of the label, or something else?



Marybird
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23 Oct 2013, 9:03 pm

littlebee wrote:
Here is a question regarding one characteristics, special interest, which is greatly played upon, and which no one who is autistic or who knows an autistic would deny is very real and surely does relate to one area of brain function: Does anyone ever ask why??? Maybe some do, but I have been on WP for seven months and have never seen this question.I am in no way saying you are not asking why, but to me it is very stupid for people to keep harping the tune that they are born this way and they are on a spectrum.

It is believed that autistic special interest is a perseveration caused by autistic brain structure and wireing that autistic people are born with.



littlebee
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24 Oct 2013, 12:32 pm

Marybird wrote:

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think the only functional value it was intended to have was for medical and diagnostic reasons, and that's why it was lumped together as a spectrum.

I agree, but it is a horse gone wild. YOu may think the effect is negligible, but I think it is profound, which is what I am trying to look at on my other thread, Why Playing The Austistic Card May Be Harmfu To Humanity.

I do understand what you mean. Apart from the intended reasons, it may cause confusion because the two subgroups present differently.

I think it is actually keeping people who are deeply suffering from sorting things out for themselves, plus it makes kind of smart people who are potentially very[/i samt a lot less smart. I hate to see a whole culture being built around wrong ideas. What is the difference between kind of smart or even smart and [i]very smart? Oh a great big difference.

It is like walking down the street being yourself and walking down the street not being yourself.It is the difference between walking down the street a free person under the sun and walking around your cell in a jail. By the way, I categorize myself with the people who are kind of smart, but I have had a taste of my true birthright.


But are you saying that it is the label of autism that doesn't have qualitative value in the way it is applied to a spectrum, or is it people's understanding of the label, or something else?

Thanks for trying to communicate with me. I had to think about this a lot last night. Basically if one puts oneself 'inside' this label or under this category, that implies that one has developed these special interests (to give one example) because he was born that way, I say bull sh*t. The thing is it is hard to talk about because certain brains actually are different, but imo, if one says this is the cause of ones social problems, that one is born a certain way, and , this makes it much less possible for things to be sorted out. Maybe all of this no big deal, bit if you are a person deeply suffering and wasting your precious life banging your head against the wall it could be a big deal, and if social trends and tendencies start to evolve around this way of thiunking, which is way off, then it IS a big deal.

I have not previous to making this thread seen any videos about autism. I guess I was kind of out of the loop because when I saw the documentary Best Kept Secret I was shocked. (Most of) these people were definitely born this way. That is hard core obvious. Why they were born this way I am not sure; obviously some of it is genetic, but some of it looks to me like fetal alcohol syndrome. One or more of these people were the children of drug addicts...another was severly deprived of nutrition and human affection as a child....it is much worse in Newark, New Jersey. The rate of autism is around twice as high as the national rate.Should society take care of these people and help them. Imo yes it should, and it is not really doing that. After these people ar twenty-one they are kicked out of the system. I think that was the main point of this particular documentary. It was functional and the teacher of these children who I recall reading has now started some kind of foundation will surely be getting lots of private funding because of this, and maybe it will even affect public funding.

But for me to lump myself in with these people, that is ridiculous. As a human being, yes. We are all in this together, but in terms of helping myself be who I really am, no. It is not of qualitative value, meaning a coke may temporarily quench your thirst, though it think it can make thirst worse, but it will not enrich and satisfy your body though you may get in the habit of think and feeling it does. In order to help oneself be an autonomous happy functioning human being one needs to be able to go not only from the particular to the general, but also from the general back to the particular. A coke is a drink. It could keep you alive if you are stranded without water, but if you just drink that all day long it could maybe kill you. I do not know how good an example this is, but it is all I can think of.



I am going to continue this discussion of this other thread: Playing The Autism Card May Be Harmful To Humanity http://www.wrongplanet.net/postx240900- ... tml.,These two treads are meant to be read in conjunction, this thread here being kind of supplementary material to help clarify some of the material on that one.



littlebee
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25 Oct 2013, 2:22 pm

Replies to Marybird and also Btbnnyr:

btbnnyr wrote:
For awhile, I was interested in autistic culture, like the blogs where people post things and people comment on posts about autism-related issues, and website like thinking person's guide to autism where various people post, but over time, I found that autistic culture was system of the "correct" beliefs that you were supposed to have with even a bunch of buzzwords that you were supposed to use, and I was not interested anymore.

My experience the first few years was in person at some kind of aspie functions. In the beginning it was very exciting, even thrilling, as I felt I was with brains like my own, but then I found they were genrerally on a different tape. My main motivation was to enquire deeply with them into the nature of autism,and easrly on I became interested in how it relates to intelligence---if becoming able to able to be myself and to function in synch with that would it make me smarter---answer discovered (not there but by participating actively here)---yes, yes, yes!!!-- but there was all this talk about nt's and also a lot of what I perceived as self-centered focus--I came here to enquire into that. This is a rich environment with many smart people, but the thing is, imo, to dedicate oneself to using this opportunity actively and not for an escape..

Marybird wrote:
Quote:
It is believed that autistic special interest is a perseveration caused by autistic brain structure and wireing that autistic people are born with.
Thanks. I think it might be ifruitful to look at this word, perseveration:http://www.thefreedictionary.com/perseveration. I would like to enquire into this, and any comments would be appreciated. It seems to me that having a special interest is a rather clever way to avoid emotional suffering, and a smart, sensitive young person would be more likely to use this kind of activity as a protective device, plus, speaking from personal experience, it is really interesting to do that:-) However, and this is kind of fascinating, if you just look at the symptom and categorize the perspn according to this and some other similar factors, then it kind of cuts the person out, plus it does not encourage the person to look at himself, but rather to just look at these symptoms and place himself into this kind of category and then have all kinds of feelings about it, so it is kind of putting and/or keeping oneself in a little room. There is no way to go through. Especially if the child is very sensitive and creative, what is called gifted (though of course each child is gifted in his own unique way), this kind of labeling could have a profound affect upon humanity, especially if a lot of the behavior is happening not because of genetics but because certain kinds of social conditions that ooriginally supported and even were advantageous to this kind of brain function are breaking down.



btbnnyr
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25 Oct 2013, 2:32 pm

I am particularly interested in autistic intelligence/cognition, and my special interest is that, and I am pursuing for my education/career for life.

As for why pursue special interest so intensely, I don't think that it is protective device from emotional suffering in my case, but more like special interest is pure joy for me, using iBrain, figuring things out, making things that work, wooooooo!


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littlebee
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25 Oct 2013, 3:04 pm

btbnnyr wrote:
I am particularly interested in autistic intelligence/cognition, and my special interest is that, and I am pursuing for my education/career for life.

As for why pursue special interest so intensely, I don't think that it is protective device from emotional suffering in my case, but more like special interest is pure joy for me, using iBrain, figuring things out, making things that work, wooooooo!

I am interested in this kind of thing, too, in my case not so much autistic intelligence alone, but human intelligence and brain function, and I have the same feeling about my special interest---it is thrilling, especially when I discover something new.....I am not talking about you, necessarily, as each person is unique, but, from a psychological perspective, do you think it could be both a protective device and also thrilling? I will not comment yet on what I think about this. Also, most people who have a special interest probably experience it as, well interesting:-) and even joyful.

So is something off about the way various psychologists are categorizing this as a disorder? I think there is, but also I think there is something to it. For instance, a special interest can become an addiction to the extent that it interferes with normal functioning, though it could still be thrilling--f-or instance, and just postulating, like when a shot of heroin enters ones vein. Also, a whole kind of gratifying social system and process disorder can evolve around getting the heroin. I guess I will give my own personal experience as an example, though no time right now...



btbnnyr
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25 Oct 2013, 3:15 pm

It is not protective device in my case, as my current/forever special interest has caused me to leave my comfort zone into multiple forays into unknown, as I can't pursue my interest alone in my room, but must go out into world, interact with others a lot, learn new ways of thinking and doing, to do it for education/career, and these forays are things that I wouldn't do unless intense pursuit of special interest were there to drive me.

There can be different types of special interests, ones that are pursued as protective device alone in own room for hours and hours and interfering with functioning like school and work responsibilities, and there can be others, also pursued alone in own room for hours and hours, but also including doing something in outside world, interacting with people, creating useful things, and both can be what person does most of time, pursuing intensely.


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25 Oct 2013, 4:19 pm

With my special interst I also had to leave my comfort zone and had to interact with people, but finally my perceprion was too alienated from the other people's perception.
My special interest was ballet for almost 20 years, but I had to learn that I cannot follow what people are expecting from me, I do not like being touched, I perceive music differently than others (I have absolute pitch, but own dynamics), I cannot pretend to "be someone or thing else than I am" I cannot follow other people's movement and things which do not come into my mind now.
I can only work on myself, that worked meaning if a choreographer wanted me I had to work independantly and show him/her the result, I get meltdowns with interference.
Now I enjoy having a studio I can daily perform my training in all by myself and following my own rhythm.
I really enjoy this hours and I do not get into sensory overload anymore when I take the tram to get there as I know the outcoming.

to littlebee: I tried to watch the documentaries you linked in the beginning when you first posted this thread, but it was not available in my country to watch.


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26 Oct 2013, 11:57 am

Hi Eloa. Sorry you did not get to watch the videos. Also, as I recall, I think you left a message on the autism card thread which I did not yet get a chance to respond to---sorry about that, but I got so many responses in the beginning I was overwhelmed. Anyway, it is not necessary to have seen those videos to participate here, as any part of those videos I mention I will give background for that should be sufficient to understand what I am saying.. If you or anyone know of some other videos, especially shorter ones, that are accessible to more people, please pm me the links and maybe we can use that material here.

Re special interests, I think there is also the repetition brain function which can play into it, In my case this is very true,at least. The problem is, as btbnnyr seems to have pointed out, it is hard to make certain kinds of divisions in regard to brain function so as to sort and grade various human beings.

I think in pre industrial revolution times society used to give more support not to imply that conditions were any better than then they are now. It was just different. For instance one object was not the same as many pbjects.. One thing meant more as there was a craft to making it, and each person had his own place around making things work, and that was honored, though many people were treated cruelly and left out, so again not to imply that things were necessarily better, but in some ways they were..



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26 Oct 2013, 4:31 pm

About high functioning/low functioning thing, so far science hasn't understood much about cognition along the whole spectrum, but only in high functioning group, as low functioning group is rarely studied.

(change topic)
The nature of my special interests changed a lot from childhood to adulthood.

As child, my special interests were all about building things and drawing things, and enjoyment of repetition was big part of it, since I liked to build and draw variations on same themes.

Then, as older child/teenager, my special interests became about acquiring knowledge on topics like when I read the whole science section of library, but I didn't talk about them much like asperger stereotype of little professor.

Now, as adult, my special interests are all about doing something new, like testing and creating things in areas where knowledge has run out.


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