Would you say Asperger's/HFA is a minority on the spectrum?

Page 2 of 2 [ 28 posts ]  Go to page Previous  1, 2

Dillogic
Veteran
Veteran

User avatar

Joined: 24 Nov 2011
Gender: Male
Posts: 9,339

18 Oct 2013, 4:18 pm

I recall these numbers:

AS = 1/4
AD (LFA/HFA, with HFA being the rarest of the lot) = 1/4
PDD-NOS = 2/4

They seemed to think it was accurate.



Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

18 Oct 2013, 5:25 pm

The best numbers I know are like this, roughly--
PDD-NOS: 60%
Classic autism: 25%
Asperger's: 10%
Rett's, CDD, other syndromic autism: 5%

But the numbers are changing. We're diagnosing more people with mild impairments, at the same time as we're diagnosing more people with intellectual disability. We probably won't know what the final proportions are for a good couple of decades.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


Codyrules37
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 29
Gender: Male
Posts: 748

19 Oct 2013, 9:02 am

well when the general public thinks of autism they think of people with classic or low-functioning autism. thats why I don't like telling people I have autism. I prefer to say I have Aspergers.



and as for personal attacks, yah save the insults for the thread post something rude to the person above you in random discussions forums.



Raziel
Veteran
Veteran

User avatar

Joined: 25 Oct 2011
Age: 40
Gender: Male
Posts: 2,616
Location: Europe

19 Oct 2013, 12:42 pm

Dillogic wrote:
I recall these numbers:

AS = 1/4
AD (LFA/HFA, with HFA being the rarest of the lot) = 1/4
PDD-NOS = 2/4

They seemed to think it was accurate.


Interesting.
HFA was my dx for quite sometime until my psychiatrist changed it to ADD with autistic symptoms.

I just know having HFA had the disacvantage that most psychiatrists not specialized in autism think there is either LFA or Asperger's and are confused when you tell them that your officiall diagnosis is "HFA" and because HFA is not listed seperatly in the ICD-10, ppl with HFA are grouped under the "classic autism" what most psychiatrist think is identical to LFA. :roll:

Eventhough I thought it is correct, I was totally anoyed by that. :shrug:

-----

Also we still have to wait and see if the ICD-11 will change in the same way as the DSM-5 did and then we'll just be left with ASD anyway.


_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen


Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

19 Oct 2013, 2:55 pm

Yeah, I really prefer it that way. I'm in between labels, been labeled one way or the other depending on superficial presentation, and I know that if you get labeled "LFA", then your skills get ignored; if you're labeled "HFA" then your deficits get ignored. Either way is not going to let you live up to your potential. I really prefer the single diagnosis so that they have to look at us as individuals.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


Adamantium
Veteran
Veteran

User avatar

Joined: 6 Feb 2013
Age: 1024
Gender: Female
Posts: 5,863
Location: Erehwon

19 Oct 2013, 3:13 pm

I think that looking at people as individuals is not neurotypical. Most people seem to always look at other people as members of groups, even people they are very close to.

In some ways, the process of diagnosis in the absence of a reliable test or metric is just a question of an expert assigning a person to a group.... I understand exactly what you mean and I wish it could be that way, but I don't expect people to look at me as anything but a collection of group labels unless they have gotten to know me well.

It usually doesn't take people long to realize that their stereotypes are not appropriate for me, but they really don't want to expend the energy to know other people as individuals, so they don't make any attempt to know me less superficially.



Dillogic
Veteran
Veteran

User avatar

Joined: 24 Nov 2011
Gender: Male
Posts: 9,339

19 Oct 2013, 5:51 pm

HFA was about 1/4 of the AD population.

Though you could probably add them easily enough to the AS one.

Technically, PDD-NOS would contain the rarest and "unusual" types, being as it was a basket for all autistic people who didn't meet AS or AD (lots of variations here).



AdamAutistic
Veteran
Veteran

User avatar

Joined: 1 May 2012
Age: 35
Gender: Male
Posts: 1,476
Location: Rhode Island

19 Oct 2013, 6:00 pm

i don't see many people like me.

i saw one boy that walked exactly like me at the mall once.


_________________
Living Nintendo Database.
Mute Ameslan Signer.


BeggingTurtle
Veteran
Veteran

User avatar

Joined: 11 Jun 2013
Gender: Male
Posts: 1,374
Location: New England

19 Oct 2013, 8:18 pm

More like majority. I've met more Aspies and high-functioning individuals than I have low-functioning. There's also Klinefelter Syndrome and stuff like that, but it's 1 in 20000 (and getting smaller as individuals tend to be unable to fertilize). PDD-NOS and the "other category" but that kinda falls under HFA.


_________________
Shedding your shell can be hard.
Diagnosed Level 1 autism, Tourettes + ADHD + OCD age 9, recovering Borderline personality disorder (age 16)


Raziel
Veteran
Veteran

User avatar

Joined: 25 Oct 2011
Age: 40
Gender: Male
Posts: 2,616
Location: Europe

19 Oct 2013, 11:46 pm

BeggingTurtle wrote:
There's also Klinefelter Syndrome and stuff like that, but it's 1 in 20000 (and getting smaller as individuals tend to be unable to fertilize).


Ppl with Klinefelter-Syndrome have a higher propability of having ASD, but not necesserely.

BeggingTurtle wrote:
PDD-NOS and the "other category" but that kinda falls under HFA.


PDD-NOS just means that you don't fit in any of the other diagnostic categories for autism, but doesn't say if they are HFA or not. In fact it's a very heterogene group.
Here is a study about that topic:

"Children with PDD-NOS could be placed into one of three subgroups: a high-functioning group (24%) who resembled AS but had transient language delay or mild cognitive impairment; a subgroup resembling autism (24%) but who had late age of onset or too severe cognitive delays or were too young to potentially meet the full diagnostic criteria for autism; and a group (52%) not fulfilling the criteria for autism because of fewer stereotyped and repetitive behaviors."

Specifying PDD-NOS: a comparison of PDD-NOS, Asperger syndrome, and autism.


_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen


BeggingTurtle
Veteran
Veteran

User avatar

Joined: 11 Jun 2013
Gender: Male
Posts: 1,374
Location: New England

20 Oct 2013, 4:21 pm

This is a good clear up. I don't know much about PDD-NOS, thanks!


_________________
Shedding your shell can be hard.
Diagnosed Level 1 autism, Tourettes + ADHD + OCD age 9, recovering Borderline personality disorder (age 16)


Ettina
Veteran
Veteran

User avatar

Joined: 13 Jan 2011
Age: 35
Gender: Female
Posts: 3,971

20 Oct 2013, 9:58 pm

Quote:
Prevalence estimate from 2003, US:

Quote:
A total of 987 children displayed behaviors consistent with Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition criteria for autistic disorder, pervasive developmental disorder–not otherwise specified, or Asperger disorder. The prevalence for autism was 3.4 per 1000 (95% confidence interval [CI], 3.2-3.6) (male-female ratio, 4:1). Overall, the prevalence was comparable for black and white children (black, 3.4 per 1000 [95% CI, 3.0-3.7] and white, 3.4 per 1000 [95% CI, 3.2-3.7]). Sixty-eight percent of children with IQ or developmental test results (N = 880) had cognitive impairment. As severity of cognitive impairment increased from mild to profound, the male-female ratio decreased from 4.4 to 1.3. Forty percent of children with autism were identified only at educational sources. Schools were the most important source for information on black children, children of younger mothers, and children of mothers with less than 12 years of education.


Yeargin-Allsopp M, Rice C, Karapurkar T, Doernberg N, Boyle C, Murphy C. Prevalence of Autism in a US Metropolitan Area. JAMA. 2003;289(1):49-55.


3.4 per 1,000 is very low. I'm guessing they're mostly getting the LFA end there, hence the high rate of cognitive issues.

[http://ajp.psychiatryonline.org/article.aspx?articleID=116570&RelatedWidgetArticles=true]This study[/url] found a far higher rate (2.64%, or 26.4 out of 1,000) and the majority of those were high functioning. If you look at the way the studies ascertained the autistic kids
both studied selected kids likely to be autistic, then assessed them to confirm the diagnosis. However, they differ in how they chose kids to assess. The first study reports the following:

Quote:
In phase 1, all children suspected of having autism who met the age, study year, and parental residence requirements were identified through screening and abstraction of source files at multiple medical, clinical, and educational sources.


In other words, they only assessed autism in kids suspected to have it. In contrast, the second study screened a representative sample of the population of children, and assessed kids who scored high on the screening test whether or not anyone suspected autism:

Quote:
The target population (N=55,266) included all children born from 1993 through 1999 (ages 7–12 years at screening) and attending Ilsan elementary schools, as well as children in the same age group enrolled in the Ilsan Disability Registry between September 2005 and August 2006. Thirty-three of 44 elementary schools agreed to participate; 36,592 children were enrolled in participating schools and 294 in the Disability Registry (see section 1 of the data supplement that accompanies the online edition of this article).
...
Stage 1 used systematic multi-informant screening with the Autism Spectrum Screening Questionnaire (ASSQ), a 27-item questionnaire assessing social interactions, communication problems, and restricted and repetitive behaviors (15).


So, when you look at kids already suspected or diagnosed as autistic, most are low-functioning. But if you count in the kids who are autistic but no one suspected it beforehand, most autistics are high functioning.