What's so wrong with saying you want severe autism?

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StarTrekker
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03 Nov 2013, 11:56 pm

It's fascinating that you should create this topic; I was sort of thinking the very same thing the other day, how simple life would be if I were severely autistic, not expected to deal with social communication or the outside world, and incapable of recognising that I was missing out on anything. Provided I was with people who cared about me and didn't try to hurt me, I don't think that would be such a bad life.


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Callista
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05 Nov 2013, 1:21 am

By all accounts, it isn't. The more stereotypically severe autistics we have here seem about as content as the more independent people are. And if you dump independence and ability as a quality of life measure, and use only things like pleasure, meaningful relationships, meaningful activity--then level of disability doesn't really affect quality of life at all. Not to say that extreme autism is a piece of cake; it isn't. But neither is the milder version. Or the many variations in the middle. We've all got our problems and joys.

I don't think that severe autism would mean you couldn't understand what was going on, though. I have heard many parents, and many people who are labeled severe, say that they understand a good deal more than they can tell you they understand. Which makes sense to me, because communicating what you're thinking is usually tougher than just plain thinking by itself.

There seem to be many, many similarities. I would bet that some of us have more in common with folks who don't use language, than with many other WP members who type and/or speak fluently. It only seems superficially like we're very different because living in an NT world has taught us to value speech and traditional body language above other forms of communication, and to see speaking versus not speaking as being totally different. But speech is only one skill out of many.

It's just the same NT-centric thinking all over again--they think that if you don't speak, or don't know you should speak, or don't use the proper body language, or don't look like you want to say something, then you mustn't have anything to say--that if they can't see that you're thinking, then you must not be. It's almost like NTs never learned that there are other ways to think and be than their own way. At least, it's a problem for NTs who haven't had practice thinking out of their own social box. I'm sure they could learn, if they realized there was something there to learn.


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Verdandi
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05 Nov 2013, 3:48 am

Callista wrote:
Part of why I call myself "Autistic" rather than "Asperger's" (aside from the part that PDD-NOS is probably the best label for me) is that I want the people who work with me to remember that my disability is real, that I'm not just a nerdy introvert who's doing all right, really. It means I have problems taking care of myself, keeping track of things, dealing with the world around me in terms of both sensory and cognitive processing of information. I'm nowhere near the stereotype, and my biggest problems are nowhere near the "I can't get a date" and "I keep being rude by accident" that are apparently the problems Aspies are supposed to have. Mine are more like, "I can't get myself to bed," or, "I can't stand having hair," or, "I think I forgot to pay my bills. For the last five months."

I guess that's part of why I never liked AS as a specific diagnosis. It's almost trivializing it to say Asperger's, because that just makes people think you're some kind of smart, nerdy, socially awkward person who's probably going to make a fortune programming computers. AS is a real disability and it's a kind of autism, and we shouldn't have to beat ourselves up about not being normal or not being that inspirational genius success story. We should be allowed to really, really suck at things, and not have anything to make up for it, without anybody looking down on us.


I don't think I've seen two paragraphs on this forum that I find so easy to relate to in the entire three years I've been here.

Agreed with this so much. I never liked AS as a diagnosis because of the assumptions around it. And then seeing Aspies go on about how losing the diagnosis means losing those stereotypes and I can only think that I really want those stereotypes gone.



pensieve
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05 Nov 2013, 4:11 am

Callista, I think I did mention the abuse part in my original post. I'm not completely ignorant of severe autism. And in no way do I think it would be better.

I mean it was a pretty stupid thing for me to say. I was experiencing a mixed bipolar episode so I wasn't even able to explain myself properly. I happened to be in a group of parents with children with more visibly disabilities who were complaining about mild conditions such as AS and ADHD. They didn't even try to listen to my explanations on why those kids had those behaviours.
I just want to ignore them now because they weren't just ignorant they refused to listen. And they were rather emotional.

I agree with you about seeing yourself as more autistic than AS. I don't feel like a smart person, though 3 years on Ritalin sure made me seem that way. I always feel self conscious about my poor math ability so I don't see myself a smart nerdy kid. I mean woman. I'm a grown up.

After one of my cognitive regressions I started to be treated as less than human. People (family members mostly) didn't think I was capable of much and after I recovered, literally built up my skills all over again, I started to feel like they were doing too much for me. I guess I'll never be satisfied.

Anyway, I think a better thing was to say I wish I went back in time before I ever became this aware. Or maybe someone could put me on anti-depressants so I could stop thinking so much.

If I started over with a more severe type of autism and had pretty much the same experiences I probably wouldn't have had so much anxiety, been forced to socialise, or even tried to date. Dating = the pill, the pill = the beginning of a mood disorder. The mood disorder meant I had to get on anti-depressants after I tried to take my own life. Anti-depressants led to hypersensitivity. Then I went on Ritalin, then I ended up with full bipolar disorder and epilepsy. Then I took too many pills one night to help me talk to somebody and ended up obsessing about another person. Now I feel like I may be able to be social, maybe, given certain circumstances but I could never meet the standards of this one person. And I don't work, have severe mental health issues, physical issues and have to be dependent on my family for the rest of my life, even though I appear to not need their assistance.

Then again, I'd probably still have a lot of problems, just different to the ones I have now.

Those people though, they overreacted. I still don't see what's so insulting about saying something like that. Maybe if someone said they rather have my level of autism than ADHD, I would understand. Though I said things like I wish I had longer bipolar episodes or just autism instead of ADHD. Both those come with a downside though.

Yeah. It was a stupid thing to say.


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KingdomOfRats
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05 Nov 2013, 5:03 am

pensieve wrote:
Please, leave your emotions at the door.

I know what people with severe autism go through. I know they can be abused and not be able to talk about it.

But I deal with anxiety and depression, usually triggered by talking to other people. Sometimes I'd take blissful ignorance over intelligence.

I'm looking at this practically. I'm still not that good at getting along with people. My isolation can give me crippling depression. Isolation in the sense that I can't reach out to the people I want. I've been unemployed for way too long. I've never had a job. I hate my living situation. I'm sick of crippling anxiety and thinking up crafty ways in which to kill myself.

People are just so emotional at times. They think you deliberately mean to insult them. I've also had a mixed mood episode today.

I don't always want to have a worse disability too. I just get sick of people saying I'm fine.

hi pensive,
am not looking at this with bias but in terms of being on the severe end of the autism spectrum it really isnt any easier with being understood by people,we get misunderstood a heck of a lot to,am on a section three in a LD acute hospital at the moment and have been misunderstood to big levels by some people.
can understand what are saying about anxiety,humans are the worst breed of animal for causing it,they arent happy unless theyre making someone else feel crap.

it sounds like may need better support around self such as family becoming better understood or threatening legal action on social services for support-there has been members on here who have managed to do it and get support at the end of it.

anti anxiety meds can help as can avoiding the people who cause the worse problems or educating them until they get it through their heads,people suck.


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05 Nov 2013, 5:21 am

AdamAutistic wrote:
it is true. i am a lot happier than most members on wrongplanet.net.

the only thing i really complain about is not having a boyfriend.


That's the thing that upsets me the most...not having a nice boyfriend.

In fact I think I will sell all my romance themed dvds. I don't see the point in having them.

I do not know if I am even autistic at all though, but I have my fair share of social problems regardless.



Codyrules37
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05 Nov 2013, 9:03 am

why should we leave our emotions at the door, when you have already taken yours into the house?