Shame and Austism
I wonder if emotional sensitivity is the answer. I consider emotions to be a sense, just like sight and hearing. Some aspies are oversensitive to light, and others have no problem, but are sensitive to sound or maybe undersensitive to everything. (Olga Bogdashina talks about this in her book on autistic communication.)
So I think the same must be true of emotions. In which case, I am emotionally oversensitive. I am more likely to meltdown due to overwhelming emotions than from any other cause. Does it follow that those of us who feel emotions overly strongly are more prone to toxic shame?
I am sure there are other factors. Some of you, like Marybird and Schtizbergers, seem to have an inborn sense of self and calm that overcomes shame influences. Could that be a result of upbringing? Or something inherent inside?
Brene Brown did say that those who felt worthy of love an acceptance, on a deep inner level, were resistant to the effects of shame. It's hard to admit that sometimes I don't feel worthy of love and acceptance, but I guess I do.
Were some of you somehow taught that? Or doesn't have something to do with a resistance to social pressures? Perhaps an inability to see the subtle body language that indicates, "You have something to be ashamed of!" (That's another thing I'm good at, is noticing body language, especially negative, tho I can't always intuit what it means, only that something changed and it's bad.)
It seems like a simple survey done scientifically could answer some of these very basic questions.
I am also wondering about how shame affects non-verbal autists. I feel strong empathy for nonverbals, like we have some very deep things in common. I don't know any personally... I feel like the strongest thing we ALL have in common is our failures to communicate and our propensity to be misunderstood. The idea of being trapped inside a body that can think but not talk, somehow I can relate to that, even though I am very strongly verbal. I can imagine the frustration and horror of it. So shame certainly must play a role there.
It seems to me that in most people shame can be a reaction to judgment and rejection. I don't think it's an actual symptom of autism/aspergers but a result of not fitting in.
Fortunately I had great parents although I had lots of trouble in school. I learned not to be concerned about people rejections because that is a normal part of life, autistic or not.
As an adult I don't get picked on at all. This might be because I'm big and intimidating. I've had guys in the marines say they wouldn't want to fight me. Funny thing is though I'm not just highly uncoordinated but I have connective tissue problems in my shoulders and they are easily dislocated.
With rejection, I think of it as I am better off without those who reject me. Why should I feel bothered by that.
I'm also fortunate to have talents and a savant skill in music.
If I didn't have this I would practice something that interested me.
My advice is to find something you like and do it until you are good at it.
Then you will have something to take pride in.
Everyone has a purpose in life to make a purpose and to experience life.
Think about what traits you would desire to have. If you pretend to have them enough they will manifest.
There are exceptions to that but it works with more stuff than most people would think.
Also try not to think to much about what other people are thinking. It doesn't really matter anyways.
I relate to this.
In fact today, while journalling to process, I wrote for the first time that among the emotions I have felt after receiving a diagnosis, I felt shame. This was the first time I named this and it was a bit freeing to do so.
For me, my shame comes from the type of scenario you mention in the beginning if the blog post about being the source of pain for everyone around you. And, in particular, in being a parent. I do my absolute best every single day, but I always feel that I am still sometimes just too broken to possibly be a good parent.
...those are the worst of the emotions and it does seem that acceptance of self plays a huge role in combatting the shame.
For data's sake, I am diagnosed with Asperger's and I meet the criteria for alexithymia. I also believe I experience heightened emotions, but that I struggle to understand and name them.
Thanks for talking about this important topic.
Fortunately I had great parents although I had lots of trouble in school. I learned not to be concerned about people rejections because that is a normal part of life, autistic or not.
As an adult I don't get picked on at all. This might be because I'm big and intimidating. I've had guys in the marines say they wouldn't want to fight me. Funny thing is though I'm not just highly uncoordinated but I have connective tissue problems in my shoulders and they are easily dislocated.
With rejection, I think of it as I am better off without those who reject me. Why should I feel bothered by that.
I'm also fortunate to have talents and a savant skill in music.
If I didn't have this I would practice something that interested me.
My advice is to find something you like and do it until you are good at it.
Then you will have something to take pride in.
Everyone has a purpose in life to make a purpose and to experience life.
Think about what traits you would desire to have. If you pretend to have them enough they will manifest.
There are exceptions to that but it works with more stuff than most people would think.
Also try not to think to much about what other people are thinking. It doesn't really matter anyways.
Hi Schiz.
Unfortunately, it isn't so simple. I tell myself all those things, and most of the time actually believe them. My parents taught me from a young age to "Never worry what other people think of you -- they're too worried about what you think of them". But I could never really translate those words into feelings.
I have plenty of strong talents and accomplishments, including a successful 13 year IT career, a big loving family, magazine publications, and I've written five books. I am well-liked by most people who know me.
All of that is completely meaningless when I screw up.
So the real question is, why is it easier for you to shrug it off, and not for me? That is a question that has an answer. I'm just not sure anyone knows it yet.
Thanks for talking about this important topic.
In reflecting to my teen years, I might have had alexithymia then, tho whether that was due to autism or my shutting down of emotions to survive turmoil is hard to say from this vantage point. Probably a combination of both. I hardly had any body awareness, like my mind was a thing apart from my body. Emotions were the enemy. (I had strong reasons to never cry around my mother, and had to fight tears frequently.)
What really helped me was in my early 20s, when I went through a 12-step group for codependency. When we signed in, there was a column for "How are you feeling?" Three times a week, I had to consider the question and come up with a name. It got me into the habit of thinking about it regularly.
Now I am usually emotionally insightful, but I find that if I lack the name for the emotion, then I'm less clear. In thinking about shame this week, I've realized that what I often name "anxiety" is really shame, or has many shame-elements. The two may be actually compounded when I feel them, or merely confused in my head because I haven't named them separately until now. It doesn't help that shame is elusive in nature and doesn't like to be stared at. :)
Unfortunately, it isn't so simple. I tell myself all those things, and most of the time actually believe them. My parents taught me from a young age to "Never worry what other people think of you -- they're too worried about what you think of them". But I could never really translate those words into feelings.
I have plenty of strong talents and accomplishments, including a successful 13 year IT career, a big loving family, magazine publications, and I've written five books. I am well-liked by most people who know me.
All of that is completely meaningless when I screw up.
So the real question is, why is it easier for you to shrug it off, and not for me? That is a question that has an answer. I'm just not sure anyone knows it yet.
Why is it easy for me to shrug off? I'm not sure. I've actually been trying to figure out myself why most people feel what they do. I think I may have an inherent lack of emotional reactions to most things. It may be due to negative symptoms of my schizoaffective disorder, however I take meds that actually make me feel more emotion than I do otherwise and feel like those symptoms have been %90 treated.
I always thought Asperger's caused less emotions and empathy but from talking to people here that isn't always the case.
For me if someone doesn't like something I do I can't tell unless they tell me. I have no idea how I'm perceived by others and do not understand people at all. I've been trying to be more empathic towards people because I can be really insensitive but do not understand why or why people are bothered by things. Maybe it's just an understanding and acceptance that everyone screws up and it's an inevidable part of being human. Try to accept your mistakes. I tried being a councilor for nami before but I wasn't too good at it because I have trouble empathizing and relating to people problems.
On a side note I swear I've seen you somewhere before. Have you been to the square pegs autism groups in Seattle?
I really relate to your blog post also. I think a lot of it relates to early life experiences by family and peers.
I came across this blog post through WP , and it also rings true.
what is autism?
“
It’s an inability to communicate properly and recognise what other people are thinking.”
And maybe I’m a bit slow on the uptake, because it’s only in the last few days that I’ve realised that the majority of neurotypicals define autism as the impact it has on them. When I finally admitted my diagnosis to my mother the email that came back blamed me because ‘I don’t communicate properly’ and therefore the difficulties I have are my own fault. (Which on one level is true, but I did wonder if a paraplegic would be blamed in the same way for their inability to get up a flight of stairs.)
I had a similar experience to this shortly after I came out to family, except it was via telephone , and it was used to justify her bad tretment and manipulation.
my case is this:
i was told that when i was a baby, i was considered to be abnormal in many respects. when people picked me up, they often dropped me soon after because i did not provide the correct muscular resistance to facilitate their hold. most babies participate muscularly in being held, but i was like a sack of potatoes. they said that i was always slipping through their arms because through any hole in their grasp i would fall.
i guess that was the first manifestation of my impaired ability to reciprocate. i never smiled at faces that smiled at me. i did not even look at them apparently. if people pretended to cry to my face, i was similarly disinterested. once a doctor arranged a test where all my family would try to attract my attention, and then when they got it, they were told to all look with a startled expression simultaneously in a direction away from the center of the room to see whether i would look in the same direction that they looked, and i failed.
for the first few years, i looked at the finger of a pointer like a dog, rather than in the direction it was pointing. the wiggling of their eyebrows to try to communicate that i should look in the direction they were pointing was probably perceived by me as a random expression they pulled while wanting to show me their finger.
anyway i was diagnosed as simply "autistic" when i was 3, and i went to a few main stream schools to begin with because i was not intellectually incapable of completing the work. after a while however .....(8 years went by).......... i was settled into an institution for behaviourally challenged children. it was there that i met my first dedicated psychiatrist.
i had at least one consultation with her everyday (the institution was "live in" co-ed), and she developed a keen interest in me, and i also was interested in her. after about a year of consultations and tests, she explained to me much about myself that i would never have had the insight to even consider let alone discover.
she also had to "break it" to my parents in one particular consultation when my parents were there.
she said i have a severely diminished propensity for higher order emotions. i have no sense of pride or shame (emotional opposites i believe).
i also can not feel the lesser emotion of guilt (an active ingredient for shame) or "accomplished-ness" (an active ingredient in pride).
if i do something that causes another being misfortune, then i do feel displaced and eager to correct the problem, but if i am prevented from doing so, then i divorce my mind from the matter without further thought.
i am kind and considerate even though i have no higher order emotions.
that is because i do know what is fair. i know every living thing deserves to be let live it's (only) life without interference, but it does not take "shame" or "guilt" or "pride" or "virtuousness (in a self aggrandizing way)" to know what i know.
i can also sail on and leave a disaster without looking back if i have no further ability to affect it's outcome.
when i was hospitalized at that institution, i also spoke with my psychiatrist about freudian psychology, and i am bemused that the credibility rating of freud has plummeted to a level where his ideas are lampooned.
everyone who is "hip" knows that freud got it all wrong. it is unfashionable to resurrect any of his ideas except to parody them in some gauche manner these days.
anyway, i was impressed with the simplicity of the initial three subsections of the psyche. it seemed so intuitive. i could understand myself within the framework of the psychoanalytic structure.
ID: satisfaction instinct and drive for equilibrium. the ID is driven fundamentally by the "death" instinct. the ID generates desires, and whilst those desires are "alive", they are an irritant that displaces one from the equilibrium of complete satisfaction. every event in every life of every person has an element of desire woven into it.
if it were not the case then the whole human race would fall down dead with no desire to go on, but ironically, that is what everyone is seeking on a basal level.
EGO: the sentient mind that is in judgement of the logic that permits the satisfaction (or nullification) of idiopathic desires.
SUPEREGO: an external voice that carries authority that judges your actions (as i have learned).
often it is formed by parental attitudes or other authoritarian directives. some people may idealize their popular peers within their superego, and so they become victims of the void of outward appreciation that surrounds popular people.
my psychiatrist said that i had little presence in the "superego" sphere.
sorry this is so long. i am waiting for a video to render.
Thank you for this thread and the interesting blog - I do like your writing - I found myself agreeing and saying out loud, "I do that!"
As a youngster I realised pretty early on that I was different from the people I was surrounded by and found that to be both baffling and distressing in equal measure. I set about learning everything I could about people and how to behave in a normal way; this was no easy task in the dark ages of the early 70's before the WWW brought all the worlds knowlege and baseness into our homes. I guess I looked at myself as one of my obssessions and wanted to know everything there is. I rapidly discovered that much of the knowlege I sought was actually not written down anywhere and when I enquired with people why things were done in such a way or suchlike, then the reply I got was "It just is, it's always been like that!" coupled with a look that emphasised how weird/stupid/ignorant I was. I wish I could say I learned a lot from the experience, but in all honesty all I did learn was how to act in a way that didn't ruffle too many feathers. It was all a lie I guess, masks, lights and mirrors.
The shame I felt at being myself has never really gone all these decades later. I can still remember the social faux pas's and the fallout from those situations. I have done a lot of work over the years to try and rid myself of these particular demons, but to limited success. I have people around me who love me for who I am, but I don't recognise the person they describe when I look in the mirror - I wish I did, because he sounds like a pretty good bloke.
Norbert Elias wrote some interesting work about this topic with his 'civilising process'. I am by no means an expert on this, so I quote Peter Leithart, "Modes of behaviour which in the Middle Ages were not felt to be in the least distasteful have increasingly become surrounded by feelings of distaste. The standard of delicacy finds expression in corresponding social prohibition. These taboos, so far as can be ascertained, are nothing other than ritualized or institutionalized feelings of displeasure, distaste, disgust, fear or shame, feelings which have been socially nurtured under quite specific conditions and which are constantly reproduced, not solely but mainly because they have become institutionally firmly embedded in a particular ritual, in particular forms of conduct."
What if you don't know those changes are happening, don't know how to conduct yourself, or you simply ignore them as being irrelevant? Shame and repugnance for being different or being perceived as less than the normal accepted ways of society and how to behave in it.
Another part of his work looked at the unplanned consequences of planned actions e.g. be careful what you wish for. I became such an 'expert' at human behaviour that I noticed that everybody was doing it wrong! Everybody picks and choses the 'rules' they wish to follow so I had to educate them on how they should behave correctly; that went down well. The irony of an Aspie trying to teach NT's how to behave properly isn't lost on me, my cheeks are red as I type.
I like the story about the man who is found running up and down the road with a sword shouting and waving his fists at the heavens. When he is detained and questioned by a Psychiatrist he tells them he is frightening away the dragons that plague the area. When it is pointed out that there are no dragons, he replies, "Thank you, I work very hard at it!"
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Moomintroll sighed. He felt sad even though he had no real reason to feel that way.
I came across this blog post through WP , and it also rings true.
what is autism?
“
It’s an inability to communicate properly and recognise what other people are thinking.”
And maybe I’m a bit slow on the uptake, because it’s only in the last few days that I’ve realised that the majority of neurotypicals define autism as the impact it has on them. When I finally admitted my diagnosis to my mother the email that came back blamed me because ‘I don’t communicate properly’ and therefore the difficulties I have are my own fault. (Which on one level is true, but I did wonder if a paraplegic would be blamed in the same way for their inability to get up a flight of stairs.)
I had a similar experience to this shortly after I came out to family, except it was via telephone , and it was used to justify her bad tretment and manipulation.
YES. "...the majority of neurotypicals define autism as the impact it has on them". This encapsulates the kind of research, like Theory of Mind, that bothers me so much. It is based only on the behaviors that bother other people... And only on outside observations of the behavior.
How many medicinal researchers do you think would describe the symptoms of a heart attack as, "Grasping at the chest. Obnoxious screaming. Disturbing facial expressions. Unresponsive to social cues. A tendency to die unexpectedly." Ridiculous!
It's like, hello, we're here... We can talk. We can tell you what's going on. There's another thread just started up here that scientists were surprised adolescent autists have more brain connections, not fewer. Wy were they surprised? I sure wasn't.
I'm sorry your mother treated you that way. :( I have been very fortunate to have accepting family, even tho they don't always understand.
[quote="b9"
i am kind and considerate even though i have no higher order emotions.
that is because i do know what is fair. i know every living thing deserves to be let live it's (only) life without interference, but it does not take "shame" or "guilt" or "pride" or "virtuousness (in a self aggrandizing way)" to know what i know.
i can also sail on and leave a disaster without looking back if i have no further ability to affect it's outcome..[/quote]
Thanks for your story. Your description here is interesting, because I also relate to it. I have an instinctively strong sense of fairness. I am very passionate about it, and when I note situations of injustice, either on a personal level or in society, I can get very upset and am driven to change it. If I can't change it, I sit on it until I can. I never forget about it, though sometimes I can be persuaded or rationalize it.
And yet, I do have those "higher order emotions". (I don't particularly like that term and M revisiting the urge to research it and then debate it using evolutionary psychology.. But only because the word "higher" indicates some judgmentalism and hierarchy I find unhelpful. I realize it was their term, not yours. It's that fairness drive kicking in on your behalf hehe.)
Incidentally, I relate much more to Jung. Every time I try to understand what Freud was trying to say, I read it and the words simply make no sense to me. I try, I really do. But Jung? Everything I've ever read about Jung makes me go YES. This. I wonder if all these different psychological models aren't trying to describe humanity, but are merely describing the subset of humanity of the scientist making the model ;)
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{the avatar is a Claude Monet}
Last edited by fleurdelily on 08 Nov 2013, 2:02 pm, edited 1 time in total.
Norbert Elias wrote some interesting work about this topic with his 'civilising process'. I am by no means an expert on this, so I quote Peter Leithart, "Modes of behaviour which in the Middle Ages were not felt to be in the least distasteful have increasingly become surrounded by feelings of distaste. The standard of delicacy finds expression in corresponding social prohibition. These taboos, so far as can be ascertained, are nothing other than ritualized or institutionalized feelings of displeasure, distaste, disgust, fear or shame, feelings which have been socially nurtured under quite specific conditions and which are constantly reproduced, not solely but mainly because they have become institutionally firmly embedded in a particular ritual, in particular forms of conduct." ..
Another part of his work looked at the unplanned consequences of planned actions e.g. be careful what you wish for. I became such an 'expert' at human behaviour that I noticed that everybody was doing it wrong! Everybody picks and choses the 'rules' they wish to follow so I had to educate them on how they should behave correctly; that went down well. The irony of an Aspie trying to teach NT's how to behave properly isn't lost on me, my cheeks are red as I type.
Your post made me smile. :)
The Leirhart quote makes me think of the work I'm doing studying and writing about mind control. Culture itself is very much a practice in mind control as well.
There is nothing saying that aspies can't become experts at human behavior. We tend to be very good at collecting data and then remembering it all at once. So of course if that is what we chose to study, we would immediately see all the inconsistencies. NTs like to pretend they're the best at social, but really it's just because they're in the majority, so they get to make the rules. Then they go about following the inconsistently. The real skill isn't following the rules -- it's blending in. It's following the right ones at the right time and knowing what to say if you're caught breaking them.
If we were in the majority, we'd set different rules. And in my opinion, they would be better. ;) Then they would be the ones experiencing shame because they didn't get excited enough about any subject to monolog on. Because they looked at our faces too long like staring owls. Because they talk to much about mundane things like the weather. And we would think THEY are black and white thinkers. (I'm planning to write a blog post on that latter point.)
I'd like to think that we wouldn't shame them for this, but I'm guessing we would.
I came across this blog post through WP , and it also rings true.
what is autism?
“
It’s an inability to communicate properly and recognise what other people are thinking.”
And maybe I’m a bit slow on the uptake, because it’s only in the last few days that I’ve realised that the majority of neurotypicals define autism as the impact it has on them. When I finally admitted my diagnosis to my mother the email that came back blamed me because ‘I don’t communicate properly’ and therefore the difficulties I have are my own fault. (Which on one level is true, but I did wonder if a paraplegic would be blamed in the same way for their inability to get up a flight of stairs.)
I had a similar experience to this shortly after I came out to family, except it was via telephone , and it was used to justify her bad tretment and manipulation.
YES. "...the majority of neurotypicals define autism as the impact it has on them". This encapsulates the kind of research, like Theory of Mind, that bothers me so much. It is based only on the behaviors that bother other people... And only on outside observations of the behavior.
How many medicinal researchers do you think would describe the symptoms of a heart attack as, "Grasping at the chest. Obnoxious screaming. Disturbing facial expressions. Unresponsive to social cues. A tendency to die unexpectedly." Ridiculous!
It's like, hello, we're here... We can talk. We can tell you what's going on. There's another thread just started up here that scientists were surprised adolescent autists have more brain connections, not fewer. Wy were they surprised? I sure wasn't.
I'm sorry your mother treated you that way. I have been very fortunate to have accepting family, even tho they don't always understand.
Thankyou, your understanding means a lot
On a side note I swear I've seen you somewhere before. Have you been to the square pegs autism groups in Seattle?
Omigosh, yes. I've been to one potluck, one discussion group, and one ladies night.
We may have met at the potluck. Were you at the one on the roof? Do you remember the guy with the cyborg hat and cat ears? That was me. I've been trying to go to another one but I haven't seen any posted lately. If you weren't there maybe I talked to you somewhere online.
Yes, I was at that one. I'm sorry I don't remember you by that description. I'm sure we'll bump into one another again. There aren't any more potluck a for awhile because Case, who ran them for many years needed to take a break. They're trying to find another space to have them. I really liked the potluck format, which let people talk to whoever they wanted. It was cool. :)