"It's just a label" - people being dismissive!

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BeggingTurtle
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16 Dec 2013, 8:44 pm

Me and my Aspie friends fight about this with our neurotypical friends frequently. They claim it's something that doesn't exist, but they display some traits themselves. :roll: I think it's moar about the publicity that autism gets and how much of an influence that publicity has and what it influences. All we have to do is manipulate it.


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slickbacksteve
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16 Dec 2013, 10:35 pm

Unfortunately I've been through this. Not only did my friends tell me AS is just a label for misfits but also added that 'just because your brother is autistic doesnt make you an expert on autism' insinuating they knew more than me about it. How did I handle it? I reevaluated these people and decided I wouldn't associate myself with people as stupid as them.


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Who_Am_I
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17 Dec 2013, 4:21 am

Quote:
not knowing the NAME never made the handicaps less disabling.


This sums it up perfectly.


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AspieTurtle
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17 Dec 2013, 9:05 am

Love what Willard said!! !


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schnozzles
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17 Dec 2013, 9:26 am

Who_Am_I wrote:
Quote:
not knowing the NAME never made the handicaps less disabling.


This sums it up perfectly.


Yep.



Stripeycat
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17 Dec 2013, 10:09 am

schnozzles wrote:
it strings together so many of my odd traits and makes sense of them. It's like everything has suddenly come into focus, but people are taking what is a huge thing for me and belittling it.


This is exactly how I feel about my diagnosis.

I've had someone refer to my Asperger's as a label too and it hurts. Asperger's is part of my identity. My diagnosis is really important to me because it explains why things have been so hard for me and it tells me I can fit in in the Autism community, and I've never had anywhere I fit in before. Calling it a label is like saying all this is just arbitrary.

I've had people call my depression a label as well, but it doesn't bother me as much, because depression isn't part of me. I think of this behaviour as just ignorance. To me depression is clearly an illness.



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17 Dec 2013, 12:18 pm

I had no idea people were offended by the term "label." I have seen aspies say about themselves they didn't want to be defined by a label or treated as such. Even my mom calls it a label and everything else that has a name for conditions and she calls them all labels. She will say cancer does not define her, diabetes does not define my father.

I also hear people are not defined by a label or by a condition. They're them, not the word. Even Jerry Newport once wrote a book called Your Life is not a Label.

In fact I find it annoying to be treated like a label instead of being treated like a person. People will read about AS and act like it all defines you and describes you but everyone with it is different. I can read about anxiety and it won't describe me nor depression or learning disability. To me they are just labels and it helps people understand better about how you process things and understand a situation better. But not always because people stay ignorant after you tell them. It's either they treat you different like you are a different person now or still don't understand you. It's annoying when someone reads about a condition and makes all these assumptions about you because that is what the book said about your condition. So that is when I say it's just a label. That is why my mom even says labels can be damaging and even Temple Grandin has said about pros and cons about labels and she once wrote how people should focus on peoples difficulties and their issues than on a label.

When I was in high school teachers were trying to hold me back over because of my AS dx so they thought I couldn't be in drama or drive a car and so on and it was annoying. They were treating me like I was incompetent or something or like I was disabled and can't do things. They even said I wouldn't be able to work at a McDonalds because it would be loud and chaotic and you would have to work fast and follow orders. It was annoying to keep hearing I can't do this or that and I always had to fight. That is a con thing able a label. People look at the label instead of at the person. Even my school counselor did that too and my mom fired him by having him not see me anymore and told my school she wasn't using him anymore as a therapist.

But I guess some people want to be seen as a label instead of a person and be treated as a label instead of as them and get treated this way like I experienced. Being told you can't do this or that and trying to be held back. Those who were diagnosed late never even had to experience what I did because they weren't even diagnosed then so people didn't even know they were different and just assumed they were normal but odd or quirky and saw their symptoms as their personality.

So I think they're all labels because it doesn't define anyone and we're all different and so are other people with other conditions. Lot of people with disabilities feel that way but there are some that want to be defined by a label and see themselves as one. :shrugs:


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foxfield
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17 Dec 2013, 5:02 pm

I understand it as follows.

As a person suffering from Aspergers, you will have huge psychological wounds from feeling rejected, feeling wrong, feeling like an alien, feeling like its all your fault etc. . These wounds are very deep, and will have been there since early childhood.

When you learn you have A.S., it is like medicine or a bandage has been applied to those wounds. You learn for the first time that maybe its not your fault, and you realise your place in the world. The deep wounds can slowly start to heal, and it feels wonderful.

Then some silly person comes along and belittles A.S!
Ouch! So much pain! :? :x :evil: . The bandage has suddenly been ripped off!! ! It hurts and its very confusing.

I think its something most of us can relate to. How to deal with it? I would say I think it gets better over time. The more you find out about AS and allow yourself to psychologically heal, the easier it gets and the less you care what other people think



aspiemike
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17 Dec 2013, 5:15 pm

I am finding recently that I am a Christian and a man before I am an Aspie. The truth i have realized that the more you identify with the label, the more depressed you might become. You start obsessing over the label to the point that it drives others away... even the good ones you want to keep around.

The best thing to do is simply acknowledge the traits you have and accept yourself and grow.


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sammie96
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17 Dec 2013, 5:44 pm

My son's psychotherapist dismisses the whole thing - he doesn't get how important it is for us to know. I need to put a name to this. I can't believe he hasn't noticed the visual stimming (rolling his eyes up and to the right, constantly) and other unusual behaviors my son exhibits. I'm so tired of being disbelieved or blown off over this.
I know this isn't relevant to this forum, but my son had a continuous foot/leg twitch for about a month. All the specialists who saw him assumed it was "behavior." At the time, I believed he had been affected by PANDAS when he was 5. I couldn't get any medical provider to take me seriously. Sorry for the digression!



naturalplastic
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17 Dec 2013, 6:14 pm

schnozzles wrote:
Who_Am_I wrote:
Quote:
not knowing the NAME never made the handicaps less disabling.


This sums it up perfectly.


Yep.


Yes.



PerfectlyDarkTails
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17 Dec 2013, 6:48 pm

Eh... I still get the 'It's just a label' comments, even after a official diagnosis. It shouldn't be used as a free ticket to excuse things, but as a tool to gain actual help. There may be neurological or learning help available to people with official diagnosis.


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schnozzles
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18 Dec 2013, 4:18 am

foxfield wrote:
I understand it as follows.

As a person suffering from Aspergers, you will have huge psychological wounds from feeling rejected, feeling wrong, feeling like an alien, feeling like its all your fault etc. . These wounds are very deep, and will have been there since early childhood.

When you learn you have A.S., it is like medicine or a bandage has been applied to those wounds. You learn for the first time that maybe its not your fault, and you realise your place in the world. The deep wounds can slowly start to heal, and it feels wonderful.

Then some silly person comes along and belittles A.S!
Ouch! So much pain! :? :x :evil: . The bandage has suddenly been ripped off!! ! It hurts and its very confusing.

I think its something most of us can relate to. How to deal with it? I would say I think it gets better over time. The more you find out about AS and allow yourself to psychologically heal, the easier it gets and the less you care what other people think


Yeah, that's sort of how it feels. Hadn't thought of it as a bandage.

I have no intention of resting on my laurels and just using Asperger's as an excuse. What it gives me and my therapist is an understanding of how to approach healing those old wounds. She knows now that there are certain things I just can't do or find incredibly difficult. It's an extra bit of information that allows us to use the right tools for the job.

I know it'll get easier as I work through the old traumas and become more confident :D



Stripeycat
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18 Dec 2013, 7:02 am

foxfield wrote:
I understand it as follows.

As a person suffering from Aspergers, you will have huge psychological wounds from feeling rejected, feeling wrong, feeling like an alien, feeling like its all your fault etc. . These wounds are very deep, and will have been there since early childhood.

When you learn you have A.S., it is like medicine or a bandage has been applied to those wounds. You learn for the first time that maybe its not your fault, and you realise your place in the world. The deep wounds can slowly start to heal, and it feels wonderful.

Then some silly person comes along and belittles A.S!
Ouch! So much pain! :? :x :evil: . The bandage has suddenly been ripped off!! ! It hurts and its very confusing.

I think its something most of us can relate to. How to deal with it? I would say I think it gets better over time. The more you find out about AS and allow yourself to psychologically heal, the easier it gets and the less you care what other people think


This sounds right, apart from the word 'suffering'. Asperger's is part of me so it's like saying I suffer from myself, and thinking like that would screw up my self-esteem even more. I think what we aspies suffer from is living in a world designed for neurotypical people.



schnozzles
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18 Dec 2013, 7:04 am

Stripeycat wrote:
foxfield wrote:
I understand it as follows.

As a person suffering from Aspergers, you will have huge psychological wounds from feeling rejected, feeling wrong, feeling like an alien, feeling like its all your fault etc. . These wounds are very deep, and will have been there since early childhood.

When you learn you have A.S., it is like medicine or a bandage has been applied to those wounds. You learn for the first time that maybe its not your fault, and you realise your place in the world. The deep wounds can slowly start to heal, and it feels wonderful.

Then some silly person comes along and belittles A.S!
Ouch! So much pain! :? :x :evil: . The bandage has suddenly been ripped off!! ! It hurts and its very confusing.

I think its something most of us can relate to. How to deal with it? I would say I think it gets better over time. The more you find out about AS and allow yourself to psychologically heal, the easier it gets and the less you care what other people think


This sounds right, apart from the word 'suffering'. Asperger's is part of me so it's like saying I suffer from myself, and thinking like that would screw up my self-esteem even more. I think what we aspies suffer from is living in a world designed for neurotypical people.


Good point, well made!



LastSanityJermaine
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18 Dec 2013, 8:33 pm

I just reply "But without labels how would know which can of soup is tomato and the other is chicken noodle"