anyone here change thier diagnoses from Aspergers to SCD

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LtlPinkCoupe
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04 Feb 2014, 1:15 pm

I think I'm still on the spectrum somewhere then....I do have sensory issues and some repetitive stuff I do.


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Marybird
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04 Feb 2014, 1:27 pm

Lumi wrote:
About the different stimming descriptions,
examples of meeting this which impairs functioning?

I don't think stimming impairs functioning.
I think it may be a sign of impaired functioning. Impaired sensory integration, proprioception, anxiety, impulse control, perseveration, executive functioning etc.
I think stimming actually helps functioning.



droppy
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04 Feb 2014, 1:37 pm

I have seen the criteria and SCD looks like HFA/AS without sensory issues, motor coordination issues, obsessions, stimming, problems with change and all the emotional problems autism brings with itself (meltdowns, being unresponsive, overreacting, etc.) to me. It basically is only the social symptoms of autism.
I fit the criteria for SCD but I don't think I have it.
The social part of my condition is the one who has always bothered me the least. The symptoms that are the worse and impair me the most are the sensory issues, my inability to get organized, my poor executive functioning and when I was a child my obsessions (now they don't bother me much anymore).
Also the emotional part bothers me a lot (mood swings, being unresponsive and then overreacting, meltdowns) but I don't think it's all due to AS.
Looking back, once I was way more evidently socially impaired than I am now. I still am socially impaired but not as much as how I was once and anyway the other symptoms bother me way more than my social impairment.
If I have the other symptoms, it's not SCD.



Raziel
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04 Feb 2014, 2:06 pm

droppy wrote:
The social part of my condition is the one who has always bothered me the least. The symptoms that are the worse and impair me the most are the sensory issues, my inability to get organized, my poor executive functioning and when I was a child my obsessions (now they don't bother me much anymore).
Also the emotional part bothers me a lot (mood swings, being unresponsive and then overreacting, meltdowns) but I don't think it's all due to AS.
Looking back, once I was way more evidently socially impaired than I am now. I still am socially impaired but not as much as how I was once and anyway the other symptoms bother me way more than my social impairment.
If I have the other symptoms, it's not SCD.


Same here and I improofed socially a lot since childhood. I had a very low social understanding as a child actually and now my social problems are just very mild. If I just would have my social problems, I propably wouldn't even care. My other stuff is a lot more severe, especially my overload, but also my comorbidities (Tourette, ADHD and depression).


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daydreamer84
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04 Feb 2014, 2:17 pm

Marybird wrote:
Lumi wrote:
About the different stimming descriptions,
examples of meeting this which impairs functioning?

I don't think stimming impairs functioning.
I think it may be a sign of impaired functioning. Impaired sensory integration, proprioception, anxiety, impulse control, perseveration, executive functioning etc.
I think stimming actually helps functioning.


According to the literature repetitive motor and sensory behaviours aka stimming to the point that it would impair functioning is more common in ASD people who also have intellectual disability. In ASD people without ID special interests and need for sameness are more common. Examples of ways that stimming can impair functioning include children who flap their hands and hum all day and therefore can't be engaged so they can be taught language and other important skills they need to survive in this society. Also, some people with ASD have self injurious stims like head banging which can cause brain damage or hand biting or skin picking which can lead to infections and other complications. Stimming does calm me down when I'm anxious and sometimes helps me concentrate so I know what you mean by helping you function but it can and does impair functioning for some people.

As an aside, I really like your avatar, Marybird.



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04 Feb 2014, 2:47 pm

I've gotten RSIs from stimming.



Marybird
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04 Feb 2014, 2:48 pm

daydreamer84 wrote:
As an aside, I really like your avatar, Marybird.

Thank you. :cat:



babybird
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04 Feb 2014, 3:11 pm

It's never really crossed my mind to get it altered. Can I not just leave it as it is?

It doesn't really serve me any purposeful use anyway.


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Marybird
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04 Feb 2014, 3:40 pm

babybird wrote:
It's never really crossed my mind to get it altered. Can I not just leave it as it is?

It doesn't really serve me any purposeful use anyway.

I don't see what difference it would make.
If you need help with social difficulties, wouldn't you get the same help, whether you had an ASD or a SCD diagnosis?



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04 Feb 2014, 4:00 pm

Does anyone here have the feeling the experts are taking people that fit the long standing autism standard, people who are on the spectrum but due to the nature of the spectrum and autism are more borderline/high functioning cases, and just making up new catgories to describe them, taking them off the official definition of who's on the spectrum?


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ZombieBrideXD
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04 Feb 2014, 4:03 pm

Sethno wrote:
Does anyone here have the feeling the experts are taking people that fit the long standing autism standard, people who are on the spectrum but due to the nature of the spectrum and autism are more borderline/high functioning cases, and just making up new catgories to describe them, taking them off the official definition of who's on the spectrum?


no, i beleive that there arent enough different diagnoses, closer to autism to diagnose those higher functioning


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Sethno
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04 Feb 2014, 4:05 pm

Isn't that kind of the same thing?

I mean, I'm not claiming an evil conspiracy to "weaken the ranks", but it almost seems like they're telling people who are autistic, "We're going to say you aren't now."

Confusing.


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daydreamer84
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04 Feb 2014, 4:27 pm

^^^
You're not imagining it. I think there was a concern about over-diagnosis of Asperger's and PDD-NOS so they tried to narrow the criteria. Maybe they need a category for people who have all the symptoms but only mild ,not severe impairment. Seeing as the research into ASD really only began in earnest in the last 10 years I'd say the category and criteria aren't finished developing.



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04 Feb 2014, 5:23 pm

The DSM is the APA's manual not the USA government's. The USA government is a signatory of the ICD which is the UN's manual. The ICD still contains the term Asperger's Syndrome - so the official name of the condition in the USA is Asperger's Syndrome - its the APA that's out of step with the rest of the world not the USA - they are in the pockets of the big pharma - who say we don't need you on our books if you don't need our drugs so they are going to tell parents of kids with very mild aspergers syndrome their kids don't have an autistic spectrum disorder - but that will be a lie - they do have an autism spectrum disorder - what could be the consequences of this act of gross professional and moral negligence be - read http://news.psu.edu/story/267913/2013/0 ... d-attempts and http://www.tribtown.com/view/story/7ed7 ... egislation

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dafyddtomoshyswain.co.uk adriantesq.com dafydd bach death of innocence the compendium [Kindle]



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04 Feb 2014, 5:29 pm

I don't understand all this terminology. it means absolutely nothing to me.

I think I'd rather remain ignorant to be honest. The less I know, the less I need to be worried about.


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04 Feb 2014, 5:33 pm

Quote:
I don't think stimming impairs functioning.


This study is interesting in that respect:

http://download.springer.com/static/pdf/869/art%253A10.1007%252FBF01531586.pdf?auth66=1391725000_6e88e597d4bf0ca5b481c1c1ea4a8e95&ext=.pdf

They studied compared six low-functioning autistic kids, three who had no speech at all (mute) and three who were echolalic. (The echolalic kids also had better overall functioning than the mute kids.) All six kids engaged in a lot of stimming.

They tried to teach each child a simple task, to hand the experimenter a particular shape and not the other one (eg hand him the square, not the circle). The same shape was rewarded each time. The researchers first tried to teach the kids the task without making any effort to stop them stimming. If they didn't learn it, then they tried again, this time stopping the kid whenever they caught the kid stimming.

Among the echolalic kids, all of them learned the task without the experimenter suppressing stimming. Two kids reduced stimming of their own accord, and the third refrained from stimming only when the experimenter was giving a command.

Among the mute kids, however, none of them learned the task in the first phase. However, when the experimenter stopped them from stimming, they all learned the task. This suggests they may learn more poorly when they're stimming at the same time.

Of course, we don't know this for sure. Since the 'stimming suppressed' condition took place after the 'no suppression' condition, it could just be that the mute kids took longer to learn the task and the stimming manipulation made no difference. However, they didn't show any improvement in scores over time in the 'no suppression' condition, so it seems likely that they did need stimming to be suppressed to learn the task.

This suggests that stimming impairs functioning for some kids, but not others.