Not freaking lovely, it is not.
StarTrekker
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Joined: 22 Apr 2012
Age: 32
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant
I would like to vent my frustration right now and say, No, today I'm not going to 'Love Autism'
just not feeling it.
At the moment there are way more issues with Aspergers for my daughter that are not fabulous or awesome.
I'm not loving autism right now. I love my daughter, but the issues she is faced with are not freeking 'lovely'
I have a right to feel this and express that.
Oh I agree. A lot of people glamourise it and gloss over the nastier aspects of having the condition.
It's very hard to constantly see "Aspergers is a gift" all day when the people posting don't know what it feels like to have a meltdown, have to wear earplugs, or be constantly mis-understood.
Yes, yes, and yes.
_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!
I would like to vent my frustration right now and say, No, today I'm not going to 'Love Autism'
just not feeling it.
At the moment there are way more issues with Aspergers for my daughter that are not fabulous or awesome.
I'm not loving autism right now. I love my daughter, but the issues she is faced with are not freeking 'lovely'
I have a right to feel this and express that.
Do people remember the phrase I hear and see a lot? When you meet one person on the autism spectrum, you've only met one person on the autism spectrum.
I do not love my daughters daily almost hourly anxiety, her fear and slight ocd of germs.
Her constant inability to speak in public for 6 hours at school.
Her isolated life, the couch, the bedroom. She is 17 on Monday.
I do not like her constant analysing of nearly everything she does and says.
She is highly vigilant, second guessing everything she thinks about everything she does.
She is a very unsettled, anxious, and timid. This trait falls with HER on the autism spectrum.
I do not love the fact that her friends a year younger than her are maturing at a rate, she is years behind.
They are leaving her behind and connecting less with her and now not even saying hello. My daughter is just there and following, sometimes she doesn't keep up, and they lose her. Hmmm!
I dont know what it takes for someone to post on Facebook 'LOVE AUTISM' I dont want to rant off a list of traits, or lack of, that makes someone say love autism, that would be unfair.
I am not selfish when I say I do not love autism. I'm saying I dont love it for her, not me.
But I know I have to accept she is content being on her own, when society deems this odd, if she is happy screw society.
I will get there, but it is very very hard, seeing this and knowing its happening.
The people that she has been sitting with since year 7(she calls them friends), that there breaks my heart, are really awkward with her now and dont even try anymore.
KingdomOfRats
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Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
leiselmum,
are perfectly entitled to giving own view on here we all have different views including those of us on the spectrum not just the parents.
am glad to see a parent come here and express themselves without denying another persons autism because it doesnt fit their experience-which regulary happens to many of us,thanks for being open minded.
the confusion is because the autistic community sees autism as part of the persons identity/as a whole,so when parents say they hate their childs autism,it can offend autistic people because to those of us who believe its part of a whole;its the same as saying they hate or resent the person, remember autism very often comes with rigid thinking and inability to see someone elses experience without having gone through the same exact experience themself or being around different experiences of it so that is why will find a lot of super optimistic about autism autistics as they havent experienced life outside of their own nor will have lived with other people with all degrees of autism.
we also see autism from a different view to parents,we dont see the behaviors, difficulties or the challenging nature, its our parents that do.
am severely and lf autistic and both parents are proud of self because of all the little goals have made that they never thought woud be able to do like living away from them [have been in institutional and residential care for the past decade], swimming [until just over a month ago had never been able to go in water due to severe sensory issues with it,but thanks to sensory integration therapy and a wet suit as well as swimming three times a week am now an athlete of a special olympics UK swim team].
it doesnt mean theyre super parents and were able to cope,was beaten by dad for every behavior and difficulty because he didnt understand it and he regulary tried to get the authorities to put into a local childrens home which wasnt for disability ,mum turned to alcohol when was five year old because she had developed depression and she is still the same way now but she is able to see the positives am making and not see the autism as a thing but as a neutral part of self.
_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!
I would like to vent my frustration right now and say, No, today I'm not going to 'Love Autism'
just not feeling it.
At the moment there are way more issues with Aspergers for my daughter that are not fabulous or awesome.
I'm not loving autism right now. I love my daughter, but the issues she is faced with are not freeking 'lovely'
I have a right to feel this and express that.
((((♡hugs♡)))
I have days/weeks like that with my husband. If you can, carve out 15 minutes for yourself. Sometimes that is the only thing that keeps me sane.
I kind of understand. I see comments from those types of people saying things like "Autism is a gift". Now, I understand what they mean, but it's not just a gift. It's a bunch of traits that can be positive and negative.
I know someone that thinks all autistic people have insanely high IQs and are all savants. That's damaging for me to see, at least.
KingdomOfRats
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Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
they sound extremely ignorant of the autism spectrum,and probably coudnt be educated on the truth so theyre worth ignoring.
obviously;true savantism is extremely rare and almost everyone with it is significantly developmentaly disabled in some form as the savantism is caused by the brain rerouting the map of brain neurons causing it to take on the hyper abilities.
_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!