Do you have any help in your daiy life?

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MathGirl
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29 Aug 2014, 7:31 pm

asp123 wrote:
Is that really true? Do you all of a sudden just scream and cry and throw yourself on the ground in public?
Not to be rude or anything, but it sounds hilarious
It's not hilarious when you have no awareness of how others perceive you. If I saw somebody doing this in public, I wouldn't be laughing, I would be deeply disturbed. I hit and bite myself in public sometimes, too, because I have no social filter and need an outlet that doesn't involve damaging property or hurting others.


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capri0112
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29 Aug 2014, 7:39 pm

asp123 wrote:
Not to be rude or anything, but it sounds hilarious


Really? How do you think "it sounds hilarious" in response to someone's meltdowns sounds? Kind? Understanding? Empathic?

Why would someone sign into a website designed for people on the autism spectrum, then make a remark that? Wha?? Why are you here???

Maybe you are: curious? puzzled? uninformed?

I hope you are not normally so rude, because your comment definitely was.


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KingdomOfRats
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29 Aug 2014, 7:54 pm

MathGirl wrote:
asp123 wrote:
Is that really true? Do you all of a sudden just scream and cry and throw yourself on the ground in public?
Not to be rude or anything, but it sounds hilarious
It's not hilarious when you have no awareness of how others perceive you. If I saw somebody doing this in public, I wouldn't be laughing, I would be deeply disturbed. I hit and bite myself in public sometimes, too, because I have no social filter and need an outlet that doesn't involve damaging property or hurting others.

personaly woudnt care if someone laughed at self for doing it as woud be completely unaware of them and am completely oblivious to social mockery.
am someone who does collapse to the floor around noise ,and have both severe meltdowns and severe challenging behavior whilst on the floor, its why am in a wheelchair in the community as it extremely restricts mobility,quality of life and the safety of others as well as allowing support staff to manovre self back to the car quickly.

wrongplanet is for many people the only experience they have of autism outside of their own experience so they have a limited understanding of how autism can present and this does create a lot of challenges within our community when it comes to getting understood.
autism is always best aproached with an open mind and basic respect for the individual with it.


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MathGirl
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29 Aug 2014, 8:02 pm

KingdomOfRats wrote:
personaly woudnt care if someone laughed at self for doing it as woud be completely unaware of them and am completely oblivious to social mockery.
am someone who does collapse to the floor around noise ,and have both severe meltdowns and severe challenging behavior whilst on the floor, its why am in a wheelchair in the community as it extremely restricts mobility,quality of life and the safety of others as well as allowing support staff to manovre self back to the car quickly.

wrongplanet is for many people the only experience they have of autism outside of their own experience so they have a limited understanding of how autism can present and this does create a lot of challenges within our community when it comes to getting understood.
autism is always best aproached with an open mind and basic respect for the individual with it.
Even though I haven't experienced sensory issues to this extent, I can imagine my own sensations being amplified. I have experienced meltdowns in very noisy settings, I don't collapse but I do have to hit something and inflict pain on myself to regain control & fell grounded. So I can relate to your experience somewhat and it's beyond me how someone on the spectrum can have such an opposite reaction when seeing somebody go through this.

I would be emotionally hurt if somebody laughed at me but it wouldn't stop me from having a meltdown. I think I've developed a traumatic reaction to laughter as a result of past bullying; now whenever I hear laughter, I am very sensitive to the sound of it, and I think people are laughing at me.


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EzraS
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29 Aug 2014, 11:49 pm

asp123 wrote:
DarkAscent wrote:
I have Asperger's. Using public transport is definitely one thing that I require assistance with. The crowds make me feel nervous and painful, loud sounds often override my senses and might make me cry or scream or melt down. Planning is another and because I can never work out people's intentions, my parents help me with that. Because I also lack self-awareness, my parents will help me fix mistakes that I cannot detect when I dress myself.

But I can wash my own clothes and go to places by myself once I learn a safe and steady route.


Is that really true? Do you all of a sudden just scream and cry and throw yourself on the ground in public?
Not to be rude or anything, but it sounds hilarious


There's nothing remotely funny about a sensory overload meltdown and the agony of them. Your remark sounds trollish to me...but maybe you don't know better.



DarkAscent
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30 Aug 2014, 9:36 am

asp123 wrote:
DarkAscent wrote:
I have Asperger's. Using public transport is definitely one thing that I require assistance with. The crowds make me feel nervous and painful, loud sounds often override my senses and might make me cry or scream or melt down. Planning is another and because I can never work out people's intentions, my parents help me with that. Because I also lack self-awareness, my parents will help me fix mistakes that I cannot detect when I dress myself.

But I can wash my own clothes and go to places by myself once I learn a safe and steady route.


Is that really true? Do you all of a sudden just scream and cry and throw yourself on the ground in public?
Not to be rude or anything, but it sounds hilarious


Yes, I will cover my ears and scream and cry because it is so painful. I might hit myself or bang my head and I would be very fearful and terrified.

No, it is not "hilarious" to experience and go through. If you have meltdowns are they "hilarious" or amusing to go through and experience? If you were to have a meltdown in public or in front of me I would not think that it is funny at all nor would I laugh. I would think that it is horrific if you were screaming and crying, or hitting yourself and banging your head.

That's all I'm going to say.



DarkAscent
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30 Aug 2014, 9:36 am

KingdomOfRats, MathGirl, capri0112 and EzraS, thank you for your support and understanding. :)



KingdomOfRats
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30 Aug 2014, 5:51 pm

DarkAscent wrote:
KingdomOfRats, MathGirl, capri0112 and EzraS, thank you for your support and understanding. :)

no problem DA, this is a community; everyone shoud defend the right of their fellow autist to be part of it without mockery- theres enough of that in 'real life' without getting it off each other to.


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EzraS
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30 Aug 2014, 7:18 pm

I've had more severe meltdowns then I possibly ever count. They are awful.



Waterfalls
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30 Aug 2014, 7:40 pm

Just about everyone needs help of some kind. Some of the most judgmental about what I depend on others for are leaning on people without even knowing they do it. Gets frustrating and tiresome being judged.



Rattus
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31 Aug 2014, 1:16 am

EzraS wrote:
I've had more severe meltdowns then I possibly ever count. They are awful.


I agree and understand.



Yes I have help throughout the day, mainly to help keep me safe and allow me to live my life in as independant way as I can. I live in a housing set-up of a few adults who have complex difficulties inparticular being on the spectrum and having multiple co-morbidities and who need 24 hour flexible support. It means there are always staff members in the building 24 hours a day and I can access them at anytime and I'm entitled to a good number of hours of support every day.


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DarkAscent
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31 Aug 2014, 3:17 am

EzraS wrote:
I've had more severe meltdowns then I possibly ever count. They are awful.


I agree and understand too. All autistic people who have meltdowns dread them.



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31 Aug 2014, 4:42 am

loner1984 wrote:
Thanks to being on early retirement or pension whatever its called in english.

I can do most of the things for myself. and that was the goal by seeking that, I would rather be able to take mostly care of my self, than having a job and then having someone have to cook, clean, shop and such, which would be the case sadly.

But i do most stuff myself. Still learning to wash clothes, it just seems hard to nail down, because one piece of wrong clothes can ruin the entire wash. And too much soap and you will be scratching. Its really the only thing that im missing to being self reliant.


you are retiring? but you are 30...? did you have a high paying job?


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LifUlfur
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31 Aug 2014, 4:51 am

no, not really. (in answer to the original question - sorry for double post, wasn't sure..... *continues to babble without reason*) but that is because i rarely go outside except for school and i have strict routines which
prevent almost everything from going wrong. i have help from my parents daily and i do not have responsibilities like shopping (we go every week - me + dad) so i do not have to take care of myself in the same
way as an adult does (like a job or paying the rent or having to meet people regularly) . i hate public transport and do everything to avoid it, it is a very curious concept :P.
having a bunch of people in a small space while everybody tries not to look or talk to each other, it would be heaven apart from the first bit.


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babybird
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31 Aug 2014, 10:08 am

I wasn't diagnosed until I was an adult, but irrespective of that I got a lot of hep when I was a teenager with things such as getting washed and dressed properly, eating, sleeping and other stuff as well.

I was kind of on my own once I turned 18 so I slipped back again but I reckon since I was about 30 things just slotted into place.

But I am quite strict with myself where my routine is concerned because that's the only thing I have to rely on.


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Deb1970
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31 Aug 2014, 11:18 am

I live alone in a house. When I was younger I had to have allot of support. Someone to get me out of bed, take a shower, cook, clean and go to work. Now I can get out of bed most of the time, go to work, my challenge is still organization. Cleaning and laundry are still hard. Cooking I still can't do unless it is frozen and can be put in the microwave. Cooking in the oven is still hard, I forget to take it out when I'm suppose to. My car most of the time has stuff in it to the point I have to move things in order for someone to ride with me. My co workers tell me when I need my hair cut. I'm not sure how I manage to pay my bills. Many of them I forget about, like doctor's bills.


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