Where did you get most of your information on ASDs from?

Page 2 of 2 [ 27 posts ]  Go to page Previous  1, 2

Magthidon
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 17 Dec 2014
Age: 34
Gender: Male
Posts: 67

09 Mar 2015, 4:02 am

Initially from random medical websites, but then I stumbled upon Amethyst Schaber's YouTube videos and they really opened my eyes.



Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

09 Mar 2015, 5:57 am

Ettina wrote:
B19 wrote:
Books written by ASD writers?
Blogs by people on the spectrum?


Pretty much all stuff by people on the spectrum. The stuff written by 'experts' didn't resonate with me at all, because they were talking about outward appearance and I didn't realize how I appeared to others. But people on the spectrum described feelings I had felt too and never realized anyone else had.


^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

Can I agree with this to 10,000%?



cyberdad
Veteran
Veteran

User avatar

Joined: 21 Feb 2011
Age: 57
Gender: Male
Posts: 36,036

09 Mar 2015, 6:20 am

DSM mostly

I used to read Baron-Cohen and Attwood publications but now realise that nuero-plasticity of the brain is greater than whatever patterns of autism they predict...



kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

09 Mar 2015, 9:00 am

Old case studies, Tony Attwood, Temple Grandin, blogs from people with ASD's. My own life.



gamerdad
Toucan
Toucan

User avatar

Joined: 20 Jul 2014
Age: 41
Gender: Male
Posts: 288

09 Mar 2015, 9:58 am

Sources that I've found useful in (in order of helpfulness that they've been to me):

-Blogs by people on the spectrum
-Books written by ASD writers
-Books written by "experts" (Have only really read the Attwood book, but it was really eye opening)
-Family members
-People on WP
-Psychologists (1 very helpful, 2 very unhelpful)
-Self-diagnostic tests online (very helpful when initially starting the process, but worthless after that)
-Articles/blogs on the net (Mixed bag here. Aspiestrategy.com is excellent but there's also a lot of crap out there by NT authors)
-Scientific articles (Often make for interesting reading, but contain little directly applicable information)

Sources that I've consulted but have found almost completely useless:

-The DSM (IMO, it focuses too much on outward signs and not their underlying causes. May be useful for NT psychologists evaluating others, but not much use for actually understanding ASD.)
-The news media

Sources that I've not consulted with:

-Courses
-Conferences
-Psychiatrists
-Other therapists
-Friends
-Formal study at university
-Teachers or adults at school
-Doctors



androbot01
Veteran
Veteran

User avatar

Joined: 17 Sep 2014
Age: 54
Gender: Female
Posts: 6,746
Location: Kingston, Ontario, Canada

09 Mar 2015, 10:07 am

WrongPlanet
Autism Women's Network
My own experience



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

09 Mar 2015, 10:14 am

MOST USEFUL
1. Scientific articles
2. The DSM/The ICD
3. Books written by "experts" (Attwood)
4. Self-diagnostic tests online
5. People on WP

LESS USEFUL
1. Articles/blogs on the net
2. Blogs by people on the spectrum
3. Conferences
4. Other therapists
5. The news media
6. Family members
7. Friends

HAVEN’T TRIED
1. Formal study at university
2. Books written by ASD writers
3. Psychiatrists
4. Psychologists
5. Courses
6. Doctors
7. Teachers or adults at school


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 36,256
Location: Long Island, New York

09 Mar 2015, 10:34 am

Blogs, articles, youtube videos by Autistic and experts and WP people in my support groups. I do plan to read the recommended books at some point.

What has been most important to me?. A combination of 57 years experience living as an autistic person, the
The person a clinician with 30 years experience saying "I have no problem diagnosing you with Aspergers" then writing in my diagnostic report I was moderate to severe. Her discussing what I thought was being normal was a coping mechism.

And most of all this video I watched shortly after diagnosis and have watched a number of times since.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


rugulach
Toucan
Toucan

User avatar

Joined: 14 Jun 2014
Age: 2005
Gender: Male
Posts: 282

09 Mar 2015, 10:59 am

ASPartOfMe wrote:
Blogs, articles, youtube videos by Autistic and experts and WP people in my support groups. I do plan to read the recommended books at some point.

What has been most important to me?. A combination of 57 years experience living as an autistic person, the
The person a clinician with 30 years experience saying "I have no problem diagnosing you with Aspergers" then writing in my diagnostic report I was moderate to severe. Her discussing what I thought was being normal was a coping mechism.

And most of all this video I watched shortly after diagnosis and have watched a number of times since.


Wasn't there a thread recently asking where beautiful female aspies were? This woman right here is a fine example. :)



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 36,256
Location: Long Island, New York

09 Mar 2015, 11:21 am

rugulach wrote:
ASPartOfMe wrote:
Blogs, articles, youtube videos by Autistic and experts and WP people in my support groups. I do plan to read the recommended books at some point.

What has been most important to me?. A combination of 57 years experience living as an autistic person, the
The person a clinician with 30 years experience saying "I have no problem diagnosing you with Aspergers" then writing in my diagnostic report I was moderate to severe. Her discussing what I thought was being normal was a coping mechism.

And most of all this video I watched shortly after diagnosis and have watched a number of times since.


Wasn't there a thread recently asking where beautiful female aspies were? This woman right here is a fine example. :)

By the time I remembered her the thread was finished. While of course as a heterosexual male I noticed her looks but her value to me was in teaching me what I actually was doing for 55 years as an Aspie-Autistic in an NT world was very different from what I thought I was doing.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


rugulach
Toucan
Toucan

User avatar

Joined: 14 Jun 2014
Age: 2005
Gender: Male
Posts: 282

09 Mar 2015, 12:55 pm

ASPartOfMe wrote:
rugulach wrote:
Wasn't there a thread recently asking where beautiful female aspies were? This woman right here is a fine example. :)

By the time I remembered her the thread was finished. While of course as a heterosexual male I noticed her looks but her value to me was in teaching me what I actually was doing for 55 years as an Aspie-Autistic in an NT world was very different from what I thought I was doing.


Of course, what she says has value but her beauty is a bonus and reminded me of that recent thread.