I'm one of the people that are "caught in the middle" as some doctors and other professionals here say. Not disabled enough that no one could question the fact that I need some kind of help, yet "too normal" to get any help without making long and detailed written explanations by me, my parents and some professionals who've worked with me to get any form or help. Actually, while I do get financial support in the form of disability allowance, it has nothing to do with autism. It's because of my medically easily proven disability that I was born with (or acguired in a very young age; the doctors aren't sure.) However the help is a rather small sum considering how serious the condition is... I had a surgery in 2015 and the cost of it and everything related to it was really high. I mean it normally pretty much covers the expences that this condition brings, but when (and it's really when, not if) things start going bad again it won't really cover it.
The biggest problem is that neither autism or this condition (unless you're experienced professional, then you might see the later one without seeing any papers) can't be seen from the outside, so people don't usually believe it even if they're told. This means most doctors and nurses I've dealt with, too, the ones who handle common every day cases like bad colds, broken bones and common diseases. Even if I tell them about these problems they don't usually believe and if I say to look it up from my files and they do they tend to get pissed because they were wrong and I was right.
At the moment my biggest problem are the employment services: while they believe that I have an actual, physical disability (because I've delivered many documents that prove it) even if they can't see it they have no information on it or what it means (in the end it's rather rare.) I have to explain everything every time there's someone new (why don't they just write it up?) and I'm pretty sure I always forget something. As for autism, well... I've kind of given up on trying to get help to my social problems from there. I have an official diagnosis and they know it, but they don't seem cabable of understanding what it means, much less what it means in my case. For example I've been trying to tell them that I suspect the reason I tend to fail at job interviews is that my body language (or something like that) doesn't please the interviewer, but they think that such a thing is impossible, that no one would be ruled out by something like that. I've watched body language tutorials and read about correct body language, but somewhat knowing the theory is not the same as understanding it or being able to do it in a real life situation. But does anybody get this? Nope, no they don't.
13 Sep 2017, 8:51 am
