Needing suggestions for guidelines about ASD & hospitals

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Pandanus
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02 Aug 2017, 7:17 pm

Sorry, I don't know about the situation in the US. We're very lucky in the UK to have such good legislation, which means that often if you passive-aggressively wave the relevant subsection of the statutory guidance in the face of services that are being [expletive] then they will often immediately do the right thing. As you say, it makes more effective use of their time to meet patients' communication needs.



DataB4
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02 Aug 2017, 7:30 pm

Yes, I've done that myself. I don't know if anyone's tried advocating for her that way though. She'll often bring someone to help her, but the system shouldn't force her to do that.



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10 Oct 2017, 5:00 pm

Pandanus wrote:
Sorry, I don't know about the situation in the US. We're very lucky in the UK to have such good legislation, which means that often if you passive-aggressively wave the relevant subsection of the statutory guidance in the face of services that are being [expletive] then they will often immediately do the right thing. As you say, it makes more effective use of their time to meet patients' communication needs.



You are joking here right? Are you trying to imply that waving around the 'Magic Wand' in the face of specialists it might encourage an offer of a rebuke retrieval initiative? i.e more extensive written/vocal planning of the studies faced when operating in theatre on autistics?
My consultant is one of I'm sure many up -and -coming consultants who have had to backtrack or back down on their futile cognitive approach to 'handling anything' and almost forcibly admit to their patient where my procedure might have gone wrong. Even with the right approach tactic in mind, for an autistic patient to fully absorb everything a try out surgeon is saying for arguments sake of a path he's only pursued once or twice beggars chance bewilderment at all the unrealistic stats to be bended and bandied around in my face.
I appreciate they are under some sort of protocol from guidance consultants who are in charge of the field, but when they then try to thrust you headfirst into that field, its not just one effort but eventually two that has to be made.
Under referral for a root resection from a failed procedure, due to insufficient scanning and full tooth extraction.
Usually when someone informs me of something in detail, the rapid thought processing comes into play itself later, sometimes the same day, sometimes up to a week. Its probably so I can work out in my mind where I'm at and can justify the feedback with a sensible resolve of a barely just cause.
In conclusion, I went to the head consultant of the max fax department who never suggested I have this special scan prior to operating and was trying to figure out ways to make the pain go away by itself without damaging anything.
How on earth can I tell how skilled a surgeons hands are, let alone their expertise? I opted for what I thought was right for me, and ended up paying the price, verbally speaking, on both procedures to be faced in due course.
Too late to diagnose pain after the event and then do the clean up of a messy job no one wants to do and take on board the full responsibility of what the probable outcome was. What I can confirm though is that I was right all along on what the pain was post op, and that was the root. Not that it had migrated but he couldn't cut it right down to size because it was too thin; more thinking tells me that he made the wrong cut, or s**t happened I wasn't aware of hence the sever post bleed and unpleasant suturing. So now, I am meant to forgive this incompetent struggling on the ground consultant who no one will back on this one minor proceedure, all because I was booked to go in on the wrong day by another discorded nurse.
This time around, same person, hopefully new eyes, and better vision, or god help the NHS.
The reason he's not working in London is because he's not regarded as compassionate or as marginally contained as some of the guys he referred me to. You start off small in life, you go nowhere fast.
He tells me ''he is'' compassionate, and I'm not fair to make assumptions. Excuse me doc, I made the right evaluation based on the work he done on me, nothing more nothing less, and if it doesn't go right this time, I'll make sure not one of them can give the go ahead to anyone else, ever again.