Diagnosed as adult: how to tell family?
That's the line my parents are taking right now. "Well, if it helps you to believe it..." Sigh.
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I am an acquired taste.
How trivialising, condescending, patronising and dismissive that comment from your parents is; it is a kind of fake acceptance of your situation, wrapped up in seemingly innocuous words beneath which is a passive aggressive theme. Ugh. Are they like that generally, as people, intolerant of any opinion other than their own, or perpetual chronic invalidators, or is this an isolated example from them, because they have a defensiveness toward anything to do with "autism" as they (mis)understand it? Couldn't possibly be in their ("normal") family???
"Well if it makes you feel better..." I very much dislike these snide passive aggressive attempts at "humouring" people. Not a genuinely adult form of open and honest communication at all. (And NTs are said to hold the corner on being good communicators? By whose standards? Their own.. )
That's the line my parents are taking right now. "Well, if it helps you to believe it..." Sigh.
This is a really common response. Family doesn't have to be polite or considerate to you, so they're likely to say to your face what other people are maybe only thinking.
From what I've noticed in my husband's family, it seems like they have set pictures of each other and it's difficult for them to adjust the pictures with time. Like if one family member used to be a cry baby but is now a successful career person, it doesn't matter, he's always a cry baby.
I've always known I was a bit different but after moving in with my girlfriend last year and my first child being born earlier this year things got to breaking point between me & my girlfriend so I decided to go to my doctor. He was really good and referred me to the local aspergers team who after my assessment have put me on the waiting list for an official diagnosis.
My dilemma is as part of the diagnosis they would need to have somebody present who has known me since childhood (ie one of my parents) but I still don't know if I want to tell them and I think going back over my childhood (especially the bad things) would do more harm than good to me & my parents.
So far the only people that know are my girlfriend & a few people at work (my managers & HR) who have been really good, I do quite a specialist job which I think the way I am is actually a benefit which my employer recognises too.
The quote below sums up the way I'm thinking at the moment. I'm thinking about not bothering with going through with the official diagnosis as all it will be is a label on me for being a bit different.
Could you take an aunt or uncle? My aunt is not a kid person and to be honest she and I don't get along all that well, but she was around me when I was a kid and remembers things about me that I don't remember. Someone like that is more likely to be quiet about it until you're ready to talk to the rest of the family.
This book is very useful as I find myself having to discuss my autism with different people in different areas of my life: Coming Out Asperger - Diagnosis, Disclosure and Self-Confidence edited by Dinah Murray
GodzillaWoman, my advise for the conversation that you want to have with your family:
1) Schedule some time (possibly on the last day of your stay with your family so that if the conversation goes poorly you won't be stuck there for too long). Ask if everyone would mind taking half an hour to sit down with you to discuss some important news; this will give you a good chance of having un-distracted people ready to listen. If scheduling a conversation seems uncomfortable try scheduling it as a meal that you will volunteer ahead of time to cook/get take-out for.
2) Make a short, point-form list that outlines how you will guide the conversation when you speak with your family (because stress causes confusion having the list in front of you can be very helpful). The list could look like this:
- I have (diagnosis)
- Short description of (diagnosis)
- I want to tell you that I have (diagnosis) because learning about it has really helped me to understand myself better; I value you and want you to understand me better too. I want to be open with you so that we can have the best relationship possible.
- List a few ways in which the diagnosis has helped you already and the ways that you hope it will help you moving forward.
- Bring copies of a book about (diagnosis) that you have read and found useful for each family member. B19 suggested Tony Attwood's "The Complete Guide to Aspergers" which I think is a really good choice. Ask them to read the book and tell them that you hope that as they read they will call or e-mail to discuss it with you. If your family are not enthusiastic readers, you could bring a documentary instead.
Very best wishes - I hope it goes really well. When I told my family it went ok: no one was angry or negative, but I wished that I had had some resources ready to point them to immediately and that I had structured the initial conversation in a way that would be short and invite ongoing follow up (1 to 1) because that would have been less stressful for me than trying to formulate answers to questions quickly in a group.
I think that, yes, it is partly misunderstanding autism. And it is partly not wanting to admit that our not-so-normal-to-begin-with family is even less "normal".
I choose to believe it's not a snide remarks but rather a phase they are going through trying to reconcile their reality with mine.
I'll try to educate them and remember we love each other, which we do even when we think the other is slightly delusional.
-edited to fix typo
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I am an acquired taste.
Thanks Mild Mannered Misanthrope and B19 for the book suggestions. My mom is a professor so I think she is going to respect literature the most (including the nice, new, official diagnosis document). I am half expecting something similar to the condescending comment Nuthatchnut got, only mine will be along the lines of "this is another phase you're going through, isn't it?" My brother will probably be annoyed that I'm stealing attention away from his latest family drama/money woes/attempt to hit Mom up for another "loan."
I'm honestly not getting my hopes up too much here for any kind of Hallmark movie moment. Sometimes they are pretty supportive when big issues come up, sometimes not so much. If I get yelled at or called names, I think I'm going to take a break from the family for a while, and try to detach a bit from the drama.
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Diagnosed Bipolar II in 2012, Autism spectrum disorder (moderate) & ADHD in 2015.
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