How should I tell people about AS Diagnosis?
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BirdInFlight
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Joined: 8 Jun 2013
Age: 63
Gender: Female
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Some people find that things work out better for them if they don't disclose to anyone, but instead simply address specific traits or symptoms as and when (or if) they come up.
Tony Attwood a specialist in Asperger's, recommends sentences that begin with "I'm the type of person who...." -- gets a bit more anxious than most people/ doesn't cope well with crowds or noisy places/ doesn't smile much even though I'm feeling fine inside -- etc etc.
Explain the trait at hand rather than the whole autism spectrum. It's my opinion, personally, that autism and Asperger's STILL is not understood at all by most people in the general public, and to tell them the label just makes their minds bring to the fore a whole bunch of strange ideas and mistaken stereotypes that you will have even more trouble arguing about or trying to educate them about.
I've told two people and had bad experiences with both. One of them has blabbed her freakin' mouth to everyone she knows, so that now there's a bunch of people I run into on a casual basis who know this about me when it would ever have been my intention to tell it to those specific people. My friend has treated it like it's her information to hand out as public knowledge, and I never permitted that -- she just assumed it, like it's no big deal.
It's a big deal to me because I've decided it's private and only a "need to know" basis will be operated - by me. She's blown that for me.
The other friend I told literally, physically laughed in my face. I've had to "educate" him about the spectrum and it's an uphill climb. It's hard work. It's something that now keeps cropping up. So instead of just socializing, which is already hard work for me, I now have this "educator" role too -- I'm exhausted.
I would tell "just go read this book" but he's not much of a reader.
I can't be freaking bothered with this BS. So I'm just not bothering to tell anyone anymore.
EDIT -- just remembered -- there was a third person I told. I used to work for her (she's a client). One day I had acute anxiety trying to leave when her kids were blocking the door and acting up. I didn't have an outright meltdown or anything at all horrible, I just became anxious, slightly shutdown, and left in a huge hurry.
I later apologized to her and actually explained I have been diagnosed with Asperger's. She's a child psychologist, so I figured she would have an understanding that it's no big thing. She replied "Oh I totally understand."
Interestingly, after a week or so I found a nice note and gift from her, "letting me go" /no longer requiring my services. I had been working for her for about three years prior to this.
No way of knowing (and she would deny it anyway) if it was my anxiety attack and my disclosure that prompted the letting me go. But file it under "things that make ya go hmmm..."
Hi. I was diagnosed earlier this year and have gone through the same dilemma. I haven't told and I'm glad I didn't. It was hard as I wanted to tell very badly but once its out its out so take your time in deciding who to tell and how much.
I don't use the terms Aspergers or Autism but I might explain a difficulty; for example "sorry I am bad at remembering names, please can you remind me what he's called".
I spoke to a couple of my friends abut my suspicions pre diagnosis and that I was thinking of getting a diagnisis and neither has asked since if I went for a diagnosis which I think is telling, ie they don't want to know (shrug)
Good luck
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I was diagnosed with Aspergers in 2015 when I was 41. I live in the UK (NE Scotland).
Yep, same here with people treating me like they didn't want to hear about it - i mentioned it ahead of time to some close family and one of my brothers who probably knew me best (he's since died) replied with "Jesus, you've always seemed pretty normal to me".
It really upset me that he completely dismissed me like that and invalidated what I was thinking and feeling, plus implied that in order to have Asperger's one must be visibly "not normal". I gave up on being diagnosed for a few years at that point largely because of that. Telling people doesn't always do what you think it will. It definitely never buys compassion... which is too bad because that's what I felt I needed the most and wasn't getting, and therefore prompted me wanting a diagnosis! oh well. it is what it is. and I am who I am, label or not.
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~ ( Living in Parentheses ) - female aspie, diagnosed at 42 ~
BAP: 132 aloof, 121 rigid, 84 pragmatic // Cambridge Face Memory Test: 62% // AQ: 39
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