Help! I desperately need advice from people who understand.
fullcolor wrote:
At 19 he is probably beginning to see other people his age (friends, strangers, and people on TV) zoom past him into adult life. People younger than him will also be zooming past, adapting to challenges, apparently without effort. These people all mysteriously just know what to do, and it can be very painful to struggle with any task that other people accomplish faster. Everyone has at least occasional moments where they feel stupid and embarrassed compared to others. If you can recall a moment like that in your life, consider how painful it would be to encounter those moments frequently, relentlessly, and in nontrivial situations such as work, dating, etc.
It is likely frustrating, confusing, and depressing. Video games are predictable and consistent, unlike the rest of the world. Projects he can work on by himself may help him relax and build useful skills. There are certainly many possible applications of math or other interests he has. Having a bubble to hide in may be quite helpful, so long as he can also learn that he also has a place in the world.
Those of us who grew up before autism was even moderately understood were simply told to “try harder”, “apply yourself”, and “you’re smart so you have no excuses”. Let him know there are many, many people much like him, and the older ones were simply kicked when they stumbled, and then kicked harder and harder with every error, as if this would motivate and improve us. He lives in a time when information and help is still quite imperfect, but far better than nothing. Teach him to use those resources and never believe he doesn’t belong in this world. It is not really the “wrong planet”, but it can feel that way.
It is likely frustrating, confusing, and depressing. Video games are predictable and consistent, unlike the rest of the world. Projects he can work on by himself may help him relax and build useful skills. There are certainly many possible applications of math or other interests he has. Having a bubble to hide in may be quite helpful, so long as he can also learn that he also has a place in the world.
Those of us who grew up before autism was even moderately understood were simply told to “try harder”, “apply yourself”, and “you’re smart so you have no excuses”. Let him know there are many, many people much like him, and the older ones were simply kicked when they stumbled, and then kicked harder and harder with every error, as if this would motivate and improve us. He lives in a time when information and help is still quite imperfect, but far better than nothing. Teach him to use those resources and never believe he doesn’t belong in this world. It is not really the “wrong planet”, but it can feel that way.
This made me cry. Thank you for that comparison. Yes, everyone feels worthless and foolish at times. It's so hard as a parent to see your beloved child struggling and not be able to fix it. I will do my best.
champton911 wrote:
the_phoenix wrote:
Is there any way he can attend anime conventions or comic con conventions?
That way, when he works, part of the incentive can be for saving money to attend the conventions.
In my case, I'm involved in Star Trek fandom
and just yesterday attended Steel City Con outside of Pittsburgh.
There were plenty of anime fans there.
...
That way, when he works, part of the incentive can be for saving money to attend the conventions.
In my case, I'm involved in Star Trek fandom
and just yesterday attended Steel City Con outside of Pittsburgh.
There were plenty of anime fans there.
...
Great idea! I bet he would love that! We're in Oklahoma City. How do I find out when and where these are?
You can do a Google search, typing in key words like
anime con Oklahoma convention comic book Japanese animation
The biggest and best anime con in Oklahoma appears to be in Tulsa, and is called Tokyo in Tulsa:
http://www.tokyointulsa.com/
Here's one in Oklahoma City: These cons tend to be annual and take place around the same time each year.
http://www.amazingoklahomacitycomiccon.com/news/
Is he into cosplay? If so, he might like to put a costume together of his favorite character several months in advance.
As for Steel City Con, here's who I got to either see on stage or meet in person:
1) Sean Astin who played hobbit Samwise Gamgee in the Lord of the Rings movie
2) Walter Koenig who played Chekov in Star Trek
3) Corbin Bernsen who's had many roles in movies and TV, I like him because he was a Q in Star Trek
4) Larry Thomas, the Soup Nazi from the Seinfeld TV show ... I got his autographed cookbook!
If he likes other aspects of fandom, I can help.
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_________________
~~ the phoenix
"It's the end of the world as we know it, and I feel fine." -- REM
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champton911 wrote:
the_phoenix wrote:
Is there any way he can attend anime conventions or comic con conventions?
That way, when he works, part of the incentive can be for saving money to attend the conventions.
In my case, I'm involved in Star Trek fandom
and just yesterday attended Steel City Con outside of Pittsburgh.
There were plenty of anime fans there.
...
That way, when he works, part of the incentive can be for saving money to attend the conventions.
In my case, I'm involved in Star Trek fandom
and just yesterday attended Steel City Con outside of Pittsburgh.
There were plenty of anime fans there.
...
Great idea! I bet he would love that! We're in Oklahoma City. How do I find out when and where these are?
It's a little far away, but All-Con in Dallas is good.. It's usually in March, and it's one of the smaller Cons, but definitely worth attending.
champton911 wrote:
shlaifu wrote:
He sounds like me.
The kid probably, like me, sees new things as borderline impossible feats, as he (and I) have so little .... Social experience to have intuitively figured out that you need to talk to people.
He's likely to have similar problems and anxieties after college, and might need some help finding a job, but as it sounds, he might be good at what he finally decides to do.
I am, but I needed friends and family to help me, and sometimes make decisions for me.
Family decided to kick me out, friend helped me get his old flat when he moved out- because the sheer concept of going to places and look at flats and then just decide that this would be where I'd want to live is .... Such a big decision- how could I make such a decision in advance?
Also, in case this actually all fits to your son: tell him how life works. Literally. I could do with some advice - or rather, could have done.
Tell him what the next steps will be. How normal people get a job. It'll be weird to him, going to a strange place, and meeting up with a stranger for a chat. Tell him what a normal interview looks like. I know I didn't get the memo on how life works, and telling me to just do things is useless, because... How do you do that, exactly?
The thing is: I could not imagine myself doing certain things in life. I maybe would have wanted to, but the emphasis is on "I could not Imagine it." - and it's hard to decide on what you want to do in life, if you can't imagine things, and yourself in it.
I am trying to push myself to do things, by just mechanically answering "yes" to everything, and think later (a lesson I have learned. If I was asked to think if I would like, say a certain job, I'd probably find a reason not to want it). That seems to be, for me, the safest way to get to do things, but I'm still unable to follow a goal without knowing the exact steps towards that goal.
The kid probably, like me, sees new things as borderline impossible feats, as he (and I) have so little .... Social experience to have intuitively figured out that you need to talk to people.
He's likely to have similar problems and anxieties after college, and might need some help finding a job, but as it sounds, he might be good at what he finally decides to do.
I am, but I needed friends and family to help me, and sometimes make decisions for me.
Family decided to kick me out, friend helped me get his old flat when he moved out- because the sheer concept of going to places and look at flats and then just decide that this would be where I'd want to live is .... Such a big decision- how could I make such a decision in advance?
Also, in case this actually all fits to your son: tell him how life works. Literally. I could do with some advice - or rather, could have done.
Tell him what the next steps will be. How normal people get a job. It'll be weird to him, going to a strange place, and meeting up with a stranger for a chat. Tell him what a normal interview looks like. I know I didn't get the memo on how life works, and telling me to just do things is useless, because... How do you do that, exactly?
The thing is: I could not imagine myself doing certain things in life. I maybe would have wanted to, but the emphasis is on "I could not Imagine it." - and it's hard to decide on what you want to do in life, if you can't imagine things, and yourself in it.
I am trying to push myself to do things, by just mechanically answering "yes" to everything, and think later (a lesson I have learned. If I was asked to think if I would like, say a certain job, I'd probably find a reason not to want it). That seems to be, for me, the safest way to get to do things, but I'm still unable to follow a goal without knowing the exact steps towards that goal.
So, I had this complete response typed out for you and before I could post it, my iPad died. LOL
Anyway, I think it's great that you are pushing yourself. I'm going to talk to his dad about the advice I've gotten from you and others here. He doesn't want to drive but there are plenty of places within walking distance he can apply. I'm also working on getting his transition services in place. It's been hard because his dad had all of his paperwork and misplaced it in the move. So I'm trying to get replacements.
Why does he not want to drive?
I always enjoyed it, but I was a horrible driver. I haven't owned a car in years (living in a european city, no actual need for one)
About pushing myself: I've experienced burn-out and depression that way, thlugh, because I don' have a sense for when I'm pushing myself beyond a breaking point- up until which I will feel and seem pretty normal, or even enjoying myself.
(Happened twice so far, and the second time was without a safety net, like college (i.e. a plan for the next few years)- and I've only recently started to recover somewhat and started to push myself again.)
So.... This is not a *good* solution, but one that leads to some (severe) ups and downs, instead of monotonous slow decline.
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