How would you describe your life with Aspergers?
My autism is a wall.
The wall has some holes in it.
I'm inside the wall. I'm a confident, smart and capable person. I'm a great communicator. But everything I say or do will have to get through the wall. Many things get blocked and can't find their way through. Some things manage to squeeze through the holes. Sometimes, they get through in the right order. Sometimes, they're jumbled up.
My thoughts are inside the wall, too. They also struggle to get out. Things that really don't matter, or should be minor, can't escape. They end up bouncing around, trying to get through the wall. They don't usually manage. As a result, they get far too much of my attention and have too much of an impact because they're bouncing everywhere and constantly getting in the way.
Things can't easily get in, either. Everything tries to get through the holes in the wall. It all tries to rush in at once, even if it isn't essential. This puts enormous pressure on the wall, and when I'm trying to focus on getting the right information in through the holes and leaving the bits I don't need outside, it all goes wrong and I can't work out what I need and what I don't. As a result, the wrong bits sometimes get in or it's all I can do to block up the holes and just shut down.
And there are no windows in the wall. Things are either inside or outside, so I'm not good with other perspectives and mental shades of grey. I struggle to see what other people are seeing, because I'm on one side of the wall with my thoughts, experiences and views. I don't see what other people see, on the outside of the wall, except on occasion when I catch a glimpse through one of the holes.
It's obvious from the above what the negatives of being inside the wall are, though some parts are also positive. The wall has protected me from a lot of situations, from properly negative ones to simple social ones that I would never have wanted to be involved in. I also tend to feel that being inside the wall has always meant that I've never been bothered about my image like other people on the outside. I might get frustrated about things that I can't do, but I've never cared for trying to actually impress anyone else. I'm happy with the simple things in life, and being myself, because the people outside the wall for the most part don't matter to me.
Interestingly, it's like my husband has found the biggest hole in the wall and can help me to send things through (in either direction), whilst my daughter seems to just be able to teleport from one side to another like magic! She has to enter my autistic side of the wall, she still can't get me to the other side of it, but she gets to see the me that is inside the wall which is something that only she has ever experienced.
I get by OK most of the time, but I'm easily overwhelmed when things change unexpectedly and come at me too quickly.
Lately my job has been taking a mental toll on me, as the work load increases and I have very little (if any time) to pause and gather my thoughts between tasks. If I could sit down for even 5 minutes between tasks and "downshift" periodically, it would help mitigate the daily onslaught considerably. When people ask me questions about something other than what I'm doing at that exact time in these frenzied moments, I know I sound stupid to them because I have a hard time processing and verbalizing a coherent response.
Most days I manage to pass, but by the time I get home and the mask comes off, I'm mentally in shambles. I usually take my lunch break alone so I have some time during the day to disconnect from everyone.
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Formally diagnosed with ASD at the age of 43 (2014), I am the author of "Never One of Them: Growing Up With Autism," available through Amazon and most popular ebook sites.
My Official Facebook Page
In fact even when I registered here, among the profile deails was a tick box set of questions that included...
Do you have Asperger Syndrome, diagnosed?
Do you have Asperger Syndrome, undiagnosed?
Are you related to someone who has...?
Are the parent of a child with...?
At the bottom of the list it asked...
Do you have autism.
If it's all viewed as a continuous spectrum why have the different categories? Why not simply ask, are you on the autistic spectrum?
How one is categorized depends partly, I think, on where and when you're diagnosed. As I was diagnosed in the US in 2014, "Asperger Syndrome" was off the table - at least officially.
At the time of my ASD diagnosis, I asked my psychologist if I would have been dx'd with Aspergers a year earlier under the old DSM standards. With some hesitation due to the official standards having changed, she verbally affirmed that to be the case. She just wasn't in a position to formally assign that diagnosis in writing due to the changes that had taken place in the medical community.
So I use the term ASD to describe myself properly, but informally I will say that I have AS.
_________________
Formally diagnosed with ASD at the age of 43 (2014), I am the author of "Never One of Them: Growing Up With Autism," available through Amazon and most popular ebook sites.
My Official Facebook Page
Yeah, well... I just can't wait that long. Feels like I'm dying already.
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Yes, I have autism. No, it isn't "part of me". Yes, I hate my autism. No, I don't hate myself.
Encircled in a world of spin,
Preoccupied and fancy free,
I sit content and am vowed by me.
Don't bother with bridges or canals;
No expressway can overcome this gap.
I'm the guy who's lost within his thoughts.
My life is as lonely as an empty library but it's a library. I love libraries.
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”Clockmakers Lie.” The secret clakker greeting in "The Alchemy Wars" a Trilogy by Ian Tregillis
kraftiekortie, I did not realize that. I know Asperger's is a part of the Autism spectrum, but I see Asperger's as an exclusive term and Autism as the all-inclusive term. So, all people with Asperger's have Autism, but not all people with Autism have Asperger's. It was probably just my literal thinking.
ArielsSong, that is a great description.
AJisHere, that is an awesome description and very poetic!
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31st of July, 2013
Diagnosed: Autism Spectrum Disorder, Auditory-Verbal Processing Speed Disorder, and Visual-Motor Processing Speed Disorder.
Weak Emerging Social Communicator (The Social Thinking-Social Communication Profile by Michelle Garcia Winner, Pamela Crooke and Stephanie Madrigal)
"I am silently correcting your grammar."
Right now my life is an utter mess. I am always tired, withdrawn, bored and the highlight of my day tends to be when it ends.
But I should add that I have not been diagnosed with Asperger's syndrome as I had a speech development delay. My assessor said I am "high-functioning", but that seems like a misnomer to me because I barely function in any aspect of life at all.
I think I want my life to hurry up and end. It's an utterly meaningless and tedious experience that becomes more absurd with each passing day.
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"Every day, once a day, give yourself a present. Don't plan it, don't wait for it, just let it happen. " - Special Agent Dale Cooper, Twin Peaks
auntblabby
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Joined: 12 Feb 2010
Gender: Male
Posts: 114,561
Location: the island of defective toy santas
I find that hard to believe when without fail it gets worse every year. We're beyond pain now anyway, and into despair... into something that eats away at one's soul. The conclusion I've come to is that my only chance is to find the help I need, but I'm not sure it exists.
and if you don't get help it will get worse, ebbing and flowing but worse, until you reach your 50s. then it will likely abate. help does exist. you will have to search for it. it helped that belatedly and briefly I had a flukish GF experience, which was just enough to show me that it is basically counterfeit. once you find that out for yourself you will have great clarity and the pain will diminish.
Trying to be direct and honest here I find it difficult. My partner and I have constant misunderstandings due to my inability to read him properly and to identify my own emotions. My mind is constantly racing with thoughts like 'what's wrong with him?' - 'Am I acting the right way towards him' - 'why is he acting like that?' so I'm constantly asking him if he's alright which frustrates him. When I look at him, all I see is a blank face...I cannot read into him at all. I'm also very easily manipulated by different people. I sometimes think I'm being manipulated by my partner, but I really don't know. My work life is a nightmare. I work in finance and cannot connect to the corporate culture in that industry. I do not relate to my colleagues at all and when I try to, I come off as weird so people tend to avoid me. It's difficult when we have social events as I'm very anxious at those and usually sit quite with a drink which makes me appear antisocial, but in fact I'm trying to think on what to say, how to appear normal etc. At the end of the night, I'm exhausted and all I want to do is sleep. I'm constantly analysing myself and get extremely paranoid in work and out of work. Every face I look at is blank and I'm constantly trying to work out what people are thinking...are they thinking about me?
I'm also very sensitive to bright lights and loud noises. I live in London and bright lights and noises are everywhere from noisy tube trains, to people shouting in pubs, to overwhelming situations in, for example, shopping centres where there are noises and distractions everywhere. One time, I had to run to the toilet and lock the door just to get away from it. Even walking down the street is a nightmare. On a busy street, there are countless people walking towards me and I feel just totally overwhelmed. I stim like crazy in bars, shops, trains, buses etc...probably look insane.
Only time where I feel comfortable is in front of my PC playing a video game or immersed in VR with my Oculus Rift
auntblabby
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Biscuitman
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Age: 45
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