Tell people you have autism
I've only told a few people. Most of them didn't seem to treat me any differently and seemed understanding afterwards,but one of them started acting rude to me. I kind of want to tell more people I have it to see how the would react to it. I feel like if I actually told more people though they might discriminate against me because of all the bad stories I here about disclosing.
Most of the time people know I am significantly different, although I never tell. Very few people know I am, either because I told them or was figured out (can only call out 3 times this has happened). I do not outright say I am autistic, but I try to make it clear that I had moderate speech difficulties as a child.
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BirdInFlight
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Sometimes it's more at stake than just those potential results, though.
I totally get how if more of us tell people, then change could start to occur because more and more people would have to adjust their idea of what autism can be and what people on the spectrum can be and do.
But where the rub lies, for me, is that still this noble pursuit can have consequences that mess up my life in the here-and-now in a very real way.
There is practically zero understanding of high functioning autism in most of the settings in which I have to interact with people. In my apartment building which is a VERY connected community --- by which I actually mean: bunch of unenlightened gossips who make something bad out of everything they learn about you.
Even my building managers/landlords would think differently of me in a negative way if they knew. People in my world here also still tend to see someone labelled autistic as automatically lacking intelligence, reasoning power, and therefore to be dismissed in any concern the autistic person might raise any time later about anything.
Noisy neighbour? "Well BirdInFlight you have autism-fuelled sensory issues which leads us to believe that actually the noise isn't as bad as you say it is. Put up and shut up." Or words to that effect.
I'm already a person whose opinions, concerns, input etc is dismissed and discounted and disrespected, and I have no doubt in my mind that this would get even WORSE were I to have disclosed to these people that I have autism spectrum disorder too.
Yes perhaps I could educate them but seeing as how I'm already a person people tend to laugh at and not respect or value, I don't think my sacrificing my privacy is going to achieve that noble end anyway.
Another thing - I'm self employed in a role that means I have to be trusted alone in people's homes, with their valuables. Yes they do background checks to satisfy for no criminal records, but people still also work on gut instincts and operate from their views and opinions even if they happen to be mistaken ones based on stereotypes and assumptions.
I'm not comfortable proclaiming to a potential client that I have autism but it's okay, it's okay, I'm not going to shoot up your family one day like that guy at Sandy Hook! I have to come off as normal as possible so that they have one less thing to "worry" about and not just go to my competition and hire them instead.
There is still too much misconception out there generally. Yes I do realize the irony of what I'm saying. But I can't be the one to change people's minds one at a time while I personally suffer from these disclosures in a very real way, losing work opportunities and being whispered about even more as a freak.
Bird In Flight
I agree that there are times where there is more at stake. Ultimately we have to make choices that are in our personal best interest.
I found out in Oct 2016 that I was on the spectrum after my son's dx. Although I have dealt with social and sensory issues my whole life I never new why. Maybe my optimisim is because of my finding out late in life and I have not endured the negetive reactions of people after telling them. In my mind there is nothing that they can do to me. I know I am different and I know the core things I can't change. I know that change is needed, and I hope that enough of us are in a place to help facilitate a change in perception for the future individuals that will find a place on the spectrum, like my children. I have always been solution driven and I know that not being myself leads to difficulties and I have always said if you can't be yourself, then who can you be?
Maybe for those of us that don't feel comfortable telling people, those that do feel comfortable will tell twice as many.
Kind Regards Shark
In my case? I don't. Unless I wanted someone to know that... (Which is, so far only a handful online and almost none in real life. Others who might've known in real life is either my mom and my relatives, or people like my teachers -- others might've known from them...)
In real life, they don't have to know. They don't need to know. Because they have more needs for accommodations I do. People around me are actually more fragile and easily get uncomfortable or anxious than I do. So why would I give them more things to worry about?
The only, and I mean the only thing I get picky and uncomfortable about is food. And the rest, whatever I'm incompetent at, has no excuse; autistic thing or not. I'll ask them a weird question regardless.
And if they do want or need to know, it's most likely for the wrong reasons.
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Last edited by Edna3362 on 24 Dec 2016, 10:42 am, edited 1 time in total.
I don't have a formal Asperger's diagnosis, but I have always known I was different all my life. I don't want to seek a formal diagnosis because my life has been on a good track and I don't want to be evaluated by someone who will limit me based on what a test could reveal on a certain day. That has happened to me far too many times before.
BirdInFlight
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It really seems to me like disclosing either working well for you or being detrimental depends terribly on all kinds of factors about who you are in everything about yourself and your life.
Situations where it might work out just fine for you to be clear and honest with everyone about your diagnosis would be things like if you're already a person with a certain level of achievement, accomplishment, "normal" circumstances (partner, children, house, job, mortgage), and therefore a certain level of power in your world. There is a lot of innate power in being someone others already see as someone to look up to, someone doing all the "right" things in life.
If you're that person and you start to reveal that you have autism, it can be an educating thing to others, and they will be less inclined to make a complete downturn in their opinion of you. They won't suddenly see you as incompetent or necessarily change their behavior around you in a negative way.
Also if you're still young enough that you don't yet have to work, seek work or be in an employment situation, you are living in the belly of a loving family who buffer you from both practical and emotional harshness out there. If you're surrounded by supportive people who have know you all your life.
That's going to be very different from the scenario of a late diagnosed adult, no friends, no living family, dealing with work and dealing with the fact that most of the people in your life have not known you very long for reasons of your moving somewhere (for work or whatever).
If you have nothing, no status, nothing anyone already respects or loves you for, and you are surrounded by mostly strangers in your daily life instead of people who already know you and care about you, it's a very different situation.
DestinedToBeAPotato
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Yes, I have shared this information with those who I will be interacting with for long periods of time. I feel that disclosing my diagnosis is the only way of explaining why I behave the way I do. Obviously, this has caused problems in the past where people have suddenly adjusted their behaviour to "accomadate" me, only to leave me feeling more alienated than before. For this reason, I am very picky about who I choose to divulge this information to.
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ZombiebrideXD~~~"People dont need to know the full diagnoses, if i look normal im gonna let them think that theres nothing rpwrong with me."
There is nothing "wrong" with you though!
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EQ - 6
Your Aspie score: 164 of 200
Your neurotypical (non-autistic) score: 29 of 200
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There is nothing "wrong" with you though!
To be fair, she didn't say there was. But we all recognize some people assume something is "wrong" if one doesn't fit a particular mold, and she's fine with not challenging the perceived status quo.
nick007
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Where I come from there is a lot of ignorance about AS. Lots of people don't have a clue what it is & even the so-called experts think of it as like a less sever form of mental retardation. I was told i communicated too well verbally & seemed too intelligent to have anything on the autism spectrum. They were also focused on the fact that I had a high-school diploma. So I don't think telling people about my Aspergers would help.
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After being assessed I have drawn up a policy nto guide me on disclosure.
I have disclosed the result to people who helped the process by providing the assessor with information.
I have disclosed to people whos feedback had helped my research.
I don't live with immediate family, and in fact left home 30 odd years ago. At this point I see no requirement to disclose.
Regarding further disclosure, if I think it will result in the person Lowering their expectations of me then I will not disclose.
If I think it will increase their understanding of Autism, and especially if I think it will help get the concept of Autism being a Spectrum.
I have thought of situations where I believe disclosure without identifying me has potential to benefit.
A very close friend of over a quarter of a century is a teacher, ad was one of the people who contributed to my assessment with observations of me. They have a blanket permission ot disclose "A very close friend has been assessed as autistic as an adult, and then pass on anything they have observed in me in the way of best practice, coping strategies, work around etc to any pupil who is known to be autistic in the appropriate circumstances. They also have my permission to disclose information and any appropriate reprimand to anyone with a diagnosis who misuses it as a get out of jail card for bad behaviour.
I am a part of a group of friends going back over 25 years who get together each year at a very simple bunkhouse, which over the years we have all played a part in maintaining. Several of the group have families of their own now, and one has a son who is actually diagnosed and at times there have been one or two vexing occasions. SAme close friend is also part of this circle, so they have permission to use a formula : "A close Friend of mine has been assessed as an adult. Would it be helpful if I ran that situation past them and see if they can shed light on it from the autistic person's point of view ?"
I do tell people if and when I think they need to know, but generally I don't mention it. It's not a big secret, but it's also not somthing I broadcast to everyone.
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Diagnosed with Autism Spectrum Disorder (ICD10)
After growing up LGBT in a Mormon, conservative, state during the 1960s through the 1980s, coming out as an autist is suddenly like landing in the colorful Land of Oz by comparison. I tell everyone that I am autistic whether they want to know or not. By taking a page from the LGBT political strategy book, coming out as autistic will be the only way to resolve our concerns.
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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
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