Do You Think Autism Experts Use This Forum To Gain Insight

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CockneyRebel
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04 Jul 2017, 4:51 pm

I'm sure that many professionals lurk around here.


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Shahunshah
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04 Jul 2017, 4:58 pm

Who wouldn't want to lurk around on a forum with so many... interesting characters.



SaveFerris
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04 Jul 2017, 5:43 pm

EzraS wrote:
My occupational therapist showed a lot of interest in my posting here when I first started and checked it out.


I was joking with myself about giving the person who assesses me my user name and saying my posts will explain far more than will come out of mouth :D


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04 Jul 2017, 6:40 pm

I doubt people self-reporting \ self-analysing is of much benefit to a professional in a professional context, and that's the majority of the thread types on here. Many of the remaining threads are people arguing against things that no professional thinks anyway (that autistic people have no empathy, that autistic people never marry and so on).

People doing studies do come on to get participants but only for that, and those studies tend to be trying to link autism with "something else". I imagine a whole bunch of students at uni doing their dissertations on things like "Do autistic people like pancakes", they construct a quiz with questions like "Do you feel awkward in social situations?" so they can determine the autistic respondents from the non-autistic, then finally ask "Do you like pancakes?"

I think the latest study was if autistic people felt physical sensations they couldn't explain. Beats me what they were getting at.



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04 Jul 2017, 7:22 pm

Chichikov wrote:
I doubt people self-reporting \ self-analysing is of much benefit to a professional in a professional context, and that's the majority of the thread types on here. Many of the remaining threads are people arguing against things that no professional thinks anyway (that autistic people have no empathy, that autistic people never marry and so on).

People doing studies do come on to get participants but only for that, and those studies tend to be trying to link autism with "something else". I imagine a whole bunch of students at uni doing their dissertations on things like "Do autistic people like pancakes", they construct a quiz with questions like "Do you feel awkward in social situations?" so they can determine the autistic respondents from the non-autistic, then finally ask "Do you like pancakes?"

I think the latest study was if autistic people felt physical sensations they couldn't explain. Beats me what they were getting at.


Obviously I'm no expert but I find this forum a veritable feast of autistic knowledge , obviously you have to glean and cross reference to sort the wheat from the chaff.

feeling physical sensations they couldn't explain? Alexithymia ?


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SaveFerris
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05 Jul 2017, 6:30 pm

Chichikov wrote:

I think the latest study was if autistic people felt physical sensations they couldn't explain. Beats me what they were getting at.


This bizarrely just happened to me. It's a little embarrassing but I'll explain. I just went to the toilet and felt my foot being sprayed , I instantly thought it was poor aim so readjusted , the spraying didn't stop , I clenched and stopped the flow and the spraying still didn't stop. After I flushed and waited for the flora fecal fountain to dissipate the spraying still didn't stop. I reached down and could feel no actual spray and my foot was bone dry. My only explanation was the floor was cold , I was bare foot and the cold created a sensation similar to being sprayed.


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05 Jul 2017, 6:58 pm

^SaveFerris, I've experienced stuff like that. Mostly it's been the sensation of sitting on something wet, but when I feel my pants and the seat, everything is dry.



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05 Jul 2017, 8:45 pm

starkid wrote:
^SaveFerris, I've experienced stuff like that. Mostly it's been the sensation of sitting on something wet, but when I feel my pants and the seat, everything is dry.


I've been looking through my memory bank and it's not an isolated incident. I've also felt what you described ( cold = wet sensation ) as well of sensations of blood/sweat running down my legs or down my side from my armpit , never really questioned it before as thought it happened to everyone.


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06 Jul 2017, 2:59 pm

Well, I thought-of a couple of things, your "foot episode" might've been, SaveFerris..... If you were doing something, before you went to the bathroom, that made your foot fall asleep, and it didn't register in your brain, until you were standing-still (a sort-of tingling feeling); or, it could be that Diabetes thing where people get tingling feelings----or, sometimes, a "spike" of something (like a "shooting" of something, underneath the skin).

In response to the OP: If there are professionals checking-out this site, their research isn't showing that they've learned, anything----cuz, SOMEBODY needs to be talking to ADULTS, for-a-change. What----do they think people just grow-out-of Autism, or something? I get so SICK-of-it, sometimes (people not talking to adults----and, I mean OLDER adults; they're beginning to talk to late-teens / 20-somethings, but I guess they figure there's nothing they can do, for us, and that we've made it, THIS far)! !





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SaveFerris
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06 Jul 2017, 3:44 pm

Campin_Cat wrote:
Well, I thought-of a couple of things, your "foot episode" might've been, SaveFerris..... If you were doing something, before you went to the bathroom, that made your foot fall asleep, and it didn't register in your brain, until you were standing-still (a sort-of tingling feeling); or, it could be that Diabetes thing where people get tingling feelings----or, sometimes, a "spike" of something (like a "shooting" of something, underneath the skin).


I was just lounging around before the bathroom so very possible my foot fell asleep. As for diabetes, it's also a possibility due to my sedentary lifestyle but I don't have any of the symptoms

Campin_Cat wrote:

In response to the OP: If there are professionals checking-out this site, their research isn't showing that they've learned, anything----cuz, SOMEBODY needs to be talking to ADULTS, for-a-change. What----do they think people just grow-out-of Autism, or something? I get so SICK-of-it, sometimes (people not talking to adults----and, I mean OLDER adults; they're beginning to talk to late-teens / 20-somethings, but I guess they figure there's nothing they can do, for us, and that we've made it, THIS far)! !


Your last statement is a little depressing but is probably correct. I doubt there's much that can be done for me at this stage of life except diagnose me , "Yes , you have ASD, now off you go , I'll send you a certificate you can put on your wall , don't call again"


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06 Jul 2017, 4:23 pm

Back when I suspected ASD I struggled to relate to the broad/general content of books and factual pieces on ASD, even personal blogs were too individual/specific to relate to.

I found WP by searching for personal experiences of ASD. Reading posts and talking to people here helped me to understand a picture that was much bigger... everyone on the spectrum is different.

If there are people using this site for research/insight I reckon they are more likely to be influenced by the social model of disability than the medical model and are probably students.
Maybe WP could be of use in a similar way to Wikipedia, good for initial research and terminology.



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06 Jul 2017, 9:51 pm

SaveFerris wrote:
Campin_Cat wrote:
Well, I thought-of a couple of things, your "foot episode" might've been, SaveFerris..... If you were doing something, before you went to the bathroom, that made your foot fall asleep, and it didn't register in your brain, until you were standing-still (a sort-of tingling feeling); or, it could be that Diabetes thing where people get tingling feelings----or, sometimes, a "spike" of something (like a "shooting" of something, underneath the skin).

I was just lounging around before the bathroom so very possible my foot fell asleep. As for diabetes, it's also a possibility due to my sedentary lifestyle but I don't have any of the symptoms

Are you SURE? I know when I was researching Diabetes for family members, I found that not all websites, had the same information----here's some things that I found (sorry, it's been too long for me to still have URLs), that helped my family:

-- frequent urination
-- strong-smelling feces and urine (some say it smells fruity; others say it smells chemical-y)
-- coughing-up phlegm
-- falling to sleep a half-hour to an hour (+/-), after eating
-- carbs (rice, noodles, potatoes, lunchmeats, etc.) can often cause more problems, than straight-up sugar (ie, doughnuts, buns, etc.)
-- fidgety legs (in the evening, especially)
-- getting-up, during your sleep hours, to urinate----usually, at least TWICE
-- and, of course, the burning, shooting, tingling, that I mentioned, earlier


SaveFerris wrote:
Campin_Cat wrote:
In response to the OP: If there are professionals checking-out this site, their research isn't showing that they've learned, anything----cuz, SOMEBODY needs to be talking to ADULTS, for-a-change. What----do they think people just grow-out-of Autism, or something? I get so SICK-of-it, sometimes (people not talking to adults----and, I mean OLDER adults; they're beginning to talk to late-teens / 20-somethings, but I guess they figure there's nothing they can do, for us, and that we've made it, THIS far)! !

Your last statement is a little depressing but is probably correct. I doubt there's much that can be done for me at this stage of life except diagnose me , "Yes , you have ASD, now off you go , I'll send you a certificate you can put on your wall , don't call again"

Maybe there IS stuff, for adults, in the U.K. (there's even stuff in my little state). Have you checked around the web? You may already know this, but in-case you don't..... When you google something (I use Ask.com, cuz I don't like the font on the actual Google Search, and you don't have to actually ask a question), type-in what you want, and then a comma, and then a parameter----for instance: "adult Autism services, Weston-super-Mare", or whatever (only, DON'T put the quotations marks----it's better if you only use them for a specific name, of something, like "Guggenheim Museum", for instance; that way, they won't give you results on somebody named Albert Guggenheim, or somebody).




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06 Jul 2017, 9:56 pm

Campin_Cat wrote:
-- carbs (rice, noodles, potatoes, lunchmeats, etc.) can often cause more problems, than straight-up sugar (ie, doughnuts, buns, etc.)

Lunchmeat is a type of carb?



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06 Jul 2017, 10:05 pm

starkid wrote:
Campin_Cat wrote:
-- carbs (rice, noodles, potatoes, lunchmeats, etc.) can often cause more problems, than straight-up sugar (ie, doughnuts, buns, etc.)

Lunchmeat is a type of carb?

s**t, with modern food storage practices you never know...



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07 Jul 2017, 2:06 pm

Campin_Cat wrote:
Are you SURE? I know when I was researching Diabetes for family members, I found that not all websites, had the same information----here's some things that I found (sorry, it's been too long for me to still have URLs), that helped my family:

-- frequent urination
-- strong-smelling feces and urine (some say it smells fruity; others say it smells chemical-y)
-- coughing-up phlegm
-- falling to sleep a half-hour to an hour (+/-), after eating
-- carbs (rice, noodles, potatoes, lunchmeats, etc.) can often cause more problems, than straight-up sugar (ie, doughnuts, buns, etc.)
-- fidgety legs (in the evening, especially)
-- getting-up, during your sleep hours, to urinate----usually, at least TWICE
-- and, of course, the burning, shooting, tingling, that I mentioned, earlier


Thanks for the useful advice and concern , going off that symptom checklist I suppose I could have fidgety legs although it's more like I bounce them for fun , my urine has smelt sweet ( like sugar puffs ) a few times in my lifetime but it's always been with dehydration , and that weird tingling the other day.

Campin_Cat wrote:

Maybe there IS stuff, for adults, in the U.K. (there's even stuff in my little state). Have you checked around the web? You may already know this, but in-case you don't..... When you google something (I use Ask.com, cuz I don't like the font on the actual Google Search, and you don't have to actually ask a question), type-in what you want, and then a comma, and then a parameter----for instance: "adult Autism services, Weston-super-Mare", or whatever (only, DON'T put the quotations marks----it's better if you only use them for a specific name, of something, like "Guggenheim Museum", for instance; that way, they won't give you results on somebody named Albert Guggenheim, or somebody).

Thanks for the advice on searching , in fact it's quite funny the amount of people who were supposedly computer literate but still asked me to look for something on the web because of the speed that I can do it , I suppose if you don't know your boolean operators it may be a slower process but I always thought they were just being lazy and using me ( didn't have a problem with that as it something I enjoyed ) :D


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07 Jul 2017, 7:11 pm

starkid wrote:
Campin_Cat wrote:
-- carbs (rice, noodles, potatoes, lunchmeats, etc.) can often cause more problems, than straight-up sugar (ie, doughnuts, buns, etc.)

Lunchmeat is a type of carb?

Well, lunchmeat is not a type of carb, by itself----but, most of it is LOADED with carbs, because of the processing / preservatives (like Aristophanes said "food storage practices"); basically, almost ANY processed meats----hotdogs, pepperonis, too----it'll give you Diabetes, RIGHT NOW!! Like I said, oftentimes, carbs are WAAAAAY worse, than straight-up sugar.




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