Will I ever get a AS diagnosis? (EXTREMELY P*SSED)
What were you given Zyprexa for? What symptoms was it given to you for? What were the reasons the docs gave you this medication? What symptoms are the doctors confusing for schizophrenia that are actually AS?
Because unless you were very psychotic, this medication is completely inapropriate.
I am very sorry to hear about your problems with doctors. It must be very frustrating, as others have said you may need to find a centre (maybe in a different country) that will actually give you a proper assessment.
1.They thought I have Bipolar (and I thought that myself too, hell maybe I'm bipolar) and they gave me everything because I kept complaining and at some point they tried Zyprexa. The schizo diagnosis was then eventually fully confirmed by several docs WHILE I WAS ON THE ZYPREXA, which doesn't make any sense to me. I mean, how can I not have schizophrenia without any antipsychotics and ostensibly be psychotic on a large dose of Zyprexa, which I started to take for (supposed) bipolar to begin with?
2. The main symptom is derealizatin. The feeling of everything seeming unreal. I also once said to docs that I've invented s**t and want to get them patented and they now think I'm a crazy person who has the delusion that he is an inventor. I also get "cognitively exhausted" easily by minor stress and then I'm very much useless and need to lay down. those are my symptoms, along with severe social and general anxiety and not so severe depression.
3. I'm a very disabled person and I'm simply too stupid and incapable of going to a different city let alone country for diagnosis. I have Idiopathic intracranial hypertension (major headaches), Fibromyalgia and other stuff.
I am sorry. I apologize for presuming your ability to travel. Thinking closer to home, do you have a friend or acquaintance who could join you in speaking to your clinician? That way, you could still have your say while your friend could ask your clinician questions on your behalf. A friend could be your advocate so you aren't as exhausted by your anxiety.
Just a thought.
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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
The first two points are exactly what had happened to me. The more antipsychotics I took, the more "schizophrenic" I appeared. Then I got autistic shutdowns that were interpreted as psychotic episodes. Social anxiety that was taken for paranoia. Holy f*cking sh!t, it was pure hell.
What about gradually decreasing your dose of Zyprexa until you discontinue it? I guess they can't really force you to take it until they lock you in a hospital. Do you have someone to advocate for you? I know it is really hard to get listened to when you are autistic misdiagnosed with schizophrenia. Can you communicate with your first doctor? Maybe even from outside they would be able to help a bit?
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Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
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Why is it so hard to remove a label of schizophrenia, but it seems that a psychologist with no specialization in ASD can remove an ASD label on a whim, without doing any kind of re-assessment?
The world is messed up...
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Level 1 Autism Spectrum Disorder / Asperger's Syndrome.
What about gradually decreasing your dose of Zyprexa until you discontinue it? I guess they can't really force you to take it until they lock you in a hospital. Do you have someone to advocate for you? I know it is really hard to get listened to when you are autistic misdiagnosed with schizophrenia. Can you communicate with your first doctor? Maybe even from outside they would be able to help a bit?
THIS IS RELEVANT TO MY INTERESTS!
Do antipsychotics perhaps make your AS worse or make you as an autistics to appear or BE schizophrenic/psychotic or generally nuts in one way or another?
I actually have been told by actual doctors (but not my OWN doc) to stop them. I just cant because the withdrawal feels like hell.
_________________
Male
Aspie score: 131 of 200
NT score: 34 of 200
Possibly Aspie (diagnosed by an autism expert, doc moves abroad, forced to change docs and all say it's schizophrenia NOS or schizo-affective disorde or personality disorders. initial doc was a colleague of uncle Simon btw. you do the math.). (edit: by Uncle Simon I mean Simon Baron Cohen. Just to clear things up.)
One cannot just totally withdraw those sorts of drugs.
yes I am aware of that. I tried to go 2.5mg down every two weeks in the past. Maybe I have to go even slower.
But what I'm much more interested in is magz experience with antipsychotics making her appear psychotic.
_________________
Male
Aspie score: 131 of 200
NT score: 34 of 200
Possibly Aspie (diagnosed by an autism expert, doc moves abroad, forced to change docs and all say it's schizophrenia NOS or schizo-affective disorde or personality disorders. initial doc was a colleague of uncle Simon btw. you do the math.). (edit: by Uncle Simon I mean Simon Baron Cohen. Just to clear things up.)
What about gradually decreasing your dose of Zyprexa until you discontinue it? I guess they can't really force you to take it until they lock you in a hospital. Do you have someone to advocate for you? I know it is really hard to get listened to when you are autistic misdiagnosed with schizophrenia. Can you communicate with your first doctor? Maybe even from outside they would be able to help a bit?
THIS IS RELEVANT TO MY INTERESTS!
Do antipsychotics perhaps make your AS worse or make you as an autistics to appear or BE schizophrenic/psychotic or generally nuts in one way or another?
I actually have been told by actual doctors (but not my OWN doc) to stop them. I just cant because the withdrawal feels like hell.
Yup, they do.
In my case, it wasn't Zyprexa, it was risperidone.
From inside: I was slowed down, had much less energy and almost no self-control. I couldn't stand against a toddler (actual fact, I had a 3yo kid I couldn't take charge of because my will was so weak). I was unable to use my coping strategies or defend myself. My IQ was about a half of what it used to be. I was unable to work or care for my family.
From outside: My husband said, I was looking like Marla Singer if you know the movie. I travel quite a lot and have never had any problem with border control – except for the voyage when I was on drugs, I couldn't answer the officer's questions, I got personally searched, my luggage was laballed "hot"... That was the only time something like this happened to me.
In short, all my strategies of passing for normal were no more available. I couldn't get back to my normal life and respinsibilities, family and work. I got much more and more obvious shutdowns (moments when you are so overwhelmed by the world around you that you disconnect yourself from your senses) which seem to have appeared to the doctor as psychotic attacks. I had very serious extrapyramidal side effects, I couldn't control my body movements, produced tons of saliva, shaked. When I said that I was concerned because of people staring at me in public transport, for the doctor it was just another confirmation of my "schizophrenia" :/ But now that I'm sane, I can say they really stared at me because I looked abnormal. I would stare myself at someone looking the way I looked.
I changed the doctor for one who discontinued Risperidone and instead treated me for major depression and insomnia. Then I started to get better, now I'm fully functional again.
_________________
Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
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