What level of ASD do you have?

Post Reply New Topic

I was diagnosed level 1, but these days I feel closer to level 2. I can’t work and am on government support, I get individual, equine, speech and group therapy, take SSRIs, and am waiting for support with cooking and cleaning, as I struggle with these things and frequently forget to eat (I’ve lost almost ten pounds in the past couple of months because I really only eat once a day). I have meltdowns semi-regularly, have to keep my iPad on me for instances wherein I lose my ability to talk, and have a very low tolerance for crowds and noise. I spend most of my life either at therapy or in my bedroom alone with my bird. I really want to get a service dog, but I’m worried if I do that my bird will lose her emotional support animal status, and I won’t be able to keep her in my apartment with me.

I think it is possible to have a service dog and an ESA, seems to go inline with the fact if you needed it it is legal to have two service dogs.

I wasn't given a level, to the best of my knowledge. I'd guess probably 2.

I get SSI already for being disabled but it is because of my mental health. As a child I was severely impaired by my meltdowns and issues, as an adult I can take care of myself if I have enough money so I guess level 1. I've improved as I aged but mainly nowadays I still need medication or I would not be functional.

I will have to ask my doctor since Asperger's syndrome has been reclassified under the DSM-V and I was never assigned a "level" as far as I am aware. It would have changed by now anyway.

I used to be what I would call a 0. I functioned pretty well and was able to hold a job and get things done. For a while I was quite independent.

Then things started to slip and I was able to hold a job but it took every ounce of effort that I had. My mental health deteriorated and I had very little energy to keep up the house, run errands, etc. so that was also a struggle. I needed a lot of help from family. That was probably level 1.

Now I am disabled, can't hold a job, mental health is really not very good and some days I can't get out of bed. Sometimes I won't feed myself for days if my husband is on a business trip because I can't be bothered to cook just for me. The house looks like a bomb went off and I keep meaning to clean it from top to bottom, but really it's a big victory if I do a couple of loads of laundry or load up and run the dishwasher. I even have to psych myself up to take a shower and get dressed. I can drive and can force myself to go grocery shopping or to the doctor (when there's absolutely no choice) but it takes tremendous willpower and I run late everywhere I go. If it wasn't for my beleaguered husband I would probably need someone to come in and assist with meals and housework. I'm not sure if that makes me a 1 or a 2. Is there a 1.5?

I have a lot of disabilities besides Aspergers that I need support for. If I just look at my need for support I'd say I'm level 2 but if I rule out things that are due to non Aspergers disabilities, I'd need minimal support & be in level 1.

I was assessed Level 2, Requiring Substantial Support.
I was just assessed this year and went my whole life without support, nor do I receive any now.
I've been independent for 30 years since I moved out for Uni.

I also have diagnoses of Complex Trauma Disorder (C-PTSD), MDD, Agoraphobia, Alexithymia and Selective Mutism.
I had a stroke as well. My poor brain.

I'm starting to realise I need support, but it's next to impossible to find autism services for adults.

I never had support either. Just accommodations with skewl work due to dyslexia & ADD. Well I did go to a training facility for people who were blind or had low vision to learn life-skills. My voc rehab counselor sent me there after I graduated high-skewl. Only other support I had was an organization that helped me get my 1st job. I never had support with anything else. I lived with my parents till I moved in with my girlfriend at 30. she has a lot of disabilities too & cant handle living alone either so we try to help each other out.

@Nick,
I admire your relationship with your girlfriend. You seem very supportive and understanding of each other's challenges.

I should have mentioned that I do have support with PTSD from my trauma psychologist, and I had PT / OT / SLP after my stroke. What I really need though is a psychologist who understands autism, and some type of specialist in adult mutism. It's destroying my life at this point.

We try but we fail sometimes or a lot of times. We can both get frustrated but it passes & we make up. I went through some of the stuff in the past that she's dealing with now like depression & anxiety thou mine is much better managed nowadays.

I did see a psychiatrist for 5 years after me & my 1st girlfriend broke up & i kinda fell into a psychotic depression. I see my GP nowadays & that works well for me. I do my own research on things & try to analyze causes & effects of things; posting about things helps with that sometimes. I never really had anyone who really understands autism. I did my own research on that by joining this forum & making lots of posts. I don't know anything about adult mutism & think it's kind of a rare niche so I'm sure finding someone who knows a lot would be difficult. I really wish you the best of luck with it.

Thanks for your sweet reply Nick. Did you say you met your girlfriend on Wrong Planet? (If so, that's really nice!) I'm glad you recovered from your depression and that WP has been such a source of comfort for you. The psychologist who assessed me for ASD also does counselling for people on the spectrum, but she is 1.5 hours from my home and I can't drive since my stroke. It would cost me a fortune to Uber both ways every time I'd go. She admitted that I'd have a very hard time finding an ASD counsellor for adults closer to home. Regarding mutism, I agree it's likely a dead-end quest for me to find help but I vowed today that I need to start that search.

was diagnosed level 3 severe age 2. was upgraded to level 2 moderate/severe age 8. That's stayed consistent through yearly evaluations.

I don't know for sure but I'm guessing level 1 autism and moderate to high levels of anxiety.

Undiagnosed. I don't require any supports at this time, except the support of family and friends.

I was diagnosed with Asperger Syndrome so I'm not sure what level I am. I'd say level 1. I'm able to move around by myself, can travel alone and live alone (with the help of my boyfriend). I can cook and do basic cleaning but it's really hard to get motivated to do these tasks. I'd rather spend time drawing. I majored in animation, can draw well and animate traditionally.

I cannot hold down a regular job, I can work from home but the stress gives me burnout. Recently I applied for disability benefits and I was accepted. Still waiting for them to tell me how much I'm going to get though, probably very little but it's still something.

My mental health was much worse, let's say, until a year ago, now I'm doing much better.

Same here.. Asperger's and Autism were considered similar but separate conditions when I was diagnosed as a kid. I am between a lvl 1 and 2 prolly.
I am arranging modern testing next year starting mid Jan