#1 reason why I don't tell people
nick007
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I was in trouble aLOT as a kid because of my Aspergers issues & quirks & I did NOT understand what I did wrong & why I was in trouble. I just felt like everyone hated me but I didn't know why. How the heck could I learn in that kind of situation I think/hope that if others knew about my Aspergers & understood it some that they would of taken the time to explain things to me instead of just punishing me when I had no clue as to why. I don't tell people offline about my Aspergers because where I come from even the so-called experts think of autism as a less sever form of mental retardation so I feel telling others would cause people to be extremely confused as to why I seem so functional or they'll just think of me as Rain Man.
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I've told people at work.
I've spent most of my life struggling on undiagnosed, with no way to explain my difficulties, always working to improve myself with no assistance or understanding from others, constantly trying to adjust my behaviour to fit into society, but it's an unwinnable battle and I'm SO TIRED OF IT.
Nowadays I want people to accept the way I am and cut me some slack.
goldfish21
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I've spent most of my life struggling on undiagnosed, with no way to explain my difficulties, always working to improve myself with no assistance or understanding from others, constantly trying to adjust my behaviour to fit into society, but it's an unwinnable battle and I'm SO TIRED OF IT.
Nowadays I want people to accept the way I am and cut me some slack.
I read these complaints on WP and can't help but think "Then why don't you try treating your symptoms differently, then?" as I've been sharing here for more than 5 years how I treat my own symptoms & function as highly as I do. But it seems people here just want to complain vs. actually do anything that helps themselves. SO bizarre!
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Does that mean you actually now have an ASD diagnosis? You can only disclose a diagnosis if you actually have one. There is no harm of course in telling people that you believe you are on the spectrum if you thought it would be helpful.
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Autism is not my superpower.
goldfish21
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Does that mean you actually now have an ASD diagnosis? You can only disclose a diagnosis if you actually have one. There is no harm of course in telling people that you believe you are on the spectrum if you thought it would be helpful.
I was referring to what I would do if I were XFilesGeek, who I believe has an official diagnosis.
I have been abundantly transparent on these forums about the fact that I am self diagnosed. I am not incorrect in my self diagnosis, either. And if I were referring to myself & not XFilesGeek, self diagnosis most certainly is a type of diagnosis one could opt to disclose or not.
You really should stop patronizing self diagnosed people. It's a bit annoying. We don't "believe," we are on the spectrum. We Know.
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No for supporting trump. Because doing so is deplorable.
ASPartOfMe
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The fact is, I'm disabled, and occasionally may need "slack."
You don't take away a cripple person's wheelchair in order to make them pull themselves around by the arms so they can "adapt" to the walking world. There are certain things about AS that I can't, and shouldn't be expected to, change.
I suppose. But AS is an "invisible disability," and as such there IS a double standard compared to a visible one like being crippled. People don't interpret these disabilities equivalently.
Agreed. I knew about the double standard but until my physical disabilities cropped up I never knew how much the difference in treatment really is.
On the larger question I also only disclose when necessary. When I was applying for benefits for my physical disabilities I threw autism in because I figured it might help. IRL outside of the Autism support groups I used to go and family Autism has never come up in a conversation. If it would come up in a serious conversation I would disclose just to let people know I have a lot of experience with the topic. Otherwise, I see no need hijack a conversation.
It is a catch 22. If Autistics do not "come out" the stigmas will never ease. I also think one should let other people know, like and respect you before you disclose.
I think this is spot on. I used to give this advice here and elsewhere all the time. I need to get back to doing that.
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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I'm not patronising anybody. I have stated very clearly many times that I have no issue at all with people self diagnosing. I did so myself though I would never have asserted that I "knew" without any doubt because I am no more qualified to make that claim about myself than you are about yourself.
As to your other point of course self diagnosis is something you can choose not to disclose. But that is different to choosing not to disclose a formal diagnosis.
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Autism is not my superpower.
goldfish21
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I'm not patronising anybody. I have stated very clearly many times that I have no issue at all with people self diagnosing. I did so myself though I would never have asserted that I "knew" without any doubt because I am no more qualified to make that claim about myself than you are about yourself.
As to your other point of course self diagnosis is something you can choose not to disclose. But that is different to choosing not to disclose a formal diagnosis.
ˈpātrəˌnīz,ˈpatrəˌnīz/Submit
verb
gerund or present participle: patronizing
1.
treat with an apparent kindness that betrays a feeling of superiority.
"“She's a good-hearted girl,” he said in a patronizing voice"
synonyms: treat condescendingly, condescend to, look down on, talk down to, put down, treat like a child, treat with disdain
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No for supporting trump. Because doing so is deplorable.
They just don't have faith in what you're telling them. There's a lot of people who don't have faith in and or are leery of a lot of medications, treatments and therapies et al. That plus a lot of autistic people being highly resistant to change and trying something new.
goldfish21
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They just don't have faith in what you're telling them. There's a lot of people who don't have faith in and or are leery of a lot of medications, treatments and therapies et al. That plus a lot of autistic people being highly resistant to change and trying something new.
*shrug* Obvi they can do as they please, but they can’t truly be “SO TIRED OF IT,” or otherwise at their wits end if the remain unwilling to try a different approach that has worked for others (more than just me) & have faith in their own experience. They’d find out right quick if it’s going to benefit them or it’s not. Instead they choose to continue suffering and complaining. That’s the bizarre part to me, and also why I have an ever increasing difficulty feeling bad for any of the long time complainers on this forum. It’s not as if no one has ever told them what they can do about their condition, they simply choose to continue to do nothing about it.
_________________
No for supporting trump. Because doing so is deplorable.
They just don't have faith in what you're telling them. There's a lot of people who don't have faith in and or are leery of a lot of medications, treatments and therapies et al. That plus a lot of autistic people being highly resistant to change and trying something new.
*shrug* Obvi they can do as they please, but they can’t truly be “SO TIRED OF IT,” or otherwise at their wits end if the remain unwilling to try a different approach that has worked for others (more than just me) & have faith in their own experience. They’d find out right quick if it’s going to benefit them or it’s not. Instead they choose to continue suffering and complaining. That’s the bizarre part to me, and also why I have an ever increasing difficulty feeling bad for any of the long time complainers on this forum. It’s not as if no one has ever told them what they can do about their condition, they simply choose to continue to do nothing about it.
Most people aren't going to try something they don't believe is going to work for them. Especially if it's anything that requires more involvement than taking a pill. Could be the more miserable ones view treatment as a false hope. Human psychology often defies logic. Isn't there a saying that some people like to wallow in their misery?
Last edited by EzraS on 01 Oct 2018, 8:14 am, edited 1 time in total.
The fact is, I'm disabled, and occasionally may need "slack."
You don't take away a cripple person's wheelchair in order to make them pull themselves around by the arms so they can "adapt" to the walking world. There are certain things about AS that I can't, and shouldn't be expected to, change.
I suppose. But AS is an "invisible disability," and as such there IS a double standard compared to a visible one like being crippled. People don't interpret these disabilities equivalently.
Rather than disclose an ASD diagnosis, I'd personally opt for being transparent about very specific symptoms, like: "I can't handle the noise here. I have very sensitive hearing," or "This bright light bothers my eyes," or "I'm feeling anxious today, so it's not a good day for me to be out around people." I think these simple breakdowns are far easier for people to absorb and accept vs. trying to explain autism. I also think people are on a "need to know," basis and they need to know as little as possible.
Yes, there is a double standard, but that doesn't mean there should be.
As for the rest, I also mention specific symptoms when necessary. I'm done pretending I'm on the same wave-length as everybody else.
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goldfish21
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Joined: 17 Feb 2013
Age: 42
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They just don't have faith in what you're telling them. There's a lot of people who don't have faith in and or are leery of a lot of medications, treatments and therapies et al. That plus a lot of autistic people being highly resistant to change and trying something new.
*shrug* Obvi they can do as they please, but they can’t truly be “SO TIRED OF IT,” or otherwise at their wits end if the remain unwilling to try a different approach that has worked for others (more than just me) & have faith in their own experience. They’d find out right quick if it’s going to benefit them or it’s not. Instead they choose to continue suffering and complaining. That’s the bizarre part to me, and also why I have an ever increasing difficulty feeling bad for any of the long time complainers on this forum. It’s not as if no one has ever told them what they can do about their condition, they simply choose to continue to do nothing about it.
Most people aren't going to try something they don't believe is going to work for them. Especially if it's anything that requires more involvement than taking a pill. Could be the more miserable ones view treatment as a false hope. Human psychology often defies logic.
Mmhmm. Not willing to do the work? Then you don’t get the results. Simple as that.
It’s very much like fat people complaining about being fat while being 100% opposed to changing their diet and exercise routines. GIGO.
If only it were as simple as swallowing a pill I would be doing that, but, it isn’t, so I put in the effort & benefit from the results.
_________________
No for supporting trump. Because doing so is deplorable.
They just don't have faith in what you're telling them. There's a lot of people who don't have faith in and or are leery of a lot of medications, treatments and therapies et al. That plus a lot of autistic people being highly resistant to change and trying something new.
*shrug* Obvi they can do as they please, but they can’t truly be “SO TIRED OF IT,” or otherwise at their wits end if the remain unwilling to try a different approach that has worked for others (more than just me) & have faith in their own experience. They’d find out right quick if it’s going to benefit them or it’s not. Instead they choose to continue suffering and complaining. That’s the bizarre part to me, and also why I have an ever increasing difficulty feeling bad for any of the long time complainers on this forum. It’s not as if no one has ever told them what they can do about their condition, they simply choose to continue to do nothing about it.
Most people aren't going to try something they don't believe is going to work for them. Especially if it's anything that requires more involvement than taking a pill. Could be the more miserable ones view treatment as a false hope. Human psychology often defies logic.
Mmhmm. Not willing to do the work? Then you don’t get the results. Simple as that.
It’s very much like fat people complaining about being fat while being 100% opposed to changing their diet and exercise routines. GIGO.
If only it were as simple as swallowing a pill I would be doing that, but, it isn’t, so I put in the effort & benefit from the results.
Right I was thinking the same thing. I have a relative who says she's sick and tired of being sick and tired. But she stays sedentary and eats junk. Too set in her ways I suppose.
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