Diagnosed with Aspergers 2 years ago, now told I never had i

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magz
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24 Oct 2018, 1:27 pm

harriet wrote:
Oh my gosh, I can't believe some of these stories about people being told they don't have it, then do, then don't...
Thank you for the advice everybody. One of the reasons the psychiatrist gave was that I am autonomous and independent and that I have a lot of personal insight about my difficulties and emotions, which he says is unusual for Aspergers. I'm like, well, I spent like 6 years in therapy and do insight meditation everyday... I also find it unfair because at age 24 I was an orphan and before that I was the main carer for a terminally ill parent. I had no choice but to just get on with the damn job, being dependant was not an option, and if I didn't work, I didn't survive, so sadly the idea of quitting work because of the depression and anxiety I constantly had and constantly needed therapy for, it just wasn't possible (I have no right to social benefits in the country where I live).

I just feel like I'm being punished in a way for having developed. My boyfriend said he also thinks now that I don't have it, because he has seen me change so much in the last year and a half. He says I have less problems with noise and speak to people more diplomatically. But I spent 3 grand changing the windows in my house this year to noise-insulating windows and came home crying for like 6 months because of cars honking at me whilst cycling and the pain from the noise. I was CONSTANTLY irritated and angry and regularly shouted at or even threw things at people, felt like I would have a panic attack or hit someone if I had to make eye-contact with them, but now I take Risperidone and the anger/agression has significantly subsided. I'm also on an anti-convulsions medication that does seem to make my head feel less like it's frying from sensory overload, but I STILL don't understand irony, why people communicate the way they do, and just last week I had to pull over mid-driving lesson and splurge to the teacher that I have autism and thus needed her to give me way less information and give me time to respond to her verbal instructions. Now I feel like all of these difficulties, all of these battles, all of these daily struggles, are for some reason I can't explain because if I don't have Aspergers then what the hell is wrong with me?? Of course, I have never spoken to the psychiatrist about any of these things, because he's never really asked.

A friend has commented that I am a woman and the psychologist who diagnosed me was also a woman. She then put me in touch with another female psychologist who ran a support group for Aspergers in women, and there I met an autistic friend who did a Masters in neuroscience researching Aspergers in women and she said she's convinced I have it too and she also saw this psychiatrist for 4 years and she doesn't believe he knows what he's doing. So I wonder if the gender difference could explain why these two specialists working at the same autism centre might disagree?

Oh, yes, it is very likely that it is a gender issue. A "traditional" Asperger's is stereotypically masculine and the "feminine" symptoms where social confusion is overcome by careful navigation at the expense of mental energy is still relatively little known.
Your boyfriend is wrong. You have Asperger's all the time, this is the way your brain processes information. You just have managed to overcome a lot of problems it had been causing before, so it is much less visible.


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B19
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24 Oct 2018, 2:28 pm

To find a direct path of out the confusion this psychiatrist has brought about, I suggest you start immediately by watching Tony Attwood's videos describing how Aspergers presents differently in girls and women.

Then read personal accounts written by women on the spectrum who also faced diagnostic error and invalidation (there are many, you could start with the Autistic Women's Network online).

Google can offer you a massive amount of information on this. There are some very informative blogs too.

Also bear in mind that psychiatrists are trained to be oriented toward diagnosis of mental illness, not AS which is not a mental illness; there are all sorts of factors that could bias them away from recognising AS, especially in women.

From your description, you are very probably on the spectrum. Misdiagnosis of AS women is still a common experience from reports filed here and elsewhere.

Start with the video, make your way from there. We have some resources stickied at the top of the Women's forum here, though they are more general. Self test yourself also and post your scores on this thread, later, and update us on the results of your search outcomes.



harriet
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25 Oct 2018, 9:07 am

Hi everybody, thank you so much for your replies and support. I really appreciate it, I think no-one without Aspergers really gets this stuff!

I had an interesting conversation last night with my boyfriend who (not knowing much about Aspergers) said, I don't think you have Aspergers now. I think you definitely had it when we met though, it was extremely obvious. You're completely different now though'. He then asked why I take 4 different types of medication and change the way I act and speak to people etc and I said 'to be less like I have Aspergers', and he just said, exactly, and after 18 months, you've succeeded, apart from the difficulties you still have understanding people and in social situations, but you're a lot better'.

I realised from speaking to him that the difficulties I had before haven't stopped being difficulties, it's just that a bunch of different medications make it all so much easier, and through coping mechanisms, meditation, exercise, self-help books and lessons in socialising etc. I come across a lot differently now. That doesn't undermine or discredit all the fighting I had to do to get to this point or continue to do. I will have Aspergers forever, but that doesn't mean I have to be confined to a range of expected characteristics. If I grow beyond that, I prefer to think of it as me being successful at overcoming some challenges, rather than having to believe it means I never really faced those challenges in the first place.



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25 Oct 2018, 9:47 am

Aspergers is a developmental disability, which means you have a much harder time learning to socialize. This doesn't mean you can't learn to socialize, it just means that you may have to work very hard to do something many people take for granted.

Also, the level of anxiety and the med you take depend on your surroundings and the support you get. Most Aspies are constantly anxious (general anxiety disorder, hard to figure out the cause) because there are so many anxiety triggers in their environment. You may be constantly triggered by bright lights and loud noises. But, no two Aspies are the same, which makes it very difficult for the typical professional to wrap their thinking around unless they work with many different Aspies. It may be hard to realize that the genius and severely disabled on the spectrum may have more in common then than they differ, even though the genius wears a sharp looking suit and the other needs to wear loose fleece clothing.