My new website... tell me what you think

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Do you think there needs to be more innovation in the autism support and networking space?
Yes, more innovation and options are always good. 57%  57%  [ 4 ]
More options are good but you cannot really innovate forums and social networks are a static category 0%  0%  [ 0 ]
just having a support site is innovation enough 0%  0%  [ 0 ]
I could care less 14%  14%  [ 1 ]
I don't Know 14%  14%  [ 1 ]
I have some other opinion in the comments below 14%  14%  [ 1 ]
Total votes : 7

jamthis12
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10 Nov 2018, 9:10 pm

OK cool. My list of topics is
Something about Autism combined with depression and anxiety
Maybe something about masking
Something either about special interests or needing time alone
Not sure what I could say about the last one.


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Arganger
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10 Nov 2018, 9:21 pm

jamthis12 wrote:
OK cool. My list of topics is
Something about Autism combined with depression and anxiety
Maybe something about masking
Something either about special interests or needing time alone
Not sure what I could say about the last one.


All of those are great topics. My vote would likely be on "Something about Autism combined with depression and anxiety"


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Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


jamthis12
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10 Nov 2018, 9:40 pm

OK I'll start working on something like that. What format do you want it in?


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Arganger
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10 Nov 2018, 9:48 pm

jamthis12 wrote:
OK I'll start working on something like that. What format do you want it in?


Either directly as an email, or as a google doc that you give me access to.


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


jamthis12
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10 Nov 2018, 9:49 pm

Alright. Any suggestions in terms of word count or is it up to me?


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Your neurotypical (non-autistic) score: 79 of 200
You are very likely neurodiverse (Aspie)


Arganger
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10 Nov 2018, 9:51 pm

jamthis12 wrote:
Alright. Any suggestions in terms of word count or is it up to me?


up to you, but I suggest no more than three pages and no less than half a page


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


Mona Pereth
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10 Nov 2018, 10:11 pm

Arganger wrote:
I've heard about some ways neurotypical communities adapt to help autistic people (IEPs, etc.) but what are some ways that autistic people adapt to communicate better or 'fit in' with neurotypical communities? In a perfect world, would some of these adaptations still be necessary, or would they all be unneeded?

Even in a "perfect" world, we should still learn how to be assertive without being aggressive, and how to gracefully give and receive constructive criticism. (These are skills essential to effective teamwork, and they are skills that even many NT's have not learned.) Also, even in a "perfect" world, we would still need to attend to hygiene, for the sake of our fellow autistic and autistic-like people (some of whom have heightened sense of smell) as well as for the sake of NT's.

However, we would NOT be pressured to make eye contact, or to engage in unfocused chit chat. Offices would be designed to allow for more privacy, less noise, and variable lighting (with all fluorescent lights replaced by LED lights). We also would not be pressured to wear uncomfortable clothes.

Arganger wrote:
What are some things to remember for people who are friends with or want to make friends with autistic people? Are some ways of communication more effective than others? Are there any 'never do this' kinds of things?

Touching, including hugs, should be done only after asking if it's okay. Many autistic and autistic-like people are ticklish or otherwise touch-sensitive.

Many autistic and autistic-like people have trouble with unfocused chit chat, especially in a group. I personally, for example, need something to focus on in a conversation. The focus can be either a topic or a person. So I can engage in small talk with just one person at a time, OR I can engage in focused, in-depth discussion of specific topics with either one or more people, but I can't do small talk with more than one person at once.

If one wants to host a party that includes autistic people, it would be best to have the party revolve around some structured activity, such as board games or card games, rather than just chit chat. The activity should be something that everyone invited to the party is known to enjoy. Also, don't play loud music.

Arganger wrote:
Are there some social conventions that you simply don't understand?

Why on Earth a lot of people like to play loud music at parties.

How most people make social connections. (For me, friendships develop slowly via in-depth conversations on topics of common interest. When I was younger, a friend of mine observed that I need to connect with people on an intellectual level before I can connect on other levels. She thought this was odd but okay.) I've been told that, for most NT's, making social connections involves mostly nonverbal communication. For me this is largely impossible, and to me it seems very strange.

I'll probably think of other issues later.


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Mona Pereth
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10 Nov 2018, 10:37 pm

Arganger wrote:
up to you, but I suggest no more than three pages and no less than half a page

Or perhaps we could use this thread to brainstorm articles on various topics, which you or someone else could then write, giving credit to people whose posts here were helpful? That's what I assumed you wanted to do. (See my contributions, to that end, in my post above.)


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Last edited by Mona Pereth on 10 Nov 2018, 10:43 pm, edited 1 time in total.

Arganger
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10 Nov 2018, 10:40 pm

Mona Pereth wrote:
Arganger wrote:
up to you, but I suggest no more than three pages and no less than half a page

Or perhaps we could use this thread to brainstorm articles on various topics, which you could then write, giving credit to people whose posts here were helpful? That's what I assumed you wanted to do. (See my contributions, to that end, in my post above.)


I would also like that, and have considered it several times, but I really do want some guest authors.


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


jamthis12
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11 Nov 2018, 1:27 am

Well I just finished with my first draft. Anyone want to take a look at it? https://docs.google.com/document/d/1HQk ... sp=sharing


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cfleischmann
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11 Nov 2018, 1:40 am

Hi everyone:

Just put this together right now in my free time. Feel free to get a look and make comments either on the article itself, or come back here to do it.

LINK: https://docs.google.com/document/d/1oWO ... sp=sharing


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cfleischmann
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11 Nov 2018, 1:46 am

jamthis12 wrote:
Well I just finished with my first draft. Anyone want to take a look at it? https://docs.google.com/document/d/1HQk ... sp=sharing



Loved the article and learned more about myself. Thanks


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jamthis12
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11 Nov 2018, 1:59 am

Really? I thought that it kinda sucked and rambled a lot. But thanks for that! Mind giving any feedback?


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cfleischmann
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11 Nov 2018, 2:19 am

jamthis12 wrote:
Really? I thought that it kinda sucked and rambled a lot. But thanks for that! Mind giving any feedback?



I’ve got none to give st the moment but if something comes up I’ll let you know


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jamthis12
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11 Nov 2018, 2:25 am

OK cool. Looking at your's, I saw a number of good ideas I adapted for mine. Like an "about the author" section, labeling the version number and you know, increasing the size of the title and bolding it.


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Arganger
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11 Nov 2018, 9:54 am

jamthis12 wrote:
Well I just finished with my first draft. Anyone want to take a look at it? https://docs.google.com/document/d/1HQk ... sp=sharing


Looking good!


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia