Talking to (NT) people about your autism
'That's because you spend most of your life stuck indoors' is a common reply to explain away light and noise sensitivities.
I think my biggest pet hate now is people saying we are all on the spectrum
![Evil or Very Mad :evil:](./images/smilies/icon_evil.gif)
Yeah, good point. Is it a human spectrum? Sure. But, if more people dealt with the issues associated with autism then it would be a very different world.
If I say it's a communication and social difficulty they say "but you can talk to people" "lots of people have social difficulties" or something along the lines of "well I'm an introvert too".
The autistic people I know don't seem much better.
I don't mention it to anyone now unless it's a healthcare professional and I need to explain why I've just had a huge meltdown.
Would you tell a blind person, "Lots of people have vision problems"?
Would you tell person in a wheelchair, "Sometimes I have trouble going up stairs, too"?
Good point. I think part of the problem is that people who aren't blind or don't need wheelchairs can see some of the differences between themselves and a blind person or wheelchair user, so it's easier to imagine themselves in the other person's place. But, someone can't really see light sensitivity, for example. When I go into a grocery store, my muscles will tighten a bit from the lights, but of course no one can see that. YouTube has some good videos simulating sensory sensitivity, and showing a few to my girlfriend helped her understand more what I experience. I think that's probably more effective, because just telling someone I'm sensitive to light or noise sounds like venting to them.
And also because being, for example, blind, deaf, legless or even intellectually impaired is a simple subtraction of abilities that most people have...which is pretty easy to understand. But we actually process information in a fundamentally different (not lesser) way, which isn't so simple to grasp.
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If I say it's a communication and social difficulty they say "but you can talk to people" "lots of people have social difficulties" or something along the lines of "well I'm an introvert too".
The autistic people I know don't seem much better.
I don't mention it to anyone now unless it's a healthcare professional and I need to explain why I've just had a huge meltdown.
Would you tell a blind person, "Lots of people have vision problems"?
Would you tell person in a wheelchair, "Sometimes I have trouble going up stairs, too"?
Good point. I think part of the problem is that people who aren't blind or don't need wheelchairs can see some of the differences between themselves and a blind person or wheelchair user, so it's easier to imagine themselves in the other person's place. But, someone can't really see light sensitivity, for example. When I go into a grocery store, my muscles will tighten a bit from the lights, but of course no one can see that. YouTube has some good videos simulating sensory sensitivity, and showing a few to my girlfriend helped her understand more what I experience. I think that's probably more effective, because just telling someone I'm sensitive to light or noise sounds like venting to them.
And also because being, for example, blind, deaf, legless or even intellectually impaired is a simple subtraction of abilities that most people have...which is pretty easy to understand. But we actually process information in a fundamentally different (not lesser) way, which isn't so simple to grasp.
I didn't even grasp it myself until I was a mid teenager which is probably where some of the inferiority complexes come in with aspies. I thought that everyone else used to do their routine and read as much as I did then head out to parties. Instead, they were just spending their free time partying and with friends.
We need to realise that the difference between autism and a disability in general is that autism adds as well as taking away.
Even my light sensitivity which I hate, it's that my eyes are set to see in different light conditions. I can read at dusk without the light on, just from an open window. When I lived in a house, I could go downstairs with my cats and let them out at night without waking up my parents because I didn't need the light to see by. I'm quite happy in the grey-dark as I call it. (Most darkness to me looks grey or navy blue, not black. I long for black to sleep in but I haven't had it since childhood.)
I don't tell anyone about my ASD. Well, obviously my close relatives know, like my mum and my aunties, and they're the only people I talk about ASD to without feeling embarrassed. Otherwise I don't talk about it to anybody else because I don't want people to know I've got it. I do talk about my anxiety and ADHD to people though.
But if I told people about ASD I doubt that they'd even believe me. They'll be like, "but you're sociable" and "but you don't flap your hands or rock" and "but you don't put your hands over your ears at a loud noise" and "but you can express your feelings" and "but you don't take things literally" and "but you don't have a special interest", the list goes on.
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This is the part that is most difficult for many on the spectrum to grasp, never mind NT's.
Another problem is that there is no agreement as to how many traits and how "severe" they have to be to qualify one as autistic. Again that is not only an allistic issue, over the 5+ years I have been on WP there have been a number of posters who believe that people who have successful jobs and marriages cannot be autistic while others believe autistics are some sort of master race or the next step in evolution.
Like I have said before outside of autistic spaces and those on a need to know basis autism has never come up in a conversation. The last few years since my physical disabilities have occurred people discuss that. If autism comes up am very open to disclosing to do what I do online if they spew nonsense, tell them I have 61 years more experience being autistic then they do and am in regular contact with other autistics.
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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I have a strange irrational belief that autistic people who have neurotypical friends of their age can't possibly be autistic, probably because I feel hurt that I'm only mild Asperger's yet I can't seem to be included in a neurotypical group no matter how hard I try. So I wonder how other autistics do it.
I don't believe that autism is the next step in evolution, but I do think that HFA and Asperger's syndrome will become like a trend soon, as more people are getting diagnosed. It's a bit like gay people are coming out in the open these days and now being gay is so accepted here in the UK than it ever used to be. Also mental health issues like Bipolar and personality disorders seem to be so accepted these days, where as years ago people with mental health issues had stigma attached and were seen as insane. So I think milder forms of autism will soon be more understood, which is good because hopefully it might make autistic people more socially accepted.
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'That's because you spend most of your life stuck indoors' is a common reply to explain away light and noise sensitivities.
I think my biggest pet hate now is people saying we are all on the spectrum
![Evil or Very Mad :evil:](./images/smilies/icon_evil.gif)
If you want to shine up the sarcasm you could respond with, "I know it's crazy how we're all on the epileptic spectrum too, huh? And how we are all seven feet tall?"
I don't believe that autism is the next step in evolution, but I do think that HFA and Asperger's syndrome will become like a trend soon, as more people are getting diagnosed. It's a bit like gay people are coming out in the open these days and now being gay is so accepted here in the UK than it ever used to be. Also mental health issues like Bipolar and personality disorders seem to be so accepted these days, where as years ago people with mental health issues had stigma attached and were seen as insane. So I think milder forms of autism will soon be more understood, which is good because hopefully it might make autistic people more socially accepted.
I'd love to agree with you that in the future ASD people will become more socially accepted but I'm afraid it just doesn't seem feasible to me. One of the central symptoms of ASD is that you are basically bad at being sociable and interacting with other people. Its virtually a contradiction in terms to be socially inept and yet somehow be 'socially accepted'!
I'm more than glad that my family accepts it, but never discussed it ever.
Not a single direct statement about it. Though I do sense unspoken terms, but for me it is best left unsaid.
I don't want to bother anyone with my case.
They don't need to know how my mind works, how my body works, how I sense things differently, how concept of things are different for me. I don't want them to imagine themselves in my place and claim to know, let alone understand.
The only thing that people just know that certain things are annoying or uncomfortable, and there are many things I don't have for a preference.
And knowing 'why' is this is not one of it -- they don't have to know. I make my own adjustments as long as it is allowed.
Not that I don't want them to understand per se. More like I don't want any of them to touch any more issues to it.
I don't want their silence and mostly idle acceptance -- be twisted into something more misunderstanding and unwanted that either leads them into smothering me or neglecting me for just knowing or worse, claim to understand.
I can grant someone's curiosity and answer questions for one. I can even go as far as showing my world to them if they want to and if I trust them.
But having someone to adjust for me? I wouldn't want that.
And if it's the other way around that they bothered to be 'concern' towards me by making me adjust for them? I would rather ditch them or get kicked out on purpose.
There are only very few people that I trust that could understand me enough. They not only how my mind and body works, but also know me and how bits of me interacts.
And an even lesser fraction of those people, truly understands and I can openly discuss about the damn world around me in ways that no NT would ever understand. So far, none of them are NTs.
I would rather be the one who accommodates, not the other way around. Even accommodate those who are less in need than I -- this is just how I'm.
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'That's because you spend most of your life stuck indoors' is a common reply to explain away light and noise sensitivities.
I think my biggest pet hate now is people saying we are all on the spectrum
![Evil or Very Mad :evil:](./images/smilies/icon_evil.gif)
Like telling a dwarf that we're all on the height spectrum.
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"Donkeys live a long time. None of you has ever seen a dead donkey."
'That's because you spend most of your life stuck indoors' is a common reply to explain away light and noise sensitivities.
I think my biggest pet hate now is people saying we are all on the spectrum
![Evil or Very Mad :evil:](./images/smilies/icon_evil.gif)
Like telling a dwarf that we're all on the height spectrum.
Like telling someone with OCD we all have intrusive thoughts.
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How many people do you know who you can talk to in a serious way?
How difficult is it to find the opportunity to have serious discussions about your life/condition/feelings etc etc?
How do NT people typically react to these discussions? Do they care? Do they understand?
I'm guessing (based on my own limited experience) that its very hard to find people who have the time/inclination/intelligence to discuss these complex and difficult problems and issues with. (I'm referring here more to family/friends rather than healthcare professionals).
A person asked me how having autism was like for me. I told them for me just like people have physical muscle to engage their arm, they have a social muscle to act socially, and that I miss that social muscle. Even though I can talk to someone, or look them in the eye, I can't engage them socially. NT's just have something I don't. But that's just my autism and I get that others can have a different experience with this condition.
I'd love to agree with you that in the future ASD people will become more socially accepted but I'm afraid it just doesn't seem feasible to me. One of the central symptoms of ASD is that you are basically bad at being sociable and interacting with other people. Its virtually a contradiction in terms to be socially inept and yet somehow be 'socially accepted'!
Ahhh, but greater and greater levels of sociopathy (such as wanton violence and open bigotry) are becoming acceptable or at least common in some societies. I suspect that this decreases expectations of social behavior, which can increase the acceptability of at least some spectrumites.
I'd love to agree with you that in the future ASD people will become more socially accepted but I'm afraid it just doesn't seem feasible to me. One of the central symptoms of ASD is that you are basically bad at being sociable and interacting with other people. Its virtually a contradiction in terms to be socially inept and yet somehow be 'socially accepted'!
Ahhh, but greater and greater levels of sociopathy (such as wanton violence and open bigotry) are becoming acceptable or at least common in some societies. I suspect that this decreases expectations of social behavior, which can increase the acceptability of at least some spectrumites.
Isn't that how a lot of people get accepted in society , they join a gang , clique , group etc and adopt their ethos to fit in.
I'd be interested in how many people who are not socially adept just go along with it just for acceptance.
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Hypocrisy is the greatest luxury. Raise the double standard
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