Mother thinks I have prader Willi syndrome

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jimmy m
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04 Jan 2019, 11:46 am

MagicMeerkat wrote:
She has lied to me and said they have about other things. I asked my psychiatrist if I was ever diagnosed with borderline personality disorder because she was saying I was. He said no. I told my mom and she said he had to lie because people with that condition should never be told they have it.


There is one thing about parenthood. You will always be their child, even when you get to be 70 years old. Parents always know best. But try not to be too upset with her because deep down inside she still really cares about your well-being. She may be wrong, dead wrong. But do not confuse her being wrong with the fact that she loves you.


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MagicMeerkat
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05 Jan 2019, 12:27 pm

She keeps saying it's a "spectrum" and you don't have to have every single symptom. She's adamant I have it because I was a "floppy baby" and now "failed to thrive" (the first time I have ever heard of that about myself). I told her the major symptom and the main thing about it is the excessive appetite an inability to feel full. But no, you don't need all the symptoms apparently. She will only let me have a DNA test from 23 & Me, not one from a doctor and I don't particularly trust 23andMe. She did not even know what prader willi was until she saw a CSI episode about it. (She's gotten lots of things wrong because her first exposure to them was a CSI episode and thinks that's how all those people are in real life). She used to look at the local foster kid website as if she were looking at puppies on Craigslist and some of them had prader Willi. As we were watching Gibson and Co remove content from the man's stomach, my mom said, "Oh, that is what some of those foster kids have." She did not start saying I have it until recently and it's making me self-conscious about eating.


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05 Jan 2019, 1:34 pm

MagicMeerkat wrote:
She keeps saying it's a "spectrum" and you don't have to have every single symptom. She's adamant I have it because I was a "floppy baby" and now "failed to thrive" (the first time I have ever heard of that about myself). I told her the major symptom and the main thing about it is the excessive appetite an inability to feel full. But no, you don't need all the symptoms apparently. She will only let me have a DNA test from 23 & Me, not one from a doctor and I don't particularly trust 23andMe. She did not even know what prader willi was until she saw a CSI episode about it. (She's gotten lots of things wrong because her first exposure to them was a CSI episode and thinks that's how all those people are in real life). She used to look at the local foster kid website as if she were looking at puppies on Craigslist and some of them had prader Willi. As we were watching Gibson and Co remove content from the man's stomach, my mom said, "Oh, that is what some of those foster kids have." She did not start saying I have it until recently and it's making me self-conscious about eating.


She's full of crap.
She won't let you take a chromosome test even though it could prove her right if she is so convinced. (Prador willi is a known partial deletion on the 15th chromosome)


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MagicMeerkat
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05 Jan 2019, 10:37 pm

She's now saying I have a binge eating disorder. Because I ate two cupcakes. I did used to binge eat before I moved out. But after I moved out and was free to eat what ever I wanted and my mother wasn't around to limit my sweets or hide them, binging just didn't give me the "high" it used too. But now I'm afraid to eat because I'm worried she will say I have some kind of disorder.


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07 Jan 2019, 1:58 am

First Pradi Willi syndrome also involves intellectual impairment. I don't know if every person with it also has it. You say you haven't binged on food since you have moved out. Maybe your binge eating is caused by stress and you eat when you are stress, not because you are hungry. People with pradi will always feel hungry and will never be satisfied with their food. They will never be full. Just imagine always living 24/7 being hungry and always having to count your calories and measure your food to be sure you don't over eat.

I don't know if you have an eating disorder or not, binge eating disorder is a thing. Not everyone who binges on food has an eating disorder just like not every underweight person has anorexia. But sadly anorexia and eating disorder is thing now people are tossing around at anyone who eats healthy and exercises and is skinny and think eating 1500 calories a day is anorexia and starving yourself. :roll:


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07 Jan 2019, 2:01 am

Fnord wrote:
MagicMeerkat wrote:
BeaArthur wrote:
As often happens, it sounds like you are the sane one in the family. Don't pay any attention to her when she gets like this. If she persists, tell her you don't want to hear it right now. You aren't feeling like discussing it - maybe later. If she asks "when?" suggest "Never? Does never work for you?"
I have tried that. She just yells at me for being rude or accuses me of being mean to her
Ahh ... so she's trolling you for a reason to play the martyr. To wit:

She states a false claim --> You call her out on it --> She accuses you of being mean and claims to be a victim.

She'd fit right in with the L&D crowd on this website.



There is a sub on Reddit called r/raisedbynarcissists.

I have seen some stories there by people who were also told they had autism or were crazy, etc only to find out they were actually sane and now they have CPTSD or PTSD or anxiety from the abuse.


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armandreyes
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08 Jan 2019, 5:14 pm

Well, a quick read in Wikipedia and it fits some of my symptoms



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08 Jan 2019, 11:35 pm

Is it even possible to have "mild" Prader Willi? I think you either have it or you don't. I am pretty sure it does not come in a mild form.


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09 Jan 2019, 12:13 pm

skibum wrote:
Is it even possible to have "mild" Prader Willi? I think you either have it or you don't. I am pretty sure it does not come in a mild form.


It's a little complicated.
Like with down syndrome, people will have varying levels of ability even though it is the same basic chromosomal issue. However it's still going to be pretty obvious, Prader Willi syndrome's traits especially are likely to be pretty obvious.


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Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


frag
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09 Jan 2019, 6:02 pm

I'm sort of cursed with low muscle tone and I'm an aspie. It happens quite a lot in Asperger's. That is why we slouch. It takes painful tension to stand straight.



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09 Jan 2019, 8:56 pm

frag wrote:
I'm sort of cursed with low muscle tone and I'm an aspie. It happens quite a lot in Asperger's. That is why we slouch. It takes painful tension to stand straight.

Me too. I’ve always found it impossible to do sit-ups. My stomach muscles don’t want to work.
Yoga has made my posture better though.



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10 Jan 2019, 9:57 am

Prader Willi syndrome is a chromosomal disorder, a deletion on the paternal chromosome number 15. If you don't have this deletion, you don't have PWS.



MagicMeerkat
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10 Jan 2019, 10:52 am

skibum wrote:
Is it even possible to have "mild" Prader Willi? I think you either have it or you don't. I am pretty sure it does not come in a mild form.


According to my mom it is.


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10 Jan 2019, 10:57 am

One can look in Wikipedia and find that they could possibly have every disease in the book.

Being hungry all the time does NOT mean you have Prader-Willi Syndrome.

What will Meerkat's mother come up with next?



MagicMeerkat
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10 Jan 2019, 12:05 pm

kraftiekortie wrote:
One can look in Wikipedia and find that they could possibly have every disease in the book.

Being hungry all the time does NOT mean you have Prader-Willi Syndrome.

What will Meerkat's mother come up with next?


She thinks I have MS too. She's one of those people who refuses to apologize or admit when they were wrong unless they are caught in the presence of other people. If it's just me and her, she thinks she doesn't have to apologize if her intention was not to hurt me. If it did hurt my feelings, that's my fault. But if I hurt her feelings accidentally, I am called out for it, told I am being mean, etc. If I disagree with her, I am apparently "mean".


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IstominFan
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10 Jan 2019, 5:02 pm

That reminds me of the joke (could be in the dark jokes thread) about the hypochondriac who tried to diagnose himself from a medical journal and died of a misprint.