How and when did you get diagnosed with Asperger’s

Page 2 of 3 [ 34 posts ]  Go to page Previous  1, 2, 3  Next

StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 31
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

20 Feb 2019, 4:40 pm

I was diagnosed almost 5 years ago with ASD level 1, I was 21. There was a period of denial for me that lasted a few months, this was between the time my mom told me she thought I was autistic and when I got my diagnosis. Have you spoken to your sister about the possibility of her being on the spectrum?


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


Larksparrow
Butterfly
Butterfly

Joined: 19 Feb 2019
Age: 60
Gender: Female
Posts: 14

20 Feb 2019, 5:43 pm

Magna wrote:
IsabellaLinton wrote:
Also ... regarding the title of this thread, Aspergers is no longer a diagnosis.


I've been confused by this too. DSM is for "Mental Disorders". Then there's the ICD for "International Classification of Disease". I wonder if Psychiatrists use or still use ICD diagnostic codes whereas Psychologists use DSM diagnostic codes. Wiki says ICD still has an Asperger's diagnosis, but is it still ever used or is it just "on the books" but obsolete?

The DSM IV included Asperger's as a disorder separate from autism. The DSM V changed the classification to an autism spectrum disorder. The DSM is published by the American Psychiatric Association, so medical doctors use the DSM V. Psychologists and other mental health professionals also use the DSM V, and these disorders are coded in insurance plans. Asperger's is still in common use to describe high functioning people on the spectrum. I don't know if anyone will take offense, as none is intended, but I find Asperger's to be good short hand to describe high functioning people on the spectrum, as the DSM V currently categorizes it. I have not researched the rationale for ditching Asperger's. I'd be interested in knowing if it was related to a shared neurological condition.



Larksparrow
Butterfly
Butterfly

Joined: 19 Feb 2019
Age: 60
Gender: Female
Posts: 14

20 Feb 2019, 6:02 pm

StarTrekker wrote:
I was diagnosed almost 5 years ago with ASD level 1, I was 21. There was a period of denial for me that lasted a few months, this was between the time my mom told me she thought I was autistic and when I got my diagnosis. Have you spoken to your sister about the possibility of her being on the spectrum?

I brought it up once, and she said, "I don't have Asperger's". This was in the DSM IV days, so it was a specific diagnosis. She is sensitive about her social skills and I didn't push it further. In one of my last discussions with her, when I was hoping for reconciliation, she shrieked at me, "you think you have better social skills than me!" We had never discussed social skills, so it came out of nowhere.
I told her I did, because I do. The discussion got really heated, she was insulting me left and right, so I did point out she corners people and launches into long-winded monologues on highly technical and boring to most topics, and she does not read their discomfort. That didn't go over so well. I would like a do over on that conversation, but she crossed many lines too.



graceksjp
Veteran
Veteran

User avatar

Joined: 17 Aug 2018
Age: 24
Gender: Female
Posts: 1,719
Location: Down the rabbit hole

20 Feb 2019, 6:07 pm

I was nine, and it was because my parents were one tantrum away from shipping me off to one of those military style boot camps for troubled kids. After several failed psychologist visits, their last ditch effort was a guy my dad knew from work who got to be the unlucky person who had to tell my parents there was no "fixing me".
I almost went undiagnosed because of how many idiots thought my only problem was the fact that I was adopted. I was also misdiagnosed with four separate labels. Doesnt matter which is true or not tho, my parents werent willing to believe in any of them. Their denial period is still in affect 10 years later lol


_________________
*404 Error: Inspirational quote not found*


renaeden
Veteran
Veteran

User avatar

Joined: 12 Jun 2005
Age: 47
Gender: Female
Posts: 2,326
Location: Western Australia

20 Feb 2019, 6:55 pm

I was diagnosed with autism in 2005, DSM IV-TR days. I didn't even know what autism was but decided to go through testing because I was curious and also needed answers as to why my communication skills were so bad. My mum was also interviewed over the phone. She had no idea it would be about autism even though she knew she was getting a phone call.

After the psychologist's diagnosis, it was confirmed by a psychiatrist about a month later.

It was all fairly surprising to be diagnosed with something I hadn't heard anything about so I looked up autism on the internet and found WP.



oscarinthewild
Pileated woodpecker
Pileated woodpecker

Joined: 16 Feb 2019
Age: 36
Gender: Male
Posts: 183

20 Feb 2019, 7:00 pm

I figured out by browsing through wikipedia .


_________________
“I say that no human being will ever understand me, because I will never…my inner—Cemil—will never be open to anybody. No human will ever understand me. I always play. This is the truth."


Larksparrow
Butterfly
Butterfly

Joined: 19 Feb 2019
Age: 60
Gender: Female
Posts: 14

20 Feb 2019, 7:45 pm

DanielW wrote:
Larksparrow wrote:
IsabellaLinton wrote:
Also ... regarding the title of this thread, Aspergers is no longer a diagnosis.


I'm just trying to figure out if there is a way to help my sister and stop her current descent into alienating the entire family.


That is really a different question altogether. A diagnosis isn't going to help your sister. Treating the symptoms/issues she is having right now might. Are there comorbid issues that need addressing?


My thought is that if she had a diagnosis and accepted it, she would use her tenacity to get treatment for her symptoms. Once she puts her mind to something, she is unstoppable. Accepting a diagnosis is the sticking point. She has a lot of emotional energy tied up in how horrible every one is, and that she’s surrounded by stupid people. The idea that she is experiencing cognitive distortions would be hard for her to take. She does not like being wrong.



DanielW
Veteran
Veteran

User avatar

Joined: 17 Jan 2019
Age: 36
Gender: Male
Posts: 1,873
Location: PNW USA

20 Feb 2019, 8:02 pm

Larksparrow wrote:
DanielW wrote:
Larksparrow wrote:
IsabellaLinton wrote:
Also ... regarding the title of this thread, Aspergers is no longer a diagnosis.


I'm just trying to figure out if there is a way to help my sister and stop her current descent into alienating the entire family.


That is really a different question altogether. A diagnosis isn't going to help your sister. Treating the symptoms/issues she is having right now might. Are there comorbid issues that need addressing?


My thought is that if she had a diagnosis and accepted it, she would use her tenacity to get treatment for her symptoms. Once she puts her mind to something, she is unstoppable. Accepting a diagnosis is the sticking point. She has a lot of emotional energy tied up in how horrible every one is, and that she’s surrounded by stupid people. The idea that she is experiencing cognitive distortions would be hard for her to take. She does not like being wrong.


Ah, I understand a little better. There may not be a lot to be done in that case. She also may not like the label/stigma of any diagnosis. Unless she is truly a danger to herself or others, there isn't a lot anyone can do to compel her to change. Additionally, there aren't a lot of services available (in the US at least) for adults on the spectrum. People seem to have the notion that it magically disappears at 18. It is a difficult situation to be sure.



IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,422
Location: Chez Quis

20 Feb 2019, 8:21 pm

Larksparrow wrote:
DanielW wrote:
Larksparrow wrote:
IsabellaLinton wrote:
Also ... regarding the title of this thread, Aspergers is no longer a diagnosis.


I'm just trying to figure out if there is a way to help my sister and stop her current descent into alienating the entire family.


That is really a different question altogether. A diagnosis isn't going to help your sister. Treating the symptoms/issues she is having right now might. Are there comorbid issues that need addressing?


My thought is that if she had a diagnosis and accepted it, she would use her tenacity to get treatment for her symptoms. Once she puts her mind to something, she is unstoppable. Accepting a diagnosis is the sticking point. She has a lot of emotional energy tied up in how horrible every one is, and that she’s surrounded by stupid people. The idea that she is experiencing cognitive distortions would be hard for her to take. She does not like being wrong.


Isn't that her problem, and not yours?

A diagnosis will not "cure" her or correct cognitive distortion. In fact, it may help her to feel more self-assured or confident about the personality she already has.

All you can do is educate yourself.


_________________
I never give you my number, I only give you my situation.
Beatles


Edna3362
Veteran
Veteran

User avatar

Joined: 29 Oct 2011
Gender: Female
Posts: 12,606
Location: ᜆᜄᜎᜓᜄ᜔

20 Feb 2019, 9:08 pm

How: Sometime between grade 5 to 2nd year HS (equivalently grade 8 to K-12 at that time).
When my behavioral issues got worse, when most secondary issues gotten worse overall.

When: About 10 years ago from now.
At age 10 would be full of references, suggestions and impressions but it's the best my household could get their hands on.
Age 14 when my household could finally afford an extensive and more official version of the diagnosis and full confirmation.





Sure, I had my own experiences with stages before and after diagnosis -- suspicions and self arguments, blame and denial, escape and isolation, faux acceptance and real acceptance.

But I had my own scenarios with people around me. My own setting -- non-social environment, social and cultural environment.

Had my own tools, my own priorities, my own resources and means of accessibility... So do others.


_________________
Gained Number Post Count (1).
Lose Time (n).

Lose more time here - Updates at least once a week.


Larksparrow
Butterfly
Butterfly

Joined: 19 Feb 2019
Age: 60
Gender: Female
Posts: 14

20 Feb 2019, 10:33 pm

DanielW wrote:
Larksparrow wrote:
IsabellaLinton wrote:
Also ... regarding the title of this thread, Aspergers is no longer a diagnosis.


I'm just trying to figure out if there is a way to help my sister and stop her current descent into alienating the entire family.


That is really a different question altogether. A diagnosis isn't going to help your sister. Treating the symptoms/issues she is having right now might. Are there comorbid issues that need addressing?


If she could accept a diagnosis, she would turn her tenacious drive to treating the symptoms. Regarding comorbidity, she suffers from depression periodically.



Hypercoaster
Raven
Raven

User avatar

Joined: 15 Aug 2017
Gender: Female
Posts: 123

20 Feb 2019, 10:43 pm

I was diagnosed with Asperger's in 2006, when I was 19. I was officially diagnosed with OCD when I was a senior in high school (had it since age 3 or 4, though), and I started CBT the summer before I started college. My CBT therapist sent me to another CBT therapist near my college, and after seeing that therapist all freshman year of college, she said she was baffled by my symptoms and failure to respond to CBT and suspected that "something else is going on." She said she suspected I also had AS, which I did doubt. I don't fit the stereotype of AS I had read about because my social cues aren't horrible (I am seen as "quirky but normal" by most), so I really thought an AS diagnosis was a stretch. But the CBT therapist sent me to a different therapist who specialized in AS, and that's when I got my official diagnosis. Now that I've read so much about ASDs and more is known about them, I think it's safe to say that, if I were a kid nowadays, I would have been diagnosed much earlier. Probably at age 4, to be honest.



CC2501
Hummingbird
Hummingbird

Joined: 29 Jan 2019
Age: 23
Gender: Male
Posts: 24
Location: Minnesota, United States

21 Feb 2019, 1:11 am

When I was 2, I was diagnosed with autism. A few years later, the diagnosis was changed to PDD-NOS (Pervasive Developmental Disorder - Not Otherwise Specified). Then years later, it was again changed to my current diagnosis, Asperger's.

Not on the subject, I also have severe ADHD, although I do not know when exactly I was diagnosed with it.


_________________
AQ-34 out of 50 (a score of 32 or above indicates a high probability of an autistic spectrum disorder)


SoapOnARope
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 18 Jan 2019
Age: 41
Gender: Male
Posts: 25
Location: Trapped inside this Octavarium

21 Feb 2019, 2:28 pm

What: Technically "Autism Spectrum Disorder", although I have no speech or developmental delays and no/little support required. What would have been Aspergers in the olden days. I'm very fortunate to have a considerably high level of functionality, generally speaking.

How: Self-referral to the NHS (UK). After an awareness campaign last year I had a lightbulb moment, since then I've looked at various online sources and so much of it applies to me and just made sense, as well and we'll exceeding all thresholds for various online tests. Pre-screening questionaire, AQ10 answers, accompanying letters and lists of traits to a GP (General Practitioner). Then a 20 page (when completed) developmental questionnaire and lengthy interview, both by a psychotherapist who specialises in adult autism.

When: December 2018, aged 35.

In terms of ICD mentioned up thread; ICD10 removes the classification of Aspergers and now only contains ASD, to match DSM5. Some therapists are applying ICD10 now in the UK, mine uses both DSM5 and ICD10.


_________________
AQ50: 41/50
EQ: 4/80
RAADS-R: 188
RDOS:
Your neurodiverse (Aspie) score: 151/200
Your neurotypical (non-autistic) score: 59/200
You are very likely neurodiverse (Aspie)


Zubifish
Hummingbird
Hummingbird

Joined: 12 Feb 2019
Age: 26
Gender: Female
Posts: 18

21 Feb 2019, 2:39 pm

I was diagnosed just a couple of weeks ago by a psychologist, at the age of 20. I pursued a diagnosis because I have a boyfriend with Asperger’s Syndrome as well as 2 nephews with the same syndrome, and I noticed similarities between myself and them.



JD12345
Toucan
Toucan

Joined: 30 Jan 2019
Age: 30
Gender: Male
Posts: 287

21 Feb 2019, 3:20 pm

My actual diagnosis (which was surprisingly late IMO) of Asperger's came at the age of 16 (going on 17, as the song goes) or so. I say 'surprisingly late' because I had many classic signs during my early childhood. My aunt recalls an occasion when I was around 2 or 3 and I asked her to buy me a bar of chocolate while we were visiting a store. When she agreed, I knelt down and shook my hands all around in excitement - pretty blatant stimming. I was also late in learning to walk apparently, and I had to go to a local clinic that specialised in the development of young people. At school, particularly during secondary school, there were also many signs. I was in various 'side classes' aimed at helping students with poor communication and learning skills, I preferred to be on my own in one way or another during playtime and I had atrocious time management skills and did little homework. But I was great at mental arithmetic apparently, the best in my year according to one teacher.