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Would you say this is mild or moderate autism?
Level 1 Mild 29%  29%  [ 4 ]
Level 2 Moderate 64%  64%  [ 9 ]
Level 3 Severe 7%  7%  [ 1 ]
Total votes : 14

kraftiekortie
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08 Jul 2019, 6:44 pm

There's a college in Vermont that happens to specialize in autism and ADHD.

It's called Landmark College.

It's probably pretty expensive----but maybe you can get a scholarship.



laurenm
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08 Jul 2019, 6:47 pm

IsabellaLinton wrote:
My apologies that I didn't say hello, Lauren. Welcome to Wrong Planet! I was just assessed last year and my report is 20+ pages, ranking me by percentile against control groups, with standard deviation factored in. I'm not even sure what that means in terms of statistics (lol), but I know that my testing was very accurate, it was "double blind" (again I don't really know what that means), and it took nearly 12 hours. The report ranks my impairment by need, and most of my needs are categorised with the words "Significant", "Severe", etc. I don't think any of us on Wrong Planet can guess your levels of need, so I'd suggest contacting the clinician who assessed you for more detail.


Hello, nice to meet you. I have been tested so many times throughout my life and I see what my scores are. I’m mostly interested in finding out how other people see me. I’ve often been in classes for lower functioning people and I wonder why I’m there. I’m curious how others see me. If that makes sense.



laurenm
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08 Jul 2019, 6:50 pm

kraftiekortie wrote:
There's a college in Vermont that happens to specialize in autism and ADHD.

It's called Landmark College.

It's probably pretty expensive----but maybe you can get a scholarship.


I don’t know if I could move away from my family and friends for school. I was thinking of doing the Oasis program at Pace University. But I’m not actually looking for a degree at the moment- just independence and to learn some new things.



kraftiekortie
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08 Jul 2019, 6:55 pm

You can take some courses at a community college like Borough of Manhattan Community College.



laurenm
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08 Jul 2019, 7:02 pm

ASPartOfMe wrote:
I would guess moderate since you need considerable assistance.

Maybe the right people to ask is the people that assessed you and the people that set up your assistance because the three levels are based on the need for assistance.

Do you feel the level of assistance you receive is adequate or do you feel you need more or less assistance then you do now?


I feel like I’m getting adequate support, but I’m wondering how I can be higher functioning. Sometimes I need more support but I’d want to be high functioning for a few reasons. One for more independence and also I would like a relationship and I’ve read that high functioning people can have a relationship. I’m interested to know how I come across to others (which obviously is not something that people can tell me online) but I’d like to know if people like me are high functioning or moderate functioning?



laurenm
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08 Jul 2019, 7:04 pm

kraftiekortie wrote:
You can take some courses at a community college like Borough of Manhattan Community College.


Can you do that with access VR?



kraftiekortie
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08 Jul 2019, 7:09 pm

I don't know.

If VR means "vocational rehabilitation," I would ask my counselor.

Tell her/him that you would be interested in taking college courses.



laurenm
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08 Jul 2019, 7:12 pm

kraftiekortie wrote:
I don't know.

If VR means "vocational rehabilitation," I would ask my counselor.

Tell her/him that you would be interested in taking college courses.


Unfortunately I have not had good luck with access VR. They told me that I should apply for DD services (which I did) because they would have more intensive supports. But only access VR pays for the college classes so I don’t know if I will be able to do that.



kraftiekortie
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08 Jul 2019, 7:15 pm

You went through an evaluation process at Access VR---and they told you that you should go to DD?

I wish you could set up a meeting with a counselor at Access VR----and talk to him/her about your dreams of becoming more independent.

I would say the DD thing is rather limited....and limits people who have more potential than they think they have.



laurenm
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08 Jul 2019, 8:13 pm

kraftiekortie wrote:
You went through an evaluation process at Access VR---and they told you that you should go to DD?

I wish you could set up a meeting with a counselor at Access VR----and talk to him/her about your dreams of becoming more independent.

I would say the DD thing is rather limited....and limits people who have more potential than they think they have.


I submitted my iep and most recent neuropsych to access VR and they told me to apply to opwdd because they could provide more services. But they don’t have the college services access VR does.



kraftiekortie
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08 Jul 2019, 8:33 pm

You should stay with VP then, if possible.

At DD, I believe they would assume that you are too "disabled" for college.

I am a believe in the premise that people should have access to as much as they can potentially succeed in.

Are you able to type and do Microsoft things? This is in relation to the other thread you made about jobs.



laurenm
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08 Jul 2019, 8:58 pm

kraftiekortie wrote:
You should stay with VP then, if possible.

At DD, I believe they would assume that you are too "disabled" for college.

I am a believe in the premise that people should have access to as much as they can potentially succeed in.

Are you able to type and do Microsoft things? This is in relation to the other thread you made about jobs.


Yes they say that my support needs are too great for college. I can type and do things in Microsoft. I actually now have a job but I don’t use Microsoft for it.



kraftiekortie
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08 Jul 2019, 9:10 pm

I don’t use Microsoft, either.



Mona Pereth
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08 Jul 2019, 9:40 pm

laurenm wrote:
I’m a 24 year old adult female. I’ve been diagnosed with autism several times but I’m not sure what level I am. I know it doesn’t matter but I’m wondering what my functioning level would be to someone who doesn’t know me. Based on this information below what level would you say? Also if you can add any advice on how to become higher functioning that would be helpful.

I don't know how the levels are defined in practice. The descriptions in the DSM seem extremely vague and subjective. Hopefully the specialists have managed to develop some reasonable set of standards that they use.

So the following is just my best guess, in terms of what would make sense to me if I were in charge of defining the levels:

laurenm wrote:
-I can write well and I can speak in full sentences. Although I have trouble with people I don’t know and the social aspects of conversations.
-I am fully toilet trained, I can shower and dress myself.
-I had an iep in school and was classified as “multiple/severe disabilities” I went to a special ed school for a little due to my inability to stay in class and outbursts/ panic attacks.
-I have a job. I also am part of job training program for autistic adults. I work 15 hours a week (3 days) and now have a job coach only come once a week.

How long have you had this job? If you can write well, speak in full sentences, AND hold down a job, I would guess that that would exclude you from the "severe" category. However ....

laurenm wrote:
-I get disability for my autism.
-I was approved to have someone from the developmental disability team help me 40 hours a week in my home and community.

If you were deemed eligible for that much support, it must not be mild either.

laurenm wrote:
- I can travel independently if I know where I’m going. (Though I don’t drive).
-I live independently though I have constant help from parents and team.
-I have an average IQ but scored borderline delayed in visual spatial and moderately delayed in adaptive functioning. My biggest weakness was expressive & receptive communication scores that were scored in the <.1 percentile. My strength was quantitative reasoning where I scored high average. My ADOS score “far exceeded the autism cut off score.”
- I have few friends and have never had a boyfriend though I have the desire for both.
-I stim at home but most of the time I can control it if I go out.
-I’ve had a therapist tell me that it was obvious to people that I was autistic, but I had another one say it was an invisible disability.
-the most socially inappropriate thing I do is cry if I’m overwhelmed in public but I don’t have any of the behaviors that some severely autistic people have. (screaming, biting themselves, banging their head).
-I avoid crowds, talking to people, and anxiety provoking situations.
-I experience fatigue, anxiety, and major sensory issues with lights, sounds, smells, and touch.

Would you say this is mild or moderate autism?

Moderate.


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Mona Pereth
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08 Jul 2019, 9:50 pm

laurenm wrote:
Thank you. Do you think it would be okay for me to say I have high functioning autism or aspergers? Or say I have mild autism? My mom just says I’m autistic if I’m at the doctors but I think I should say high functioning because I have an average IQ.

"High functioning" and "Aspergers" yes (because you have an average IQ and learned to talk before age 3) but (it seems to me, at least) NOT "mild." If you were "mild" you wouldn't have been deemed to need a support worker 40 hours per week.


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IsabellaLinton
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08 Jul 2019, 9:56 pm

I agree with Mona Pereth. I was unsure about the purpose of your poll, which asks whether we think you are "mild" or "moderate" functioning. You said that your assessment didn't give you that information but, in a different thread, you posted that you were "diagnosed mild to moderate":

viewtopic.php?f=3&t=362637&p=8282240#p8282240

Based on this, and the other clinical data you were provided, it seems that you were already given a level?


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Last edited by IsabellaLinton on 08 Jul 2019, 9:58 pm, edited 1 time in total.