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lvpin
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31 Aug 2019, 10:09 pm

I don't currently have epilepsy but I had a version that you grow out of. I think my seizures stopped at around 12. I used to hallucinate and then get agonising headaches after which I hope doesn't happen to you. I did hear that some people with epilepsy have autism and there are some other things that often appear alongside, at least two of which I have. It's definitely interesting.



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01 Sep 2019, 12:19 pm

Joe90 wrote:
I have heard of people with autism having seizures, especially sensory-related ones, but I've never had a seizure or fainted and I hope I never will.

Some autistic do go their whole lives without having a seizure, right?



Yes! Some folks with autism do not have a single seizure.



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01 Sep 2019, 12:20 pm

IsabellaLinton wrote:
I have episodes that are best described as Absence Seizures. They are exactly like the descriptions I've read. I had several EEG tests which found that I have too much slow wave activity in my temporal lobes. This was an atypical result which is very rare but the doctors weren't sure how to classify it. They chose not to call it Epilepsy because I would have to lose my drivers' licence. The findings were reconfirmed on my sleep study tests which also showed that my brain waves function very differently than the norm.


Oh absence seizures. Do you know what kind of brain waves those are? I'd be keen on looking it up. (Like beta, theta, etc)



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01 Sep 2019, 12:21 pm

lvpin wrote:
I don't currently have epilepsy but I had a version that you grow out of. I think my seizures stopped at around 12. I used to hallucinate and then get agonising headaches after which I hope doesn't happen to you. I did hear that some people with epilepsy have autism and there are some other things that often appear alongside, at least two of which I have. It's definitely interesting.


So glad you don't have them anymore!
I do get the gnarly headaches unfortunately. Yes, they are quite agonizing.



IsabellaLinton
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01 Sep 2019, 12:27 pm

love2connect wrote:
IsabellaLinton wrote:
I have episodes that are best described as Absence Seizures. They are exactly like the descriptions I've read. I had several EEG tests which found that I have too much slow wave activity in my temporal lobes. This was an atypical result which is very rare but the doctors weren't sure how to classify it. They chose not to call it Epilepsy because I would have to lose my drivers' licence. The findings were reconfirmed on my sleep study tests which also showed that my brain waves function very differently than the norm.


Oh absence seizures. Do you know what kind of brain waves those are? I'd be keen on looking it up. (Like beta, theta, etc)


Hi love2connect,
I'm sorry but I don't know the brain waves associated with Absence Seizures. On EEG (sleep deprived and regular), I had atypical results including abnormal slow waves in my temporal lobes but I don't recall them saying which wave that was, and they couldn't definitively say that it was epilepsy. On my clinical sleep lab studies I was told that I don't reach Delta Wave sleep (Stage 5), which apparently is even deeper sleep than REM (Stage 4), but these were different tests with different doctors than the EEGs.


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magz
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01 Sep 2019, 12:31 pm

I was screened for epilepsy after my first depression diagnosis and the results were conclusively negative. I do faint sometimes due to my low blood pressure but never really lose conciousness, just become temporarily blind, the noise in my ears becomes deafening and then I collapse.
Most of the times I've learned to lean down when first symptoms appear and it prevents me from fully fainting so I'm sure it's blood pressure related, not a seizure.


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nouse
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04 Sep 2019, 8:56 am

These are the sort of findings that make me highly skeptical of specific neurological disorders.

I have had deeply religious experiences as a kid (I think I identify myself being more in psychotic spectrum than autistic spectrum whatever those mean anyway) and I have migraines these days.



CockneyRebel
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05 Sep 2019, 6:53 pm

I have blackouts sometimes. I wonder if those would be classified as seizures.


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Tom of the North
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06 Sep 2019, 6:06 pm

I started getting petit-mal when I started my teens at high school. I'd just sort of drop into a state of semi-consciousness before resurfacing after maybe around 10-15 seconds. People would say "you were completely somewhere else weren't you?" or "cheer up for goodness sake". It wasn't as if I preoccupied with something, it's just that I was nowhere at all. I'm coming up for 60 in December but it's been around 5 years since I had my last petit-mal, thankfully. They may be caused by being in difficult situations, overthinking, or by sensory over-stimulation, not just environmentally but perhaps by the need to be somewhere else in my mind. Anyway, it's not something that I've ever mentioned to my doctor since it didn't affect my general well-being, it was merely a quirk of no real consequence and happened when my mind was idling rather than engaged. Anyone else have the same experience?