First part of assessment today, contemplating results...
I am getting the final results on Friday (in two days) and am anxious/nervous.
From your siggy I take it initial DX was PDD-NOS and you are looking for something more "significant". I am so sensitive to my circumstances that depression is common for me (as I young adult I was DX "mild mood disorder"); thankfully my circumstances right now are good. Although I was moping relative to a minor change of routine last night. I am working towards accepting the upset and not putting myself down for it.
I am also like: if it's not ASD, why am I "strange" (childlike), highly sensitive (in all senses plus some), poor EF, prone to emotional outbursts, comforted by numbers, the oracle of patterns, etc. What is personality - exaggerated by a condition? So far my biggest "non-ASD" marker is that I like people (although I relate to them oddly).
Wishing you some answers (subject to our current assessment methods and beliefs)!
BAP = "broad autistic phenotype".
Yes, but... What does that actually mean? As in... Well. I know aspergers and autism... Which then seemed to be catagorised as high functioning autism and classic autism... BAP is new to me.
The other folks have NTD (neurotypical disorder).
Seems like one of those ox moron things... I would call NTD as Neurotypical Order... But then there would be a lot of "NO's" walking around the place! Maybe best I don't start labelling people eh? Haha!
Oh dear. That may make me a "Yes"... A type of dogsbody even though my body is human....
From your siggy I take it initial DX was PDD-NOS and you are looking for something more "significant". I am so sensitive to my circumstances that depression is common for me (as I young adult I was DX "mild mood disorder"); thankfully my circumstances right now are good. Although I was moping relative to a minor change of routine last night. I am working towards accepting the upset and not putting myself down for it.
The reassessment is due to insurance and changing doctors. Also because I dont see my old doctor anymore and I need some updated doctors notes/certificates for university.
I am not sure what I think of my assessor, but I am hoping that she will reach the conclusion that I think is correct (based on test scores, my history, childhood/development and symptoms).
I am hoping for the best. Wish me luck.
_________________
Diagnosed with
F84.8 (PDD-NOS) 2014
F33.1 Major Depressive Disorder, recurrent, moderate.
To clarify...If BAP is lower then ASD, then what is higher?
Anybody else in this stage of the process, or remember this stage of the process and want to relate, or have sympathy/empathy/compassion/thoughts in any case?
I know, "patience is a virtue" and I'll have the results of this assessment in a month (after second part, interviews and written report). So in the meantime...
* If it's not ASD, I would send a last email to my ASD support group "my bad", and could continue here as ND. Where does BAP post?
* If it is ASD, then, then... I would continue in my ASD support group and continue here identifying as ASD
Rhetorical questions: In either case, will I believe the results? "Nothing in Life is certain." When and how would I disclose whatever is it, or isn't?
Whatever the diagnosis, I want to start asserting myself in a healthier way, I want to ask for help (which means knowing when I need it), I want to be more powerful and contribute positively in the world.
I'm so nervous. I want to belong and belonging to a group that "doesn't belong" seems better than not belonging at all.
(P.S. Maybe I'm excited... both)
I remember well. Got on a waiting list in spring 2018, finally got diagnosed May 2019. The waiting was extremely stressful, for all the reasons you mentioned.
I wonder how many ASD diagnostic specialists even realize how stressful this is for us and why.
_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
BAP = "broad autistic phenotype".
Yes, but... What does that actually mean? As in... Well. I know aspergers and autism... Which then seemed to be catagorised as high functioning autism and classic autism... BAP is new to me.
BAP is essentially when someone has a lot of symptoms/traits of autism but dont qualify for a diagnosis. For example if their daily life isnt impaired or if they dont have enough traits for a diagnosis.
It's essentially "Autism Lite"
_________________
Diagnosed with
F84.8 (PDD-NOS) 2014
F33.1 Major Depressive Disorder, recurrent, moderate.
BAP = "broad autistic phenotype".
Yes, but... What does that actually mean? As in... Well. I know aspergers and autism... Which then seemed to be catagorised as high functioning autism and classic autism... BAP is new to me.
BAP is essentially when someone has a lot of symptoms/traits of autism but dont qualify for a diagnosis. For example if their daily life isnt impaired or if they dont have enough traits for a diagnosis.
It's essentially "Autism Lite"
Ah. Words that make sense! Thank you Teksla. Now that makes sense to me. I may be a BAP too. Hahahahah! I just had visions of saying "Hello everybody. I'm a BAP" and walking off with a grin on my face.... Haha. Sorry. I have too much sense of humour... I think it is funny....
Oh... If I am assessed and found to be a BAP, I just have to do that. It would be soo funny! Look on strangers faces if I do that and walk off... But I would have to do it somewhere where no one knows me....

My greatest apologies to all BAPs out there. I am not making fun of you. I am making fun of the term used.
Sorry everyone. I will behave. Honest! It was the silly thought that I had when I thought "I could be a BAP" and I almost had the giggles... And I could so easily be a BAP rather then having ASD... It is just the name cheers me up as I can add my humour to it.
BAP = "broad autistic phenotype".
Yes, but... What does that actually mean? As in... Well. I know aspergers and autism... Which then seemed to be catagorised as high functioning autism and classic autism... BAP is new to me.
BAP is essentially when someone has a lot of symptoms/traits of autism but dont qualify for a diagnosis. For example if their daily life isnt impaired or if they dont have enough traits for a diagnosis.
It's essentially "Autism Lite"
I was thinking. There are likely to be more people who fit in this section then in the official ASD spectrum who do struggle, but not enough for it to be too much of an issue to be officially classed as anything... In one way it can be classed as mild, but in another way one ay be in a position of needing some help and not officially being able to get any. Or am I jumping to conclusions?
Mountain Goat, that’s exactly it. The symptoms people struggle with are real, and can be the same intensity as of someone officially on the spectrum. May affect their daily life but not reach the number of issues doctors have determined one needs to have in order to receive the diagnosis.
My husband used the following allegory: let’s say you have flies in your house and you are trying to get rid of them. They are getting into your food and everywhere. You call pest control. They come and assess the situation. Then they turn to you and say: “I’m sorry, I can only declare your house has flies and therefore spray your house if you have a minimum of 25 flies. You have 20. There is nothing I can do.”
The 20 flies are as real as someone else’s 25 flies. They are all flies, same species and everything. But you are short of 5 in order to get the house sprayed.
_________________
- RAADS-R: 134 (cut off for ASD diagnosis is >=65)
- CASD: 20 (cut off for ASD >=14)
- SRS-2: T score = 68
Diagnosed with ASD Level 1 on 10/28/19 (Better late than never)
Mom to 9 y/o boy diagnosed with ASD and ADHD on 11/15/19
I guess the problem is, is where do you draw the line? Because being a spectrum means you could potentially enlarge it and keep going right up to essence of fly.
I have finished the assessment part, questionnaires, interviews, etc, but still waiting for the report at the moment. The Dr said he would send it out within two weeks or perhaps less, but we’re now entering the third week and no sign yet. I am so sick of waiting. This is on top of still waiting for my daughter’s report following her assessment which took place 18 weeks ago. Every day I am waiting for the post and every day neither have arrived. I feel like I cannot rest or settle until I know. Leading up to this point we each also had over a year of waiting for the assessments to take place.
So I do understand the agony of waiting for something so important. I hope your wait passes by quickly- I would like to offer good advice on how best to endure it, but I don’t think I have any! Just know you aren’t the only one!
Hoping alongside you. Luck!
Ummm, RDOS ASD 173 and NT 21 = BAP? I would be very surprised. Look how bappy you are about "BAP". I think it's ASD for you (which means very little coming from me - online confused person). And I'm in the USA where we don't have Asperger's anymore.
Wow, a year! (I had to read that three times to get it.) Here the best clinics for kids have longer waits, but not that long. NY is under resourced. To answer your rhetorical question: only if they have Theory of Mind, which of course most don't b/c NTs rarely understand what ASDs think.


If I am told I have less than 25 analogical flies, then I will be aghast: but it's so hard! and I guess I'll keep up the "good work". If I have 25 or more analogical flies, I will be like: ha, I knew it! Now to stand up tall and deal assertively with my toxic family members who will belittle me.
Another person doing their own and their child's at the same time. Tis the "season" (of an era) for that. Waiting - pros and cons of different healthcare systems. Wishing you get both reports prior to when I get mine!! ! (and in the USA there's a high probability I'll get mine as promised since I went "out-of-network", essentially private.)
Thank you all for helping me process my Part 1. My anxiety has ebbed. Funny how that first 24-hours was really rough. I'm sure it will continue to ebb and flow, but I am hopeful the worst is pass. Thanks for the support, serious thoughts and laughs also.
Last edited by SharonB on 23 Oct 2019, 8:10 pm, edited 1 time in total.
WhenI did those things to get the 173 and 21 results, I didn't have a clue what I was doing. All I did was to answer the questions as best as I could. I didn't have a clue where it was leading me! It also gave me this thing which I am not sure how to make it show on here.
^ having taken that test numerous times, I know what you are talking about. I imagine yours is mostly to the right (in the red). If I recall there was a URL link to copy. I now score around 134 consistently, but my first test was 100 (when I was in self-denial). My NT is 90 or so (I like people even if I don't get along well), so I have blue also.
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