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blooiejagwa
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05 Mar 2020, 11:27 am

@IsabellaLinton That sounds like a very confusing and boring story. I'm not saying you don't have valid issues with inferring plot or something else...but what a lame story. God.

Also, with a setting shifting just barely in each frame it is more difficult.

It would be better if they had us watch videos of actors acting out a story without speaking.

Almost like mimes-- but with the props and the facial expressions and whatever else the professionals need to be able to deduce our abilities....


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IsabellaLinton
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05 Mar 2020, 12:20 pm

I really wish there was a descriptive statement and numerical ADOS score in my report. All it says is "she was well above the ADOS cutoff".

All my other tests were described step by step in the report, and my achievement was ranked and even given standard deviation scores. For ADOS, my report doesn't even explain what activities I did or how I performed on each one individually. I'd love to see that information. I remember firemonkey got a breakdown of his ADOS scores, but I didn't.


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SharonB
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05 Mar 2020, 5:25 pm

IsabellaLinton wrote:
I remember firemonkey got a breakdown of his ADOS scores, but I didn't.

Oh, so envious of firemonkey now!! ! :)

My written report also mentioned I didn't make cutoff. Is was verbally that my psych gave me the score. Teasing: I bet you could go back and ask! Seriously: I asked for some corrections to be made in my report and they weren't, so I'll just attach my page to it if I ever distribute it.



IsabellaLinton
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05 Mar 2020, 5:27 pm

My diagnostician is on maternity leave for the next 1-2 years. Maybe I'll ask when she returns but it really doesn't matter. I'm just curious!


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05 Mar 2020, 7:07 pm

I did find it childish, but I didn't find it patronizing. I was tested at a Regional Center, which, I later found out, serves only people who are strongly impaired, so I figured they wouldn't be interested in diagnosing someone at my functioning level, and therefore the assessment doesn't apply to people like me (people who, e.g., can live alone, make it through college, etc.)

On second thought, the psychologist seemed rather inept, so maybe choosing the ADOS as a diagnostic tool was a manifestation of his incompetence. Or maybe it was a manifestation of poor communication between the psychologist and Regional Center staff member who did my intake. The psychologist did a half-assed IQ test, only to make sure I wasn't intellectually disabled, it seemed, so clearly the intake person didn't communicate much about me before the assessment.

It was stupid and a waste of time. Anyone who displays more than two facial expressions and can follow directions and string a few sentences together would pass as non-autistic. Of course I was above cutoff.



aquafelix
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06 Mar 2020, 4:43 am

The ADOS-2 has somewhat of a monopoly on standardized observation based tests for autism. There isn't currently a serious alternative so it has no competitors. It's not great for testing adults, but currently there isn't anything better and has the same research support.



blooiejagwa
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06 Mar 2020, 8:13 am

'In light of the variability of the index scores ----'s full-scale IQ will not be reported as it is an invalid measure of overall ability'

That makes no sense to me. Why not just give it anyway and still say the invalid measure bit?



'When compared to the measures cut-off scores, she met the standard for an Autism Spectrum Disorder'

Vague.
Saying 'the standard' doesn't help.

The onlu slightly clear parts were these:

'Revealed a pattern of persistent deficits in social communication and social interaction across multiple contexts.'

'Furthermore deficits in non verbal communication were noted '


As they then gave examples.

The good thing is that, hopefully in future the need for adult testing will go down, as increasingly, children are assessed and diagnosed early on.

Even if it's hard to say, and perhaps unethical to make judgement in some cases...
Before teenage years would be ideal.


Then early intervention can kick in to smoothen out areas like transitioning to school..

or if later, but pre puberty, the therapy n help will still be beneficial...


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