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Prometheus
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09 Jul 2005, 3:26 pm

Quote:
Quote:
When my mother set up my appointment, she
talked to the doctor and basically told her that I
did not have AS or any problems.

Ten minutes into the appointment, she (the doctor)
told me I had social anxiety and told me to go take
SSRI's and see a psychologist.



Hmmmm? SSRIs???????

How many times were you misdiagnosed with
something other than AS?


SSRI's are anti depressants like prozac and wellburtin (I think. . .)

I was dx'ed with ADD of the inattentive sort in middle school. Before that my parents and teachers suspected a learning disorder due to the fact I couldn't remember the alphabet or the months. After being dx'ed with ADD they pretty much accepted it and let the path lay fallow.


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Last edited by Prometheus on 09 Jul 2005, 3:29 pm, edited 1 time in total.

Ghosthunter
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09 Jul 2005, 3:28 pm

Tim_p wrote:
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Posted: Sun Jul 10, 2005 4:48 am    
Post subject:
----------------
In my first, and so far only, evaluation I was
told by the psychologist "you have one friend
and that's all you need to be psychologically
healthy, so you can't have Aspergers". She
outright dismissed more than half of the
observations I made about myself.Back to top


Hmmmmm? Did you get diagnosed with something??
perhaps later diagnoses?

Ghosthunters Weakness wrote:
I, being HFA don't know how to approach
this topic? I will ask instead, what was
or were the clues that you found and other
found that lead to being misdiagnosed,
then properly diagnosed!

So please forgive my ignorance!



larsenjw92286
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09 Jul 2005, 3:31 pm

Ghosthunter:

I was just wondering why someone would even think of making this topic. Doubting Asperger's is a liitle out there.


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Ghosthunter
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09 Jul 2005, 3:31 pm

sparkman wrote:
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Posted: Sun Jul 10, 2005 4:50 am    
Post subject:
---------------
I was not told that I was crazy, but two social
workers told me that I did not have it. I think
they thought I had Avoidant Personality Disorder.


Hmmmm? What's the difference, besides terminology?

Sparkman wrote:
Six months later I was diagnosed with AS. When I first
went to the doctor he said that I had some kind of social
fobia but at least I got referred to someone who knows
about AS. I am sure that alot of people with AS get
misdiagnosed.Back to top


So when did you get officially diagnosed?
What other mis-diagnoses did you get?

Ghosthunters Weakness wrote:
I, being HFA don't know how to approach
this topic? I will ask instead, what was
or were the clues that you found and other
found that lead to being misdiagnosed,
then properly diagnosed!

So please forgive my ignorance!



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09 Jul 2005, 3:38 pm

chamoisee wrote:
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Posted: Sun Jul 10, 2005 4:53 am    
Post subject:
-----------------
The developmental pediatrician I took my son to
for evaluation for autsim said that she didn't think
I had it

(never mind that I was rocking almost constantly
while there)


Fascinating! A obvious autism clue! hmmmmm?

chamoisee wrote:
and that she didn't think my son had it because he
was cuddled next to us and autistic children do not
cuddle or show affection!! !


I will slightly disagree. Obsessive need for acceptance
is a later sign of the autistic person sometimes.
I didn't say everyone, but a good percentage!

Overcompensation with something familiar
and contact can be Autism, I didn't say AS
neither! This is just a opinion, so I hope
I didn't offend you!

Chamoisee wrote:
(never mind that he didn't speak once while there).


Another Autism clue? I this a frequent behaviour
at that age for diagnoses, regarding his dealing
with emotions and communications with others?

Chamoisee wrote:
A number of self-proclaimed experts who no
absolutely nothing at all about Aspeger's or
autism have declared that I am normal and
teh psychologist who diagnosed me was wrong. Back to top


Ghosthunters Weakness wrote:
I, being HFA don't know how to approach
this topic? I will ask instead, what was
or were the clues that you found and other
found that lead to being misdiagnosed,
then properly diagnosed!

So please forgive my ignorance!



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09 Jul 2005, 3:41 pm

Glasskitten wrote:
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Posts: 12
Location: Phobos
Posted: Sun Jul 10, 2005 5:50 am    
Post subject:
----------------
You (collectively) have successfully convinced me not to
seek a "professional" diagnosis, even if nothing else will
ever convince my family that I am a "gifted introvert"
because of an autistic brain structure.


Hi! Glasskitten! Can you elaborate you specific
autistic traits?

Ghosthunters Weakness wrote:
I, being HFA don't know how to approach
this topic? I will ask instead, what was
or were the clues that you found and other
found that lead to being misdiagnosed,
then properly diagnosed!

So please forgive my ignorance!



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09 Jul 2005, 3:52 pm

anbuend wrote:
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Posted: Sun Jul 10, 2005 5:31 am    
Post subject:
--------------
Well, I figure I'm crazy
(mostly driven that way by the psych system)
and autistic, so...


What happened to you regarding the Psyche
system, My HFA Sister?/Brother?

Aubeund wrote:
But in all seriousness, yes. I've been told this after I
was diagnosed.


I don't understand the context?

Aubeund wrote:
It was once even written into my medical records
that there was a conspiracy between my parents
and doctors to convince me that I was autistic to
avoid making me face my deep-seated psychological
problems.


Explain these "deep-seated" problem?

aubeund wrote:
(This from a neurologist who'd seen me about 30
minutes, mind you he also insisted that my mother's
claim that she thinks in pictures is a lie because
nobody could think in pictures.)


Ignorance and blissfulness=ostrichitis! Hmmmm!

Aubeund wrote:
The basis for this was that I not only had

autism diagnosis, *true or false?

PTSD diagnosis, *true or false?

migraines, *true or false?

seizures, *true or false?

aubuend wrote:
and a few other things he regarded as "subjective".


Such as?????

aubuend wrote:
(I'd love to give him one of my migraines and call it
"subjective," and also to inform him that migraines,
seizures, and trauma are par for the course with autism.)


Hmmmmm?
Migraines and Autism? Hmmmmmm? I don't know, just my
opinion!

Seizures? Hmmmmm? I don't know, just my opinion again!

trauma! Definely, people can create this through there
ruthlessness!

aubuend wrote:
There was also a concerted effort by one group of doctors
to undiagnose me with autism, rediagnose me with childhood
schizophrenia, and blame my mother for causing it.
(This was 1996, long past when most people think that
kind of person disappeared.)

And I received numerous diagnoses besides those. Mostly
after the initial autism diagnosis. (I've been undiagnosed
with most of them and rediagnosed with autism. Joy.)

So yeah, I'm autistic and the psych system drove me crazy
too, although I'm sure they'd have a different take on all
this and despise me for using an oh-so-"stigmatized" word
like crazy.


Hmmmmm? Confused they-be HFA-Jedi-inkind!

Hmmmm-Unnnnn-Hmmmmm,
Yoda-Ghosthunter!



IronSails
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09 Jul 2005, 4:04 pm

From what I can tell by reading books I could have ADD, SDI, AS, PDD, BPD, OCD, and quite few other letters of the alphabet!

WTF!?

8O

So many of the current DSM symptoms overlap I'm not sure if any could make a true diagnosis.

Untill neuroscience advances to the point where they can actually test and have real non-subjective results were at the mercy of EDUCATED OPINIONS......and you know what they say about opinions.



adversarial
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09 Jul 2005, 4:09 pm

Talking of DSM, I note that although psychologytoday lists 'autism' it doesn't mention AS, which seems to be quite a serious omission.

I hear somwhere that there were plans in progress to update the DSM so that it more accurately reflected the current state of knowledge/opinion in the neuropsychiatric field. Does anyone know anything about this?



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09 Jul 2005, 4:14 pm

Quote:
I hear somwhere that there were plans in progress to update the DSM so that it more accurately reflected the current state of knowledge/opinion in the neuropsychiatric field. Does anyone know anything about this?


I think by the time it gets to stores it will already be obsolete. :(



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09 Jul 2005, 4:15 pm

adversarial wrote:
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Posted: Sun Jul 10, 2005 5:21 am    
Post subject:
----------------
I could go into an extended seminar on this one,
but I won't as I have a web journal, so I shall save
it for that.


Oooh! But do tell! learning new things about
each other on this site is one of the many good
things about it!

Advers wrote:
I am rather intrigued to discover - on the basis of
what I have read on AS/ASD-related sites - the
amount of scepticism in relation to AS/ASD shown
by diagnostic professionals.


Perhaps you can elaborate the other sites
view?

advers wrote:
Is it simply that it is not widely understood within
the profession, or is it the inherent

(and perhaps sometimes necessary)

, conservative approach taken by the profession in
relation to people proffering what they

(the psychologists)

may consider to be self-diagnosis?

Huh??????


advers wrote:
As I have mentioned elsewhere, I have seen a great
deal to identify with in what other people have written,
yet I am also reluctant to commit to thinking I do have
something like AS, partly due to

1). the fact that I know
I would be greeted with scepticism by my two siblings as
well as the few people I know around me
(were I to tell them)

2). the fact that the psychiatric/medical/psychological
profession itself would probably laugh me out of the
surgery or clinic I attended.


Are you a doctor, or something in that field. If so,
can you give your perspective clinically of Autism
Spectrum Disorder(AS, HFA, ASD, PDD-NOS)?

Advers wrote:
It is perhaps largely because although I personally
think there is an incredibly strong indication/correlation
that I remain concerned to try to be as objective as I
can be. The obvious question would be 'why am I so
sure of this at this stage in my life, when I could have
been at this stage a few years ago.


What corrolating facts can you say about yourself
and your place in ASD food-chain(self-DX)?

Advers wrote:
I think that another part of my concern is that although
I have always been an 'oddball', a 'freak' or just generally
a bit 'odd',


Hmmmmm?
What is it you exactly do?
What is it you do not do?
Under what circumstances do you do it?


Advers wrote:
it seemed less threatening to perceive it as a personality
trait rather than a 'medical' condition with a 'label' attched.
This concern over 'labels' derives from a). the brief interlude
of psychicatric hospital intervention in my teens

(the fear instilled in me was that I would end up 'locked away
in a loony bin'),

together with the resistance to medical conditions instilled
into me as a result of my 4.5 year stay in a therapeutic community
that extolled traditional quasi-freudian psychoanalytic techniques
over medicalisation. The approach by the 'talking cure' experts
was couched in a manner to avoid 'judgementalism', but science
has moved on since 1979, so perhaps a reappraisal is justified.


I agree a DX is like a string, submitting to someones opinion!
This is how I am reading part of this!

How long were you in either a psych-ward patient, or observer
status?

Advers wrote:
Does anyone else who posts here have a comparable personal
history in regard to these matters?Back to top


Hmmmmm?

Ghosthunters Weakness wrote:
I, being HFA don't know how to approach
this topic? I will ask instead, what was
or were the clues that you found and other
found that lead to being misdiagnosed,
then properly diagnosed!

So please forgive my ignorance!



Ghosthunter
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09 Jul 2005, 4:17 pm

Feste-Fenris wrote:
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Posts: 491
Posted: Sun Jul 10, 2005 5:21 am    Post subject:
---------------------------------------------------------
At the age of five teachers realized something was "up"...

At the age of six I was diagnosed with Asperger's...

I was one of the first...Back to top


Hmmmmm? I like how this sounds! What made
specifically more special than other candidates
for AS dx'ing? how old are you now?



NoMore
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09 Jul 2005, 4:58 pm

Glasskitten wrote:
You (collectively) have successfully convinced me not to seek a "professional" diagnosis, even if nothing else will ever convince my family that I am a "gifted introvert" because of an autistic brain structure. This really damages my faith in human psychological expertise.



My personal philosophy exactly.
Let them continue to consider me that "gifted introvert."



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09 Jul 2005, 5:03 pm

Ghosthunter wrote:
Oooh! But do tell! learning new things about
each other on this site is one of the many good
things about it!


I will publish the URL when I have tidied up other entries on it, and throw it back open to public viewing.

Ghosthunter wrote:

Perhaps you can elaborate the other sites
view?


This site contains posts of people who have been on the receiving end of uncooperative and unhelpful medical health professionals, as has xmission and other ASD/AS/PDD-NOS related web sites.

Ghosthunter wrote:
Huh??????


When somebody goes to the profession saying that they want a diagnosis for something like AS/ASD, the people working in the field are likely to be sceptical of the motives of the person seeking such diagnosis. There is every chance that the motives of the person wanting the diagnosis will be considered extremely critically and the consulting professionals may very well think that the person (who in all probability has entirely legitimate concerns), might be 'up to something'. That is perhaps just the cynicism of some elements of the medical establishment in regard to those who might want to use its services. I am not saying this is <i>always</i> the case, merely that the difficulty with which people are taken seriously seems to indicate that.

Ghosthunter wrote:
Are you a doctor, or something in that field. If so,
can you give your perspective clinically of Autism
Spectrum Disorder(AS, HFA, ASD, PDD-NOS)?


No I am no doctor but I have read a fair amount about these things and I have reasonably clear and reliable recollections of my own life experienes. I can certainly relate to many - though by no means all - of the things that numbers of people have been writing about on the forums.

My reasons for hesitancy are that although I am reasonably sure that in regard to myself, there is an extremely high corellation between many things people are saying and my own life experiences, I am not sure if I am prepared to suspend my critical faculties sufficiently to give myself a 'self-diagnosis'. Whatever the perceived shortcomings of 'educated opinion' may be, in the absence of such an opinion forthcoming, I must for the time being, refrain from making a definite opinion.

Ghosthunter wrote:
What corrolating facts can you say about yourself
and your place in ASD food-chain(self-DX)?


There are probably too many to list, quite literally, in this posting here (which is already quite long), but they do correlate on online tests (which I know, are merely informational and not even remotely diagnostic), anecdotal evidence from people who have shared their experiences on the message boards and finally, from my own 'joining up the dots' in relating these things to my own life experiences. For example, I am strongly inclined to accept that various periodic, repeititve activities I undertake from time to time rather than merely being my way of relieving stress, could in fact bear some resemblence to what has been called 'stimming' in some quarters. I can also very strongly identify with the state of play regarding social interactions with others, the experiences in the workplace that many people have shared on these boards, as well as on others. The isolation and sense of alienation I have experienced at the various special and mainstream schools tallies with other people's experiences too. I can also confirm that Much of this was far more intense when I was a child and/or adolescent.

Ghosthunter wrote:
Hmmmmm?
What is it you exactly do?
What is it you do not do?
Under what circumstances do you do it?


I think I have covered those points above, if you want further clarification then please ask. However, briefly to reiterate: Lack of social cohesion, a turbulent early childhood (back in the late 1960's and early 1970's), leading to much intervention by developmental psychologists, removal from mainstream schooling, irrational eruptions of temper tantrums, peculiar 'obsessions' - from inanimate objects when I was very young, to - around the age of 11 onwards, books I was reading eg Lord of The Rings, Ideas and areas of knowledge such as The Paranormal, Computers, Sci-Fi, Cats and various other things, plus the need to interject and monopolise conversations, often failing to conduct the usual 'to-ing and fro-ing' that conventionally structured conversations generally consist of.

Tensing up when stressed, or when happy, facial contortions (I know, it sounds really odd and it is the first time I have ever really relayed it to someone in a very long time), other odd physical activities, etc.

Ghosthunter wrote:

I agree a DX is like a string, submitting to someones opinion!
This is how I am reading part of this!

How long were you in either a psych-ward patient, or observer
status?


I was put into the psychatric adolescent unit in the summer of 1979 (yes, I know pre-internet, pre SG1, pre many things that we take for granted now {smile}), which was a kind of role-play acting drama type scenario, with a talking cure that owes much to the methods of the Spanish Inquisition or Guantanamo Bay. This coercive regime was underscored by the threat of Largactyl Sedation for those who uttered any words which were not entirely in accord with those of the Duty psychiatric Nurse or the Group Leader.

The detention in the hospital (which was a truly frightening experience), objectively lasted for around 4 months, but seemed to go on far longer. As I have mentioned previously, I then went to a far more 'congenial' establishment, though that was not without mishap and misadventure. As an aside, there was a documentary about the psychiatric hostpital filmed and broadcast later that year. Predictably enough, the testimonies and accounts of the patients/residents were discredited by the psychiatric personnel, since (at that time certainly), it is so easy to do that to people who fall under the umbrella of 'mental health'. I'm sure things are probably different today, for one thing politically motivated policy initiatives have done away with the monolithic Victorian establishments, for a far cheaper (though not necessarily cost-effective), 'care in the community' approach.

Advers wrote:
Does anyone else who posts here have a comparable personal
history in regard to these matters?Back to top


Hmmmmm?

My question there is have other people - perhaps my age, perhaps younger - been put through the 'talking cure' psychotherapeutic regime, with their physical manifestations 'stimming'?, emotional outbursts etc, put down to 'acting out'?

Finally, I am sorry if I have sent everyone to sleep - I hope you have the power saving features on your PC's set up and running {grin}.



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09 Jul 2005, 5:55 pm

Ghosthunter wrote:
What happened to you regarding the Psyche
system, My HFA Sister?/Brother?


I'm female.

I was institutionalized in one form or another for a few years. Mostly in the nineties. I won't go into specifics at the moment beyond that there was psychological and physical torture going on and it was bad.

Quote:
I don't understand the context?


I was told that I could not be autistic, after I was already diagnosed with autism, is what I meant.

Quote:
Explain these "deep-seated" problem?


I can't, because there weren't any. And he didn't specify what he thought they were.

Quote:
autism diagnosis, *true or false?


True.

Quote:
PTSD diagnosis, *true or false?


True.

Quote:
migraines, *true or false?


True.

Quote:
seizures, *true or false?


True as far as anyone can tell.

Quote:
aubuend wrote:
and a few other things he regarded as "subjective".


Such as?????


I don't remember. I think I had one misdiagnosis of narcolepsy (I think that was several other things combined such as fatigue and starvation (or something close to it) and a lack of circadian rhythms and a motor control problem that looked a lot like narcolepsy if you combined them), and then something else I can't remember.

Something significant is that every time I have been told that a condition I am experiencing physically is not real, the doctors have been proven wrong. Either I respond very well to treatment for that thing, or I test as having that thing if there are tests for it. However, something made this doctor like many others assume that I was not experiencing what I was experiencing. They make things more complicated than they are.

Quote:
Hmmmmm?
Migraines and Autism? Hmmmmmm? I don't know, just my
opinion!

Seizures? Hmmmmm? I don't know, just my opinion again!


I think more than usual of us have migraines, and up to 25% of us can have seizures at some point during our lives, although I don't know how many have seizures.

Quote:
trauma! Definely, people can create this through there
ruthlessness!


Exactly. Goes along with how autistic people are so frequently bullied, or thrown into institutions, or other things that create problems.


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Sean
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09 Jul 2005, 6:34 pm

Prometheus wrote:
SSRI's are anti depressants like prozac and wellburtin (I think. . .)


Prozac and Anafranil (Clomipramine) are SSRIs, Welbutrin is an anrideressant, but is not an SSRI. It supplies Dopamine to the brain.