Sweetleaf
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Joined: 6 Jan 2011
Age: 35
Gender: Female
Posts: 34,949
Location: Somewhere in Colorado
However, I wish I wouldn't have to be so prone to getting stressed out etc when the slightest noises or upsets to my routines can irritate me so much. And when these stresses build up I can have shut downs and meltdowns. No one wants weaknesses like this. But there we have it. I can deal with it (sort of) and am sort of coming to terms with these weaknesses and limitations.
I would say that my biggest problem with my version of Autism is with the negative way it is sometimes received by other people and the way they react to me. This means that I get ridiculed, mocked and insulted due to being Autistic.
I am absolutely not OK with this.
In fact I am furiously angry about the years and years of accumulated hurt this has caused. Maybe one day I will learn how to respond effectively when this happens. This is the kind of thing I need help with. But there is none.
ITS NOT A WEAKNESS..find work arounds
I accept you
its ok
plus for every negative stimuli there is a positive
embrace the Good xxx
ok no one loves me but my love for them is real
I know what I feel
please ignore them...
whether you are autistic or not humans can be unkind...
prejudice is rife and so is stereotyping.
such is the way of the world
they can be mean sometimes xx
I am 39 and got diagnosed 21
To say that I am "okay" with being autistic is not specific enough in the situation
"Resignation " is more like it
I know that certain activities of daily living will always be much harder (or impossible) for me than neurotypicals. For example, friends, relationship, working
Someone (correctly) told me that "you have a hard time dealing with reality ", when I was 23
His statement was correct. He was much better at dealing with reality than me
However, racism sexism homophobia fatphobia classism ableism and lookism are all "reality "
His implication was that it was my fault I have a hard time dealing with reality
His implication was wrong.
He was also homophobic. He had the nerve to tell me that "it is 'lying' for you to ask me to call you 'he' instead of 'she' ". (2006 San Diego, civil engineer).
If my worthless corpse were a skinny smart handsome cisgender neurotypical white man, like him, then maybe"reality " would be easier to deal with.
Autism and clinical depression are labelled"disabilities " for a good reason
If I had a visible condition instead of autism, he might have been less calloused
But , freedom of speech
Anyone could say anything
"Actions speak louder than words"
He was "trying to help"
He did not invent homophobia
He did not vandalize or exterminate my worthless corpse
He was doing his "best"
Then 2012 Equal Employment Opportunity Commission, gender identity.
I agree. It bugs me to no end that most spectrumers don't 'want' functioning labels just because most have different symptoms that are "all over the place". Some of us actually don't have symptoms that are "all over the place" and are mild in all areas. The only severe thing I have is anxiety, but that in itself is a co-morbid and has always been my main problem (and ADHD too, I'm a typical ADHD girl).
As a highly anxious person with ASD I'm still high-functioning. I can communicate my feelings very easily and I don't flap my hands or rock or pace about to calm my nerves like you probably imagine when reading some of my panicked posts.
Maybe we both have Stubb's syndrome. We're mild in everything. For me the only thing that isn't mild is my learning problems. I used to have severe anxiety.
What is Stubb's syndrome? I looked it up on Google but it didn't have any information. Or is it just an expression to mean we're neither here nor there?
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Female
I agree. It bugs me to no end that most spectrumers don't 'want' functioning labels just because most have different symptoms that are "all over the place". Some of us actually don't have symptoms that are "all over the place" and are mild in all areas. The only severe thing I have is anxiety, but that in itself is a co-morbid and has always been my main problem (and ADHD too, I'm a typical ADHD girl).
As a highly anxious person with ASD I'm still high-functioning. I can communicate my feelings very easily and I don't flap my hands or rock or pace about to calm my nerves like you probably imagine when reading some of my panicked posts.
Maybe we both have Stubb's syndrome. We're mild in everything. For me the only thing that isn't mild is my learning problems. I used to have severe anxiety.
What is Stubb's syndrome? I looked it up on Google but it didn't have any information. Or is it just an expression to mean we're neither here nor there?
My psychiatrist was Dr. Stubbs. If he saw more patients like me, he would have given it a name and named it after him describing the condition.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
It would be good though if they did name people like us as a separate disorder. Or maybe we're just PDD-NOS. That's what I feel I am. Or maybe my ASD is a co-morbid to my ADHD, or can ASD be a co-morbid?
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Female
Double Retired
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Joined: 31 Jul 2020
Age: 70
Gender: Male
Posts: 6,323
Location: U.S.A. (Mid-Atlantic)
Autism is a SPECTRUM. A catchall for some sometimes related "symptoms" that they don't know where they came from...so...
I'm OK with the Autism I got.
It weakened me in some ways, strengthened me in others. And it wasn't just the Autism—I got some very lucky breaks in my life that worked well with "my" Autism.
I don't think I could have retired twice by the time I reached age 56 without it.
Other spots on the Spectrum or different things happening in my life could easily have left me very unOK.
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When diagnosed I bought champagne!
I finally knew why people were strange.
carry on and list I don't mind
OK then...where to start...
*Clears throat*
Reasons I hate having an ASD:-
The double standards
The stigma
The feeling of inferiority
Having random strangers laughing and staring no matter how normal you look
The symptoms (meltdowns, obsessions, sensory issues, all make life sh***y)
The outdated and misleading title given (autism means self-withdrawn, which doesn't describe some of us at all, but can describe non-autism conditions such as depression, social anxiety, schizophrenia, Alzheimer's, brain damage) so the label should be changed
Contagious among siblings (usually NT siblings of autistic children seem depressed, sensitive and sometimes even withdrawn but not autistic)
The way it's so misunderstood...by a society dominated by people that are supposed to have empathy and imagination
And there's probably more that I can't think of right now.
sweetie, (if its OK to call you that?), calm....
you are funny
you seem sweet
find people whom accept you for who you are, not a label.
you may or may not be autistic but more than that you are human too.
I don't mind my obsessions, I adore them...its when I can be my truest self.
I love research but drink too much to study right now.
I do find socialising hard but then I keep putting my foot in my mouth and saying the wrongs things all the time
social clutz is an understatement...but I don't mind
I'm very non judgemental unlike the world around me
meltdowns I can avoid by staying away from things that physically overload me or that are too emotionally complicated for me to deal with.
why do I drink...im tired of the world expecting me to adhere to gender stereotypes.
I can be very loving and affectionate in my own way, but I was built for studying...its where I'm most at home. I'm never going be a great house wife in a month of Sundays...
I miss having essays to write...regardless of how much ability I once had.
embrace yourself..you add a new dimension to existence!
I'm OK with the Autism I got.
It weakened me in some ways, strengthened me in others. And it wasn't just the Autism—I got some very lucky breaks in my life that worked well with "my" Autism.
I don't think I could have retired twice by the time I reached age 56 without it.
Other spots on the Spectrum or different things happening in my life could easily have left me very unOK.
did you get to study?
selfism...
in an autistic sense they have the interpretation wrong.
its not self absorption or selfishness
its being locked into an internal world no one will ever understand...i am used to this
the way I experience the world is sometimes different to them and I can't express it in a way they can comprehend...i wish I could just transfer my feelings over them by just touching them or something, but I cant.
selfism means locked in...in an autistic sense....i can't understand their world anymore than they can understand mine and I can't express in a way they can make sense of. its ok, no judgement on either side.
they used to intrigue me...i wanted to study them (not coldly), take their pain from them so they could be happy.
anthropology or medicine would have been Good areas for me when my qi was in tact.
fascinating subject areas too, although I wanted to research psychology. what I ended up doing was archaeology instead lol.
It would be good though if they did name people like us as a separate disorder. Or maybe we're just PDD-NOS. That's what I feel I am. Or maybe my ASD is a co-morbid to my ADHD, or can ASD be a co-morbid?
I think my dad was fragile x and I inherited the premutation. it would be interesting to have the genetic test, but GPS don't like self curiosity/diagnosis.
my intellect was normal though...got that from me mother!
my mum won a scholarship to the grammar school in the 40s...my dads parents paid for him to attend but he flunked.
he was Good jockey though...one of the First to be helped by the injured jockies fund when were formed in the 1960s
he sustained severe brain damage that ended has career...his autistic like quirks existed before though...so relatives have informed me.