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Sweetleaf
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25 Aug 2022, 11:37 pm

Well I have lived with it for 33 years so may as well make peace with it.

Doesn't mean I absolutely love being autistic, but I have autism and its likely not going away so no use in being upset about it.


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Earthbound_Alien
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26 Aug 2022, 7:18 am

Joe90 wrote:
Nope, I'm not OK with being on the spectrum for so many reasons that I have mentioned before but don't want to make this whole thread about me so I won't repeat.


WHY IT MAKES YOU FUNNY IN A GOOD WAY



Earthbound_Alien
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26 Aug 2022, 7:19 am

Sweetleaf wrote:
Well I have lived with it for 33 years so may as well make peace with it.

Doesn't mean I absolutely love being autistic, but I have autism and its likely not going away so no use in being upset about it.

YOU ARE YOU

4HATS ALL YOU NEED TO BE



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26 Aug 2022, 7:24 am

Shadweller wrote:
I am sort of OK with being Autistic. I'm not ashamed of it, and it explains so many things that I did not understand until I received my diagnosis. So I am thankful for this.

However, I wish I wouldn't have to be so prone to getting stressed out etc when the slightest noises or upsets to my routines can irritate me so much. And when these stresses build up I can have shut downs and meltdowns. No one wants weaknesses like this. But there we have it. I can deal with it (sort of) and am sort of coming to terms with these weaknesses and limitations.

I would say that my biggest problem with my version of Autism is with the negative way it is sometimes received by other people and the way they react to me. This means that I get ridiculed, mocked and insulted due to being Autistic.

I am absolutely not OK with this.




In fact I am furiously angry about the years and years of accumulated hurt this has caused. Maybe one day I will learn how to respond effectively when this happens. This is the kind of thing I need help with. But there is none.


ITS NOT A WEAKNESS..find work arounds

I accept you

its ok

plus for every negative stimuli there is a positive

embrace the Good xxx



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26 Aug 2022, 7:27 am

skibum wrote:
Earthbound_Alien wrote:
anyone else OK with being autistic?

ok no one loves me but my love for them is real

I know what I feel
I would not want to be anything else. I love who and what I am. It's how I was made. What I don't love and what I am not ok with is how I am treated by others because of how I was made.


please ignore them...

whether you are autistic or not humans can be unkind...

prejudice is rife and so is stereotyping.

such is the way of the world

they can be mean sometimes xx



shortfatbalduglyman
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26 Aug 2022, 9:06 am

I am 39 and got diagnosed 21

To say that I am "okay" with being autistic is not specific enough in the situation

"Resignation " is more like it

I know that certain activities of daily living will always be much harder (or impossible) for me than neurotypicals. For example, friends, relationship, working

Someone (correctly) told me that "you have a hard time dealing with reality ", when I was 23

His statement was correct. He was much better at dealing with reality than me

However, racism sexism homophobia fatphobia classism ableism and lookism are all "reality "

His implication was that it was my fault I have a hard time dealing with reality

His implication was wrong.

He was also homophobic. He had the nerve to tell me that "it is 'lying' for you to ask me to call you 'he' instead of 'she' ". (2006 San Diego, civil engineer).



If my worthless corpse were a skinny smart handsome cisgender neurotypical white man, like him, then maybe"reality " would be easier to deal with.



Autism and clinical depression are labelled"disabilities " for a good reason

If I had a visible condition instead of autism, he might have been less calloused

But , freedom of speech

Anyone could say anything

"Actions speak louder than words"

He was "trying to help"

He did not invent homophobia

He did not vandalize or exterminate my worthless corpse

He was doing his "best"

Then 2012 Equal Employment Opportunity Commission, gender identity.



Joe90
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26 Aug 2022, 10:25 am

League_Girl wrote:
Joe90 wrote:
League_Girl wrote:
I still believe if my psychiatrist saw more patients like me, I would have Stubb's syndrome instead of being placed on the spectrum because "it was the best they could do and the closest that fit me for a diagnosis." This makes me think my diagnosis isn't real. I really am high functioning and I hate it when people on the spectrum act like I don't exist and they hate anyone who calls themselves high functioning. Wow I don't exist.


I agree. It bugs me to no end that most spectrumers don't 'want' functioning labels just because most have different symptoms that are "all over the place". Some of us actually don't have symptoms that are "all over the place" and are mild in all areas. The only severe thing I have is anxiety, but that in itself is a co-morbid and has always been my main problem (and ADHD too, I'm a typical ADHD girl).
As a highly anxious person with ASD I'm still high-functioning. I can communicate my feelings very easily and I don't flap my hands or rock or pace about to calm my nerves like you probably imagine when reading some of my panicked posts.




Maybe we both have Stubb's syndrome. We're mild in everything. For me the only thing that isn't mild is my learning problems. I used to have severe anxiety.


What is Stubb's syndrome? I looked it up on Google but it didn't have any information. Or is it just an expression to mean we're neither here nor there?
:lol: :lol:


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kraftiekortie
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26 Aug 2022, 10:28 am

There is no such thing as "Stubb's Syndrome." It could an expression of "neither here nor there."



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26 Aug 2022, 10:33 am

kraftiekortie wrote:
There is no such thing as "Stubb's Syndrome." It could an expression of "neither here nor there."


I like that. :lol:


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League_Girl
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26 Aug 2022, 11:05 am

Joe90 wrote:
League_Girl wrote:
Joe90 wrote:
League_Girl wrote:
I still believe if my psychiatrist saw more patients like me, I would have Stubb's syndrome instead of being placed on the spectrum because "it was the best they could do and the closest that fit me for a diagnosis." This makes me think my diagnosis isn't real. I really am high functioning and I hate it when people on the spectrum act like I don't exist and they hate anyone who calls themselves high functioning. Wow I don't exist.


I agree. It bugs me to no end that most spectrumers don't 'want' functioning labels just because most have different symptoms that are "all over the place". Some of us actually don't have symptoms that are "all over the place" and are mild in all areas. The only severe thing I have is anxiety, but that in itself is a co-morbid and has always been my main problem (and ADHD too, I'm a typical ADHD girl).
As a highly anxious person with ASD I'm still high-functioning. I can communicate my feelings very easily and I don't flap my hands or rock or pace about to calm my nerves like you probably imagine when reading some of my panicked posts.




Maybe we both have Stubb's syndrome. We're mild in everything. For me the only thing that isn't mild is my learning problems. I used to have severe anxiety.


What is Stubb's syndrome? I looked it up on Google but it didn't have any information. Or is it just an expression to mean we're neither here nor there?
:lol: :lol:



My psychiatrist was Dr. Stubbs. If he saw more patients like me, he would have given it a name and named it after him describing the condition.


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Joe90
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26 Aug 2022, 6:37 pm

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My psychiatrist was Dr. Stubbs. If he saw more patients like me, he would have given it a name and named it after him describing the condition.


It would be good though if they did name people like us as a separate disorder. Or maybe we're just PDD-NOS. That's what I feel I am. Or maybe my ASD is a co-morbid to my ADHD, or can ASD be a co-morbid?


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26 Aug 2022, 7:37 pm

Autism is a SPECTRUM. A catchall for some sometimes related "symptoms" that they don't know where they came from...so...

I'm OK with the Autism I got.

It weakened me in some ways, strengthened me in others. And it wasn't just the Autism—I got some very lucky breaks in my life that worked well with "my" Autism.

I don't think I could have retired twice by the time I reached age 56 without it.

Other spots on the Spectrum or different things happening in my life could easily have left me very unOK.


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Earthbound_Alien
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27 Aug 2022, 6:55 am

Joe90 wrote:
Earthbound_Alien wrote:
Joe90 wrote:
Nope, I'm not OK with being on the spectrum for so many reasons that I have mentioned before but don't want to make this whole thread about me so I won't repeat.


carry on and list I don't mind


OK then...where to start...

*Clears throat*

Reasons I hate having an ASD:-

The double standards

The stigma

The feeling of inferiority

Having random strangers laughing and staring no matter how normal you look

The symptoms (meltdowns, obsessions, sensory issues, all make life sh***y)

The outdated and misleading title given (autism means self-withdrawn, which doesn't describe some of us at all, but can describe non-autism conditions such as depression, social anxiety, schizophrenia, Alzheimer's, brain damage) so the label should be changed

Contagious among siblings (usually NT siblings of autistic children seem depressed, sensitive and sometimes even withdrawn but not autistic)

The way it's so misunderstood...by a society dominated by people that are supposed to have empathy and imagination


And there's probably more that I can't think of right now.


sweetie, (if its OK to call you that?), calm....

you are funny
you seem sweet

find people whom accept you for who you are, not a label.

you may or may not be autistic but more than that you are human too.

I don't mind my obsessions, I adore them...its when I can be my truest self.

I love research but drink too much to study right now.

I do find socialising hard but then I keep putting my foot in my mouth and saying the wrongs things all the time

social clutz is an understatement...but I don't mind

I'm very non judgemental unlike the world around me

meltdowns I can avoid by staying away from things that physically overload me or that are too emotionally complicated for me to deal with.

why do I drink...im tired of the world expecting me to adhere to gender stereotypes.

I can be very loving and affectionate in my own way, but I was built for studying...its where I'm most at home. I'm never going be a great house wife in a month of Sundays...

I miss having essays to write...regardless of how much ability I once had.

embrace yourself..you add a new dimension to existence!



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27 Aug 2022, 6:56 am

Double Retired wrote:
Autism is a SPECTRUM. A catchall for some sometimes related "symptoms" that they don't know where they came from...so...

I'm OK with the Autism I got.

It weakened me in some ways, strengthened me in others. And it wasn't just the Autism—I got some very lucky breaks in my life that worked well with "my" Autism.

I don't think I could have retired twice by the time I reached age 56 without it.

Other spots on the Spectrum or different things happening in my life could easily have left me very unOK.


did you get to study?



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27 Aug 2022, 7:06 am

selfism...

in an autistic sense they have the interpretation wrong.

its not self absorption or selfishness

its being locked into an internal world no one will ever understand...i am used to this

the way I experience the world is sometimes different to them and I can't express it in a way they can comprehend...i wish I could just transfer my feelings over them by just touching them or something, but I cant.

selfism means locked in...in an autistic sense....i can't understand their world anymore than they can understand mine and I can't express in a way they can make sense of. its ok, no judgement on either side.

they used to intrigue me...i wanted to study them (not coldly), take their pain from them so they could be happy.

anthropology or medicine would have been Good areas for me when my qi was in tact.

fascinating subject areas too, although I wanted to research psychology. what I ended up doing was archaeology instead lol.



Earthbound_Alien
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27 Aug 2022, 7:27 am

Joe90 wrote:
Quote:
My psychiatrist was Dr. Stubbs. If he saw more patients like me, he would have given it a name and named it after him describing the condition.


It would be good though if they did name people like us as a separate disorder. Or maybe we're just PDD-NOS. That's what I feel I am. Or maybe my ASD is a co-morbid to my ADHD, or can ASD be a co-morbid?


I think my dad was fragile x and I inherited the premutation. it would be interesting to have the genetic test, but GPS don't like self curiosity/diagnosis.

my intellect was normal though...got that from me mother!

my mum won a scholarship to the grammar school in the 40s...my dads parents paid for him to attend but he flunked.

he was Good jockey though...one of the First to be helped by the injured jockies fund when were formed in the 1960s

he sustained severe brain damage that ended has career...his autistic like quirks existed before though...so relatives have informed me.