Do any of you have issues with aspie support group?

Page 2 of 3 [ 33 posts ]  Go to page Previous  1, 2, 3  Next

bee33
Veteran
Veteran

User avatar

Joined: 19 Apr 2008
Age: 60
Gender: Female
Posts: 3,513

02 Jul 2023, 5:51 am

I haven't been to an Aspie support group, but I have considered it, both online and in person. I don't think I would get bored or not be able to pay attention, since I don't mind being bored by other people, and I actually find it easier in conversation if the other person is talking, because at least they are entertaining themselves and I don't have to think of things to say. But I digress.

I worry that I would find other Aspies hard to relate to, because my own ASD traits are fairly limited and somewhat mild, though they cause me significant problems and distress. And I worry about listening to other people's problems not because I might find them boring but because it would upset me to know that they are having a hard time and it would make me wish I could help but I wouldn't know how to. I would also worry about dumping my problems on them and have that be a burden for them.



Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,153
Location: New York City (Queens)

02 Jul 2023, 8:27 am

bee33 wrote:
I worry that I would find other Aspies hard to relate to, because my own ASD traits are fairly limited and somewhat mild, though they cause me significant problems and distress. And I worry about listening to other people's problems not because I might find them boring but because it would upset me to know that they are having a hard time and it would make me wish I could help but I wouldn't know how to. I would also worry about dumping my problems on them and have that be a burden for them.

How would a support group be different, in these particular regards, from Wrong Planet itself, where you already do participate regularly?

As I see it, in both international support forums and local support groups, one should not be expect to be able to relate to everything said by every other member. (If you've met one autistic person, you've met one autistic person.) But there will almost certainly be at least some things we can relate to.

Also, in local support groups as well as in international support forums, it's not anyone's job (not even the facilitator's job, let alone anyone else's) to solve everyone else's problems, although every now and then you might be able to give some useful, knowledgeable advice.

As I see it, international support forums and local support groups both have their advantages and disadvantages, but it seems to me that the above issues are (to some extent, at least) common to both.

Or did you mean to say that, in an in-person support group, you would find other people's problems to be more emotionally overwhelming to you than they are here on WP? And perhaps you fear that the same would also be true for other members when you have occasion to share your own problems?


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
- My Twitter / "X" (new as of 2021)


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,153
Location: New York City (Queens)

02 Jul 2023, 9:13 am

Fnord wrote:
I stopped going to 'aspie' support groups because:

• Everyone wanted to 'cure' me, even though none of them had yet 'cured' themselves.

That's odd. As far as I am aware, most autistic adult support groups are not about trying to "cure" people. Some support groups do teach some skills, but that's not the same thing as an alleged "cure."

Fnord wrote:
• People new to the groups were considered outsiders.

In other words, the group didn't make a point of trying to help newcomers feel welcome. Alas, almost all human groups naturally tend to be cliquish unless they make a specific effort not to be cliquish. Support group facilitators and core members should make this effort, IMO. Some do, some don't.

Fnord wrote:
• The facilitators were either grad students working on their theses or professionals with hidden agendas.

What kinds of hidden agendas, besides the obvious one of marketing to potential clients?

Not all support groups are led by professionals or grad students, although many are.

Fnord wrote:
• The sessions were too much like church, where one person has a lot to say and everyone else just listens.

Presentations by one person CAN be helpful if the person has worthwhile information to share, as long as the meeting is not mis-labeled as a group discussion.

Some groups have both presentations/workshops and group discussions. In a group discussion, the main job of the facilitator should be to make sure everyone has chances to speak.

Fnord wrote:
• When they found out I had earned a degree and engaged in a career, they accused me of being a 'poseur'.

I hope this attitude isn't common in autistic support groups.


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
- My Twitter / "X" (new as of 2021)


bee33
Veteran
Veteran

User avatar

Joined: 19 Apr 2008
Age: 60
Gender: Female
Posts: 3,513

02 Jul 2023, 9:41 am

Mona Pereth wrote:
Or did you mean to say that, in an in-person support group, you would find other people's problems to be more emotionally overwhelming to you than they are here on WP? And perhaps you fear that the same would also be true for other members when you have occasion to share your own problems?

I think it's this. On WP I can just ignore a post that I don't have any response to, and others can do the same for mine.



MatchboxVagabond
Veteran
Veteran

Joined: 26 Mar 2023
Age: 43
Gender: Male
Posts: 1,675

02 Jul 2023, 10:30 am

bee33 wrote:
Mona Pereth wrote:
Or did you mean to say that, in an in-person support group, you would find other people's problems to be more emotionally overwhelming to you than they are here on WP? And perhaps you fear that the same would also be true for other members when you have occasion to share your own problems?

I think it's this. On WP I can just ignore a post that I don't have any response to, and others can do the same for mine.

That's one of the reasons why I generally prefer a forum to either in IM or in person/zoom groups. I can ignore things that aren't of interest without it being awkward and if I need processing time to come up with a response, I've got that.

I do occasionally like the more realtime interactions, but for me personally, I don't get much out of that that I can't get in asynchronous interactions.



skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 57
Gender: Female
Posts: 8,374
Location: my own little world

02 Jul 2023, 5:21 pm

catpiecakebutter wrote:
I asked my other disabled friend about this support group she knows about for aspie women and I changed my mind about going to the group (I haven't been the group yet) because I realize that I can't sit for a long time listening to people talk about their issues for about 2 hours because I find it sort of boring and I can't pay attention. Do any of you find that support groups don't really help as well?
I have never found a support group where I actually felt supported. I have also been kicked out of and ghosted by Autistic support groups because I don't fit into their boxes of what an Autistic person should look and act like.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 57
Gender: Female
Posts: 8,374
Location: my own little world

02 Jul 2023, 5:29 pm

MindWithoutWalls wrote:
I tried going to a support group several years ago, and it didn't work out so well for me.

I was adjusting to how my Dx made sense of ways that I'd been treated because of the difficulties I'd always had in how I understood the world and how I conducted myself in accordance with that. I needed to discuss stigma and how to cope with the fact that I knew I really did present myself and behave differently from other people. But I expressed my feelings and concerns in a way that somehow ended up upsetting another member of the group, and I was so embarrassed I couldn't recover. I tried going back one more time, only to discover that my previous blunder had caused the leader to discuss new rules for regulating the group. I was devastated. Even though I was encouraged to stay, I couldn't make myself do that, so I left again. I've never tried to go back to a face-to-face meeting since then.

I find being online easier when discussing autism. I've been away from Wrong Planet for quite a while, but it's really only here that I find open discussion of the subject with others on the spectrum to be possible. Twitter was great for a while, but then it devolved into so much ugly clutter about every subject imaginable that I finally deleted my account there.
Are you able to say what specifically happened and what you specifically said that offended the other member? I am curious because just two days ago, an nt told me something very disturbing that he felt about me and other Autistic people. I am wondering if you had a similar experience to mine.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 57
Gender: Female
Posts: 8,374
Location: my own little world

02 Jul 2023, 5:31 pm

funeralxempire wrote:
Whether autism or mental health related, I find support groups difficult. Even when I do find the people interesting (not that it's guaranteed), I also often feel like I have to walk on eggshells to avoid offending people.
I feel the same way and that makes support groups incredible stressful for me.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 57
Gender: Female
Posts: 8,374
Location: my own little world

02 Jul 2023, 5:38 pm

IsabellaLinton wrote:
Same ^.

I had to go to a group therapy thing once for psychiatry because of the backlog.
I nearly went out of my mind.
Oh wait - that would have been appropriate? :twisted:
.
That's a good one! Too funny!! :hail:


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


Fnord
Veteran
Veteran

User avatar

Joined: 6 May 2008
Age: 67
Gender: Male
Posts: 60,749
Location: Stendec

02 Jul 2023, 6:30 pm

• Aside from trying to drum up clients for their professional services, there were those who tried to sell expensive dietary supplements, or recruit people for their MLMs or religions.

• Monologuists who kept interrupting to talk about something someone else said, and how it related to their own problems, and then kept on talking. This happened over and over again, despite the facilitators’ best efforts.

• My guess is that after a while, the ‘core’ members grew so close that they felt threatened by new people who ‘intruded’ on their ‘private’ little groups.

All I wanted was to gain a better understanding of ‘aspie’ behavior (in myself and others). But if what I experienced was representative ‘aspie’ behavior, well . . . I do not go to ‘support’ groups anymore.


_________________
 
No love for Hamas, Hezbollah, Iranian Leadership, Islamic Jihad, other Islamic terrorist groups, OR their supporters and sympathizers.


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 57
Gender: Female
Posts: 8,374
Location: my own little world

02 Jul 2023, 6:38 pm

Fireblossom wrote:

You could look in to the group's rules and see if you're actually required to pay attention to everything, or if it's fine if your mind wanders from time to time. You could also ask if there are any fidget toys around or if you could bring any of your own.
It's not possible to make a rule requiring that you pay attention to everything 100% of the time. It's not possible to tell people that their minds are not allowed to wander from time to time. It's also not possible to not allow an Autistic person to have a fidget toy in an Autism support group. That would fall under the definition of cruel and unusual punishment.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


MagicMeerkat
Veteran
Veteran

User avatar

Joined: 11 Jun 2011
Age: 37
Gender: Female
Posts: 2,964
Location: Mel's Hole

02 Jul 2023, 11:33 pm

I left a Facebook "support" group because I warned them NOT to say something in particular but they did anyway then jumped all over me like I was the bad one when I complained about my boundaries being disrespected.


_________________
Spell meerkat with a C, and I will bite you.


Edna3362
Veteran
Veteran

User avatar

Joined: 29 Oct 2011
Gender: Female
Posts: 12,563
Location: ᜆᜄᜎᜓᜄ᜔

03 Jul 2023, 12:58 am

No issues.

Except the things I cannot articulate, which is me problem.



I hadn't been in any toxic group myself. Or groups whose agendas I know not of.

Hopefully I never will be. Because so far, I never had not even once apparently...

Perhaps it's luck.
Or perhaps I have the knack to know where to look for a group before joining, let alone participating and staying.

I'm just a bit specific and picky that way -- I choose, not the other way around alone.
I'd rather be in a group where I can contribute and engage, than just being one-way audience and merely in need of a group.


_________________
Gained Number Post Count (1).
Lose Time (n).

Lose more time here - Updates at least once a week.


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,153
Location: New York City (Queens)

03 Jul 2023, 10:26 am

Fnord wrote:
• Aside from trying to drum up clients for their professional services

If the person running the group is a qualified psychotherapist or social worker specializing in autistic adult issues, I don't find this objectionable as long as it's not done in a hard-sell way.

For example, before COVID, I attended a monthly support group here in NYC that was led by a therapist who is qualified to diagnose adult autism and who also does clinical training of psychology grad students. Of course, facilitating this group was, for her, a way to attract potential clients, both for herself and for her externs/trainees. But she did a good job of facilitating the group overall, IMO.

Fnord wrote:
there were those who tried to sell expensive dietary supplements, or recruit people for their MLMs or religions.

That sounds very annoying. So far I've not encountered this from anyone in any support group (professional-led o peer-led) I've attended or facilitated.

The one thing I, personally, occasionally, gently, try to "sell" some people on is the idea of starting their own specialized group, e.g. for autistic people in with some specific hobby or in some specific career category, as per my Longterm visions for the autistic community and Autistic workers project.

Such groups, pertaining to careers or hobbies other than my own, are of no direct personal benefit to me, but the existence of a wide variety of such groups could be of great benefit to the autistic community as a whole.

But I do understand that only a small minority of autistic people have the ability to start/lead/facilitate a group, or would enjoy doing so.

Fnord wrote:
• Monologuists who kept interrupting to talk about something someone else said, and how it related to their own problems, and then kept on talking. This happened over and over again, despite the facilitators’ best efforts.

This can indeed be very tough for a facilitator to handle, especially in an in-person group. It is less of a problem in a text-based chat. (My group holds both text-based chats and in-person gatherings.)

Fnord wrote:
• My guess is that after a while, the ‘core’ members grew so close that they felt threatened by new people who ‘intruded’ on their ‘private’ little groups.

If it were simply a question of wanting a private little group, there would be nothing stopping the core members from holding their own separate private, by-invitation-only meetings in addition to (or instead of) the more public meetings.

In most cases, I think cliquishness is caused more by unintentionally exclusive behaviors, such as in-jokes, than by the core members specifically wanting to exclude people. Therefore, in a public group, the leaders/facilitators and core members need to make a specific point of welcoming newcomers and avoiding exclusive behaviors.

One way to accomplish this, paradoxically, is to have a separate private by-invitation-only group for the core members, where the core members can bond with each other by (among other things) telling all the in-jokes they want, and where they can also discuss how best to welcome newcomers and avoid unintentional in-group behaviors in the more-public group.

Fnord wrote:
All I wanted was to gain a better understanding of ‘aspie’ behavior (in myself and others). But if what I experienced was representative ‘aspie’ behavior, well . . . I do not go to ‘support’ groups anymore.

Creating a group that works well for autistic people is indeed a challenge, but I think it's a very worthwhile challenge. Such groups, if done well, can be one of the best places for many of us to find friends who will truly understand and care about us.


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
- My Twitter / "X" (new as of 2021)


Recidivist
Veteran
Veteran

User avatar

Joined: 4 Jan 2023
Gender: Male
Posts: 3,851
Location: He/him/his

03 Jul 2023, 10:38 am

Fireblossom wrote:
You could look in to the group's rules and see if you're actually required to pay attention to everything, or if it's fine if your mind wanders from time to time.


I must have sped read your comment first time, I only reread it when skibum pointed it out. Have you actually been in a group that had this rule?


_________________
Another man's freedom fighter, one man's terrorist is - Yoda (probably)


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,153
Location: New York City (Queens)

03 Jul 2023, 11:18 am

skibum wrote:
I have never found a support group where I actually felt supported. I have also been kicked out of and ghosted by Autistic support groups because I don't fit into their boxes of what an Autistic person should look and act like.

I am very sorry to hear this!

It is, IMO, important for support group facilitators and core members to work on making their groups as inclusive as possible.

Or, at least, as inclusive as possible within the limits of what is logistically possible for the group. (For example, it's not possible to accommodate everyone in terms of meeting format, because a group that meets via text-based chat intrinsically disadvantages dyslexics, whereas a group that meets via Zoom intrinsically excludes people with sensory issues triggered by Zoom's way of doing streaming video, and likewise every other conceivable format will intrinsically exclude or disadvantage some people.)


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
- My Twitter / "X" (new as of 2021)