I got a medical alert bracelet disclosing my diagnosis

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SharonB
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01 Feb 2024, 10:35 pm

colliegrace wrote:
The most discombobulated I have ever been was on the subway in Washington DC. I began to get very, extremely overloaded by all the motions and lights, etc. I was still in a state for like 20 minutes after getting off! I remember thinking people probably thought I was on drugs cuz that was the most severe my sensory overload had ever gotten and it was affecting the way I moved around.


My very first meltdown / anxiety attack that I remember, I was 5 or 6 years and on the Washington DC metro. Of course it was the 1980s so we didn't know it was a meltdown / anxiety attack. I recall my parents laughing at me. I was so cute when I cried. Oh, well.

I went to a dinner party that was a complete sensory overload and I felt super buzzed when I stepped outside. I had to stand around afterwards for about 10 minutes before I could drive. So I think the "on drugs" interpretation isn't too far off from the experience. :P



shortfatbalduglyman
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02 Feb 2024, 10:26 pm

my physical health rapidly getting much worse.

my communication skills not that great either.

precious lil "people" keep having the nerve to act like they did not: hear, care, understand, believe, or remember, the noise pollution that came out of my beak.

sensitive to loud noises

however, my health insurance already costs way too much. $446.25/month. and i have to pay for doctors visits and prescriptions. kaiser has been "nickel and diming" my worthless corpse. i applied for Medical Financial Assistance. It hasn't answered me yet.

a medical alert bracelet could be a good investment.



elotepreparado
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06 Feb 2024, 10:31 pm

It probably would have been good for me as a teen. I don't know if I need it as much now since public meltdowns happen less for me.

But I feel like if I had a meltdown in public now, it could be dangerous? Like what if I am alone and someone calls security or the police? Then a medical bracelet would probably be really useful.



King Kat 1
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08 Jan 2025, 12:59 pm

I found these. The first is a bit general. 2nd is more specific. I am high functioning, but I've considered getting one, even though I don't like people knowing I'm on the spectrum. I'm getting worse at hiding it and dealing with certain things as I enter middle age.

My reasoning is, if I am somehow end up in a bad situation and I shut down because I'm terrified, also the fact I don't make eye contact. I had a bad in with law enforcement many years ago and maybe I figure if something like that happens again, this would help.

https://www.ebay.com/itm/204516377582


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Jakki
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08 Jan 2025, 1:12 pm

Congradulations,, great idea !


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Double Retired
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08 Jan 2025, 6:56 pm

I see no problem with having it on a Medical Alert bracelet but has anyone seen an actual in-real-life benefit of doing that?

I've told medical providers in-advance of my diagnosis and given them a copy of AASPIRE's Healthcare Toolkit "How Autism Can Affect Healthcare". So far, I don't think it's done me any good.

I've even given them a written list of specific concerns, including:
- Have only one person talk at a time.
- Write out detailed step-by-step instructions.
- Give patients extra time to process things they need to see, hear, or feel before they respond.
So far, I don't think it's done me any good.

P.S. I have a medic-alert dog tag. It does not mention Autism. It mentions MRI restrictions due to the after-market parts in my heart.


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