Research!! ! Please help me!! !

Post Reply New Topic

Unless she is in a country such as China than this is information she needs. It might be called something other than IRB but the concept is the exact same

If you were to follow this federal law the IRB created to its most strict application, would that generally mean then that people aren't allowed to talk and/or write about anything other than small talk (like the weather, recipes, movie comments, etc.)?

Just about everything I know of value has come from my observation of people and that knowledge is embedded into who I am. I must be a walking felony then, especially since I'm habitually expressing my opinions.

So what you are saying then is that every time you express your opinions you are turning them in to be potentially published or used for a class? That must make you quite an unusual person. Most people typically express their opinions in a casual way, not insisting that they are constantly being endorsed via a university project. i wonder where you find so many professors/classes that you constantly have work that enables you to habitually express your opinions as a representative of the university....Even with the max course load, and writing a thesis, I wouldn't have that many classes.

When I said "its most strict application," I was being ridiculous. Even my first post commenting a question about the IRB was meant as a joke. To me, something like the IRB is a joke and is ridiculous. Anytime anyone is expressing an opinion and there is someone to hear it, that opinion became public knowledge because it no longer is private. As a mother with children and grandchildren, I still teach a "class" daily (even though I finished homeschooling my children; my grandchildren will be taught at home too).

Maybe I'm still a bit too tired from not getting enough sleep (thanks to a full moon), but from reading what's been said about this topic on research and the IRB, I didn't notice any mention of "constantly being endorsed via a university project." Does this mean it does NOT apply to people like someone with a PhD (and is a "licensed mental health professional") who writes a book and/or teaches a group of people (not in a university setting)?...that this law is ONLY for either students going for their degree or college professors teaching class at a university?

I truly appreciate this information about the federal law in regards to the IRB. Knowledge like this makes me appreciate my decision I made to not pursue any higher degrees after graduating from the university I attended.

And I was being ridiculous with my response

Anytime you are doing any work for a university you need to be IRB endorsed. Typically undergraduate professors get their entire class endorsed (the reason most undergrads never need to submit an IRB proposal when they do field observations.) But for the collection of primary data, such as the original posters intent, and for any studies headed by professors, you need IRB approval. I fail to see where you would have got from any of this that expressing an opinion would need approval, is we've been talking about research and collecting data for a professor, not having a conversation with someone on the street.

Also, as you get IRB approval from the university, as has been said here, I don't see why you would have even considered that someone not in a university setting would automatically need it. Though of course if you are going to be publishing a book and saying right in the book, "I'm a doctor at XYZ hospital" you best get the hospital's approval for your research before you begin it.

The main reason we have IRB approval is the Stanford prison experiement (http://en.wikipedia.org/wiki/Stanford_prison_experiment). The second biggie is an experiment involves harlow's monkeys. There was also once an electric shock experiment where participants were tricked into thinking that they were drawing lots to see whether they, or another person, would be delivering or receiving a shock. THe participants all were cast in the role of the shocker. The other person was taken to another room, each time the fake participant got an answer wrong, the real one was to press a button, delivering an electric shock to the fake participant at increasing voltage. Most continued pressing the button with increased shocks after the fake participant had stopped screaming in response.

And you can say. "but these are just questions, there is no harm done." Look at the last experiment i mentioned. One could have easily said there was no harm done before it began. In fact I think the original prediction was that most people would stop pressing the button as soon as the other participant asked for it to stop, not to keep going when all evidence indicated the man was either unconcious or dead. Thats why we have the IRB, to readily ensure that no harm is done, because researchers are often blind to harmful effects of their experiements, especially when the effects are completely opposed to their predictions of what will be

^^^
I don't know in which country are you, but that IRB thing is way too crazy

Sweety...I am an undergrad. I need no formal permission. I am working hand in hand with my teacher. This is a paper/research topic for an Education 215 class. I asked her. She said if I were performing any experiments, yes I would. However, I am merely computing the amount of difficulty that aspies/auties have with life in general, as well in specific areas. If I were perform any type of actual experiment then yes, undergrad or no.
If you don't wish to participate that is your choice. This would be extremely beneficial in helping others understand what it means to suffer from this disability. I take it particularly to heart due to my own suffering.
For those who email me privately and answer the basic questions, I will deem if they qualify. I need to know age, sex, etc. due to the fact I am leaning towards cross-sectional research.

This is my first ever research project, and she practically sprung it on me! I was totally unprepared.

If you are interested, feel free to email answers. Thus far, only one of you has deemed it worth your time to do more than instruct me on how to do this. This counts for half of my grade, meaning my 4.0 is in the balance here. I intend to transfer to a top university in the spring...if this goes awry, that will not happen. I am in essence, begging for answers here. Do you not want others to have a better understanding of what we endure? Do you not want others to treat you better? That is what I am striving for, and is the driving force behind my entire education. I do NOT want my children to endure what I have. I want that to change. The reason it hasn't, in my professor's opinion, is because aspies and auties stay tight lipped about their suffering and refuse to share even when the opportunity arises. She is afraid we will have to scrap the entire project.

Again, this is for a research paper in an undergraduate class. This is not going to be published...HOWEVER...if a good response is received, she is planning a formal research. This is not something I am doing. In that instance, all proper paperwork will be in order.

In fairness, I will be totally honest. I am offended right now that the main concern of those posting is not to be of much help. Rather they want to discuss the "politics" of research projects. I did not need any approval last semester when I did research on schizophrenia. This is along the same lines. I was just looking to see how many others are suffering or were mistreated in childhood. It was a simple thing and you are complicating it with things that do not apply in this situation. Considering how VERY seriously I take my grades, this is very stressful for me to meet such a non-helpful reaction. If there is not going to be anyone else to aid me in this, I will have to merely comment that I have had issues and use only my text books and reference books. The autie/aspie population where I live consists of my children, myself, and maybe 10 more. I live in small town USA where there is NOT a support or understanding for this disability. This was to help shed light here and possibly open the door for formal research. There needs to be formal research. Things need to change for us. I am tired of being so badly misunderstood...it is the reason I sit alone in a corner of the lunchroom while everyone shares a table with friends. I am always alone...unless, of course, someone needs help with homework or studying. Then I am suddenly everyone's best friend. The very things they make fun of they want to use in their hour of need. It is difficult, this life I live and I cry for my daughters and son that this is what they face. Isolation, misunderstanding, mistreatment...I want to help with that. This, to me, is the first step on that road.

Please, if you intend to help, it is greatly appreciated. If you merely intend to pick apart what I'm doing, don't bother to do so. I already feel stressed and badly enough. I am doing the very best I can manage under such adverse conditions right now. When the sensory problems calm again, I will be better able to handle things. Right now...it takes all I have to make it through the day.

Hi and sorry, I'll send something later tonight

COME ON PEOPLE!

ANNABELLE NEEDS OUR HELP!

OPEN UP A LITTLE!

Thank you! So sweet!

Research guidelines are strict. We don't want to help her NOT to publish this, right? So it needs to go by the book. Otherwise, it's like getting a confession from someone you've just arrested without giving them their Miranda Rights: you won't be able to use it in court. Or like the poorly collected evidence from the OJ trial; they couldn't use it in court to convict him which likely completely changed the course of the trial.

May sound like sticky red tape, but it's the reality that's laid out and if we want to help her, we're not doing any good by setting her up to fail IRB.

Annabel, I am interested. But I do want to make sure that red tape doesn't get in the way.

Please accept my most humble apologies Triangular_Trees and (especially to) AnnabelLee. I don't mean to be excusing my thoughtlessness by saying I function much better when I've had sleep. I don't dare write anything more about the IRB. Ignore all my previous posts in this thread and please permit me to start over again with a more helpful attitude.

Hope you are doing ok, AnnabelLee. You're in my thoughts. I think it's great what you are doing. I totally relate to you and the stress. I have sisters that have lived a charmed life (what I think would be charmed especially with what I have to deal with) and they just don't understand.
Good luck.
I'll help all I can.

KARBZ
Ana54
Tim_tex
Sophist
Machine
Calandale
unknown8
Sedaka
Merle
wsmac
and many more regulars


I know you're there
¬_¬
help the girl!

*bump*

I just pm'd. Hope your project is going better, AnnabelLee, and I hope you don't have to give up on your chosen method of research and resort to filter-feeding information thrown out solely from psychologists working from the NT perspecctive. We need an autistic voice on autism, and I think you're just the person to fill that role. Best of luck to you, and I'm sorry for your frustration over the whole IRB discussion. The thing is that, as mentioned in my PM, we tend to focus so heavily on details that we need to resolve whatever minor details come up before moving on to something else, and I'm sure that the whole discussion honestly was in an attempt to ensure you didn't unintentionally invalidate your results by offending the red tape. Hopefully now that the issue has been clarified and resolved you will find more response to your original questions.