30 Sep 2007, 9:21 am
30 Sep 2007, 9:33 am
KingdomOfRats
Veteran
Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
30 Sep 2007, 9:51 am
30 Sep 2007, 11:38 am
doordoctor wrote:
depending on were you live and the medical policies and regulations of dealing with autistic will say weather the use of the papoose board is right or wrong, i know hospitals use it for restraining children for pediatric exam and treatment of eyes or other facial stuff,
to be exact when i was 7 i was put in one of these when i had drops put in my eyes when taken to ER because my brother pushed me into a fireplace end iron and top of end iron touched my eye ball (yea painful)
i guess reason why they are used in autistic and disorders is maybe tehy feel that swaddling (like done to babies when a blanket is wrapped around them) that it helps comfort and keep them safe,
but if used to control a meltdown, i think if you are not a harm to others or a harm to society and on some homicide or suicide watch they might be just overreacting.
it also can be that the staff at the place dont fully understand what is going on to an autistic and think restraining and doing this type of treatment(maybe they believe in ABA theory that is more like training a dog) is best thing to do to help an autistic??
anyway, how old are you (maybe theres differant codes and regulations for children then done for adults??)
hope you can get help and better explanation and maybe move out to a more independent and less nt-like place to live.
to be exact when i was 7 i was put in one of these when i had drops put in my eyes when taken to ER because my brother pushed me into a fireplace end iron and top of end iron touched my eye ball (yea painful)
i guess reason why they are used in autistic and disorders is maybe tehy feel that swaddling (like done to babies when a blanket is wrapped around them) that it helps comfort and keep them safe,
but if used to control a meltdown, i think if you are not a harm to others or a harm to society and on some homicide or suicide watch they might be just overreacting.
it also can be that the staff at the place dont fully understand what is going on to an autistic and think restraining and doing this type of treatment(maybe they believe in ABA theory that is more like training a dog) is best thing to do to help an autistic??
anyway, how old are you (maybe theres differant codes and regulations for children then done for adults??)
hope you can get help and better explanation and maybe move out to a more independent and less nt-like place to live.
ok people so here is a think im going to answer all your questions..but it takes a wew days to answer all:)
it does feel save when they but me in there but i don't like restraints ..maybe there would be another way to do it..
im 17 years old ..and i sadly cant move off here until a year has passed..i didint choose to come here they dragged me in here ...and no im not suiciding...thanks i hope it too
30 Sep 2007, 11:39 am
doordoctor wrote:
depending on were you live and the medical policies and regulations of dealing with autistic will say weather the use of the papoose board is right or wrong, i know hospitals use it for restraining children for pediatric exam and treatment of eyes or other facial stuff,
to be exact when i was 7 i was put in one of these when i had drops put in my eyes when taken to ER because my brother pushed me into a fireplace end iron and top of end iron touched my eye ball (yea painful)
i guess reason why they are used in autistic and disorders is maybe tehy feel that swaddling (like done to babies when a blanket is wrapped around them) that it helps comfort and keep them safe,
but if used to control a meltdown, i think if you are not a harm to others or a harm to society and on some homicide or suicide watch they might be just overreacting.
it also can be that the staff at the place dont fully understand what is going on to an autistic and think restraining and doing this type of treatment(maybe they believe in ABA theory that is more like training a dog) is best thing to do to help an autistic??
anyway, how old are you (maybe theres differant codes and regulations for children then done for adults??)
hope you can get help and better explanation and maybe move out to a more independent and less nt-like place to live.
to be exact when i was 7 i was put in one of these when i had drops put in my eyes when taken to ER because my brother pushed me into a fireplace end iron and top of end iron touched my eye ball (yea painful)
i guess reason why they are used in autistic and disorders is maybe tehy feel that swaddling (like done to babies when a blanket is wrapped around them) that it helps comfort and keep them safe,
but if used to control a meltdown, i think if you are not a harm to others or a harm to society and on some homicide or suicide watch they might be just overreacting.
it also can be that the staff at the place dont fully understand what is going on to an autistic and think restraining and doing this type of treatment(maybe they believe in ABA theory that is more like training a dog) is best thing to do to help an autistic??
anyway, how old are you (maybe theres differant codes and regulations for children then done for adults??)
hope you can get help and better explanation and maybe move out to a more independent and less nt-like place to live.
ok people so here is a think im going to answer all your questions..but it takes a wew days to answer all:)
it does feel save when they but me in there but i don't like restraints ..maybe there would be another way to do it..
im 17 years old ..and i sadly cant move off here until a year has passed..i didint choose to come here they dragged me in here ...and no im not suiciding...thanks i hope it too
30 Sep 2007, 11:49 am
30 Sep 2007, 12:08 pm
mechanima wrote:
Batista,
How old are you?
Because if you are over 18, you have every right to walk out of that place, into a police station and press charges for assault.
BUT
You also have every responsibility to behave as an adult and restrain your meltdowns inside your own head WITHOUT hurting anyone, at all, EVER.
If you are under 18 sadly you must accept that you will have to wait until you are 18 to have most of your human rights, but you CAN start teaching yourself to behave responsibly and control your meltdowns right now.
If you do, life WILL improve.
M
How old are you?
Because if you are over 18, you have every right to walk out of that place, into a police station and press charges for assault.
BUT
You also have every responsibility to behave as an adult and restrain your meltdowns inside your own head WITHOUT hurting anyone, at all, EVER.
If you are under 18 sadly you must accept that you will have to wait until you are 18 to have most of your human rights, but you CAN start teaching yourself to behave responsibly and control your meltdowns right now.
If you do, life WILL improve.
M
im 17 so i cant do anything yet .......and im normally calm i just cant stand when they say same thinks about 100 times at day..and only ones i punch when i get meltdown are staff members..and u know its not that simple to control meltdowns right?
30 Sep 2007, 12:34 pm
KingdomOfRats wrote:
batista,
said live in family home,but mentioned staff else where...is it living with family in family home...or is it a residential/group home?
it sounds like they have not been on enough [or any] physical intervention courses,as they are trying to get around it using the board.
are there many staff in the house? are they agency or regular staff?
if there are enough staff in the house,they should use physical restraining,not restraining with the use of an aid.
from own experience,am have regular meltdowns and if it's especially a bad one,the entire home staff will restrain am physically-both with bringing am in from outside and the stairs to the bed [which has special padding around it],and pinning and weighting every part of am down.
restraining here,has to be agreed through specialists first,before being allowed to be used on a person,am was asked if am wanted anything to say about it so showed them via text.
do not have a keyworker inhouse to write what do not like about the restraint,and for them to use other forms of restraining if needed?
what about meetings,do not have meetings to tell them what like and don't like?
as are a mutist or NVer [not too sure,but it sounds that way from one post?],really need someone-such as parent,sister,advocacy group,a nice staff person etc....someone who will say all these things for the person,so they cannot keep getting away with it.
am have several people who speak for am on behalf,the managers don't like them because they aren't getting away with what they used to.
get as many nice people as can for advocates.
also,the managers need to speak to the staff about understanding self more,they need to learn more about self because it seems like they are making these problems worse.
said live in family home,but mentioned staff else where...is it living with family in family home...or is it a residential/group home?
it sounds like they have not been on enough [or any] physical intervention courses,as they are trying to get around it using the board.
are there many staff in the house? are they agency or regular staff?
if there are enough staff in the house,they should use physical restraining,not restraining with the use of an aid.
from own experience,am have regular meltdowns and if it's especially a bad one,the entire home staff will restrain am physically-both with bringing am in from outside and the stairs to the bed [which has special padding around it],and pinning and weighting every part of am down.
restraining here,has to be agreed through specialists first,before being allowed to be used on a person,am was asked if am wanted anything to say about it so showed them via text.
do not have a keyworker inhouse to write what do not like about the restraint,and for them to use other forms of restraining if needed?
what about meetings,do not have meetings to tell them what like and don't like?
as are a mutist or NVer [not too sure,but it sounds that way from one post?],really need someone-such as parent,sister,advocacy group,a nice staff person etc....someone who will say all these things for the person,so they cannot keep getting away with it.
am have several people who speak for am on behalf,the managers don't like them because they aren't getting away with what they used to.
get as many nice people as can for advocates.
also,the managers need to speak to the staff about understanding self more,they need to learn more about self because it seems like they are making these problems worse.
this is group home..there has some other kids that has same kind problems what i got(adhd and such)
mainly there has only regular staff..and i dont know about that but in here they just drag me to my room force me in my bed(also padded) and but me in ankle and wrist restraints then they just leave me there
it would be good if someone would stay there to calm me down
i got a computer in here its coz i don't really talk much so i can communicate via texts
i dontknow what u mean at mutist or nver
well..i there has one really nice doctor who truly understands me
...u are right about it that they WILL make problems worse
but i will talk with em tonight and write that think about testing other restrain forms...i will tell tomorrow how it goed
30 Sep 2007, 12:37 pm
thanks for all of your people who helped me:)...i will write more tomorrow(Monday) and tell how it goed 
30 Sep 2007, 5:17 pm
batista90 wrote:
and i know when its coming so i think i might ask em to restrain me earlier"sight" will that solve problem?
Noticing what is about to happen is a good basis for a solution. If you couldn't feel a meltdown coming, things would be more difficult. That you can feel it coming is brilliant. If the restraint is less stress for you if it comes earlier, that is good for you. It is also good for the other people, if it means you can avoid fighting them. Propose this to them as a short term solution. Then work on finding something better.
batista90 wrote:
yea..there has a certain situation's which launches meltdowns ...and i mean it first in morning i may pass someone who told me to go in shower...ok...then 20 minutes later someone comes to my room to tell i need to go in shower even i would allready been in there...this is going all day..its really driving me up the wall
I'm lucky enough that I don't get regular meltdowns, so what follows may not work for you because the situation was merely annoying. One of my teachers at school regularly annoyed me, until I turned it into a game. I started taking measurements on how persistently he could keep up what used to annoy me, and looked whether he might beat his previous record. I ended up enjoying what had previously annoyed me. Do you think it would work if you counted up how often people tell you to do what you already have done? You could make bets with yourself who will give you the most redundant information. That would give you a method of going one step back from the immediate annoyance.
Good luck. If you find something that works, please tell us, so that others can benefit.
30 Sep 2007, 6:08 pm
30 Sep 2007, 8:11 pm
01 Oct 2007, 10:09 am
Gromit wrote:
batista90 wrote:
and i know when its coming so i think i might ask em to restrain me earlier"sight" will that solve problem?
Quote:
Noticing what is about to happen is a good basis for a solution. If you couldn't feel a meltdown coming, things would be more difficult. That you can feel it coming is brilliant. If the restraint is less stress for you if it comes earlier, that is good for you. It is also good for the other people, if it means you can avoid fighting them. Propose this to them as a short term solution. Then work on finding something better.
ya im currently doing this i talked with em yesterday and im testing today what restrain form feels best but if u got any ideas about restrain forms which i should try just success em
batista90 wrote:
yea..there has a certain situation's which launches meltdowns ...and i mean it first in morning i may pass someone who told me to go in shower...ok...then 20 minutes later someone comes to my room to tell i need to go in shower even i would allready been in there...this is going all day..its really driving me up the wall
I'm lucky enough that I don't get regular meltdowns, so what follows may not work for you because the situation was merely annoying. One of my teachers at school regularly annoyed me, until I turned it into a game. I started taking measurements on how persistently he could keep up what used to annoy me, and looked whether he might beat his previous record. I ended up enjoying what had previously annoyed me. Do you think it would work if you counted up how often people tell you to do what you already have done? You could make bets with yourself who will give you the most redundant information. That would give you a method of going one step back from the immediate annoyance.
Good luck. If you find something that works, please tell us, so that others can benefit.
dont worry i will im can always try it but i think its not working so well by me coz there has big consequences what happens if i fail..but ya i will think someting:)
01 Oct 2007, 10:12 am
01 Oct 2007, 10:12 am
01 Oct 2007, 10:24 am
affengeil wrote:
I'm sorry you're living with that; it must be horrible.
You might want to research any disability advocacy organizations in your state. I know there's one in Oregon, so other states probably have similar things. If you don't know where to start, Legal Aid might be one (usually a Legal Aid place in medium-large cities).
best of luck to you, and hang in there.
You might want to research any disability advocacy organizations in your state. I know there's one in Oregon, so other states probably have similar things. If you don't know where to start, Legal Aid might be one (usually a Legal Aid place in medium-large cities).
best of luck to you, and hang in there.
i have talked whit em and demanded to see a restrain order ..and ye there really was one acorting to it the problem would seem to be only my meltdowns so i cant really fight against em with laws
so what im going to do is trying to find some good trick so i can get enough time to get off the scene if i get meltdown .....thanks i will
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