Who adapts better, the diagnosed or the undiagnosed?

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PrisonerSix
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04 Oct 2007, 9:10 am

EvilKimEvil wrote:
I can also relate to PrisonerSix's post in that my parents would have reacted by trying to "cure" me. They labeled me as defective without an AS diagnosis so the diagnosis would have strengthened their case. Actually, when I was about 5, my mom and my pediatrician thought I was autistic, but the psychiatrist they took me to said I did not have autism because I had a large vocabulary for my age. She diagnosed me with ADD and encouraged my parents to use negative reinforcement methods similar to dog training in order to "correct" my behavior. Being diagnosed with AS probably would have made the experience worse.

However, I think that if I had been diagnosed with AS when I was a younger adult, it could have made my life easier. It could have helped me to understand that I was ostracized because I was different, not because I was defective. I also could have made better decisions about my education and career. For example, I might not have let my dad talk me out of applying to PhD programs in the hopes of becoming a professor. I might have been able to use the diagnosis to explain to employers that I'm not stupid or emotionally fragile. And I might have suffered from less depression and anxiety. Since I figured out I probably have AS, I haven't experienced any depression or anxiety. I think it's because I no longer blame myself for all the difficulty I have getting along in society.

So I think it's true that diagnosis (including self-diagnosis) can alleviate depression and anxiety, but for me, all the rest is speculation.


My mother often said to me that I was "different" but would never elaborate. I was never diagnosed with anything in fact, I seldom went to the doctor. The one thing was diagnosed with, tibial torsion(a bone in my leg was slightly turned) was never treated because my mother didn't like the treatments offered, which were either surgery or leg brace. In order to force me to stop resisting the campaign to make me "normal," my mother tried to convince me my leg would get better if I just kept it suntanned. Getting a suntan was one of the things my parents forced me to do to make me appear "normal."

I just wish my parents had left me alone to be who I was, and let me grow into the person I wanted to be, instead of trying to fit this square peg into a round hole.


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Wolfpup
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04 Oct 2007, 9:42 am

Khalaris wrote:
On the one hand I'd like to get an official diagnose, but on the other hand I don't think it would change anything for me now. I'm 20 and I've been strange all my life. I've learned to live with it. Looking back, I'm actually glad I was never diagnosed, because had I been, I don't think I would have made as much effort to be NT. AS would have been the perfect excuse for not doing things. Besides, there's no absolutely sure way of telling if you have AS or not. If you can go to 5 different psychiatrists and get 5 different diagnoses why should I trust the one that says I have AS? I'd rather be "self-diagnosed" and still have the world think of me as strange than be shoved into some category.


For me, I'm NOT really doing okay. I need some kind of help, and I can't get it, and at least I'd like have known what was wrong with me so I could use that to cope with it.

9CatMom wrote:
My biggest fear is not being diagnosed with AS, but of getting an unscrupulous evaluator who will limit my life based on a diagnosis. I had that experience in college, and don't want to go through it again.


What happened? I mean what can they do to you?



Featherways
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04 Oct 2007, 10:37 am

I haven't been formally diagnosed, and it's impossible to say what the effect of a diagnosis on my life would have been. Until I was in my 40s I hadn't realised just how different I was from NTs, why so little of the social world made sense, why I was so exhausted after social interaction, why I found eye contact scary, why I found it so hard to understand hellos and goodbyes, why I found unexpected touch from someone to be frightening...the list is fairly endless. Then there was the list-making and obsessive collecting of things, the interest in cars (statistics thereof..), photos (not of people), computers, science, maths.

It's taken me a while to adjust to the realisation that I'm AS, and I have no wish for many others to know about it. I'd rather they thought I'm eccentric (which is sort of cute/socially acceptable) than Aspie (which popular culture seems to believe is some sort of mental illness requiring people to back away nervously and speak to us like idiots, in my experience).

It has given me "permission" to pace myself and realise my limits. I guess I wish I'd realised earlier in life. It would have saved a lot of stress.



Wolfpup
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04 Oct 2007, 1:47 pm

Is that really what popular culture thinks? I didn't even know AS existed until about a year or two ago.