I Hate Poisoning My Daughter

Post Reply New Topic

Wow, You know everything, don't you? You've decided that I smoke pot, you decided that I'm pissed. You decided that I haven't persued as many avenues as I can without your sage advice. Too bad we all can't be as clavoient as you are. You can have the last word, if you'd like. I don't think you care what others think so it doesn't matter.

I agree that you should be considering a second opinion, or a change of doctors. There are anticonvulsants that are generally safe and low on side effects, like lamotrigine (Lamictal). I'd bet that a specialist could figure out something to do the job without messing her up in other ways.

This was the second neurologist we saw. He seemed pretty sincere. I believe him when he says that all the anticonvulsants aren't very nice. I wish my daughter could be more precise about happens to her when she takes the drugs. I'll keep searching for answers. I'm glad that the Internet is there to help, as well.

It seems that for so many people just seeing another doctor is an easy solution. My experience has been that it's rare for any professional to understand much about the world of people with autism.

most drugs have possible side effects,there is nothing more wrong with anti convulsants,any normal side effects usually go after getting the drug used to the system.
am recommend slow release tegretol [known as tegretol ret*d and carbemazapine],with am at least,slow release versions don't have that rush of bad things like in normal tegretol,such as tiredness and diziness,plus as it's released slowly it lasts longer.

Definitly let her smoke weed. It's not supposed to cure everything but it synergizes well with most everything. Actually even if she didn't get seizures you should tell her to smoke weed.

Oh and siuan, you are wrong in soo many ways it's not even funny.

And if you want to stop the war on drugs ppl don't forget to vote Ron Paul for president 2008.

My friends who use marijuana for autism make it into green butter. Their kids don't smoke.

I don't agree with that perspective. Recently someone I know (not on the spectrum, but a long way from neurotypical) has had the same attitude expressed towards psych meds, by doctors who were prescribing him haldol, thorazine, lithium, clozaril, and all manner of dangerous, 17-130 year old drugs. I think the doctors in question had gotten good results with them a few decades ago, and just never switched to prescribing, or even considering, anything newer. But I have also known people who died or suffered permanent damage from taking some of those drugs. A relative of mine is a doctor in a psychiatric hospital, and when I told him some of the things that were being prescribed, he was mortified, and immediately suggested safer alternatives.

I would check with some other doctors.

geek, I love you. Yes, if you'd find out more, I'd feel more confident about what I have to decide about my daughter. She started fighting me about taking her medication so I lowered the dosage. It was like she came out from a cave. She drew a lot of beautiful pictures, she stopped moaning and stopped grabbing her brother's GameBoy in nervous perseverations. She was so beautiful and alive. Then she had a seizure. I had to stick her inside that cave again. It broke my heart.

I've never approved of marijuanna as treatment for any disease or disorder. It stunts brain growth, and causes very increased chances for lung cancer.

Perhaps instead of looking for drugs that may or may not help your daughter, you could research other seazure remedies. A lot of unorthodox methods are out there, accupuncture I believe has helped people with seizures, also dolfins, or certain exercises and foods. Before you take her off her medications compleatly, I suggest you see an expert in this field. I do mean an expert too, not just a regular nueologist, but someone trained in dealing with siezures linked with autism.

Even though marijuana is completely harmless that doesn't mean it will do anything good.

This is so crazy it doesn't even deserve a coherent response. What the heck are you hippies doing in Oregon?

It's hard to find an seizure/autism expert here but we're going to see and seizure/hormone expert because the diary I keep concerning when her seizures happen seem to indicate a hormonal connection.

As for marijuana, she'd never, ever smoke it, so it's not a lung issue.

((I dont know how to quote manually... soo...))

source: http://www.marijuana-addiction.net/mari ... ffects.htm
other sources: http://www.marijuanapassion.com/Marijua ... fects.html
http://www.acde.org/common/Marijana.htm

"Over 11 million people smoked marijuana last month. Many may not have severe marijuana side effects from taking the drug but many people will. Marijuana side effects include physical problems like breathing difficulties and deteriorating physical abilities. Despite a popular belief, marijuana side effects speed up the heart, blood and breathing rate. The body is taxed more and this speeds up the aging process just like methamphetamines do. The marijuana side effects from this extra exertion on the body include a higher risk for lung cancer, heart attacks and strokes.

Marijuana side effects also wreak havoc on the brain when the drug is used habitually. The natural chemical balance of the brain is disrupted affecting the pleasure centers and regulatory systems. The ability to learn, remember and adapt quickly to changes is impaired by marijuana use. Depression often occurs with marijuana usage, which feeds into the cycle of more drug use to treat the pain created by drug use. This cycle of addiction is very powerful and users soon find that they cannot stop using the drug even if they want to.

Marijuana addiction is a progressive disease and marijuana side effects include withdrawal and obsessive thought with the drug when it is not made available. Addiction is identified as a compulsive, uncontrollable craving for the drug even with pending negative consequences. Often users will attempt to stop smoking marijuana for an important event such as a job interview or court hearing and find themselves using very close or just before the event. This act goes beyond a flexing of willpower. This describes being enveloped by a disease that has taken control and needs to be treated."

Harmless?

Read what I just posted, please.

I understand experts aren't easy to find or get to, but you have to remember this is your daughter, and she's worth the money or the inconvinience. Are you willing to put her through the depression, mental supression, anxiety, and dependance on marijuanna that this drug causes? It may seem harmless, and many will fight that it is, but any brain-altering drug is dangerous, even deadly. In fact, orally consumed, it's more dangerous than smoked because the chance of overdosing is so much higher. Please, take my advice, it's not worth it.

We aren't debating if it's harmful or not. We're debating whether it helps seizures and the problem is that there have been no studies on the topic. So the mother would be making a life altering decision for her daughter based on hearsay (not to mention introducing her to an illegal substance). She is also acting against medical advice which in some states is enough to declare her an unfit mother.

On the application of cannabis in paediatrics and epileptology.
Lorenz R.

[email protected]

An initial report on the therapeutic application of delta 9-THC (THC) (Dronabinol, Marinol) in 8 children resp. adolescents suffering from the following conditions, is given: neurodegenerative disease, mitochondriopathy, posthypoxic state, epilepsy, posttraumatic reaction. THC effected reduced spasticity, improved dystonia, increased initiative (with low dose), increased interest in the surroundings, and anticonvulsive action. The doses ranged from 0.04 to 0.12 mg/kg body weight a day. The medication was given as an oily solution orally in 7 patients, via percutaneous gastroenterostomy tube in one patient. At higher doses disinhibition and increased restlessness were observed. In several cases treatment was discontinued and in none of them discontinuing resulted in any problems. The possibility that THC-induced effects on ion channels and transmitters may explain its therapeutic activity seen in epileptic patients is discussed.

PMID: 15159680 [PubMed - indexed for MEDLINE]

http://www.ncbi.nlm.nih.gov/sites/entre ... mToSearch=
15159680&ordinalpos=4&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

Last edited by psych on 10 Oct 2007, 8:57 pm, edited 1 time in total.

I take Dilantin, and it has kept my seizures under good control, thank goodness. I have to be vigilant about taking care of my teeth and have hair growth on my face but, fortunately, I haven't had the coarsening of the facial features that is said to be a side effect of Dilantin. I also have to have my liver values checked. Fortunately, these are normal too.