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Mark198423
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29 Jan 2008, 6:04 pm

2ukenkerl wrote:
Mark198423 wrote:
Not sure if I'm looking in the right place but I can't see anything after October 07!


She meant where it said:

officially dxed with aspergers as of 18.01.08!! !

The european order is DD.MM.YY, so that means officially dxed with aspergers as of January 18th 2008!


Doh! :oops: Didn't notice anything but the blog address!!

Yeah, that's right for dates here.



2ukenkerl
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29 Jan 2008, 6:04 pm

beau99 wrote:
zendell wrote:
I watched the movie Rainman and I think they said he was high functioning. For those who watched the movie, how would you describe him? High, mid, or low functioning?

Mid-functioning.


WOW, I would have said like high LFA. Are you saying MFA only because he is mildly coherent, and voices desires? I would say the REAL kim peek was MFA if he was autistic.



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29 Jan 2008, 6:05 pm

Age1600 wrote:
Ok, what really bothers me now and these days is how they focus sooo much on autism in children, I had an appt to see the drc at my college to try for the 3rd time to get back into classes. The lady looked at me, and doubted i was autistic because in her words "I'm not non-verbal, I'm actually talking to a person, I actually seem interested in stuff besides my own little world, and I'm not handflapping or rocking 8O !" Wow, I was non-verbal growing up, and thankfully I learned how to verbally express myself, and yes I'm interested in more then just my own little world, i want to do sign to teach other non-verbal autistics, and I aint handflapping because i aint happy, and rocking no, i was handtwisting and doing other weird things.

Its like most people see an autistic child off of tv, then assume their like that into adulthood! One of the ladies said, "you seem verrrry high functioning, and the reason why is because I'm out in the world, and not freaking out due to all the sensory and people, and I'm not headbanging?". No I am freaking out(Just because I'm not throwing myself on the ground like I did as a child or headbanging at the moment doesn't mean I'm not freaking out :roll: !) I meltdown just about every night I go do big things like that, and afterwards like now, my brain feels like its melting inside. Then the other lady goes "your not acting like rainman?" WHAT? huh, no I'm not rainman, I'm adrienne, when you meet another autistic touretteing adrienne, you let me know haha! I just get sooo mad going out into the world, and hearing this over and over :x :? .

My question is does anybody else have a similiar experience or at least agree with me on how they only forcus on autism as a childhood disorder, and don't show much awareness on what autistic adults are like :?:


Yep, just because we may be better able to cover up our differences, doesn't mean it doesn't take a HELL of a lot of energy to do it.

SUCCESSFUL ≠ EASY


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My Science blog, Science Over a Cuppa - http://insolemexumbra.wordpress.com/

My partner's autism science blog, Cortical Chauvinism - http://corticalchauvinism.wordpress.com/


zendell
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30 Jan 2008, 1:30 am

2ukenkerl wrote:
beau99 wrote:
zendell wrote:
I watched the movie Rainman and I think they said he was high functioning. For those who watched the movie, how would you describe him? High, mid, or low functioning?

Mid-functioning.


WOW, I would have said like high LFA. Are you saying MFA only because he is mildly coherent, and voices desires? I would say the REAL kim peek was MFA if he was autistic.


That's what I thought. He couldn't even understand simple questions. But I don't know any low functioning autistics to compare him to. I'm pretty sure they called him high functioning in the movie just because he was a savant and was able to talk but there wasn't much known about autism when it came out. I think most people find this movie about an autistic savant more interesting than they'd find a movie about other autistics. It really is interesting why someone could multiply big numbers but not understand simple questions. Some of it was funny because I could see myself. Like the part where he stopped walking in the middle of the road because it said do not walk. I used to take everything strictly literally just like that and felt I must obey the rules. I even thought people who didn't speak literally weren't telling the truth.



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30 Jan 2008, 2:57 am

So many people still think auties can't talk! My brother just said it 5 minutes ago. I've had to explain Aspergers to people and actually had people who have no experience with it argue things like "Oh no Aspergers can't talk." :roll:



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30 Jan 2008, 3:40 am

Well, if you've gained fluent speech (you don't need a mechanical aid to talk for example), you're not constantly rocking/flapping, even as an adult, then you'll be seen as Asperger's, "high-functioning" to the likes of Professor Attwood. I've seen quite a few professionals who're of this opinion; the only one I haven't is the psychiatrist who diagnosed me with autistic disorder (he's known about autism--childhood schizophrenia for a long time).

Some children with autism don't improve as they develop, some improve and then "regress", and some improve until they're labeled as Asperger's.

20-40% of those with autism gain speech, but it's usually limited, i.e., unable to start/sustain a conversation (this is in the best of cases); some who gain the ability to communicate fluently are then labeled as Asperger's.



30 Jan 2008, 3:49 am

zendell wrote:
I watched the movie Rainman and I think they said he was high functioning. For those who watched the movie, how would you describe him? High, mid, or low functioning?



Low. Can he live a normal life? No. He has to be in an institution.



Danielismyname
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30 Jan 2008, 3:52 am

Spokane_Girl wrote:
Low. Can he live a normal life? No. He has to be in an institution.


There's actually, many, many individuals with "HFA" who live in institutions (even Asperger's), albeit, more live in governmental housing/group homes.

Even most individuals with Asperger's don't live a "normal" life.



2ukenkerl
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30 Jan 2008, 6:21 am

zendell wrote:
2ukenkerl wrote:
beau99 wrote:
zendell wrote:
I watched the movie Rainman and I think they said he was high functioning. For those who watched the movie, how would you describe him? High, mid, or low functioning?

Mid-functioning.


WOW, I would have said like high LFA. Are you saying MFA only because he is mildly coherent, and voices desires? I would say the REAL kim peek was MFA if he was autistic.


That's what I thought. He couldn't even understand simple questions. But I don't know any low functioning autistics to compare him to. I'm pretty sure they called him high functioning in the movie just because he was a savant and was able to talk but there wasn't much known about autism when it came out. I think most people find this movie about an autistic savant more interesting than they'd find a movie about other autistics. It really is interesting why someone could multiply big numbers but not understand simple questions. Some of it was funny because I could see myself. Like the part where he stopped walking in the middle of the road because it said do not walk. I used to take everything strictly literally just like that and felt I must obey the rules. I even thought people who didn't speak literally weren't telling the truth.


Well, he would NOT vary his routine. He didn't speak clearly. He was like in a constant meltdown. Although he was GREAT with math, he couldn't apply it to daily tasks like money.

That sounds LOW to me! I would call him MFA only because he obviously had potential. The REAL Kim peek spoke better, and could vary his routine. I don't even know about the math application, but would say the real kim peek was higher functioning.



2ukenkerl
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30 Jan 2008, 6:24 am

Danielismyname wrote:
Spokane_Girl wrote:
Low. Can he live a normal life? No. He has to be in an institution.


There's actually, many, many individuals with "HFA" who live in institutions (even Asperger's), albeit, more live in governmental housing/group homes.

Even most individuals with Asperger's don't live a "normal" life.


I SERIOUSLY doubt the average AS person doesn't live a pretty normal life. People diagnosed ARE supposed to have good self help skills! And how many more AREN'T diagnosed? Alex seems like the kind of guy that, if he wasn't diagnosed, could have gone his whole life seeming fairly normal.



matt
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30 Jan 2008, 6:26 am

The real Kim Peek is not autistic.



Danielismyname
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30 Jan 2008, 6:38 am

2ukenkerl,

Quote:
Individuals with AS show several assets, including good cognitive ability, well developed language skills, and areas of special interest through which they may forge friendships and find satisfying jobs. The indication from descriptive reports, clinical experience, and outcome research, however, is that persons with AS may be less impaired than those with HFA, but still endure a severe developmental disability. A minority of individuals achieves some independence in self-care and gainful employment, but most tend to live at home, hold no job, and have few or no friends.


Taken from here.

I'll add "HFA" too:

Quote:
The outcome for individuals with HFA is varied but generally much lower than would be expected on the basis of intellectual functioning. Most even cognitively able adult persons with autism live at home or in a supervised facility and occupy lower level jobs or are unable to gain competitive employment. They may engage socially in a structured context but do not establish individual friendships and do not marry.



2ukenkerl
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30 Jan 2008, 7:49 am

matt wrote:
The real Kim Peek is not autistic.


Yeah, I generally tried to make that clear. Sorry I slipped. :oops:



cataspie
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30 Jan 2008, 8:52 am

Age1600 wrote:
Ok, what really bothers me now and these days is how they focus sooo much on autism in children, I had an appt to see the drc at my college to try for the 3rd time to get back into classes. The lady looked at me, and doubted i was autistic because in her words "I'm not non-verbal, I'm actually talking to a person, I actually seem interested in stuff besides my own little world, and I'm not handflapping or rocking 8O !" Wow, I was non-verbal growing up, and thankfully I learned how to verbally express myself, and yes I'm interested in more then just my own little world, i want to do sign to teach other non-verbal autistics, and I aint handflapping because i aint happy, and rocking no, i was handtwisting and doing other weird things.

Its like most people see an autistic child off of tv, then assume their like that into adulthood! One of the ladies said, "you seem verrrry high functioning, and the reason why is because I'm out in the world, and not freaking out due to all the sensory and people, and I'm not headbanging?". No I am freaking out(Just because I'm not throwing myself on the ground like I did as a child or headbanging at the moment doesn't mean I'm not freaking out :roll: !) I meltdown just about every night I go do big things like that, and afterwards like now, my brain feels like its melting inside. Then the other lady goes "your not acting like rainman?" WHAT? huh, no I'm not rainman, I'm adrienne, when you meet another autistic touretteing adrienne, you let me know haha! I just get sooo mad going out into the world, and hearing this over and over :x :? .

My question is does anybody else have a similiar experience or at least agree with me on how they only forcus on autism as a childhood disorder, and don't show much awareness on what autistic adults are like :?:


Ive been told i cant be autistic because i can talk and can change my routine.
Im not sure why children are treated well and adults very poorly.I wonder if its a pecking order type of thing though im not sure.



snelavasac
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30 Jan 2008, 11:52 am

Age1600 wrote:
My question is does anybody else have a similiar experience or at least agree with me on how they only forcus on autism as a childhood disorder, and don't show much awareness on what autistic adults are like :?:


I know what you mean and I've wondered why people only talk about autistic kids since I was first diagnosed when I was 11. Maybe it's because kids are cuter than grownups? :)

It's also irritating when people think we're all either like Rainman or completely nonverbal--that's probably why I don't tell very many people that I'm an Aspie. It would probably blow the tiny minds of the people I've heard that from.



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30 Jan 2008, 12:41 pm

Danielismyname wrote:
some improve until they're labeled as Asperger's.

some who gain the ability to communicate fluently are then labeled as Asperger's.


I think a lot of people get misdiagnosed with Asperger's. No one correctly diagnosed with autistic disorder can ever meet the criteria for Asperger's. I'm not even sure whether Asperger's even exists.