Recovered autistics - Before and After videos

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zendell
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05 Feb 2008, 3:39 pm

serenity wrote:
I don't think that just a dx of autism warrants such treatments, though.


Doctors who treat autism test their patients first to see what's wrong. If you watch the videos, you would know that they were all given different treatments. I've read that many NTs with CFS, FM, and MS have the same abnormalities and recover with the same treatments. Why should autistics be denied testing and treatment for the same things that cause problems in NTs?



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05 Feb 2008, 3:41 pm

I usually never say anything about this, because i dont like arguing or stating my opinion after getting attacked one time for it. But I was at the disability resource center today, while the nurse asked me about what she could do to help her grandniece! I told her about pecs, sign, therapies, vitamins, and she smiled and said thanks, she also brought up how she heard about biomeds literally tore another family she talked to apart, because it did nothing to the child but made him a guinea pig. Thats the only reason i'm actually stating my opinion today... 8O



My opinion of it all is that I would never try biomedical treatments, because using myself as a guinea pig to figure out whether this works or not just so i can delete something i was born with to begin with makes no sense at all. I'm actually happy with who i am, and i told my family to please accept me, thats why i want to try pecs and this type of mood thing you put on the frigerator which i'm going to try to get to help also. I also take vitamins and other supplements to help, but to literally try to reverse or change what god gave me just because ppl around me cant seem to accept me is something i'm never ever going to do. I fought to be where i am today, you think i should try some biomedical stuff, which isnt even 100percent sure, just to make it easier, please i rather have it hard, and work for life, rather then sailing right through, be proud to be who i am, rather then wishing i was something else just because its hard.

When the whole world says biomedical or gfcf diet is 100percent sure that it works, then thats another story, but until then, its all just somebodies interpretations. I know this because i have seen that gfcf diet do nothing for some family, or cause the family to get into debt due to the diet and all it was make the kid not flap, spin, rock anymore and gave him good eye contact! I've seen it do wonders to families whom had an aspergers child, but do nothing to their severely autistic child. As far as biomeds, ive seen a mother literally nit pick everything and did soo much stuff to get rid of mercury, lead, no vaccinations, do allergy tests left and right, just so that child is perfect in her eyes, and not autistic anymore, sorry but he was still handflapping, not understanding any kind of body language, sarcasm, or jokes, so seems after all of that, he was still autistic!

Now what bothers me the most is that what if you don't have any lead or mercury in your body? What if that diet doesn't work for that child? Now all those stories and positive feedback about both will literally tear that family apart, not only emotionally wise, but money wise also.

I go to a gym with a mother of two autistic children, one severe, one pddnos, she tried everything, literally everything, biomeds, gfcf diet, therapies, pecs, sign, her severely autistic son didn't respond to either of anything, won't do pecs or sign, the biomeds made him extremely angry due to being poked with needles all the time to find out he had no mercury or lead in him to begin with, the diet made him become almost anorexic due to not being able to have his favorite foods, after almost hospitalizing the poor child, and saw only minor affects due to the diet, the mother quickly took him off the diet, a child who didn't care for any of the therapies, and didn't care for sign or pecs, that mother was furious! She said, i dont know whats left to do, he wears a helmet 247, we cant even do the simpliest things, he freaks out. I remember asking her what she thinks caused her sons autism, she said I really dont know, at first she thought vaccinations did it, but didn't vaccinate her second son, and he came out autistic, and almost died a couple years back due to getting a serious disease because he wasn't vaccinated. She said i thought it was lead or mercury, or him not processing casien or gluten correctly, but now i just dont know!

Now all those videos are videos, are seen a child in real person after biomeds? and before biomeds? I did, like i said before, i notice the child improved a lot, but was still clearly autistic!


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zendell
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05 Feb 2008, 3:50 pm

Reyairia wrote:
The problem with ADHD and such disorders is that they benefit the pharmaceutical companies in terms of billions of dollars in revenue, hence they will have nothing against misdiagnosing children for the sake of making money when they only seemed to have the disorder. There isn't a drug for autism yet, but there for anxiety issues and so on. Doctors make shedloads off of us, so of course for me the fact that these children were "cured" proves to me that these children were misdiagnosed.


If a doctor gives you a treatment for a condition unrelated to autism and it cures you of autism (its happened before) at the same time, does that mean that you were never autistic? If so, then none of us can say we're autistic.

Reyairia wrote:
Asthma however, is a different story because it can be both genetic and acquired. Someone with acquired asthma could probably become much more easily cured, while someone with genetic asthma can probably only be improved. I don't think it's much different with autism in that field.


There's no proof that autism isn't acquired. One study looked at vaccinated versus unvaccinated children and found that:

Asthma and allergies in 10 year olds (based on a study of 1,265 children):

asthma rate in vaccinated children - 23%
asthma rate in unvaccinated children - 0%

allergy rate in vaccinated children - 30%
allergy rate in unvaccinated children - 0%

http://www.ncbi.nlm.nih.gov/pubmed/9345669

Since vaccinations are given within days of birth, there is no way to know whether autism is genetic or whether it is acquired from vaccines.



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05 Feb 2008, 4:13 pm

zendell wrote:
If a doctor gives you a treatment for a condition unrelated to autism and it cures you of autism (its happened before) at the same time, does that mean that you were never autistic? If so, then none of us can say we're autistic.

Once again, it's not just adhd and autism that is misdiagnosed. I believe that a lot of diseases/disorders and the like are misdiagnosed. That includes plenty.
Secondly, I don't understand what you're getting it because if autism does exist (which it does) then clearly those that are not autistic and are just suffering an odd side effect will be "cured" and those that are truly autistic will not. The only way for someone to be "cured" of autism would be hampering with genetics.

Reyairia wrote:
Asthma however, is a different story because it can be both genetic and acquired. Someone with acquired asthma could probably become much more easily cured, while someone with genetic asthma can probably only be improved. I don't think it's much different with autism in that field.


There's no proof that autism isn't acquired. One study looked at vaccinated versus unvaccinated children and found that:

Asthma and allergies in 10 year olds (based on a study of 1,265 children):

asthma rate in vaccinated children - 23%
asthma rate in unvaccinated children - 0%

allergy rate in vaccinated children - 30%
allergy rate in unvaccinated children - 0%

http://www.ncbi.nlm.nih.gov/pubmed/9345669

Since vaccinations are given within days of birth, there is no way to know whether autism is genetic or whether it is acquired from vaccines.[/quote]

If I remember correctly, the latest study mentioned that there was not enough evidence to suggest a correlation between the vaccines and autism.



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05 Feb 2008, 4:23 pm

Age1600 wrote:
[i]I usually never say anything about this, because i dont like arguing or stating my opinion after getting attacked one time for it...


I like reading your opinions even if some of them don't agree with mine. :) I believe we should accept everyone for who they are, autistic or not. The reason I use biomedical treatments is to help me be even better than I am now. What I'm trying to get people to understand is that the causes of autism symptoms are NOT exclusive to autism. The treatments are helping NTs also. The link to http://www.autismrecoveryvideos.org/ mentions in the first paragraph, "Adults can recover from life-long afflictions such as eczema and fibromyalgia." The tests and treatments used for autistics are also used to treat NTs with FM and CFS. While researching CFS since I have that also, I read that a representative of the Great Plains Laboratory (used by DAN! doctors and also used by alternative doctors who treat chronic "incurable" illnesses) stated that they find similar markers in autism and CFS, FM and multiple sclerosis. What they're finding is evidence of mercury, fungal infections, bacterial infections, nutrient deficiencies, fatty acid deficiencies, immune system dysfunction, and other problems and alternative doctors are using many of the same treatments to treat their patients with CFS that DAN! doctors are using to treat autism, based on the same abnormalities found in these tests. If someone with autism and someone with CFS get tested and the same abnormalities are found, why should the person with CFS be treated but the person with autism be denied treatment?

Nothing works 100% for any condition. Anti-depressant studies show they only help about 1 in 4 with depression. It may frustrate the depressed person when the treatment fails, but does that mean no one should be given anti-depressants and depression shouldn't be treated? Many people with chronic illnesses try everything and nothing works and become hopeless and depressed but why should those it may help not be given a chance to recover?

"i notice the child improved a lot, but was still clearly autistic!" Same thing happens with CFS and other medical conditions. Someone may improve 80% but still have a few symptoms. Why should autism be any different? An 80% improvement is better than nothing. Treating autism with biomedical treatments isn't any different than special education, counseling, or other treatments in that they all aim to reduce autistic symptoms to make the person appear more normal.



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05 Feb 2008, 4:29 pm

I am Aspie.. I have gone for 26 years without anytone noticing I am aspie or seeing aspie traits.. Being able to seem NT at times isnt a cure we can all do that anyway if we put some effort in to appear as normal as possible.

What if there was something NTs can take to make them more accepting of people with autism.. would that be a cure?



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05 Feb 2008, 4:32 pm

Reyairia wrote:
Once again, it's not just adhd and autism that is misdiagnosed. I believe that a lot of diseases/disorders and the like are misdiagnosed. That includes plenty.
Secondly, I don't understand what you're getting it because if autism does exist (which it does) then clearly those that are not autistic and are just suffering an odd side effect will be "cured" and those that are truly autistic will not. The only way for someone to be "cured" of autism would be hampering with genetics.


What I'm saying is that most of those who recover were correctly diagnosed. It really doesn't matter if they are indistinguishable from other autistics with possibly genetic causes. If these recovered children had the exact same symptoms as other autistics before treatment, then it's impossible to differentiate them. One study found that 58% diagnosed with ASDs test positive for Mycoplasma fermentans. If it is proven to cause autism, would that mean that 58% of people diagnosed with autism were misdiagnosed? If so, then odds are that you aren't autistic.

Reyairia wrote:
If I remember correctly, the latest study mentioned that there was not enough evidence to suggest a correlation between the vaccines and autism.


The study only looked at one ingredient, thimerosal, in vaccines. There are plenty of other things in vaccines that could possible cause autism.



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05 Feb 2008, 4:34 pm

Tensho wrote:
What if there was something NTs can take to make them more accepting of people with autism.. would that be a cure?


If people were NT due to mercury poisoning or infectious diseases and treating them made them autistic, then that would be a cure.



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05 Feb 2008, 4:37 pm

I won't check the recovered videos. Someone please tell me how many are recovered after the age of 7. Kids who have autistic traits, sometimes snap out of it between the ages for 4 and 7. And there are no shortage of opportunists ready to grab all the credit.

However, treated or untreated, the stats are the same.


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05 Feb 2008, 4:38 pm

zendell wrote:
What I'm saying is that most of those who recover were correctly diagnosed.

How do you know that? How do you know that what is being used to diagnose Asperger's Syndrome is too broad? How do you know?
zendell wrote:
It really doesn't matter if they are indistinguishable from other autistics with possibly genetic causes.

I'm sure it does, and I'm sure it is distinguishable.
zendell wrote:
If these recovered children had the exact same symptoms as other autistics before treatment, then it's impossible to differentiate them.

How can you tell? No two aspies are the same or have the same symptoms.
zendell wrote:
One study found that 58% diagnosed with ASDs test positive for Mycoplasma fermentans. If it is proven to cause autism, would that mean that 58% of people diagnosed with autism were misdiagnosed? If so, then odds are that you aren't autistic.

I wouldn't be surprised if 70% of those diagnosed with Asperger's were misdiagnosed.

zendell wrote:
The study only looked at one ingredient, thimerosal, in vaccines. There are plenty of other things in vaccines that could possible cause autism.

They studied the correlation and said it was not statistically significant enough, or that it was likely for a hidden variable. Correlation does not imply causation.
It has nothing to do with a specific ingredient.

In the end, we both are about on equal terms. Neither of us can prove anything.



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05 Feb 2008, 4:51 pm

Reyairia wrote:
I wouldn't be surprised if 70% of those diagnosed with Asperger's were misdiagnosed.


If these treatments are helping the 70% who are misdiagnosed with AS, then I think they should be tried. When I say that people can recover from autism, I mean that people diagnosed with autism based on their symptoms can recover and NOT that people who truly have autism can recover. I don't think most pediatricians know as much as they should about autism. The treatments are actually based on testing people with autistic symptoms, regardless of diagnosis. Some NTs have symptoms that can be treated with these treatments also.

Reyairia wrote:
In the end, we both are about on equal terms. Neither of us can prove anything.


Well yea. If we could prove anything, then there wouldn't be a controversy and everyone would agree.



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05 Feb 2008, 5:03 pm

zendell wrote:
Tensho wrote:
What if there was something NTs can take to make them more accepting of people with autism.. would that be a cure?


If people were NT due to mercury poisoning or infectious diseases and treating them made them autistic, then that would be a cure.


The same for autistics.. there is nothing to be cured.



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05 Feb 2008, 5:07 pm

Tensho wrote:
zendell wrote:
Tensho wrote:
What if there was something NTs can take to make them more accepting of people with autism.. would that be a cure?


If people were NT due to mercury poisoning or infectious diseases and treating them made them autistic, then that would be a cure.


The same for autistics.. there is nothing to be cured.


If an autistic person does chelation (to get rid of mercury) and takes anti-virals and anti-fungals (to cure infectious diseases) and the treatment makes the kid NT, would you have a problem with it?



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05 Feb 2008, 5:19 pm

zendell wrote:
Age1600 wrote:
[i]I usually never say anything about this, because i dont like arguing or stating my opinion after getting attacked one time for it...


I like reading your opinions even if some of them don't agree with mine. :) I believe we should accept everyone for who they are, autistic or not. The reason I use biomedical treatments is to help me be even better than I am now. What I'm trying to get people to understand is that the causes of autism symptoms are NOT exclusive to autism. The treatments are helping NTs also. The link to http://www.autismrecoveryvideos.org/ mentions in the first paragraph, "Adults can recover from life-long afflictions such as eczema and fibromyalgia." The tests and treatments used for autistics are also used to treat NTs with FM and CFS. While researching CFS since I have that also, I read that a representative of the Great Plains Laboratory (used by DAN! doctors and also used by alternative doctors who treat chronic "incurable" illnesses) stated that they find similar markers in autism and CFS, FM and multiple sclerosis. What they're finding is evidence of mercury, fungal infections, bacterial infections, nutrient deficiencies, fatty acid deficiencies, immune system dysfunction, and other problems and alternative doctors are using many of the same treatments to treat their patients with CFS that DAN! doctors are using to treat autism, based on the same abnormalities found in these tests. If someone with autism and someone with CFS get tested and the same abnormalities are found, why should the person with CFS be treated but the person with autism be denied treatment?

Nothing works 100% for any condition. Anti-depressant studies show they only help about 1 in 4 with depression. It may frustrate the depressed person when the treatment fails, but does that mean no one should be given anti-depressants and depression shouldn't be treated? Many people with chronic illnesses try everything and nothing works and become hopeless and depressed but why should those it may help not be given a chance to recover?

"i notice the child improved a lot, but was still clearly autistic!" Same thing happens with CFS and other medical conditions. Someone may improve 80% but still have a few symptoms. Why should autism be any different? An 80% improvement is better than nothing. Treating autism with biomedical treatments isn't any different than special education, counseling, or other treatments in that they all aim to reduce autistic symptoms to make the person appear more normal.


Yea you can also can get that same improvement with typical therapies, vitamins, pecs/sign, and other things. Using a person as a guinea pig to find out if this works or not, is not my way of trying to improve life in my own opinion. What bothers me the most though is how so many people are saying do this, do that, but are not saying that it will defintely work, or how much its going to cost money wise or not saying the affects it might have on the child psychologically and emotionally! Thats what really gets me upset. By the way I'm glad your getting better with biomeds, thats very good to hear! And thanks for saying you like to hear my opinions, i really don't bother anymore sharing my opinions, because it seems to make matters worse.


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05 Feb 2008, 5:42 pm

Age1600 wrote:
Yea you can also can get that same improvement with typical therapies, vitamins, pecs/sign, and other things. Using a person as a guinea pig to find out if this works or not, is not my way of trying to improve life in my own opinion. What bothers me the most though is how so many people are saying do this, do that, but are not saying that it will defintely work, or how much its going to cost money wise or not saying the affects it might have on the child psychologically and emotionally! Thats what really gets me upset. By the way I'm glad your getting better with biomeds, thats very good to hear! And thanks for saying you like to hear my opinions, i really don't bother anymore sharing my opinions, because it seems to make matters worse.


I think what is really needed is more research and scientific studies so they can determine what works, how often it works, possible side-effects, the best ways to test for it, best treatments, costs, etc. and then people should be given all the facts to decide for themselves. I agree with you that people shouldn't say it will definitely work, it cures everyone, and also all the benefits and risks should be examined. Most of the biomeds are vitamins and minerals (such as vit A, vit C, vit B6, zinc) so if you take vitamins you are already doing biomed treatments. If you don't like the others, thats fine.

One thing I think most people don't know is that alternative doctors aren't too interested in conventional diagnoses. If someone has speech problems, they look for causes and treat that regardless of whether the person is AS or NT. An NT who is one symptom short of an AS diagnosis wouldn't be treated much different than someone who's AS.



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05 Feb 2008, 5:44 pm

zendell wrote:
If an autistic person does chelation (to get rid of mercury) and takes anti-virals and anti-fungals (to cure infectious diseases) and the treatment makes the kid NT, would you have a problem with it?


I do have a problem with it. But I am sure there is some cases where I would have no problem with it.

It wouldnt make the kid NT because the kid is always going to be autistic. We can change behaviour by treating people with various methods but this is artificial and they are still autistic.