Page 2 of 4 [ 53 posts ]  Go to page Previous  1, 2, 3, 4  Next

ToadOfSteel
Veteran
Veteran

User avatar

Joined: 23 Sep 2007
Age: 37
Gender: Male
Posts: 6,157
Location: New Jersey

05 Feb 2008, 9:11 pm

Odin wrote:
The problem with a "cure" for autism is that it is likely that the existance of such a cure would likely result into a lot of autistics being indirectly coerced into taking the "cure" because society will refuse to accommodate and accept neurodiversity if there is a way to eliminate the differences with a "cure." Many autistics may lose government financial, housing, and other kinds of assistance because society will think that such things aren't needed because we cane be "cured."


At least someone else here understands this... NT's can still exterminate us and say that "we were willing" to take the "cure"...



ebec11
Veteran
Veteran

User avatar

Joined: 17 Jan 2008
Age: 32
Gender: Female
Posts: 6,288
Location: Ottawa, Ontario

05 Feb 2008, 9:47 pm

Age1600 wrote:
YEa i'm afraid of that as well, but i dont care what cures they get out there, i'm not changing who i am, i'll fight it all way to congress if i had to, this is me, this is how i was born, i fought to be here today, and i'm going to continue fighting until i die!
Me either! I'm who I am because (not despite) my disorder, and I wouldn't "cure" it for the world!



whatamess
Veteran
Veteran

User avatar

Joined: 27 Aug 2007
Age: 56
Gender: Female
Posts: 1,284

05 Feb 2008, 10:14 pm

I know this is all seems to be in the very FAR future, however, if we look at history, we can see how government and corporations take control of each of us little by little...perfect example, smoking...obesity...

First insurance companies began charging more for benefits for smokers...all the non-smokers were in favor because of course, it didn't affect them...their claim was that "they" (non-smokers) paid more money for insurance because of smokers...then, it started with obesity...to this extent, my company started this "wellness credits" where if you did X, Y or Z, you got a discount on our insurance...after a couple of years of people praising it, now the company has decided to NOT offer ANY insurance to you UNLESS you have done X, Y or Z...wellness credits...Today we hear of the thousands of dollars that children with autism costs the school districts, the insurance companies, etc...and you don't think that at some point, just like the smokers, just like the obese, adults with autism and/or children with autism won't be forced into doing X, Y or Z or expect to pay more for insurance? or lose it all together unless you take X, Y or Z?

I think that the time will come...just like it came for smokers...just like it's here for obese people...the next fad will be autism...let's make sure we see it coming...and put a stop to it before it's here...



pakled
Veteran
Veteran

User avatar

Joined: 12 Nov 2007
Age: 67
Gender: Male
Posts: 7,015

05 Feb 2008, 10:29 pm

I think there's probably a lot more 'cures' that drug companies would be working on, like cancer, diabetes, heart problems, etc. Sad fact is, AS might be an 'orphan' drug cure, if it came to that. Lest than 1% of the population has it, so where's the money in it (sorry, I work at a drug Co, and that's how they think. If you knew how expensive it was to even find a drug...well, another time..;)

And it sounds like they want a prenatal cure? If they did it for us, we wouldn't die, we'd act differently, but I think there's something more to my psyche that just the symptoms that make up AS. It's part of what I am, but it doesn't completely define me.



zendell
Veteran
Veteran

User avatar

Joined: 10 Nov 2007
Age: 34
Gender: Female
Posts: 1,174
Location: Austin, TX

06 Feb 2008, 12:20 am

Odin wrote:
The problem with a "cure" for autism is that it is likely that the existance of such a cure would likely result into a lot of autistics being indirectly coerced into taking the "cure" because society will refuse to accommodate and accept neurodiversity if there is a way to eliminate the differences with a "cure." Many autistics may lose government financial, housing, and other kinds of assistance because society will think that such things aren't needed because we cane be "cured."


That's what would probably happen.



Danielismyname
Veteran
Veteran

User avatar

Joined: 2 Apr 2007
Age: 43
Gender: Male
Posts: 8,565

06 Feb 2008, 12:38 am

Throw me in with the solitary group that doesn't care if there's autistic people in the future or not; you're all people to me, and for the most part, people suck. Besides, I'm going to be dead soon enough, and when I'm dead, I guarantee I won't care if there are autistic people alive or not (kinda like how I don't care now).



elan_i
Blue Jay
Blue Jay

User avatar

Joined: 20 Jan 2008
Gender: Male
Posts: 84

06 Feb 2008, 12:51 am

Age1600 wrote:
YEa i'm afraid of that as well, but i dont care what cures they get out there, i'm not changing who i am, i'll fight it all way to congress if i had to, this is me, this is how i was born, i fought to be here today, and i'm going to continue fighting until i die!


Anti-cure Cowardice?
http://www.wrongplanet.net/postt54644.html



aaronrey
Toucan
Toucan

User avatar

Joined: 30 Jul 2007
Age: 44
Gender: Male
Posts: 290

06 Feb 2008, 1:55 am

more like Pro-cure cowardice.

the reason normal people want to cure us is because they're afraid of us.



Dishman
Blue Jay
Blue Jay

User avatar

Joined: 23 Jan 2008
Age: 55
Gender: Male
Posts: 81
Location: Seattle area

06 Feb 2008, 2:09 am

elan_i, you keep calling it cowardice.

How's this, the only kind of doctor I'll permit to cure me is one specializing in Forensics.

Yes, some of the possibilities I see scare me... like mandatory health insurance, and mandatory medical testing... add in a cost difference for Asperger's, and that can be some pretty hefty pressure to get "cured" as mandated by The State.

I won't be turned into a mindless drone while I still have the means to resist.



Last edited by Dishman on 06 Feb 2008, 2:17 am, edited 1 time in total.

Heron
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 3 Jan 2008
Age: 67
Gender: Male
Posts: 62
Location: Kent

06 Feb 2008, 2:10 am

Autism will never be wiped out, it is the most succesful variant of humanity going. We're just an overcooked version of the accelerated intelligence that differentiates humans from all other Earth species. I'm pretty sure enough people realise the benificial contribution of Autism to the community as a whole (so much genius).

Of course the very subjective voice of average people will be heard, "Cure the disease now", or it might just be a few noisy people with to much soap in there heads :lol: .



ToadOfSteel
Veteran
Veteran

User avatar

Joined: 23 Sep 2007
Age: 37
Gender: Male
Posts: 6,157
Location: New Jersey

06 Feb 2008, 2:12 am

Heron wrote:
Autism will never be wiped out, it is the most succesful variant of humanity going. We're just an overcooked version of the accelerated intelligence that differentiates humans from all other Earth species. I'm pretty sure enough people realise the benificial contribution of Autism to the community as a whole (so much genius).


Never underestimate the power of stupid people in large groups...



Heron
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 3 Jan 2008
Age: 67
Gender: Male
Posts: 62
Location: Kent

06 Feb 2008, 2:25 am

[
Never underestimate the power of stupid people in large groups...[/quote]

With their rousing chant of "Two four six eight what do we appreciate- STUPIDITY-smash those IQs down" :lol: .



Kirov
Blue Jay
Blue Jay

User avatar

Joined: 4 Feb 2008
Age: 38
Gender: Male
Posts: 81
Location: Rzhev

06 Feb 2008, 2:45 am

We could start an enclave :) I know there's missile silos in North Dakota we could huddle in as humanity destroys itself.

But seriously... they can't force you to accept a cure if you don't want it, unless some totalitarian regime takes over... and looking at the US, I'm beginning to pack my military rations....

-Kir



Dishman
Blue Jay
Blue Jay

User avatar

Joined: 23 Jan 2008
Age: 55
Gender: Male
Posts: 81
Location: Seattle area

06 Feb 2008, 3:21 am

Kirov wrote:
We could start an enclave :) I know there's missile silos in North Dakota we could huddle in as humanity destroys itself.

But seriously... they can't force you to accept a cure if you don't want it, unless some totalitarian regime takes over... and looking at the US, I'm beginning to pack my military rations....

-Kir


Tell that to the victims of Walter Freeman.

When the only tool you have is an icepick, every problem looks like an eyelid.



Kirov
Blue Jay
Blue Jay

User avatar

Joined: 4 Feb 2008
Age: 38
Gender: Male
Posts: 81
Location: Rzhev

06 Feb 2008, 3:37 am

Dishman wrote:
Kirov wrote:
We could start an enclave :) I know there's missile silos in North Dakota we could huddle in as humanity destroys itself.

But seriously... they can't force you to accept a cure if you don't want it, unless some totalitarian regime takes over... and looking at the US, I'm beginning to pack my military rations....

-Kir


Tell that to the victims of Walter Freeman.

When the only tool you have is an icepick, every problem looks like an eyelid.


When was this? And is it still practiced? I want to know.



Inventor
Veteran
Veteran

User avatar

Joined: 15 Feb 2007
Gender: Male
Posts: 6,014
Location: New Orleans

06 Feb 2008, 4:54 am

The main danger we face is from a small group of paracites, with Cure Autism, they are Trolling for Dollars, for there is a lot of money involved.

Social Ethics, a lack of Science, does not stop fund raising that has no ethics other then personal gain, and could not understand the Science involved.

35 Billion Dollars a year in the US, they can understand, so we get the, anyone who is not for a cure is a coward, threads from one person. They ignore the Science questions, the Ethical, and stick to name calling, and repeating themselves over and over. The love of money is the root of all evil.

Doing some reading on Wiki, suprised? They said that the Internet and keyboard were to Autistics like the hearing aid to the hearing impaired. That for the first time we can communicate, and the non-verbal are being heard. It was also pointed out that the hearing impaired upon hearing, cannot make it out, for they never developed audio language, in the brain.

They do learn to hear, and we are learning to communicate. I think a new laptop every few years is a medical need, equal to a hearing aid, or corrected vision.

We are not all the same, and that should be respected, so I think we need our own fund raising organization, "Laptops for Autistics", with a choice of Apple or Dell, and that with Vista, or XP Pro. I am sure we can depend on both companies to sell in bulk as a medical needs device, with annual sales of several thousand units.

Michal Dell is well aware of the rise of Autism in Round Rock, Texas. The connection with technology is obvious in Silicon Valley, Redmond, and we would make the best group of Beta Testers they could reach. There is something in it for both groups.

Many of us have special needs bodies, but the minds work well, in some ranges, and without the distractions of leaving home, with focus, perseverance, do become better than most computer users.

For one, all of us with new laptops and wireless broadband, would have an awesome power of distributed computing, that could be used for approved research.

As expressed, the chances of a medical solution are doubtful at best, resources should be applied to improving function in autistic lives, the greatest single event so far was the Private launch of Wrong Planet by Alex. He has done more for the Autistic Community than all of medicine, Psychology, and Curebie feeding frenzies.

Medicine and Psychology has had nothing to offer us. That does not stop Quacks, Curebies, from preying upon parents. Our house troll calls anyone not blindly pro cure cowards, for we are a threat to the fund raising machine, and to trolls. Even the troll admits it is willingness for an imaginary cure we are afraid of, not that it has been seen as impossible by some very good scientific minds.

I see them as the Leech/Troll Factor, looking for something to feed off of, and Autism Speaks consumes $10,000,000 a year in sending us trolls, and other self serving actions.

They spend another $10,000,000 a year trying to exterminate us, but the money goes to Research, where they have no say so, and Research in Pure Science, Peer Approved, and Reviewed, adds to the Book of Knowledge, not to the eradication of Autistic Researchers.

The computer and Internet is the most effective treatment known. Wrong Planet at three and a half years, the biggest change in our lives, and the lives of parents, loved ones, where communication reaches from six to eighty, and problem solving, adapting, understanding, acceptance, at least among ourselves, has done wonders for me.

I do business on the Internet, where I do not have social problems. This filter works. UbbyUbbyUbby, Aussieboy, eddiedog8, are growing up in a worldwide community, where they are loved by thousands.

Parents talk to parents, and figure out what behavior is AS, and what is Kid. Our NT's are fully supportive, and our parents of children on the spectrum are discovering themselves, and their families, in us. I discovered all this at 60, it was a bit of a shock.

The best treatments are coming out, Martial Arts, it works. We who just lived through it developed ways of coping, and those are coming out. The young find support and communication from a broad selection of points of view. Parents speak of what works, and what does not.

Everything that works seems to be simple accomidation, for most. The best of services have been bought and paid for, so we are not making it up, nothing imaginary, this is based on the best, Tony Attwood said, Temple wrote, and scams are exposed.

We are a classic self help community. One way or another, we are all on the front line of this fight.

The first goal is the support of Wrong Planet, recently people have been contributing, and Alex should not have to bear the cost of doing the most important thing in our lives. 10,000 have joined in the last year, it is something to keep up with.

We are a talented lot, with a depth of computer knowledge, and some first class Science Researchers, LabPet and Sedaka, come to mind, perhaps others, who are Researching Autism. I think we should fund our own research. The way it works is a small seed money Grant brings in more matching funds from other sources, so a grant for the study of improved communication by Internet by Autistics, will bring in more funds, which will produce Scientific Studies that say we should all get a new laptop.

They are Researchers I trust, who can direct funds to meet our goals, and could use the power of all of our laptops forming a SuperComputer for approved Science. Having access to Grant Money and a supercomputer would help them reach leading positions in their fields.

We need strong science to deal with the computer companies. We have it, and strong technology.

This world of computers is new, no one can predict where it is going, but we are the leading edge, a strong comsumer group, and both hardware and software are us, or their kids are, so enlightened self interest.

We can take Science, those are our people, and Grant Money is always hard to find. We can take Technology, for with the economic downturn, computer sales are going to slump, for a while, and we can keep up employment and production. There is a deal for Governments, Schools, Business, that as a group we could get. A Computer Buying Club could get us member discounts. I am still working on full funding for those with a Dx, but all lurkers and hangers on can get in on the deal.

All we have to do is tell Dell or Apple, I am from Wrong Planet, and after they have heard that a thousand times, we become a group. It is using the power of what we do anyhow.

Many have said, Wrong Planet is the only answer they have found, 10,000 joined in the last year, and perhaps twice that in the next. We do have the power to change the world.