Evidence on youtube that a GFCF diet reduces Aspie symptoms?

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srriv345
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13 Mar 2008, 4:42 pm

Oh please. You don't have to be able to be on some special diet to have some degree of sensitivity to those things.



whatamess
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13 Mar 2008, 5:50 pm

I can honestly say that when my son is on this GFCF diet, he improves GREATLY...With that said, because my parents and so many out there are so skeptical of it, it's very hard unless I do not allow him to go out to keep this diet all the time.

I do not think it works for all, but I also don't agree with the placebo effect. We saw some people a couple of weeks after we started my son on the diet who asked us what we were doing because they saw so much improvement in our son. These were people we used to see every week and then stopped seeing for a couple of months...after just a couple of weeks, our son played with us for the first time in his lfie vs. alone...at the age of 4 1/2...his tantrums were reduced dramatically...

Again, we hope to begin a more strict diet soon, but it's very expensive where we live to keep up with this diet...and of course, it'll be hard being around others who do not agree with it, although they also saw improvements...they just did not want to attribute them to the diet.



MR_BOGAN
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14 Mar 2008, 6:06 am

I have got over poor health in the last few years by going on a gluten free diet. I have always wondered if it has made me a bit autistic, well that is how I ended up here because I read that gluten intolerance is linked with autism.

Anyway the gluten destroyed my small intestines making my body unable to get the nutrients it needed and thus gave me health problems. So I suspect it is linked to autism this way.

If you don't have any problems with eating gluten, I can't see how it would give you autism.



ouinon
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14 Mar 2008, 10:31 am

One thing that i notice when excluding is how much easier it is to look people in the eyes.

I know i have gluten intolerance; my guts get more and more painful the more wheat i eat.

Gluten and casein are "food opioids", which if undigested, because of metabolic deficiencies in certain enzymes for example, can go straight to the brain. Effects have been clinically detected in rats, in which gluten was observed to suppress appetite-inhibitors for instance, as certain opiates do, so that want to eat....just think about the USA/american population... :wink:

When eating wheat I definitely experience this classic side-effect of food intolerance, which is of being addicted to it at same time. Because the buzz helps overcome the "downer", or because the food literally encourages appetite. When I eat wheat and other glutenous cereals i experience cravings to eat and eat, fresh crusty bread, biscuits and pizzas etc. I find it difficult to stop.

I too am much MUCH calmer when excluding gluten.

The first time i ever completely cut out wheat, now 16 years ago, ( though i've stopped and started many times since then; it's as difficult as coming off a drug), I suddenly "noticed" that the world was actually outside of my head. It was like coming down off a lifetime trip.

I started a thread 6 months ago on the subject in Members Only. It's on the first page: " Gluten-Free Diet; Diary and Support Thread"! It's at:

http://www.wrongplanet.net/postt45945.html

8)



LostInEmulation
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14 Mar 2008, 11:23 am

@ouinon: you should make a test where you take pills every day for a month. Half the time a nocebo, half the time it would contain some gluten. Someone would give you the correct pills and you as well as other around you would have to guess when you are using the nocebo (it is not taken for a positive effect, so it is no placebo). I can not believe that the guesses would be more than randomly correct.


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ouinon
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14 Mar 2008, 11:35 am

LostInEmulation wrote:
@ouinon: you should make a test where you take pills every day for a month.
I should? :? :roll: :lol:

And how do you propose taking into account elimination time for the gluten leaving the body, between ( a minimum), of five days for what is in the intestines, and 26 weeks for the last vestiges stored in the liver/kidneys, according to Dr Karl Reichelt's research on the subject, in connection with links between gluten and schizophrenia in particular, but side studies on AS symptoms.

Quote:
Half the time a nocebo, half the time it would contain some gluten. Someone would give you the correct pills and you as well as other around you would have to guess when you are using the nocebo (it is not taken for a positive effect, so it is no placebo). I can not believe that the guesses would be more than randomly correct.
Well, you would be wrong. As I know to my cost having experienced the unanticipated negative results of consuming gluten without being aware of it. This used to really knock me for six, until i knew more about what contained gluten. :P :D


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ouinon
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15 Mar 2008, 12:29 am

I just remembered another definite result of gluten exclusion, which is so clear a consequence that after 6 months gluten-free I had forgotten it; freedom from depression.

I still get sad, miserable, discouraged, confused, etc, BUT "the black dog", as Churchill called it, that profound paralysing desperation/loss of sensation, no longer calls. It is probably the greatest benefit of excluding.

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15 Mar 2008, 7:57 am

I prefer to stick to my see-food diet. :O)


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MR_BOGAN
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15 Mar 2008, 4:39 pm

ouinon wrote:
I just remembered another definite result of gluten exclusion, which is so clear a consequence that after 6 months gluten-free I had forgotten it; freedom from depression.

I still get sad, miserable, discouraged, confused, etc, BUT "the black dog", as Churchill called it, that profound paralysing desperation/loss of sensation, no longer calls. It is probably the greatest benefit of excluding.

8)


I noticed a similiar sort of thing, after about a year I started to notice the world around me a bit more, and life has become more simplier. Also I'm just a happier person, don't have to deal with the massive lows I once got. Still get down a bit, but not as bad.

There were probably four days, this is really strange, that my brain was going a hundred miles a hour, like I was high on something but also strangely calm to. When I was in this state I found I could just do anything, I wonder parts of my brain were being unlocked. I have never felt that again.



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15 Mar 2008, 4:55 pm

ouinon wrote:


Gluten and casein are "food opioids"

Four different studies have proven this to be bullcrap.


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15 Mar 2008, 5:18 pm

Maybe any changes on this diet is not a result of what you're NOT eating, but a result of what you are eating instead?

For example, if someone who drank milk and ate bread switched to soy milk and soy flour and soy-twinkies or whatever, maybe the soy causes them to act different. Soy is known to mimic the hormone estrogen, and is prescribed to menopausal women to keep them "normal".

Or maybe people who eat less things with wheat flour and milk in them also end up eating less little debbies, less cookies, less cake, less chocolate, less ice cream, ect. Because they eat less of these foods that contain simple sugars, their blood sugar stays more stable and they don't swing up and down so often.

I'm not saying it doesn't work or it does work, I just don't know if you can say correlation is causation without actually finding out why.



ouinon
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15 Mar 2008, 5:28 pm

beau99 wrote:
ouinon wrote:
Gluten and casein are "food opioids"
Four different studies have proven this to be bullcrap.

Look up 'food opioids" and "opioid peptides" on the net, and check out http://en.wikipedia.org/wiki/Opioid_peptide , for a general easy-to-read overview of the subject,
Quote:
Casomorphin (from milk), Glutenexomorphin (from gluten), and Gliadorphin/gluteomorphin ( from gluten).
and then you could try pulling up:

"Prolactin & growth hormone response to intracerebroventricular administration of the food opioid peptide gluten exomorphin B5 in rats." from the Institu di Patalogica Medica, OR
"The heptapeptide casomorphin, a casein fragment of cows milk, accelerated the learning of a food procuring habit. .. On the other hand [ it] delayed learning of an active avoidance response involving painful stimulation", from The Russian Academy of Sciences. Institute of Molecular genetics.

And Dr Karl Reichelt's work on the effect of food opioid consumption in infancy on construction of white matter in the brain.

Amongst many other dozens of studies.

Which four studies are you referring to which have proved this to be
beau wrote:
"bullcrap"
?

:arrow:
Anyone interested in following the diet, or finding out more about it, try at:
http://www.model-aba-program.com/GFCFDIET.htm which i just found and looks pretty good, rational, reasonable, balanced, and non-fanatical, so i'm going to post it on my GFCF thread too. :D

8)



2ukenkerl
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15 Mar 2008, 10:03 pm

Mage wrote:
Maybe any changes on this diet is not a result of what you're NOT eating, but a result of what you are eating instead?

For example, if someone who drank milk and ate bread switched to soy milk and soy flour and soy-twinkies or whatever, maybe the soy causes them to act different. Soy is known to mimic the hormone estrogen, and is prescribed to menopausal women to keep them "normal".

Or maybe people who eat less things with wheat flour and milk in them also end up eating less little debbies, less cookies, less cake, less chocolate, less ice cream, ect. Because they eat less of these foods that contain simple sugars, their blood sugar stays more stable and they don't swing up and down so often.

I'm not saying it doesn't work or it does work, I just don't know if you can say correlation is causation without actually finding out why.


When I tried it, I DIDN'T replace anything! I had chocolate, and took the same supplements, but got rid of bread and some other things that contained wheat or gluten. I didn't get rid of milk. soy doesn't mimic estrogen THAT much, and a lot of extra estrogen would be as obvious to me as testosterone would be to the average woman. I only managed to stay on it for about 3-4 months, but I DID feel more alert, less stressed, more awake, smarter, etc... Because of the reduction in chocolate(because a lot of those things had gluten), and the eradication of bread, etc... I lost 25 pounds. I eventually broke my gluten fast because I had a pizza when others needed me to babysit them. 8-(

I REALLY want to try to go gluten free again though.

beau99,

BTW I have read some which speak of them not having opiates! They DON'T speak of OPIOIDS! Comparing an opioid to an opiate is like comparing a sterol to a steroid! I think they should have called steroids sterols, and vice/versa. ANYWAY, oid means LIKE! Opioids are NOT opiates! They merely ACT like them! Just like steroids were found to act like the sterols they found earlier.



ouinon
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16 Mar 2008, 3:56 am

Just found out that I can post a link to a paper that Dr. Karl Reichelt gave at last year's AWARES/Autism conference, on possible links between autism in people with gluten intolerance ( enzyme deficiency) and/or leaky gut syndrome, and food opioid peptide consumption, and which has super bibliography too of studies done on the subject:

http://www.awares.org/conferences/show_ ... ll_paper=1

Happy reading!

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23 Mar 2008, 9:08 am

I can't click on the link. :(


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Susie123
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25 Aug 2009, 7:35 am

LeKiwi wrote:
I've always instinctively avoided gluten and caseine containing products, because they don't make me feel very good. Simple as that. Gluten is one of the most difficult to digest substances there is, and it's rife in the food chain. You don't have to be coeliac to have issues with it.

If it works for these guys then why should anyone have an issue with it? It's like you taking up issue with me having an egg allergy, because my saying that egg makes me ill is saying all people on the spectrum should avoid eating egg... we're all different, and if it works for a number of autistics then that's brilliant and there shouldn't be any reason why others can't try and see if they have similar success. Why does it automatically have to be a placebo effect, just because it may or may not work for you?

Don't forget, autism is a spectrum and a syndrome - there is no definite cause or reason, it's simply a cluster of symptoms displayed in a large group of people.


Brilliantly said!