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Danielismyname
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27 Aug 2008, 1:45 am

My mother scored me as 146 at 3, just FYI and all (though she admits that it's probably low in reality compared to how I really was. Taken with my symptoms now is just...crazy "bad").

Sometimes, the repetitive behaviours are hard to deduce when it's only in one location; she very well may have strong routines and rituals at home, amongst other things.

That's interesting how they label everyone with "autism" there; would that go to the statistics on the prevalence of autism?

My mother scored 16 for herself at 4, so LostInSpace, your NVLD seems to push you near to "mild PDD", which would be the start of Asperger's, and NVLD is sometimes thought of as "near-Asperger's".



earthmonkey
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27 Aug 2008, 1:58 am

On the first one it said likely to be autistic.

On the childbrain one, well, the first time I remember taking this, I didn't see that it had a whole page explaining what constitutes mild, moderate, etc., but I didn't see that and filled it in and got about 100-150. But when I followed it very closely just now, looking at all the explanations, I got 202 (severe PDD) answering as myself currently.

For me I don't think I particularly qualify as severe - I am disabled and have a lot of traits, but as for what kind of assistance and such I need, to go to college and live on my own, is relatively little compared to someone severely disabled, even though to a non-disabled peer it may seem quite significant.

I think it's mainly because of all the questions in the third section about stimming and use of objects; I answered most of the others as moderate, except for things like on eye contact and repetitive language. The only one that was 'resolved' was because when I was a baby and a young child, before age 10, I had VERY specific restrictions about what foods to eat (including a phase I'd never eat anything green, followed by a phase where I'd eat only green things), but nowadays I can eat almost anything.


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Danielismyname
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27 Aug 2008, 2:43 am

earthmonkey,

I'm assuming that's why they have different tests to rate severity based on "realistic" means, like adaptive functioning tests. They're more likely to pick up how "disabled" or "severe" someone is based on outcomes compared to a controlled "normal" group. Some people can look stereotypically autistic, but they may be able to work and live by themselves, whereas someone can appear "normal" at first glance as their symptoms aren't as pronounced, and be unable to do these things.

These are just pure symptom based, and as children for the most part too.



earthmonkey
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27 Aug 2008, 3:50 am

Yeah, I am sooooo glad I found this site. I'm getting lists of instructions for things like laundry, put in sheet protectors, and I have a load of alarms and the alphasmart too for when speech becomes unavailable.

I am also making cards for the various steps of activities, to help prompt me (I generally need to be cued a lot on the different parts of the tasks like getting ready in the morning, or it will take hours and hours longer.) Also lists will be helpful so that I make sure I don't do stuff like going outside without shoes, or waking up, brushing teeth, and THEN eating breakfast.

One thing I do, when I need to get something done and I am prone to get distracted stimming on something like a wall, is I'll have an alarm set for the beginning of the activity, and I keep pushing snooze, so every five minutes the alarm alerts me and cues me to focus on what I'm supposed to be doing.


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Sora
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27 Aug 2008, 12:36 pm

Danielismyname wrote:
Sora,

You don't need a speech delay for Autism; if you had adequate speech, but you couldn't actually start/keep a conversation going, you meet Autism over Asperger's with the DSM-IV-TR. The same if you lacked imaginative play.


All-right. That's correct then about starting/making conversations. Thanks for clearing that up! Until now I didn't know I actually met the DSM criteria if that's how they ought to be laid out in simpler langauge.


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