Page 2 of 3 [ 35 posts ]  Go to page Previous  1, 2, 3  Next

Griff7272
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 16 Aug 2007
Age: 46
Gender: Male
Posts: 32

04 Sep 2008, 8:36 am

This guy's "Delta Sleep System" used to knock me out at night.

Delta Sleep System

I used to get so deep asleep I didn't hear the music anymore. My wife doesn't like it, so I haven't used it in a long time, but it did work for me. Throughout my life I have usually always had some sort of fan or "noise maker" going at night. Currently we have a window unit air conditioner that provides the sound.

I'm very sensitive to how to people talk, so to get through a day at work, I keep headphones on with Pink Noise playing. It's white noise that has been engineered to cover a broader range. It helps me a lot just to cope. The earlier suggestion with the white noise, I think, is a very good one since it so similar to what I do everyday.



ShawnWilliam
Veteran
Veteran

User avatar

Joined: 26 Aug 2008
Age: 38
Gender: Male
Posts: 1,462

04 Sep 2008, 8:41 am

Come to think of it that IS why I bought a fish tank.. 8O I like the sound of trickling water. . plus I got a little sharky in there to take care of



thedarkpassenger
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 29 Aug 2008
Age: 44
Gender: Male
Posts: 47

04 Sep 2008, 8:57 am

Age1600 wrote:
if i headbang anymore serious like i did tonight i might knock myself out for good and never wake up[/b]


Maybe you should headbang some more, so I don't have to read your long ass posts :P



KingdomOfRats
Veteran
Veteran

User avatar

Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK

04 Sep 2008, 9:47 am

thedarkpassenger wrote:
Age1600 wrote:
if i headbang anymore serious like i did tonight i might knock myself out for good and never wake up[/b]


Maybe you should headbang some more, so I don't have to read your long ass posts :P

maybe should avoid looking at 'long ass posts',so Age doesnt have to read short ass pointless posts in her thread.


_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!


Erminea
Veteran
Veteran

User avatar

Joined: 17 Jul 2008
Age: 54
Gender: Male
Posts: 9,083
Location: Holland

04 Sep 2008, 10:03 am

Hi Age1600 (you seem a lot younger),

Pof, I read your post with tears in my eyes
(yeah, I'm a highly sensitive high-functioning fool, I know, shoot me) and thinking how can help her a little.

KingdomOfRats wrote; 'there are some meds that are said to help with the sensory side and hyperacusis-vitamin B6 with magnesium'.

Good point and I like to add ZINC and fish-oil, all supplements that will help you a little. I, for instance, take Zinc, Magnesium, B- and C-vitamines and fish-oil and trully notice a difference. I am better mooded(?), more relaxed, my eye-contact is a bit better and my thinking less compulsive and is more logic overall.

Suit yourself, of course. I hope you try it sometimes; it really helps me.

Whatever you do, I hope it goes well with you and please don't bang your head so hard, I can hear it all the way here.

Best of luck to you, Age
Ceesjan


_________________
Solum certum nihil esse certi, et
homine nihil miserius aut superbius.


Florian
Emu Egg
Emu Egg

User avatar

Joined: 3 Aug 2008
Age: 59
Gender: Male
Posts: 3
Location: Sweden

04 Sep 2008, 10:55 am

Erminea wrote:
Hi Age1600 (you seem a lot younger),

Pof, I read your post with tears in my eyes
(yeah, I'm a highly sensitive high-functioning fool, I know, shoot me) and thinking how can help her a little.

KingdomOfRats wrote; 'there are some meds that are said to help with the sensory side and hyperacusis-vitamin B6 with magnesium'.

Good point and I like to add ZINC and fish-oil, all supplements that will help you a little. I, for instance, take Zinc, Magnesium, B- and C-vitamines and fish-oil and trully notice a difference. I am better mooded(?), more relaxed, my eye-contact is a bit better and my thinking less compulsive and is more logic overall.

Suit yourself, of course. I hope you try it sometimes; it really helps me.

Whatever you do, I hope it goes well with you and please don't bang your head so hard, I can hear it all the way here.

Best of luck to you, Age
Ceesjan

I too have positive experiences with the supplements you and KingdomOfRats mentioned.

Also lacto-acidic cultures, like fresh youghurt, sauerkraut etc. These "friendly" bacterias balance the food-channel and makes it easier for the body to take up vitamins and minerals. They also boost your immune system. Kids who get a lot of these growing up don't develope allergies.

There's a controversy going on where some researchers and doctors claim they can get autistic kids to function again through lacto-acidic cultures and some of the supplements you guys mentioned.



Jellybean
Veteran
Veteran

User avatar

Joined: 20 Apr 2007
Age: 36
Gender: Female
Posts: 2,795
Location: Bedford UK

04 Sep 2008, 2:39 pm

I have hyperacusis and hate the sound of ANYTHING when I am trying to sleep. Lucky for me I can tolerate foam earplugs. Afraid I cant say anything serious so get a gun and shoot the crickets...

chiiirp chiiirp BANG ------


_________________
I have HFA, ADHD, OCD & Tourette syndrome. I love animals, especially my bunnies and hamster. I skate in a roller derby team (but I'll try not to bite ;) )


Aurore
Veteran
Veteran

User avatar

Joined: 6 Dec 2007
Age: 33
Gender: Female
Posts: 1,187
Location: Virginia Tech

04 Sep 2008, 2:41 pm

You can get really great ones online. If it's any comfort I'm having the exact same problem right now.


_________________
?Evil? No. Cursed?! No. COATED IN CHOCOLATE?! Perhaps. At one time. But NO LONGER.?


Age1600
Veteran
Veteran

User avatar

Joined: 22 Apr 2007
Age: 40
Gender: Female
Posts: 2,028
Location: New Jersey

04 Sep 2008, 3:00 pm

KingdomOfRats wrote:
Age,
it sounds like may have hyperacusis on top of the sensory stuff like am-it makes the sensory stuff a lot worse,it's one of the most common comorbids of autism and as.
have got a few ideas that am have used for self-but may have already tried these.


there are some meds that are said to help with the sensory side and hyperacusis-vitamin B6 with magnesium [which has also helped a lot of autistic traits in some autistics lessen],gp has got am on it, but havent noticed any difference so far in sensory extremes or autism,that may be worth trying as am remember were thinking of trying this a while back anyway-gp warned against high doses of it,so if are not taking it already,and would like to-avoid the higher doses,its supposed to damage something.

am think a sleeping tablet may help [not melatonin or herbal stuff],a strong one like amitriptiline,am have just been prescribed this one off the neuro.

what about saving up for proper sound proofing to be put in the bedroom [not that useless carpet and eggboxes crap],and triple glazing windows? sound proofing makes the room smaller,but it goes under the floor as well so if are upstairs-no noise from downstairs.
is there any organisations-or council that could fund it,like here? am almost had it done but was found a better residential instead.

for the severe SI,meds are worth it,try the long release versions to get less of the doped up rush from the normal release meds,and using more than one,it doesnt stop SSI but it helps.
get appointment with OT and ask for padding to be fitted to the walls where are especially headbanged the most.



Thanks, actually i did try those meds for my tourettes, i didnt really notice a difference in either tourettes or sensory though, but i ended up falling out of routine, and loosing that, i need to get back on vitamins tho soon so i can be healthy, but id idnt really look much into the sensory part being helped, i didnt notice any changes but maybe i might have missed them i dont know, im going to ask ppl later today if when i was on those vitamins was my sensory bad. Thanks so much for understanding also, i'm completely at a loss. I asked my mother if i could save up to make my room sound proof, she said absolutly no i just bought you new windows years ago, their still good, and that its her house and blah blah blah. So whatever im going to check into those machines the links first given, see whats going on there. Whats hyperacusis? i never heard of that?

As far as the sleeping, my neuro told me i dont have insomnia, hes testing me for some rare limb disorder that might wake me up in the night, i doubt thats it too, he said i just might have a weird sleepin pattern that lets me only sleep 3 hours and my body is fine with that, im like ughhhh but i want to sleep more, he said he cant give me any sleep aid drugs because any drug has serious affects on me, and sleep drugs can turn me into a 247 zombie, and might make me sleep too much which in the end if i have a 3 hour sleeping cycle could seriously hurt me.

As far as the headbanging, i would do anything to put foam around my walls to help me, but nobody will help me fund that, and my mother wont allow that either :(. She just told me today my brother complained because of the amount of banging was going on woke him up, she was like why were u banging that loud in the middle of the night, like holy crap ive been headbanging my whole life, half the time she didnt even know i walk around with black and blue huge bumped forehead and she just acts like its not there, idk, maybe shes just use to it idk lol. I swear my head has been through so much, its like its a huge truck and when i hit it, its like little bugs flying against it, like it doesnt bother it, i still somehow function, i dont know how, is that the same with you kingdomofrats?

Erminea wrote:
Hi Age1600 (you seem a lot younger),

Pof, I read your post with tears in my eyes
(yeah, I'm a highly sensitive high-functioning fool, I know, shoot me) and thinking how can help her a little.

KingdomOfRats wrote; 'there are some meds that are said to help with the sensory side and hyperacusis-vitamin B6 with magnesium'.

Good point and I like to add ZINC and fish-oil, all supplements that will help you a little. I, for instance, take Zinc, Magnesium, B- and C-vitamines and fish-oil and trully notice a difference. I am better mooded(?), more relaxed, my eye-contact is a bit better and my thinking less compulsive and is more logic overall.

Suit yourself, of course. I hope you try it sometimes; it really helps me.

Whatever you do, I hope it goes well with you and please don't bang your head so hard, I can hear it all the way here.

Best of luck to you, Age
Ceesjan


Hehe thanks for the help, if only things were much easier, this wouldnt be a problem haha

Jellybean wrote:
I have hyperacusis and hate the sound of ANYTHING when I am trying to sleep. Lucky for me I can tolerate foam earplugs. Afraid I cant say anything serious so get a gun and shoot the crickets...

chiiirp chiiirp BANG ------


haha yea the crickets are outside ughh i had my bf get up in the middle of the night to shake the tree stomp on the ground, ive done it plenty of times in the mid of the night, ugh i hate it, like chirp somewhere else lol. Your lucky earplugs help u, tried every type, my ears are so sensitive, and i end up gettin bad headaches too, ahh.

Aurore wrote:
You can get really great ones online. If it's any comfort I'm having the exact same problem right now.


great what? white noise machines wont help, will make things probably worse, but i might go buy one anyways or try what florian said and do the ipod thing, thats how desperate i am lately.



By the way thank you everybody for trying, and helping me, means a lot!


_________________
Being Normal Is Vastly Overrated :wall:


aintnowreck
Raven
Raven

User avatar

Joined: 25 Aug 2008
Age: 52
Gender: Male
Posts: 112
Location: Somewhere on the shortwave band

04 Sep 2008, 3:16 pm

Age,

Had you tried a radio on a white-noise frequency (AM)? It's cheap and it works for me.

The Ipod thing may work.... depending what you put on it.

There are "natural sounds" recordings available on the web for free that may do the trick, like the sound of the sea or waterfalls.

A cheap way to sound proof your room would be with empty egg crates, cheaper than foam and studios have been using this for decades (plus it will protect you from injury).

It may take a while until you get enough but you can ask around and people will save them for you. You just need a dozen to cover a wall.


_________________
There's nothing like pirate radio on shortwave. Long live free radio!

Music saved my life, musicians ruined it.


Age1600
Veteran
Veteran

User avatar

Joined: 22 Apr 2007
Age: 40
Gender: Female
Posts: 2,028
Location: New Jersey

04 Sep 2008, 3:44 pm

aintnowreck wrote:
Age,

Had you tried a radio on a white-noise frequency (AM)? It's cheap and it works for me.

The Ipod thing may work.... depending what you put on it.

There are "natural sounds" recordings available on the web for free that may do the trick, like the sound of the sea or waterfalls.

A cheap way to sound proof your room would be with empty egg crates, cheaper than foam and studios have been using this for decades (plus it will protect you from injury).

It may take a while until you get enough but you can ask around and people will save them for you. You just need a dozen to cover a wall.


empty egg crates? how does that work? and how would i line them up around my room? thats very interesting... could you explain if thats possible?


_________________
Being Normal Is Vastly Overrated :wall:


darkwhispersdale
Blue Jay
Blue Jay

User avatar

Joined: 29 Aug 2008
Age: 40
Gender: Female
Posts: 79

04 Sep 2008, 4:02 pm

A cheap CD player works mine drives me nuts it emits a low level continuous hum when its plugged in. None of my family can hear it other than me and they can't understand why I keep unplugging it before I go to bed.



Age1600
Veteran
Veteran

User avatar

Joined: 22 Apr 2007
Age: 40
Gender: Female
Posts: 2,028
Location: New Jersey

04 Sep 2008, 4:23 pm

darkwhispersdale wrote:
A cheap CD player works mine drives me nuts it emits a low level continuous hum when its plugged in. None of my family can hear it other than me and they can't understand why I keep unplugging it before I go to bed.


yea thats not loud enough for me unfortunely, i already use my fan and air conditioning, even sometimes keep my ipod on, ugh nothing works, i hate sonic hearing


_________________
Being Normal Is Vastly Overrated :wall:


KingdomOfRats
Veteran
Veteran

User avatar

Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK

04 Sep 2008, 6:13 pm

Age1600 wrote:
KingdomOfRats wrote:
Age,
it sounds like may have hyperacusis on top of the sensory stuff like am-it makes the sensory stuff a lot worse,it's one of the most common comorbids of autism and as.
have got a few ideas that am have used for self-but may have already tried these.


there are some meds that are said to help with the sensory side and hyperacusis-vitamin B6 with magnesium [which has also helped a lot of autistic traits in some autistics lessen],gp has got am on it, but havent noticed any difference so far in sensory extremes or autism,that may be worth trying as am remember were thinking of trying this a while back anyway-gp warned against high doses of it,so if are not taking it already,and would like to-avoid the higher doses,its supposed to damage something.

am think a sleeping tablet may help [not melatonin or herbal stuff],a strong one like amitriptiline,am have just been prescribed this one off the neuro.

what about saving up for proper sound proofing to be put in the bedroom [not that useless carpet and eggboxes crap],and triple glazing windows? sound proofing makes the room smaller,but it goes under the floor as well so if are upstairs-no noise from downstairs.
is there any organisations-or council that could fund it,like here? am almost had it done but was found a better residential instead.

for the severe SI,meds are worth it,try the long release versions to get less of the doped up rush from the normal release meds,and using more than one,it doesnt stop SSI but it helps.
get appointment with OT and ask for padding to be fitted to the walls where are especially headbanged the most.



Thanks, actually i did try those meds for my tourettes, i didnt really notice a difference in either tourettes or sensory though, but i ended up falling out of routine, and loosing that, i need to get back on vitamins tho soon so i can be healthy, but id idnt really look much into the sensory part being helped, i didnt notice any changes but maybe i might have missed them i dont know, im going to ask ppl later today if when i was on those vitamins was my sensory bad. Thanks so much for understanding also, i'm completely at a loss. I asked my mother if i could save up to make my room sound proof, she said absolutly no i just bought you new windows years ago, their still good, and that its her house and blah blah blah. So whatever im going to check into those machines the links first given, see whats going on there. Whats hyperacusis? i never heard of that?

As far as the sleeping, my neuro told me i dont have insomnia, hes testing me for some rare limb disorder that might wake me up in the night, i doubt thats it too, he said i just might have a weird sleepin pattern that lets me only sleep 3 hours and my body is fine with that, im like ughhhh but i want to sleep more, he said he cant give me any sleep aid drugs because any drug has serious affects on me, and sleep drugs can turn me into a 247 zombie, and might make me sleep too much which in the end if i have a 3 hour sleeping cycle could seriously hurt me.

As far as the headbanging, i would do anything to put foam around my walls to help me, but nobody will help me fund that, and my mother wont allow that either :(. She just told me today my brother complained because of the amount of banging was going on woke him up, she was like why were u banging that loud in the middle of the night, like holy crap ive been headbanging my whole life, half the time she didnt even know i walk around with black and blue huge bumped forehead and she just acts like its not there, idk, maybe shes just use to it idk lol. I swear my head has been through so much, its like its a huge truck and when i hit it, its like little bugs flying against it, like it doesnt bother it, i still somehow function, i dont know how, is that the same with you kingdomofrats?
[/b]

vitamin stuff--
the b6/magnesium wont work for all autists for sensory problems or hyperacusis, so if it hasn't worked,its normal,
is just crap luck.
if are going to go back on them,make sure teh b6/magnesium seperate dose from the multi vitamin,as they dont have as much in.

soundproofing--
it sounds like own mum might not know a lot about sound proofing,it goes behind the walls [or is it in front?] and it will make the room a little smaller,but it does not destroy the look of the room,it also goes under the flooring,
it wont cause her a problem.
unless the windows were top of the range ones,they're probably going to be not good,the ones in this room are ten years old [when they built this place]-they're supposed to be double glazing,but they look single glazing,and am always thinking the window is open because of the noise it lets through.
if dont have one already-try getting a thick black out blind fitted,the one here helps a little towards softening/dulling noise as it covers the whole space next to the window.

hyperacusis--
it's accute lack of tolerance to noise,and usually gets classed under the same thing as the sensory problems by specialists,but it isnt-hyperacusis can have unstable severity.
here's the wikipedia article about it:
http://en.wikipedia.org/wiki/Hyperacusis

sleep--
it may be worth getting second opinion,because insomnia isnt just a reason to need a sleeping drug-not for autistics anyway,of sleep problems-am not getting it only for insomnia,am also get it for sensory reasons.
have ever tried a long release version of a sleep drug?-am dont know of any but there is for melatonin so cant see why not-long release versions are a lot more stable with far less side effects,it may be that need less of a drug also.

head banging--
do have any spare mattresses in the house?
if could get these attached to the wall,or put behind bed/wherever it happens the most and push bed up against it,it is a good alternative-the old padding am used was just a special foam mattress that am had used for years and was falling apart before the ot adapted the house with the professional stuff-it doesnt cost anything here if it has been seen as a need because of own disability,it doesn't sound right that there is no organisation in the US that has a fund set up for people with disabilities-maybe own mum would even accept it better if it was paid for,have ever asked the neuro or ot if they know of any?

sounds like may be the same or similar with headbanging-am dont have any pain awareness on body,and am only feel a nice pressure during head banging if am aware of it,though do feel deep pain inside body and get a very deep bad vibrating brain feeling with pain for days afterwards.

Age,it would help a lot if could move out,some sort of supported living place.
staff would be able to support self with the HB as well,wether it's through restraining or holding pillows around self.

would be awesome if could come and live in the place am about to move into [closed down institution,that am used to live in] a huge ground floor level building,with no one else but am and hopefully cats going to be living there,it's got natural sound proofing around the whole site [very tall trees],loads of it's own land with no close neighbours [apart from a still working respite unit there],and the most understanding great day/waking night staff team all specialising in LD or autism.


eggboxes for soundproofing--
eggbox sound proofing still lets in noise,they wouldnt help against noise from underneath,and would get instantly wrecked in headbanging.


_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!


Silver_Meteor
Veteran
Veteran

Joined: 10 Jul 2007
Gender: Male
Posts: 1,399
Location: Warwick, Rhode Island

04 Sep 2008, 9:18 pm

Hugs to you Age1600. I am very prone to insomnia myself though if I pull the shades down and use foam earplugs that will usually be sufficient. Try a white noise machine. They are not that expensive and will be similar to your air conditioner or your fan.


_________________
Not through revolution but by evolution are all things accomplished in permanency.


Ledvia
Snowy Owl
Snowy Owl

User avatar

Joined: 7 Aug 2008
Age: 37
Gender: Female
Posts: 136

05 Sep 2008, 1:39 am

funny enough those machines make noise.....my therapist who i no longer see because she was pediatrics, she got one and it makes noise....like a fish tank....you can here this motor sound...doesn't make sense...the sound actually bothered me...it was more quiet without it....