Adults with guardians
MomofTom
Veteran
Joined: 5 Aug 2006
Age: 49
Gender: Female
Posts: 621
Location: Where normalcy and bad puns collide
Every so often a parent will post that their Aspie is almost 18, and asking for advice on how to obtain power of attorney...and I try to point out that there is a world of difference between Asperger Syndrome and eternal childhood, and that their need to strive to prevent their Aspie from becoming an adult is a form of co-dependency they really need to seek counselling for...
...and then there is a flame war, during which half of me wants to round 'em up and nuke 'em, the other half cannot even take them seriously...
...it get's REALLY bad if I venture to suggest that their Aspie may also, one day, have relationships that involve you-know-what, just like any other adult ...you would think I had suggested something, really, REALLY revolting...
...fact is, this is a fairly common phenomenon in the parents of a child with any suggestion of a disability, a kind of compensatory addiction to the sense of "being needed" by a vulnerable child, and that addiction doesn't want to let go.
Unfortunately, the more AS is recognised and acknowledged, the greater this problem will become. It is one of the things we HAVE to figure out how to unite and fight, if we, as a minority, are going to have a chance at fulfilling lives...
...and if you can figure out how these co-dependent parents manage to rationalise how come an elder Aspie, like me, managed to not only survive, without even even normal family support, but to do so through some situations that would be too tough for most people...while having uninterrupted ownership of a car since 1986...
Please let me know?
M.
You raise a very pertinent point. As an adult aspie, a lot of life lessons were learned in sink-or-swim environments. I didn't have a diagnosis at the time, nor was AS yet recognized in the early 1990s among among the female population.
I am interested in this thread as it relates to my son. He's almost 6, and is starting to advocate for himself in health care and home settings. He has multiple medical issues and is assisting with his feeding pump, making his formula, etc. We do have an upcoming training on guardianship, however, the tone is geared toward giving the adult child as much independence as possible and the drawbacks of having to declare guardianship over someone. Obviously, a lot remains to be seen as to what all he is able to handle on his own. I like the idea of disclosure statements versus even partial or medical guardianship. What I would like even better is for my son to effectively advocate for himself and be able to perform the self care tasks relative to his health situation.
_________________
Apathy is a dominant gene. Mutate.
So, do any of you have guardians or know someone that does? What's it like? How much control do they have over you? Can they tell you what to eat and wear and when to go to bed? Do they have a letter giving them permission to access your bank account?
I'm not liking what I hear about this, about people at the Judge aRotenberg Center, adults, who are still under their parents' guardianship and have to do as they say or get shocked into submission literally, or sent back to that horrible place.
Also, have any of you ever feared losing custody of yourselves?
In the US, if there is an interest, a person or organization CAN have a competency hearing. If you are found to be incompetent in a material way, the court can assign you a ward of theirs with them basically getting control of your assets.
I think it is very important for an adult to have the means and support to decide for themselves what sort of situation they want to live in, whether it is with parents or something else. One thing I do know is there is nothing worse than not feeling in the position to move out of the parents home when you really want to.
I had a very overprotective mom. I was lucky not to be diagnosed, because otherwise she might have gotten guardianship and made me stay at home with my abusive dad.
I had a hard time for several years, but it has been worth it. I would rather be homeless and free than live with my mother. I have on two occasions made that decision already--once, I managed to get a place on a friend's couch; another time, I found an apartment in the nick of time. Neither time did I call my mother--who now believes I am either faking it or totally disabled, depending on her mood.
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Maybe there's more to it and your friend doesn't want to give more personal details?
Or maybe he is economically dependent and is forced to allow it?
If you give power of attorney to anybody (usually for financial, medical, or educational purposes), you can cancel it at any time IF the power of attorney isn't written in a way that keeps you from changing it. You need to read it, when you sign it, and figure out if there is a clause that keeps you from canceling it if you are "mentally incompetent". If there is, don't sign it. If you can't figure it out, say, "I can't sign this because I don't understand what it says." Get them to explain every sentence to you.
At least in the UK it is different: A normal power of attorney can be cancelled any time and becomes void if person is no longer of sound mind.
A "lasting power of attorney" will come into force if two qualified health professionals independently agree that a person is longer able to run his own affairs via a court order. In this case normally the person(s) named in the "lasting power of attorney" will be appointed by the court as guardians, but the court is free to appoint anyone else, if the court has good reason to do so. This guardianship is issued first for six months, than can be renewed for further six months and than must be renewed each year.
This is like what I do now. Otherwise don't know what I would manage!!
_________________
"There are things you need not know of, though you live and die in vain,
There are souls more sick of pleasure than you are sick of pain"
--G. K. Chesterton, The Aristocrat
Katie_WPG
Velociraptor
Joined: 7 Sep 2008
Age: 38
Gender: Female
Posts: 492
Location: Winnipeg, MB, Canada
Every so often a parent will post that their Aspie is almost 18, and asking for advice on how to obtain power of attorney...and I try to point out that there is a world of difference between Asperger Syndrome and eternal childhood, and that their need to strive to prevent their Aspie from becoming an adult is a form of co-dependency they really need to seek counselling for...
...and then there is a flame war, during which half of me wants to round 'em up and nuke 'em, the other half cannot even take them seriously...
...it get's REALLY bad if I venture to suggest that their Aspie may also, one day, have relationships that involve you-know-what, just like any other adult ...you would think I had suggested something, really, REALLY revolting...
...fact is, this is a fairly common phenomenon in the parents of a child with any suggestion of a disability, a kind of compensatory addiction to the sense of "being needed" by a vulnerable child, and that addiction doesn't want to let go.
Unfortunately, the more AS is recognised and acknowledged, the greater this problem will become. It is one of the things we HAVE to figure out how to unite and fight, if we, as a minority, are going to have a chance at fulfilling lives...
...and if you can figure out how these co-dependent parents manage to rationalise how come an elder Aspie, like me, managed to not only survive, without even even normal family support, but to do so through some situations that would be too tough for most people...while having uninterrupted ownership of a car since 1986...
Please let me know?
M.
It's that kind of crap that really scares me about the future of teens and children with AS. Which makes it harder and harder for people to one day be open about having AS.
I would say that the major problem is the lack of interaction between parents and people with high-functioning AS. In many AS groups, the only interaction that a lot of parents get is with adults with AS who DO have autonomy problems. There is even a middle-aged man in my provincial group who isn't even proper AS, but a MFA who eventually gained speech. The rest of the adults there are young adults, many of whom still function at a teenager level.
Since most of the high-functioning young adults want very little to do with the actual organization, any parents of children who enter the organization will only see the ones with less autonomy.
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