Critical of self diagnosis - you shouldn't be

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ReticentJaeger
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30 Nov 2014, 1:15 pm

Preach it, BirdInFlight.

I've never run into these problems on WP myself, but that's probably because I'm not self-diagnosed. In fact, that's one of the reasons I'm not self-diagnosed; I'm afraid that someone's going to give me crap about it, here or offline. When I self-diagnosed my synesthesia last year, my own brother said I was making things up for attention. I started to suspect autism around that same time, and I've resolved not to mention it to my family unless/until I get an official diagnosis.

If I ever do get a official diagnosis, I'll be tempted to wave it in everyone's faces just to show naysayers that they can't just invalidate people who haven't had the privilege of being formally diagnosed.



NiceCupOfTea
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30 Nov 2014, 1:18 pm

babybird wrote:
NiceCupOfTea wrote:

And the guilt-tripping begins.



Shut it, you f*****g idiot! If I want to say something in support of people then I will.


Obviously touched a sore nerve. Oops, sorry, sensitive subject. I won't mention g****-t****ing again or at least not without putting a lot of asterisks.



dianthus
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30 Nov 2014, 1:24 pm

btbnnyr wrote:
I didn't see any of the posters arguing against self-diagnosis or not sure about self-diagnosis insulting others, using curse words, mocking others, telling people to burn in hell, or suggesting that someone is a psychopath. These negative behaviors, I am seeing from some posters who support self-diagnosis and want others not to discuss an important issue on a forum without a rule prohibiting such discussion.


People who argue against self-diagnosis have suggested that those who do may be malingerers, hypochondriacs, Munchhausen's sufferers, etc. How do you find that different from suggesting that someone is a psychopath?



babybird
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30 Nov 2014, 1:25 pm

NiceCupOfTea wrote:

Shut it, you f*****g idiot! If I want to say something in support of people then I will.


Obviously touched a sore nerve. Oops, sorry, sensitive subject. I won't mention g****-t****ing again or at least not without putting a lot of asterisks.[/quote]

I can see by reading some of your posts that you must have had a hard time of it and it's left you quite bitter and twisted.

I sincerely wish you well.


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30 Nov 2014, 1:25 pm

btbnnyr wrote:
I didn't see any of the posters arguing against self-diagnosis or not sure about self-diagnosis insulting others, using curse words, mocking others, telling people to burn in hell, or suggesting that someone is a psychopath. These negative behaviors, I am seeing from some posters who support self-diagnosis and want others not to discuss an important issue on a forum without a rule prohibiting such discussion.


Well I really don't want to get embroiled in this, it doesn't really affect my life much as I don't post here as much for those and other reasons. I still love your kitty cat though! Maybe this thread could use a cat parade.

I wish people got along better here and could accomplish things together, but I gave up on that being a reality, it's just not in the nature of the place, but in the end life goes and people should try not to take this stuff so much to heart since it's apparently not going to stop anyway. But for all the people who are always stating that Autistic people are superior to and kinder, more analytical and more inclusive than those old meanie "NT"s, this thread should help you understand that you are wrong. THe pack mentality exists here also.



Rocket123
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30 Nov 2014, 1:26 pm

dianthus wrote:
Does anyone know of another autism discussion group that is more compassionate towards self-diagnosis? where perhaps this type of criticism and debate is simply not permitted?

This arguing coming on top of the forum upgrade is really making me want to stop posting here altogether.

In a thread about self-diagnosis, I would expect there to be a healthy debate, with people raising different viewpoints. I personally find this discussion useful and informative.

I would hope that, in threads on other topics (unrelated to self-diagnosis), that self-diagnosis is not discussed. As it would be unrelated to the topic being discussed.



ReticentJaeger
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30 Nov 2014, 1:27 pm

NiceCupOfTea wrote:
babybird wrote:
It's sad to read that people feel the need to leave WP just because of the attitudes of a few. :(


And the guilt-tripping begins.

I have no desire to see BirdInFlight leave, but I am not changing my opinions to make her happier either. I'm not repeating my earlier thoughts in this thread because there's no point, but I stand by them.


Didn't sound like guilt-tripping to me.

Though I think it's reasonable to leave for 'the attitudes of a few.' I'm just not a very tolerant person, so...



NiceCupOfTea
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30 Nov 2014, 1:34 pm

dianthus wrote:
NiceCupOfTea wrote:
babybird wrote:
It's sad to read that people feel the need to leave WP just because of the attitudes of a few. :(


And the guilt-tripping begins.

I have no desire to see BirdInFlight leave, but I am not changing my opinions to make her happier either. I'm not repeating my earlier thoughts in this thread because there's no point, but I stand by them.


No one wants you to change your opinion, but you could be more respectful in the way you express your opinions. You are by far one of the most belligerent posters I have ever seen here. You've personally attacked several posters including Skibum and Joe90 who did absolutely nothing to warrant it. You have also made it clear that you don't care how others feel and you're going to say whatever you want regardless of how it affects anyone.

You have been getting by with it here because people feel bad for you and the circumstances you are in, but you are unwilling to extend the same kind of consideration to anyone else. Having a little guilt, in the sense of humility might be necessary here.


I apologised to Skibum by PM. She is a good soul, a better person than I'll ever be - and no, I'm not being sarcastic. We had quite an interesting discussion going on, but I haven't heard from her for a little while or seen her post on WP...

As for Joe90, yeah, overreacted there as well. Sorry Joe90, if you see this.

I do feel guilty after my outbursts, perhaps more than I let it show - I dunno. But I must admit, I enjoy a good old-fashioned barney and seeing insults fly back and forth. Dramas are fun. Obviously not all the time, but forums which never have any drama are boring ones.



Rocket123
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30 Nov 2014, 1:34 pm

Peejay wrote:
Q1. What percentages of self diagnosers on WP went on to successfully get an official diagnosis? (first time)

Q2. What percentages of self diagnosers on WP went on to successfully get an official diagnosis after more than one attempt?

Q3. What percentages of self diagnosers on WP have not attempted to get an official diagnosis?

Why would an individual who has the confidence to self-diagnose (i.e. going from suspicion to certainty), seek a professional diagnosis? Unless, they are seeking services? After all, don’t they already have extreme certainty in their own autism assessment?

Please note:
1. I asked the following question in a different thread on a similar topic.
2. I am not trying to criticize or pass judgment. I am simply trying to understand what’s going on inside the mind of someone who self-diagnoses. This goes back to my earlier post about confidence. I suspect that those who self-diagnose are, as individuals, simply more self-confident than those who are unwilling to self-diagnose. I wonder if that suspicion is true.



NiceCupOfTea
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30 Nov 2014, 1:36 pm

ReticentJaeger wrote:
NiceCupOfTea wrote:
babybird wrote:
It's sad to read that people feel the need to leave WP just because of the attitudes of a few. :(


And the guilt-tripping begins.

I have no desire to see BirdInFlight leave, but I am not changing my opinions to make her happier either. I'm not repeating my earlier thoughts in this thread because there's no point, but I stand by them.


Didn't sound like guilt-tripping to me.

Though I think it's reasonable to leave for 'the attitudes of a few.' I'm just not a very tolerant person, so...


Sounds like classic guilt-tripping to me. It's even got a sad smiley.

Let me get this straight. I don't want anyone to leave. I'm not trying to push anyone to leave. But if somebody does leave, that's their decision: not mine. I refuse to be held accountable because they can't tolerate dissenting opinions. I don't choose to leave WP because half the posters (or however many) are self-diagnosed and intend to remain that way.



Peejay
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30 Nov 2014, 1:49 pm

Amity wrote:
I’m on WP questioning the suspicion of an ASD label and learning about practical solutions to lifelong problems. All this talk of valid/invalid is something that does not currently impact on me, I have basic human needs issues to resolve while I’m learning all these new things about myself. What concerns me is the politics of WP, thank you to alex for clarifying the inclusionary ethos, as I am curious about the practical implications of this discussion on the participation of self diagnosed members.

Just one practical example of a personally *valid experience that stemmed from reading here and led to research; understanding my noise sensitivity issue has been liberating, I have stopped trying to desensitise myself through methods that I now consider self harm. No one is attempting to invalidate that reality, nor can they. Based on the deleted posts, only a minority take issue with this practical type of WP participation.
But, if I start an aspiegirl blog and self promote on youtube claiming to be representative of ASD women, reference WP or post a link here to share, the majority will take issue with this type of behaviour, because I do not have a valid diagnosis.
Two different approaches.
I have to point out the culturally differing expectations regarding diagnosis, and question if I have to achieve the valid/invalid diagnosis standard set by the privileged from wealthy progressive countries to participate as a *valid voice on this site? Or, is this support site actually inclusive of and a resource for those living in the bottom percentages of global wealth too?
Thank you to the anti self diagnosis group; I’m starting to appreciate how patient and tolerant many of you were. It’s better to have this culture out in the open.


Well said Amity

BirdInFlight wrote:
If anyone wants to start that poll about who wound up [b]right[/i], feel free to include my response.

I turned out to be "right." I got diagnosed two months ago after seven years of actually very painful and shocked suspicion that I seemed to have the traits of Asperger's.

Before I got handed that confirmation two months ago, trust me, I'd started out positively NOT "wanting to have it."

I'm not going to make this post much longer than it is, and I don't want to stay in this discussion after posting this -- indeed, I don't even like to come to WP anymore -- and that's AFTER being told I AM in fact one of you guys...

I'm one that "left" after being diagnosed positively rather than leaving because it was a negative. Why did I leave despite learning officially that I AM on the spectrum?

Because I became DISGUSTED at attitudes like the ones on this thread and other times like it when this stuff would come up even in a thread discussing something else. Because for the most of the year I was on here before being diagnosed, I ran into A LOT of "Well how can you give advice or say anything accurate when YOU are not yet diagnosed and don't even know for sure if you are on the spectrum?"



And also, another thing, speaking strictly for myself.

I have NEVER suspected I was on the spectrum for purpose of "belonging" or fitting in OR making "excuses" for my life. .............................................

I have said this before and I'll say it again:

I stumbled upon the traits while not even thinking about my own self or my challenges. I ran across the traits not because I was some kind of hypochondriac looking for something to be wrong with me, or looking for an excuse for challenges and failings I had suffered all my life. I looked it up because a public figure revealed he had been diagnosed, and I thought that seemed surprising (because I knew nothing about it) and so I looked it up just to see what HE was dealing with.

And when I recognized myself in the most profound difficulties, no not just "Ooh yeah I'm socially awkward, a bit!" it was a shock, not a welcome thing. I spent the next SEVEN YEARS denying even the merest possibility to myself. It took a long process of denial then research then finally my diagnosis at the age of 52 (then) and I took none of it lightly. ...................

Anyway, if you do that poll "How many thought they were then got the official diagnosis confirming they were right" count me as one. Even though yeah at the same time I also left WP following diagnosis.

Because I felt extremely vulnerable after my positive diagnosis.


Bird in flight
please stick with us for a bit longer. I know some of the views are expressed strongly, I have been getting frustrated myself at times trying to stay on a positive path whilst disagreeing and being misunderstood.
(this could be my inability to get my ideas over or that some readers are resistant or just disagree.... which is their perogative)

But I think this is because perhaps this is something quite powerful we are onto!...

ie. peoples self perception and ownership of their own condition and feeling they need to fight for that in spite of opposition.
This is a strong and resilient thing to do ..... to keep our self belief in spite of other views.

I am also 52 and have had to keep that resilience for 40 years probably like you .... Kudos to you (and me) for surviving.
We may have to fight a little on WP too but this can be healthy, it is worth the fight.
As long as there is no disrespect going on this can stay good for all contributors.

I have really tried to stay positive in my posts I urge others to do so, we have enough to contend with in the outside world!

I urge everyone to accept what people say as sincere and true to them (valid) and to be able to disagree with respect to any opposing viewpoint.

So please Amity & bird inflight stick with it. :)

There are some great contributors (for and against) here and intelligent argument too.
I think it was Dianthus who said, interestingly that she wondered if we split into 2 camps sometimes, the ones who are really good literal analysts and others who try to express emotions in words which needs a leap of empathy from the reader to get what they are aiming at............
The friction gets a bit hot sometimes because of these approaches (I tend to do both at different times depending on my mood!).

One of my ASD traits is brutal honesty (often inappropriately) this has gotten me into Sooooo much trouble: so please forgive me and others who come across a bit sharp they are all just being honest I`m sure.

Another poster said wisely.... what do you expect on an ASD site..... perfect communication!! ! Ha Ha. :lol:

So I think tolerance is the order of the day here (I understand if it is difficult, its a great skill to have and I only have so much at times but am working on it)

As I said about 20 posts ago I think this community is awesome I have learned so much from people on this thread alone. Lets look after each other.



Rocket123
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30 Nov 2014, 1:51 pm

BirdInFlight wrote:
...And, by the way, I did always insert the information, back then, that "I at present am only self-suspecting and not yet diagnosed" before going on to offer whatever I was trying to offer. But I was slyly beaten up in a covert way over and over on this place. One member in particular -- EVEN THOUGH I WAS COMPLETELY UPFRONT THAT I ONLY "SUSPECTED" -- actually seemed to follow me around injecting his cynicism into threads where I was...

It’s too bad you had to deal with this. There is no reason why anyone should be personally attacked because they chose the path of self-diagnosis.

With that being said, I think it is totally acceptable to debate self-diagnosis in a thread about self-diagnosis. Anyone can choose to stop reading the thread, if they don’t like the direction it is headed.

One final note – per your posting, you actually never self-diagnosed (at least according to the definition used here). You simply suspected. Which is different. I think all sides (in this debate) agree that suspecting is the acceptable first step after learning about Aspergers/Autism. It’s that second step that people are arguing about.



Peejay
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30 Nov 2014, 2:02 pm

NiceCupOfTea

Freely acknowledging things when you have upset others is the sign of an honest and courageous soul, it is a strength; I commend you for this.

I can tell you are a very sincere person who holds strong views with integrity.



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30 Nov 2014, 2:04 pm

Rocket123 wrote:
Why would an individual who has the confidence to self-diagnose (i.e. going from suspicion to certainty), seek a professional diagnosis? Unless, they are seeking services? After all, don’t they already have extreme certainty in their own autism assessment?

Please note:
1. I asked the following question in a different thread on a similar topic.
2. I am not trying to criticize or pass judgment. I am simply trying to understand what’s going on inside the mind of someone who self-diagnoses. This goes back to my earlier post about confidence. I suspect that those who self-diagnose are, as individuals, simply more self-confident than those who are unwilling to self-diagnose. I wonder if that suspicion is true.


I probably wouldn't ever seek a professional diagnosis, unless I was seeking services. Specifically I would probably only do so if I needed to apply for disability, which I think would be a real long shot, but if it was my absolute last option to support myself I'd have to try.

Maybe the question is not are people who self-diagnose more confident, but why they may be more confident. Part of the reason why I am confident is because I have diagnosed myself accurately before with ADHD and shortly thereafter got a professional diagnosis.

And before anyone questions THAT diagnosis, I was referred through vocational rehab to a husband and wife team of psychologists with a well-established practice who were considered by the VR agent to be the best in the area at diagnosing ADHD. I was thoroughly evaluated for ADHD with a battery of tests, and my mother gave a history. It was an unpleasant experience, and not one I would want to repeat, but it did confirm my self-diagnosis.



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30 Nov 2014, 2:14 pm

Peejay wrote:
I think it was Dianthus who said, interestingly that she wondered if we split into 2 camps sometimes, the ones who are really good literal analysts and others who try to express emotions in words which needs a leap of empathy from the reader to get what they are aiming at............
The friction gets a bit hot sometimes because of these approaches (I tend to do both at different times depending on my mood!).


Yes it was me who said that.

Actually I am wondering...because it seems to me that the people who argue most strongly against self-diagnosis tend to be the people who have very pedantic and literal styles of relating...I wonder if deep down those people believe that those who have different relating styles are not as autistic as they are.



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30 Nov 2014, 2:34 pm

NiceCupOfTea wrote:
I don't choose to leave WP because half the posters (or however many) are self-diagnosed and intend to remain that way.
You probably would if half the posters were saying that you are a sell-out because you went to some psychiatrist, "as if you have some sort of illness," to be treated as if being different makes you mentally ill.

Yeah, you're lame because you buy into the mentality that being Aspie and being different means you have something wrong with you. You're not like those cool people who choose to be PROUD of who they are. You're LAME. You're a pretender. You're not a real Aspie. You're a neurotypical wannabe. You must be like those people with Autism Speaks. Booooo!

/sarcasm

This entire concept of "my autism is better than your autism" is cliquish BS, and it's childish and asinine. As I have said numerous times above, it's this kind of BS that is going to drive people to going to five-and-dime shrinks, for the sake of some stupid self-validation, and ending up getting seriously ill after being prescribed things they don't need.

Believe me, there are still psychiatrists out there who will write a prescription for haloperidol because you happened to breeze through their door. The world of cut-rate, half-ass psychiatrists is really that dangerous.



Last edited by Persimmonpudding on 30 Nov 2014, 2:41 pm, edited 2 times in total.