Boycott Autism Speaks

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AND NO AUTISM SPEAKS IS TECHNICALLY AND EVIDENCED AS NOT WORKING ON THE PREMISE THAT DISABILITY HAS NO ADVANTAGE...

THEY CLEARLY STATE ON THEIR WEBSITE..THAT THERE ARE ADVANTAGES THAT PEOPLE WHO ARE GIFTED WITH SPECIAL ABILITIES ON THE SPECTRUM HAVE IN CONTRIBUTING TO THE REAL WORLD AROUND US..AS CLEARLY LINKED AND QUOTED HERE...

AS I HAVE DONE..OH MY GOD..AT LEAST 10 TO 20 TIMES ON THIS FRIGGIN SITE...

BUT IT'S JUST... WHY LISTEN TO THAT HUH..NOT YOU FRIEND..NECESSARILY..BUT THERE ARE PLENTY OF FOLKS THAT SIMPLY WILL NOT OPEN THEIR EYES TO THE DOCUMENTED FACTS...


I'm talking in all caps by the way..as this can be just a little frustrating..you see..although i'm not at all frustrated..simply trying to make it look that way..to get a point across...

So for the 21st time or however many times i have linked these facts here they are again....one more time..

hope it's the last one..but haha..conspiracy theories don't work like..that..if you wanna try to put a nail in the coffin..of conspiracy crap...ya gotta keep hammering away...

But it's just an intermittent past time for me..in enjoying the full range of human nature..both dark and light....

http://www.autismspeaks.org/what-autism

What Does It Mean to Be “On the Spectrum”?

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I am wondering about something. When looking on the Internet I saw that Wrong Planet founder Alex Plank worked with Autism Speaks, on something called Autism Speaks TV. From what I can see here in in his other projects, Alex advocates a positive view of autistic people, so I don't really understand how he could work with Autism Speaks which has a totally different stance. Does anyone know more about that ?

I am genuinely (perhaps naively) asking the question, I am not trying to be a troll or to criticize anyone.

Maybe you are not listening or don't care to understand the documentED facts or don't want to ..haven't had time to..i posted whILE you were writing or any of that...

But specifically and evidenced as reason..and specifically above as stated clearly and all of that...

AUTISM SPEAKS CLEARLY AND SPECIFICALLY ACKNOWLEDGES..THE POSITIVE ASPECTS OF AUTISM FOR FOLKS LIKE THE ONES WHO POST ON THIS INTERNET SITE..FOR THE 22ND TIME OR WHATEVER..I HAVE RELATED THAT REAL AND SPECIFIC TECHNICAL FACT HERE..

Alex is a really smart dude..

He ain't LIKELY listening to no conspiracy crap...

He's a survivor and he does what it takes to survive and get ahead...

Not likely he gives a f**k about group think and all of that..

But i guess ya could Email and ask HIM about that..but he might be toO busy making a living..by getting funding from autism speaks..as well as many other things..in real life..to get back at ya..for some time to come..who knows if ever..as there are only so many seconds.. in a day....and only so many people one person can effectively communicate with..

Borders are extremely important.. for people on the spectrum to make..AS WELL...

Seems like he mastered that at a fairly young age..so good on him and all of that..particularly making ONE OF THE ONLY INTERNET SITES..WHERE PEOPLE CAN EXPRESS THEIR FULL OPINIONS ON THE AUTISM SPEAKS CONSPIRACIES AND ALL OF THAT WITHOUT FEAR OF BEING BELITTLED .. FROM ACTUAL SITE AUTHORITIES...DELETED..BANNED.. OR ANY OF THAT...

BUT HE'S REALLY AUTISTIC..NOT ALL FOLKS ON THE INTERNET..ARE THAT....NO MATTER WHAT SOME OF THEM THINK OR GUESS THEY ARE...

WITH0OUT A PROFESSIONAL DIAGNOSIS AND ALL OF THAT..

SOME AGAIN..NOT ALL IS WHAT I SAID...FOR THAT2...

I do not know if everyone here has read what I wrote about this book I found years ago in a free box and just recently read-- by Bion--"Experiences In Groups." but probably some have, and maybe I will be writing more about his interesting theories in the future. One of the main ideas is that groups tend to organize in several ways which he calls "primitive," meaning that they are functioning from some kind of inherent organizing tribal (my word) mechanism that imo mirrors brain function. There are three basic mechanisms, and then there is what he calls the sophisticated or work group where people do not use these primitive ordering mechanisms as an ESCAPE from facing their own difficulties. Anyway, one of the three primitive mechanisms, and the one which I see around this boycott autism speak phenomena, he calls FIGHT OR FLIGHT. By this he means that the group superficially organizes around fighting some external to itself specter (such as society, nt's, Autism Speaks, one member (or I suppose it could be a faction) of the group, or, in the case of a psychotherapy group, the group leader) in order for individual members to avoid facing and working on their own personal difficulties. So in this hidden agenda of avoiding personal work they are complicit. (This is not to suggest a group cannot be organized around the goal of actually remedying some kind of injustice, but this is not at all what I see happening here). So this is the FIGHT mechanism which has a hidden agenda--to avoid personal work, meaning self scrutiny and facing up to the sometimes unpleasant facts about the reality of the world and oneself. By the FLIGHT mechanism he means the movement away from significant communication and toward the disintegration of group cohesion when there is nothing to fight and there is a possibility for some kind of actual insight. Small talk would be an example of this, or changing the topic. I saw a good example of this recently on another thread which many of us are engaged in where someone did this and at the same time as doing so even apologized for hijacking the thread (ha ha..weep)) just when the enquiry seemed to be really going somewhere.. And you will observe that when there is no one to fight on these groups organized around fight, such as someone even pointing out the preposterousness of this kind of dynamic, the conversation just stops, but if someone comes with a contrary idea, then it all starts up again.

Pretty fascinating. It is obvious that if people really wanted to do something about Autism Speaks.they would use enquiry as a tool to break through the fog or cloud of their own mentality..But that is hard work and requires dedication to that particular goal:-) This would lead to a more sophisticated group that actually might be able to do something to change the perspective toward autism that they are objecting to in Autism Speaks.


Yeah, ha ha, and pure gold to mine as a learning tool and it is all written down on this and some other threads in plain print for anyone who has the eyes to see it and consciously use it.

Interesting..and i do agree with all of this..thanks for the reference..i also have one too per this issue of 'tribal' like propensities..and common enemies to escape pain..and for social cohesion..that i don't have at my finger tips this moment...

And I will readily admit i used this similar tool..in part .. to escape the worst pain known to mankind...the type two atypical trigeminal neuralgia..i suffered from for 60 months..including the time i've spent here..since November 26th...2010...until the relief i gained from the pain last spring through summer and until now...too...

I could go all over the internet..and simply discuss this issue as the antagonist point of view..per the positive things that Autism Speaks most clearly and definitely does..per documented evidence..

And i was sure to rise an enemy out of folks who leaned toward conspiracy theories..to perhaps escape emotional pain..rather than the physical pain..that i was escaping from...

Pain can kill almost ALL emotions and during that 60 month period i was most definitely zombie in affect and yes..effect.. in many ways too...not emotions and associated psychological pain..to escape for me..they were already gone...

Emotions are necessary and vital components for executive functioning and memory..complex emotion..not not just non-pro social basic animal emotions...although i do believe animals ..some at least.. experience some complex emotions too...

My life was horrifying ..well beyond horrifying without complex emotions..as i could not even experience or understand what horrifying meant at that time..as my memory would not even work correctly per the memory of emotions..and logic working together....

Yes..this whole internet site.. is like one huge science lab for learning about the human behavior of very diverse minds..which accounts for the unusual results we find here most every day...

I'm sure there are plenty of so called 'neurotypical' anthropologists..sociologists..and of course psychologists..listening to all of the most 'interesting' insights provided into the inner workings of some of the 'strange' minds of the world here...

A gold mine as you say..a whole field of human behaviors..reflected like case studies..for free for any voyeur of human behavior...

The Autism Speaks Controversy and the dynamics of group behavior..is exquisitely interesting to me..

But of course i ain't got the pain anymore..so that is mostly the only reason..i hang around these parts of hate..vengeance..bitterness toward society..parents..charitable organizations..and all of that....

As it is simply fascinating to me..to study the dark and light sides of human nature...as an Anthropologist on a wrong planet in affect and effect..sometimes...

If we were to do this we got to be very careful and we shouldn't try to belitterate autism speaks however we should try to educate them. We should encourage autism speaks to use actual autistic people in their organization. The problem with the people on the autism self advocacy networks protest is I believe they were too aggressive and vocally violent in a sense it will only get them to continue to believe in stereotypes and add that to the list. We should not antagonize them.

Imagine you were in NT parent when autism was just been discovered and you heard that your son or daughter had it how would you feel? I know that how they're thinking and feeling isn't right and it's cruel and inhumane to say such horrible things about people like this. Especially that scene where that mother was talking about murdering her daughter right in front of her. But we need to be a positive example and show maturity because otherwise we won't get very far. We need to somehow show them the facts and people like carly fleischmann and make them see for themselves. We cannot make or force them to change only they can change on the own but we also need to make sure they're not just covering up for what they did in the past and we possibly need to make them publicly apologize for that.

A VERY reasoned approach my friend..And actually the organization did actually offer a public apology that is documented still on this site..but MOST everyone basically just kicked 'em in the teeth after that still..with MOSTLY immature remarks and all of that...

I don't think the organization..takes any online presence of supposedly autistic folks seriously anymore..at least not behind close doors and meetings..

Just a minor PR annoyance is all this online autism speaks hate thing is to the organization..i think...

After all the organization is thriving for donations..with a full 10 percent increase in donations..in the last recorded accounting..year..when most organizations..are really hurting....

More than anything else the constant name brand recognition..in threads here..is just free name brand recognition..for the organization..

The merits are clearly documented on their website..and everywhere else in the world where the Autism Speaks organization..is a beloved one..that iS lauded and respected..

And YEs the founder Bob Wright..is well respected at the highest levels of influential organizations.. all across the US..And around the globe...

But he already was as a very successful President of the media giant NBC for almost two decades...

Haha..he's had to deal with much more in his career..that a few folks on a few internet sites for people with an incredibly disabling reciprocal communication disorder..that obviously make it hard for them to understand cognitive empathy..and fuller story of the autism spectrum in how it effects about 3 Million people in the entire US..and many more across the globe..

As compared to the estimated 300K or so..so called higher functioning folks..who ARE ACTUALLY PROFESSIONALLY DIAGNOSED AS SUCH...

Not sure who it is aimed at, but just for clarity, I have been professionally diagnosed recently but cannot seem to update my status.

An apology means nothing if the behavior continues.

I can't seem to find this apology on my own. Can you post the link? I would love to see it.

It happens periodically... a self-advocate will try to work with Autism Speaks, try to teach them a better way, only to be used as a token autistic and overruled. That's why John Elder Robison quit working with Autism Speaks.

I disagreed with Alex's decision. So did many, many people on WP. We aren't a hive-mind, you know; if Alex does something, that doesn't mean we agree with it. As far as I can tell, his aim was to try to get Autism Speaks to listen to autistics for a change; it didn't work. I could have told him that, but I guess he had to find out the hard way.

I could honestly see why some may want a test, but I still fail to see how it relates to the offensive videos posted by the website. Honestly if someone wasn't offended by it then I can either conclude that they don't have autism or they are not easy to offend. I will mention that I do have a diagnosis, and while I may fall into the boat of the "so called higher-functioning" people, I still have plenty of problems with social communication that plagues me to this day. That said, if I were to trade that with the logical side of me that does seem to also be contributed to autism, I would say no. Sorry, but losing that I would no longer be me.

Perhaps their core mission reflects differently, but I'm also a believer of actions speaking louder than words. A person truly believing in that mission wouldn't post a video of someone gleefully telling of story of wanting to kill their kid in front of that kid, nor a video of blaming failed marriages on autistic kids, washing the parents hands of any semblance of personal responsibility (NTs are fond of yelling personal responsibility after all)

I'll end on this note, to lady saying wanted to kill their kid in front of their kid, I hope you are watching this, because I want this to sink in. You are a horrible person; you are a horrible person; you are a horrible person.

Last edited by Gamer on 06 Jan 2014, 10:47 pm, edited 2 times in total.

And to be clear my statement was not directed at anyone in a personal way in this discussion..per people who self diagnose..and may not actually be autistic...

No problem.. a copy of the interview where the apology is quoted is at this link..

http://www.wrongplanet.net/postt175264.html

What do you guys think of this?

Autism speaks march on Washington

and some of us like that. so what?