It's confirmed: I must get undiagnosed: how?

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I find that highly interesting.
Do you know were I can read this up?
Why is that?

Everyone is unique so nobody is unique. Most people have a list of things that happened to them as a child and extreme beliefs and political orientations and interesting things they've done in there lives like the one you posted. I could make on of those for myself and the few people I know well. The disabilities -obviously only a minority of the population have them but those who are disabled are more likely to have more than one disorder or one disorder and traits and symptoms of others than to have just one "pure" disability like "pure ASD". The majority have co-morbids. I've got a whole collection of disorders and so do many here. Many here have symptoms of personality disorders and narcissistic traits from what I've read in other threads.

I agree, so do you think there can be kind of a "pure" solution that can be in some way applied to people with overlapping disorders? I will tell you now that I think there can be a very pure and simple solution, though in some ways it would need to be individually tailored, of course. One question is who would tailor it and how, meaning according to what generalized standard that is less complex? I suggest some kind of behavioral approach that may involve analysis but in which analysis does not override.

From what I can see the Newson Syndrome characteristics as described can be captured under the DSMIV for ASD. My understanding is that is a supported syndrome in the UK, particularly by the National Autistic Society, and research cohorts, but it is not diagnosed in the US, as far as I know.

It is a controversial syndrome, at best, in the US.

I'm not sure if you have ever read John Elder Robison's book "Look me in the Eye" but is very reflective of the "Autistic Psychopathy" that Hans Asperger's described.

It is not at all the picture of emotional connectivity that one often sees promoted in some "neurodiversity communities", as Autism. It is a hard cold look at what it can mean to live with difficulty in affective contact, and still have compassion for others. From what I have seen in his new book, the same is true.

One passage stood out for me in the free sample of "Raising Cubby" on Kindle reader from Amazon, where he was talking about his wife being very ill, and his logical concern that her being "broken permanently" might be less advantageous than to her being dead.

The difference between a manipulative socio-path, is they would not be so honest in admitting an unusual difference in thinking like that in a public avenue, to help other people understand this way of thinking.

The passage in the first book that stood out to me was the story of him petting his dog and petting a girl in school to make friends. Good intentions, but lack of social instinct. From the outside people saw that as Anti-social behavior, but at that point in time, there was no definition of Asperger's Syndrome.

A substantial number of people still call him out for "some other" type of disorder in reviews of his book, because that could not possibly be the type of syndrome they understand as Asperger's Syndrome. Chances are it may not be, because it was not assessed with stricter criteria like the Gillberg Criteria, that will capture John Elder Robison every time.

It is a relatively rare condition, and it is obvious that it is a relatively rare condition when one views his videos as opposed to his written communication. It is not at all an invisible condition in his case.

If you haven't read his book maybe it would help. I have only seen one person I am positive has Asperger's syndrome as a public figure, the kind that Hans Asperger's described, and it is John Elder Robison.

Tony Atwood is a good resource as it has been his area of expertise for two decades, and he trained right along with Christopher Gillberg, under the study of Uta Frith, who translated Hans Asperger's work. He also worked hand in hand with Lorna Wing, who both, were in part, responsible for the diagnosis.

I personally think the only thing that kept Temple Grandhin from a diagnosis of Asperger's syndrome, in the US, was her language development delay and no criteria for Asperger's syndrome. I think she might have fit under Gillberg Criteria, if she had lived in Sweden, today, as a younger person.

All that said the Gillberg Criteria for Asperger's still appears to be on a continuum with what he himself describes as the "Autisms", commonly bound by a difficulty in what he describes as the "social instinct".

He places psychopathy in that overall continuum, as well, with potential elements of no deficit in motor coordination skills, ADHD, and defiant-oppositional behavior as a child. It is extremely interesting to me that deficits in motor coordination seem to exclude a potential of psychopathy in his view.

That is what is clearly seen when one watches John Elder Robison in a video, that sets him apart from many others, and may in part be why he shows a lack of affect, per neurodevelopmental issues that control motor coordination in the face as well as the rest of the body. There is no neurological evidence to support that part, but it has been suggested as a correlation by some.

I'm not so sure that professionals in the US can adequately describe what Asperger's is, because they do not have a diagnostic manual that adequately describes what Hans Asperger's described..

The Asperger's diagnosis per DSMIV criteria captures Non-verbal learning disorder in the majority of cases, but that is not the pattern of the Asperger's per Gillberg Criteria that John Elder Robison is diagnosed with. I am not saying it is not a form of Autism, but it is not what Hans Asperger's described.

If I remember correctly you suggested you had a verbal language delay in childhood. If so, that does not sound like non-verbal learning disorder to me, but I am not suggesting that both issues cannot co-exist.

I felt pretty lost in online communities until I read John Elder Robison's book and Tony Atwood. Some people were very offended by his routine in his conferences where he illustrated the body language and gait of a person diagnosed with Asperger's syndrome as "spotting the Aspie". People have been "spotting me" all my life. I finally understood why, when I read about his conferences.

There is no requirement of this issue in the DSMIV and there is still no requirement for it in the DSM5. Neither fully describes the Asperger's that Hans Asperger's and Gillberg describes. When the ICD11 goes into affect, all that will be left is the Gillberg Criteria, in assessing a real and distinct syndrome, that still exits throughout the world. And a very challenging one at that.

This may not be pertinent to your specific issues at all, but perhaps it lends one reason why it is so confusing to try to parse these issues out and label them., to get the support and help you need.

Tony Atwood places a great deal of emphasis on emotional regulation, in his therapies, and as far as Gillberg Asperger's, I think he is on the right track in therapy.

Some people were very offended by his routine in his conferences where he illustrated the body language and gait of a person diagnosed with Asperger's syndrome as "spotting the Aspie".

Controversial or not, Newson Syndrome describes many of these traits that I have in terms of the childhood versions of them in a way that fits uncannily well. Asperger's, on the other hand, just doesn't seem to fit.

From an intellectual standpoint, I meet the technical criteria in the DSM-4 and 5 for Asperger's or ASD, but I do not meet enough of the secondary criteria to not wonder if, perhaps, there's either something else there, or if there's another Autism Spectrum Disorder which does not exist but should.

I may well have something that is best called Asperger's Syndrome. But it's not classic textbook Asperger's. That's for sure. Most of the aspies who strongly deviate from the textbook description are female, also, which I'm not.

I have a unique way of sensing when my energy clashes with another person's. It's accurate because I can also accurately sense when a third person's energy clashes with that of someone else in the room, and I've independently verified the results several times via hearing gossip or watching the other person dig an even deeper hole for herself. Unfortunately, I have a harder time controlling when my energy classes with someone else's, so I still commit social screw ups and often engage in avoidant behaviors for these reasons. The way I talk (sound alone) sometimes gives off a negative energy that puts off other people, which causes me to either become subtly or openly hostile or withdraw. Controversial or not, Newson Syndrome describes many of these traits that I have in terms of the childhood versions of them in a way that fits uncannily well. Asperger's, on the other hand, just doesn't seem to fit.

Well, I have migraines, which I could say is a suspected brain tumor and get my insurance to pay for an MRI.

Would just a simple MRI be able to pick up abnormalities like a right-hemisphere lesion?

Maybe a benign tumor that hasn't grown since early childhood that could be removed.

Not discounting that you have migraines, but I think you may be subtly implying that such a factual approach may not really hit the spot, so kind of tongue in cheek while at the same time also literal. This could be simply a communication style. People raised in odd circumstances can develop very individualized and unique styles.

For me it sounds a bit passive-aggressive what could also explain why he once thought it could be BPD and more in direction of Newson-Syndrome, because both share some traits with being passive-aggressive.
http://en.wikipedia.org/wiki/Passive-ag ... e_behavior

Just a personal thought. I don't want to diagnose here anyone.

Passive-Aggressive is so me, according to that description. It's not in the DSM, though, and I agree that it shouldn't qualify as it's own disorder since it's a part of so many others, so it might be better to think about it in terms of something else, like Newson, Compensatory NPD, or BPD.

When they say that Compensatory NPD or Newson have "negativist" features, does this refer to passive-aggressive behavior?

Well, I have migraines, which I could say is a suspected brain tumor and get my insurance to pay for an MRI.

Would just a simple MRI be able to pick up abnormalities like a right-hemisphere lesion?

Maybe a benign tumor that hasn't grown since early childhood that could be removed.

To continue from my last message, it seems that no one really knows what BPD is exactly, That figures:-). The diagnostic criteria are just a thumbnail sketch to help a therapist put things into a kind of generalized category so he can work form there, but it is not the same as getting to know the client or the client getting to know himself.

What is surely behind this particular disorder, especially, and basically all kinds of psychological disorders is the relationship with the parents, especially the primary caretaker, who is generally the mother. The main point is that all of this material is kind of suppressed from the consciousness of the client as it is too painful and he is kind of conditioned (duped) by the original relationship into seeing things a certain way, and even if he may understand some aspects of this dynamic intellectually, this is not the same as actually really seeing it..

Therefore, by my understanding, one of the main tasks of a therapist is to establish a new kind of relationship with the client. No matter how he has diagnosed the client, generally speaking, the establishment of such a relationship of bonding and trust is probably the same under most conditions. Moreover an experienced therapist probably does not even have to look at the diagnostic manual in most situations to be able to make a working diagnosis, and his work does not have to do with giving the client this or that diagnosis, though he may tell you what he thinks if you ask, or as a part of the therapy he may mention it, but if a client is preoccupied with finding this or that diagnosis then this can interfere with the bonding process between the therapist and the client, which bonding is essential in order for the therapy to be helpful. Presumably either the client OR the therapist can use getting lost in these criteria as a means to avoid intimacy and to superficial structure a social interaction, though I guess such a conversation re diagnostic criteria could also be used to make a bridge.