Boycott Autism Speaks

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The Simons Foundation funds lots of genetics research. I don't believe that this is eugenics conspiracy. I think that identifying the genes involved in subgroups of autism is important for understanding brain development and functioning. Genetics research is relatively easy to do with human biospecimens compared to other types of research, so it looks like genetics research is leading the way, but the Simons Foundation also funds cognitive/behavioral/brain research and an autism school in new york area.

Oh yes friend..i agree with you..

It's just science..
And science is great!

NO need to fear it..not in our modern world..anyway..

And yes a reasonable level of caution is always warranted....

But fear..well..that's just a waste of time to me....

Scientist are not engaged in any dog gone..conspiracy...

The must publish or perish...

Their career would end if caught up in something like that...

And per the Simon's Foundation.. and Autism Speaks..

People compete for generalized goals for research..per research grants...

It's an independent process..where the private contractors that are the researchers..

Have control over their own methods to provide accurate results....

As you clearly understand too..btbnnr...

To either publish or perish...

i think..

Happy New year by the way...or a Merry Berry one tooo...:) ya...

I don't think that a bunch of independent-minded professors doing autism research as a small part of their total research are engaging in an eugenics conspiracy with each other, autism speaks, and/or the simons foundation, and/or the gubermentz.

For people waiting for a cure, don't wait for a cure to start living your lives and doing what you want, the cure isn't coming anytime soon, we don't even know what autism is.

Yes!..i agree...

Autism Speaks will never speak for me!

Nor for me, but that's kind of beside the point, isn't it?

It is Autism Speaks that belittles autistic people. They are a bunch of ignorant fools.

The problem with ASAN is that they are not anywhere near aggressive enough. They have been protesting against Autism Speaks for years, and Autism Speaks is laughing at them, and carrying on with business as usual. They still don't allow autistic people on their board, and they never will. Because they hate autistic people. Hell, they hate their own kids. They are still producing disgusting anti-autism videos. They are still partnering with organizations that torture autistic people. Any other disability rights group would be rioting over this kind of treatment.

Autism Speaks doesn't need to be changed. It needs to be destroyed. They have already had their chance to change, and they responded with a big f**k off.

It's pisses me off. What do you think about it?

I don't think the age or the gender of Ms. Wright has any relevance.
As wife of the CEO she is probably more then a speck in that organization. The researchers working for them are well working for THEM. They are probably very aware of how the "first family" feels and what the advertising portrays. If they like there paycheck they are likely to spend most of their time and effort doing research skewed to please Ms. Wright. That is how it works in the real world.

Sure it does..and no i do not think the age or gender of Ms. Wright makes a difference other than the fact that she is the wife of the CEO...

But here is the fact friend...

The organization does do great things for some folks on the spectrum...

And with OUT the effort of the so called first family...

Those folks would not be receiving that help...

IN my opinion..although no ONE organization can possibly please everyone or help all diverse needs of a spectrum that entails over 3 millions folks in the US..with scores..hundred and yes potentially thousands of diverse causal factors...

All they can do is try..and try their damnedest..come hell or high water...

And those are the type of folks that most 'first families' have to be...

to rise to that point in life from meager beginnings..

And yes that ...is where Mr. Wright started...

He is a maverick..as was Jack Welch...

it ain't easy getting TO the SO CALLED 'top'..

and both of those dudes did it...

Without any documented intention of actually harming other folks...

But people have different points of view..and different outlooks on life...

ya see friend..that is called neurodiversity..

and why i support Mr. Wright and MRS. wright in the neurodiverse nature of their total make up as human beings..emotions..over zealousness and all of that..

As much as any neurodiverse person on this website..

it is a human family of one..

That is ALLITIS

TO ME..

BUT AS THEY SAY..DO AS THOU WILT..

LIVE IN BITTERNESS..PERSONAL JUDGEMENT..ILLUSORY FEAR...OR VENGEANCE..AND ALL OF THAT..FOR ANY ONE SPEAKING HERE...

NOT MY WILL..

YOURS..

and again a general comment not directed at anyone personal..LY

including you friend..

as i see everyone as friends..

even adolph hitler..

hard to understand that until one accommodates the empathy

of 14.5 billions years....

yeah..admitting ly
so.. that last part is esoteric..

but oh well.. that's my special
interest..moreover than
Autism Speaks...

now.

They ban people for being autistic? Is this true?

No it is not true...

This is a common sense issue..

Not many people who are autistic are interested in it..the public online ones anyway...

The ones that run with the herd....

Very few AUTISTIC people are interested in serving on the board of other large Charitable organizations... as well...

Like the Autism Society of America.. the oldest and MOST well established Charitable organization FOR AUTISM SINCE THE EARLY 60'S....

In the US..they have 1 person..actually active on their board of directors..with Asperger's syndrome...

They simply are not easy to find..that's all there is to it..the ones who are even interested in doing it...

And here is the other thing...with all the negative complaints against autism speaks for only contributing about 4 percent of the revenue to family grants..

This is exactly the same percentage the Autism Society of America donates...

MOST of this stuff is just confusion ASSOCIATED with DEFICITS IN cognitive empathy...

Not understanding how important emotional appeals when generating donations for charities...are in the real world...THE BIG ONE..NOT THE ONLINE ONE...

Aint no damn different..thaN the sad hurt and abused dogs..in that dam dog commercial..

Humans..normal humans..base their decisions..on emotion..it's as simple as that...

And marketing science..will have it no other way..but reality...

Human Nature..is not something..that changes ..in general..

except for exceptions..like folks on the spectrum..

Who simply cannot understand in general..at times..how the REAL BIG WORLD WORKS..

WITH EVERYONE..NOT JUST THEIR POINT OF VIEW...

BUT ALAS THAT IS AUTISM...
AND THE NATURE OF THAT...

SO TRULY I'M JUST KILLING TIME HERE..
AIN'T NOTHING MUCH GONNA CHANGE ABOUT THAT

PART OF HUMAN NATURE...
EITHER.

:) SERIOUSLY..WHAT YA GONNA DO...

COGNITIVE EMPATHY CAN BE AN EXTREME CHALLENGE FOR FOLKS ON THE SPECTRUM..

like trying to put lipstick on a pig..

to use a metaphor...

in ain't literal...

it's simply hard to do...

for everyone including me
before in life..

5 decades can bring wisdom ..which more or less..

is just another word for advanced human cognitive empathy...
and yes..even common sense....

And as an autistic person..who had overcome a substantial amount of difficulty in cognitive empathy by adapting in working and interacting with literally tens of thousands of people in the general public over two decades..

This is precisely why i chose this autism controversy topic as a special interest back in December of 2010.. to discuss incessantly...

AS I CLEARLY UNDERSTOOD THE DIFFICULTIES ASSOCIATED WITH COGNITIVE EMPATHY CLOSE UP AND PERSONAL AS AN INDIVIDUAL ON THE SPECTRUM FOR FIVE DECADES..

I KNEW THIS WAS A DISCUSSION THAT I WOULD NEVER 'LOSE' OR NEVER 'WIN'..AS IT IS ALL ABOUT UNDERSTANDING HUMAN NATURE AND WHAT MAKE FOLKS TICK..AND YES EVEN CHARITABLE ORGANIZATIONS..AND ALL OF THAT...

i understand..and most.. but certainly NOT ALL people in this conversation..do not yet..have THE ADAPTATIONS REQUIRED TO UNDERSTAND..

COGNITIVE EMPATHY...

IT'S AS SIMPLE AS THAT...

And was an excellent way for 28 months to keep my mind occupied and further away from the worst documented pain known to mankind that was my life for over 60 months...

Autism Speaks is particularly kool for me..

For the controversy..and not much of anything else but my natural love for science..and research2!

And seriously POTENTIaLLY helping other folks..like my SON who did die..as a result of a co-morbid condition..that autism speaks has funded for research..in hopes ..that who knows..perhaps ..another child like mine..may not die.. in the long term future...

IN part..as a start..of the research that Autism Speaks funded specific to his genetic disease that YES IS MOST DEFINITELY ASSOCIATED WITH ONE FORM OF AUTISM...

THAT'S REALLY KOOL STUFF..

HAHA..NO ONE IS GOING TO DETER MY PASSION FOR THAT...

FOR MORE THAN OBVIOUS REASONS...!

UNLESS! ONE'S COGNITIVE EMPATHY IS IMPAIRED AND ALL OF THAT..

IN THE TERRITORY THAT MOST DEFINITELY DOES EXIST HERE...
ON THIS SITE..

DOCUMENTED AND ALL OF THAT!2

The researchers funded by autism speaks are not working for autism speaks. They are working for their universities or institutions around the country. Autism speaks is not the only source of funding for these researchers. They can get and some of them have grants from other foundations and the gubermentz. In most cases, autism is a small part of their total research. At the end of their research papers, you can see that their research was funded by autism speaks, but it is not all cure research, as some of the research is cognitive/behavioral/brain in hfa adults, the kind that will not be leading to a cure or prenatal test, but can help to understand autistic brain and differences between autistic and neurotypical brains. As for skewing the results, all of the lab work and data analysis is done by grad students and postdocs, who may or may not be deeply involved in the funding process (varies from lab to lab, prof to prof), and most of whom (including profs) aren't that familiar with the deep dark missions of the funding agencies, but just want the $$$$ in the short term (a year or two or three) to do a specific project as part of pursuing one's special interest.

Autism Parenting Magazine joins the boycott:

http://www.autismparentingmagazine.com/ ... s2jqfRDuSo

Looking forward to the tortured rationalizations as to why they're wrong for doing so.

I do not know about right and wrong. That is kind of black and white..People should do what is meaningful to themselves. The understanding behind their actions could be wrong according to someone else, but not to them, obviously, because it is their own understanding. I will write more later.

i don't know much about Autism Speaks, but am finding out more and more: Found this when I was searching on the internet for how many people they employed in 2012---(could not find that data because my computer could not download the report)

Anyway,--check out ths from from Autism Speaks:

http://www.autismspeaks.org/sites/defau ... y_web1.pdf

VERY impressive: I am impressed.: (the material you linked to also looks interesting)..

This kind of contrast presents more material to be used as learning tool.

You are very knowledgable on how research works..

Thank you for your insight..friend.