Autism Is Not An Excuse To Do Nothing

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Rocket123
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10 Mar 2015, 9:33 pm

B19 wrote:
I can understand your discouragement, especially facing this alone. This is why I think more and more that mentors are so important to help negotiate those obstacles and barriers. Sometimes it just gets too hard to keep on going it alone, and mentors can sometimes see a completely fresh way to negotiate the obstacles, and share the journey. It doesn't have to be a professional kind of mentor, it does have to be someone I think who understands ASD from the inside out. Isolation is a huge problem in the ASD community.

I 100% agree with the mentor thing. I was fortunate to have several mentors early in my working life who watched out for me.



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10 Mar 2015, 9:40 pm

foursticks wrote:
i know i'm coming a little late to this conversation, but autism does sometime seem to immobilize. My diagnosis didn't freeze me, though. It was my mentality. What i do has to be purposeful. After being stopped in every effort i made to use my talents & achieve in some field i actually liked, i made the observation that i just wasn't going to succeed. If there's no chance of my succeeding, why try? Add the general lack of executive function to that, followed with my inability to talk about what's bothering me.. roadblock.. That leads to the nihilism that someone had mentioned a page or two back. This had happened years before i found out what was wrong with me.


I could have written this a few years ago or so.

But I've since managed to significantly improve my symptoms, and mindset, via mostly healthy diet. I no longer think or feel like this. I've worked hard and achieved a lot over the last couple years. I still have some stumbling block moments, but am moving forward overall. I have much bigger goals for myself that I'm now working towards. All of this used to be "impossible."


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naturalplastic
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10 Mar 2015, 11:12 pm

He looks like a cross between a rat, and a kangaroo!

A wallaby? Or maybe a kangaroo rat?

He is cute though.



foursticks
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11 Mar 2015, 11:51 am

B19 wrote:
foursticks wrote:
i know i'm coming a little late to this conversation, but autism does sometime seem to immobilize. My diagnosis didn't freeze me, though. It was my mentality. What i do has to be purposeful. After being stopped in every effort i made to use my talents & achieve in some field i actually liked, i made the observation that i just wasn't going to succeed. If there's no chance of my succeeding, why try? Add the general lack of executive function to that, followed with my inability to talk about what's bothering me.. roadblock.. That leads to the nihilism that someone had mentioned a page or two back. This had happened years before i found out what was wrong with me.


I can understand your discouragement, especially facing this alone. This is why I think more and more that mentors are so important to help negotiate those obstacles and barriers. Sometimes it just gets too hard to keep on going it alone, and mentors can sometimes see a completely fresh way to negotiate the obstacles, and share the journey. It doesn't have to be a professional kind of mentor, it does have to be someone I think who understands ASD from the inside out. Isolation is a huge problem in the ASD community.



Yes. Mentoring would help. I don't have a clue most of the time. What makes things worse help-wise is it seems like every time I try to get help, I face the same amount of obstacles. At first, I didn't have health insurance. I tried going through the state, but state employees care as much about citizens as the state does. I finally got a job with health insurance, but they refuse to pay for any kind of treatment. I do still seek help when things get bad, but then no one can answer their phone or their email, or they're vacation. This happens fairly consistently. Not to complain, but yea, its a bad joke. And its on me.



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11 Mar 2015, 3:14 pm

It's me again, anti trolling on language in a friendly way. Going into severe literal mode on the title of this thread:

"Autism Is Not An Excuse To Do Nothing".

"Autism is not an excuse . . . " - I'll buy that, but autism can be a reason to do little.

"Autism is not an excuse to do nothing". Define nothing. We're always doing something. So in severe literal terms the phrase is already senseless. Oh yes it is.

Complicated bit that you may profitably skip: Whether the writer or the reader inserts the moral tone into the words is a highly interesting question, judging that the words do have an objective moral tone - (aside to audience - all right, in terms of academic rigour I'm not coming up with the goods here, my argument weak because I haven't defined what Objectivity is let alone Tone, or probably most importantly, Autism, but wtf, this is Wrong Planet not a dissertation).

"Autism Is Not An Excuse To Do Nothing" is an example of what college people call Rhetoric, i.e. language designed to sway the opinion of the reader, and it is often used in attempts to change public opinion.

Without getting out my critical faculties properly (they are a bit rusty), my argument is that what we are reading in the title of this thread is what George Orwell would call the political use of the English language.

None of this attack on the original article is in the slightest bit personal, it could well be that me and the writer of it share aims, and that she is an entirely personable person in the flesh.

My deep suspicion is that the original article has got "Workfare" in it.



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11 Mar 2015, 3:19 pm

Words, my lovely coping mechanism,

Make me what I am,

Please keep the judgement Overlooker,

Like the lion from the lamb



Alexanderplatz
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11 Mar 2015, 3:27 pm

Isn't it a wombat? - they come in different types

http://en.wikipedia.org/wiki/Wombat

- including the magnificent Northern Hairy-Nosed:

http://en.wikipedia.org/wiki/Northern_h ... sed_wombat

It's not a bush dog, but these are cute too

http://en.wikipedia.org/wiki/Bush_dog

That little creature in the gif is the true star of this thread IMO.



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11 Mar 2015, 3:36 pm

foursticks wrote:
B19 wrote:
foursticks wrote:
i know i'm coming a little late to this conversation, but autism does sometime seem to immobilize. My diagnosis didn't freeze me, though. It was my mentality. What i do has to be purposeful. After being stopped in every effort i made to use my talents & achieve in some field i actually liked, i made the observation that i just wasn't going to succeed. If there's no chance of my succeeding, why try? Add the general lack of executive function to that, followed with my inability to talk about what's bothering me.. roadblock.. That leads to the nihilism that someone had mentioned a page or two back. This had happened years before i found out what was wrong with me.


I can understand your discouragement, especially facing this alone. This is why I think more and more that mentors are so important to help negotiate those obstacles and barriers. Sometimes it just gets too hard to keep on going it alone, and mentors can sometimes see a completely fresh way to negotiate the obstacles, and share the journey. It doesn't have to be a professional kind of mentor, it does have to be someone I think who understands ASD from the inside out. Isolation is a huge problem in the ASD community.



Yes. Mentoring would help. I don't have a clue most of the time. What makes things worse help-wise is it seems like every time I try to get help, I face the same amount of obstacles. At first, I didn't have health insurance. I tried going through the state, but state employees care as much about citizens as the state does. I finally got a job with health insurance, but they refuse to pay for any kind of treatment. I do still seek help when things get bad, but then no one can answer their phone or their email, or they're vacation. This happens fairly consistently. Not to complain, but yea, its a bad joke. And its on me.


How have people found (or been found by) mentors? There are organisations where I am which provide voluntary mentoring at no cost at all to people with disabilities, it's one-to-one (that's essential) and I have met the Aspergers mentor at one of them, who seemed to be loving his role (important) and it was not there to push people into work but to assist people meet their own goals - find the right training course, liaising with people there, all sorts of things.

I was lucky to be found by a mentor who approached me at a public meeting and offered to work alongside me. She was great. We worked together on a public service project for 20 years. She taught me so much - how to negotiate with politicians, for example, which was very challenging for me before she arrived.



foursticks
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11 Mar 2015, 3:51 pm

B19 wrote:
foursticks wrote:
B19 wrote:
foursticks wrote:
i know i'm coming a little late to this conversation, but autism does sometime seem to immobilize. My diagnosis didn't freeze me, though. It was my mentality. What i do has to be purposeful. After being stopped in every effort i made to use my talents & achieve in some field i actually liked, i made the observation that i just wasn't going to succeed. If there's no chance of my succeeding, why try? Add the general lack of executive function to that, followed with my inability to talk about what's bothering me.. roadblock.. That leads to the nihilism that someone had mentioned a page or two back. This had happened years before i found out what was wrong with me.


I can understand your discouragement, especially facing this alone. This is why I think more and more that mentors are so important to help negotiate those obstacles and barriers. Sometimes it just gets too hard to keep on going it alone, and mentors can sometimes see a completely fresh way to negotiate the obstacles, and share the journey. It doesn't have to be a professional kind of mentor, it does have to be someone I think who understands ASD from the inside out. Isolation is a huge problem in the ASD community.



Yes. Mentoring would help. I don't have a clue most of the time. What makes things worse help-wise is it seems like every time I try to get help, I face the same amount of obstacles. At first, I didn't have health insurance. I tried going through the state, but state employees care as much about citizens as the state does. I finally got a job with health insurance, but they refuse to pay for any kind of treatment. I do still seek help when things get bad, but then no one can answer their phone or their email, or they're vacation. This happens fairly consistently. Not to complain, but yea, its a bad joke. And its on me.


How have people found (or been found by) mentors? There are organisations where I am which provide voluntary mentoring at no cost at all to people with disabilities, it's one-to-one (that's essential) and I have met the Aspergers mentor at one of them, who seemed to be loving his role (important) and it was not there to push people into work but to assist people meet their own goals - find the right training course, liaising with people there, all sorts of things.

I was lucky to be found by a mentor who approached me at a public meeting and offered to work alongside me. She was great. We worked together on a public service project for 20 years. She taught me so much - how to negotiate with politicians, for example, which was very challenging for me before she arrived.


Its interesting hearing how other countries handle ASD's. Sometimes its just frustrating because most other countries are far ahead of the US. its good that NZ is actually working to help you. Here, the focus is early intervention. Not much interest in adults.



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11 Mar 2015, 4:21 pm

Yes, there seems to be the opposite here - there's relatively good support for adults if they want it in Auckland (which is the largest city). I'm not so sure that there is this sort of help in smaller cities though. Autistic children tend to be neglected by the education system and just lumped in with "special needs" and HFA is simply not understood in any adequate way by educators.

Autism NZ functions very much as a service and support organisation for both children and adults although the focus is mainly on children, though there are other groups which are run by adult people on the spectrum for adult peer support and information (eg ASK = Autistic Spectrum Kiwis). However it's only in the last 5 years or so that the needs of adults have been supported as well as they are now.

People seeking mentors obviously need somewhere to meet and assess potential mentors - they need to be someone you kind of 'gel' with - and who have the knowledge and experience to assist. Autism NZ appointed an adult services liaison person a while ago and she was terrific, she set up women's peer support groups, mentored and found mentors for people, liaised to set one to one supports up, provided any kind of information people sought...

So that's the first step perhaps for the more established service organisations. Create a position dedicated to adult services.
From what I've read over time on WP, that's not happening in the USA? (It hasn't happened for all that long here).



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11 Mar 2015, 5:29 pm

B19 wrote:
Yes, there seems to be the opposite here - there's relatively good support for adults if they want it in Auckland (which is the largest city). I'm not so sure that there is this sort of help in smaller cities though. Autistic children tend to be neglected by the education system and just lumped in with "special needs" and HFA is simply not understood in any adequate way by educators.

Autism NZ functions very much as a service and support organisation for both children and adults although the focus is mainly on children, though there are other groups which are run by adult people on the spectrum for adult peer support and information (eg ASK = Autistic Spectrum Kiwis). However it's only in the last 5 years or so that the needs of adults have been supported as well as they are now.

People seeking mentors obviously need somewhere to meet and assess potential mentors - they need to be someone you kind of 'gel' with - and who have the knowledge and experience to assist. Autism NZ appointed an adult services liaison person a while ago and she was terrific, she set up women's peer support groups, mentored and found mentors for people, liaised to set one to one supports up, provided any kind of information people sought...

So that's the first step perhaps for the more established service organisations. Create a position dedicated to adult services.
From what I've read over time on WP, that's not happening in the USA? (It hasn't happened for all that long here).


In the U.S. we have the Department of Rehabilitation Services (DRS) which basically tries to set you up with a job and once they think you have a stable job they discontinue whatever services they gave you. As far as I know that is the only service for adults that is remotely similar. The waiting list may be months or even years before you get service... and they only care about finding employment for disabled people.


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11 Mar 2015, 5:34 pm

Just wanted to say that I spent all of yesterday in my pajamas, playing video games, and getting drunk.

I'm totally blaming autism for that...... :mrgreen:


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11 Mar 2015, 5:35 pm

Quote:
As long as you have the bucks to do this--go for it!


I don't, actually. I'm living off the post 9/11 GI Bill, but I do need the occasional break from the onslaught of math I currently find myself enduring.....

To B19......

I tend to call them, "XFilesGeek is a lazy f****," days. :D

Cheers!



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11 Mar 2015, 5:36 pm

XFilesGeek wrote:
Just wanted to say that I spent all of yesterday in my pajamas, playing video games, and getting drunk.

I'm totally blaming autism for that...... :mrgreen:


They are "mental health" days! For me it's pottering around in the garden in my own little world of thoughts as I talk to the plants...:)



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11 Mar 2015, 5:41 pm

To the best of my knowledge in the UK there is very little support for adults diagnosed late, if any.

Autistic services for kids transitioning to University (college) are there, and I've read of individual Universities having Autism support.

How far this extends I don't know, but hazard a guess that as the generation that were dx'd as kids grows old, the services will extend to their age group (?).

I wasn't born cynical, Britain has hypocrisy embedded in the culture as a fact. What the government pretends to be help may be anything but - the Welfare Office definition of the word "help" has to be experienced to be believed.



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11 Mar 2015, 5:48 pm

There is a burgeoning industry in this country to "help" people into work. This industry is undoubtedly corrupt - "Life comes in cans!" is just one example of the prevailing mentality.

There has been a case of the unemployed being coerced into attending a motivational lecture delivered by an NLP organisation, it is alleged.

Helping people into work, with the ordinary English understanding of the word help and with the helped one being a volunteer, is great.