Adults with Aspergers Seem 'Normal' to Me

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TechnoDog
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26 Apr 2012, 2:43 pm

nessa238 wrote:
I can not feel hungry but get a headache which is my brain's way of telling me it wants food so then I will eat something, despite not really feeling like it, as my body has told me it is suffering due to lack of food. In other words I listen to what my body is telling me to do ie to eat rather than what I myself might prefer to do ie not eat


If your on medication, when I was trying they SSRIS. One of them no matter how much you did not eat. You did not get any signals.


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26 Apr 2012, 2:44 pm

I cannot tell well hunger or thirst. I can tell when I am hungry bester than when I am thirsty. I have gotten cracked lips from not drinking water for a day at a time. It also never comes into my mind to drink water during these days. I deal with this issue by drinking water according to a routine. When I am home during the day, I drink a cup of coffee in the morning, then a cup of water, then a cup of water or milk with lunch, then a cup of coffee after lunch, then a cup of water or milk with snack in late afternoon, then a cup of water with dinner, then a cup or two of water with fruit at night. When I am away from home, my drinking and eating routine gets messed up, so I often forget to drink water or eat food from the bottle of water and cookies that I carry around in my bag.

If I am overloaded and shutdown, I sometimes cannot move to go to the kitchen to get the water and food, so I should keep a small supply under my desk, methinks.



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26 Apr 2012, 2:50 pm

TechnoDog wrote:
Eloa wrote:
Today I have been alone for the day and I haven't eaten a thing, because when I do not feel hungry I have problems swallowing food.


Should feel the same way as not drinking. As in thirsty for water. Except if you drink water it won't go away. You can't tell the differences. Well you might be able to depends how your wired, I guess or if your stomach rumbles, to indicate your hungry.

So question would be Thirsty or Hungry?


I have the same with drinking too and often dehydrate.
When I go to my psychologist, sometimes my stomach does rumble, because it could be in the afternoon and then she asks, if I do not feel or interprete the sign my stomach is giving as being hungry, but my brain does not do it.
I hear noise coming from my stomach.
When my sugar gets too low I get dizzy and my sensory issues get worse.
Then it reminds me I do have to eat, but if it is too strong - the dizzyness and sensory issues - I cannot prepare anything anymore or still cannot "connect" to food, then it is like shapes and colours, like everything is shape and colour.


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26 Apr 2012, 2:55 pm

btbnnyr wrote:
I have gotten cracked lips from not drinking water for a day at a time.

Yes, my lips are alway cracked too.


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26 Apr 2012, 3:00 pm

Eloa wrote:
When I go to my psychologist, sometimes my stomach does rumble, because it could be in the afternoon and then she asks, if I do not feel or interprete the sign my stomach is giving as being hungry, but my brain does not do it.
I hear noise coming from my stomach.
When my sugar gets too low I get dizzy and my sensory issues get worse.
Then it reminds me I do have to eat, but if it is too strong - the dizzyness and sensory issues - I cannot prepare anything anymore or still cannot "connect" to food, then it is like shapes and colours, like everything is shape and colour.


http://www.findingbalance.com/articles/ ... ness-cues/


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26 Apr 2012, 3:23 pm

nessa238 wrote:
If I go too long without eating I get a headache - I'd say that's pretty normal for a lot of people


Headaches are normal, migraines are not. Simply having a headache is different than having a full migraine.

Quote:
If I get a headache I take two paracetamol and that usually gets rid of the headache then I will make myself something to eat


Yeah, if that works, that works well, because headaches are a big enough trigger to work, but it doesn't always work, because of my migraines. Those aren't me being autistic, but a big enough comorbid that I need to take them into account.

Quote:
If I can't be bothered to make anything I will eat something that involves no effort, like a piece of bread or an apple. Or I might expend bit more effort and open a tin of tuna and have that on some bread as a sandwich


I don't think you understand that what I'm talking about isn't "can't be bothered", its not being lazy, its having no clue how to do these things. It's being overwhelmed by all the options and freezing and the only way to break out of that (if its possible) is to stop trying.

Quote:
Im still here so it's evidently worked ok for me so far


Yeah, that seems to work. It seems like you're not quite understanding how much actually goes into getting food for some of us, but if you don't need to, that shouldn't affect your view for yourself. Food is actually not a simple task though.

On the cracked lips topic, I find thirst a lot easier to deal with than hunger because of the fact that if my mouth is getting dry or my lips are getting cracked, that's an easy sign that I need to drink something. The inability to drink straight water without it tasting horrid is a problem though.



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26 Apr 2012, 3:29 pm

nessa238 wrote:
I can not feel hungry but get a headache which is my brain's way of telling me it wants food so then I will eat something, despite not really feeling like it, as my body has told me it is suffering due to lack of food. In other words I listen to what my body is telling me to do ie to eat rather than what I myself might prefer to do ie not eat


I don't get headaches just hunger pains that tell me I'm hungry, but there are times I have not appetite for food due to depression, anxiety and ptsd issues and sometimes there is even nausea...so I sometimes either have to force myself to eat or just not. but its not because I would prefer not to eat it's because symptoms are interfering with my ability to do so.

Some people do really have symptoms that interfere with their ability to function...you seem to be questioning that?


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26 Apr 2012, 4:50 pm

Sweetleaf wrote:
nessa238 wrote:
I can not feel hungry but get a headache which is my brain's way of telling me it wants food so then I will eat something, despite not really feeling like it, as my body has told me it is suffering due to lack of food. In other words I listen to what my body is telling me to do ie to eat rather than what I myself might prefer to do ie not eat


I don't get headaches just hunger pains that tell me I'm hungry, but there are times I have not appetite for food due to depression, anxiety and ptsd issues and sometimes there is even nausea...so I sometimes either have to force myself to eat or just not. but its not because I would prefer not to eat it's because symptoms are interfering with my ability to do so.

Some people do really have symptoms that interfere with their ability to function...you seem to be questioning that?


I can't comprehend it

In my mind, if a person can turn a computer on and post on a discussion forum, they easily have the intelligence necessary to be able to feed themselves, as operating a computer is a far more complex task than eating

I'm not doubting that people are having these problems; it just doesn't make logical sense to me when one task is a lot harder than the other

I have problems in terms of not wanting to do stuff hence I avoid doing it but if I really need to do it I can

So necessity often enables me to act and I'm wondering what triggers these other people to act

If their house caught fire would they be able to evacute the house or would their sensory issues still prevent them from acting?

I suppose I'm curious to know at what point self-preservation kicks in, if at all



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26 Apr 2012, 4:57 pm

Tuttle wrote:
nessa238 wrote:
I don't think you understand that what I'm talking about isn't "can't be bothered", its not being lazy, its having no clue how to do these things. It's being overwhelmed by all the options and freezing and the only way to break out of that (if its possible) is to stop trying.


So if the house you were in caught fire you wouldn't be able to leave?

And you're right, I don't understand

Presumably you're able to overcome this inability to act to the extent that you can turn your computer on and post on this forum?



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26 Apr 2012, 5:01 pm

Quote:
Quote:
as operating a computer is a far more complex task than
eating


Not really.
1. Press on button.
2. Read.
3. Type.
4. Repeat steps 2 and 3.

As compared to a simple tuna sandwich without butter:

1. Locate bread.
2. Get 2 slices.
3. Walk to cupboard.
4. Find tuna.
5. Walk back to kitchen.
6. Locate tin opener.
7. Open tuna.
8. Find sieve.
9. Drain tuna.
10. Find knife.
11. Place one slice of bread flat.
12. Spread tuna.
13. Place other slice of bread on top.
14. Cut sandwich.
15. Locate plate.
16. Place sandwich on plate.
17. Eat.

The number of steps makes a huge difference to a task that might seem simple at first glance.


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26 Apr 2012, 5:01 pm

nessa238 wrote:
Sweetleaf wrote:
nessa238 wrote:
I can not feel hungry but get a headache which is my brain's way of telling me it wants food so then I will eat something, despite not really feeling like it, as my body has told me it is suffering due to lack of food. In other words I listen to what my body is telling me to do ie to eat rather than what I myself might prefer to do ie not eat


I don't get headaches just hunger pains that tell me I'm hungry, but there are times I have not appetite for food due to depression, anxiety and ptsd issues and sometimes there is even nausea...so I sometimes either have to force myself to eat or just not. but its not because I would prefer not to eat it's because symptoms are interfering with my ability to do so.

Some people do really have symptoms that interfere with their ability to function...you seem to be questioning that?


I can't comprehend it

In my mind, if a person can turn a computer on and post on a discussion forum, they easily have the intelligence necessary to be able to feed themselves, as operating a computer is a far more complex task than eating

Were did I say I don't have the intelligence necessary to feed myself? I said there are times I can't eat due to symptoms, or at best I might have to force myself to eat but not enjoy it because my body does not do well with digestion when I'm on edge like I am much of the time it is a bit more complex then that but I won't go into full detail here. I mean it would be like if I had a terrible headache...then yes normally I can post on a discussion forum but in that state it might be significantly more difficult...the pain might be so bad I can't even get out of bed let alone turn the computer on.

I'm not doubting that people are having these problems; it just doesn't make logical sense to me when one task is a lot harder than the other

I have problems in terms of not wanting to do stuff hence I avoid doing it but if I really need to do it I can

So necessity often enables me to act and I'm wondering what triggers these other people to act

If their house caught fire would they be able to evacute the house or would their sensory issues still prevent them from acting?

I suppose I'm curious to know at what point self-preservation kicks in, if at all



It's not necessarily about either task being hard at all, it is about peoples symptoms getting in the way of them completing the tasks regardless of how hard they are. Not wanting to do something and then not doing it, and not being able to do something because you have symptoms interfering with your functioning abilities are two different things.

what I am describing would be like not being able to do something regardless of how nessisary it is. Also with the house catching fire it really depends on that individual and their sensory issues. I personally could evacuate, but I can only speak for myself.....it certainly is possible one could have impairments that would interfere with their ability to evacuate. Also maybe you should look into executive dysfunction....that can interfere with self-preservation drives and motivation.


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nessa238
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26 Apr 2012, 5:13 pm

Who_Am_I wrote:
Quote:
Quote:
as operating a computer is a far more complex task than
eating


Not really.
1. Press on button.
2. Read.
3. Type.
4. Repeat steps 2 and 3.

As compared to a simple tuna sandwich without butter:

1. Locate bread.
2. Get 2 slices.
3. Walk to cupboard.
4. Find tuna.
5. Walk back to kitchen.
6. Locate tin opener.
7. Open tuna.
8. Find sieve.
9. Drain tuna.
10. Find knife.
11. Place one slice of bread flat.
12. Spread tuna.
13. Place other slice of bread on top.
14. Cut sandwich.
15. Locate plate.
16. Place sandwich on plate.
17. Eat.

The number of steps makes a huge difference to a task that might seem simple at first glance.


I knew that was coming Lol

The mental effort involved in thinking about what to say and then type it all out is, to me more than that involved in making a sandwich

I haven't got the patience to do all the separate quotations for example - that would be far more brain taxing to me than making a sandwich

I think a lot of this is connected to how badly a person wants to do something

I like food a lot hence it's far less trouble for me to make myself something to eat than to clean the house for example

Yes there are days when I hardly have the energy to get out of bed even but hunger will usually be the main thing to spur me on

Whereas even if someone said 'I'll pay you £10 if you do the cleaning' I might still not bother doing it as the extra mental exertion involved in doing something I dislike often means I won't bother

I need to actually be inside these other peoples' brains to see exactly what it's like to be them as I just can't envisage it for myself



twich
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26 Apr 2012, 5:13 pm

nessa238 wrote:
Sweetleaf wrote:
nessa238 wrote:
I can not feel hungry but get a headache which is my brain's way of telling me it wants food so then I will eat something, despite not really feeling like it, as my body has told me it is suffering due to lack of food. In other words I listen to what my body is telling me to do ie to eat rather than what I myself might prefer to do ie not eat


I don't get headaches just hunger pains that tell me I'm hungry, but there are times I have not appetite for food due to depression, anxiety and ptsd issues and sometimes there is even nausea...so I sometimes either have to force myself to eat or just not. but its not because I would prefer not to eat it's because symptoms are interfering with my ability to do so.

Some people do really have symptoms that interfere with their ability to function...you seem to be questioning that?


I can't comprehend it

In my mind, if a person can turn a computer on and post on a discussion forum, they easily have the intelligence necessary to be able to feed themselves, as operating a computer is a far more complex task than eating

I'm not doubting that people are having these problems; it just doesn't make logical sense to me when one task is a lot harder than the other

I have problems in terms of not wanting to do stuff hence I avoid doing it but if I really need to do it I can

So necessity often enables me to act and I'm wondering what triggers these other people to act

If their house caught fire would they be able to evacute the house or would their sensory issues still prevent them from acting?

I suppose I'm curious to know at what point self-preservation kicks in, if at all



It sounds like you don't suffer at all from executive dysfunction, and you probably have very mild sensory issues. Congrats.

Executive dysfunction is when the signals get lost between thinking about doing something to sending the signals to the right body parts needed to get said task done, it also happens when you somehow skip a step between thinking about a task, picturing it in your mind, and then carrying out that task. Those are very basic explanations and the best way I can think to explain it. It's not "Not feeling like it" or feeling lazy and it's not that people don't think it's necessary. A really good place to look for a better explanation for executive dysfunction is a book called "Living well on the spectrum" by Valerie Gaus.

I don't expect you to understand it, I do expect you to be a little less ignorant and stop acting like just because you can do something, everyone else should. I can speak French so by your logic, if I can speak French easily, it should be easy for you, too. Instead of saying "Well, I do this when this happens, why can't you?" Try thinking of something that seem to come easily to others that you find almost impossible- Not because you can't be bothered, but because you just don't know how to do it or where to start or something.


Btw, cooking is much more complicated than typing a post on a forum if you actually break it down step by step.


As for the OP- Say you learned Swedish and became very well spoken in it. When you go to Sweden, they speak it like you speak your mother language, but when you speak it you have to really put effort into it, you have to think before you can put your sentence together. They may not notice that, but you do. It requires A LOT more work on your part to "seem normal" to a Swedish community than to an English speaking one (if that's your main language) so should they decide it's not hard for you for fit in based on the fact that you, with much more effort than them, can speak their language? No, it means you work harder and are probably more emotionally drained at the end of the day. That's just an example of the social issues most of us deal with, let alone everything else. Seeming normal and being normal are two VERY different things, don't mistake them, and don't fall in with the ignorant. It affects us greatly, the "lucky" ones have just learned how to hide it until we're alone because of ignorance not allowing us to be ourselves.

I encourage you guys to look at this journal and really think before you say something to someone who "seems normal/ fine/ healthy"

On invisible disability and "passing".



nessa238
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26 Apr 2012, 5:17 pm

Sweetleaf wrote:
nessa238 wrote:
Sweetleaf wrote:
nessa238 wrote:
I can not feel hungry but get a headache which is my brain's way of telling me it wants food so then I will eat something, despite not really feeling like it, as my body has told me it is suffering due to lack of food. In other words I listen to what my body is telling me to do ie to eat rather than what I myself might prefer to do ie not eat


I don't get headaches just hunger pains that tell me I'm hungry, but there are times I have not appetite for food due to depression, anxiety and ptsd issues and sometimes there is even nausea...so I sometimes either have to force myself to eat or just not. but its not because I would prefer not to eat it's because symptoms are interfering with my ability to do so.

Some people do really have symptoms that interfere with their ability to function...you seem to be questioning that?


I can't comprehend it

In my mind, if a person can turn a computer on and post on a discussion forum, they easily have the intelligence necessary to be able to feed themselves, as operating a computer is a far more complex task than eating

Were did I say I don't have the intelligence necessary to feed myself? I said there are times I can't eat due to symptoms, or at best I might have to force myself to eat but not enjoy it because my body does not do well with digestion when I'm on edge like I am much of the time it is a bit more complex then that but I won't go into full detail here. I mean it would be like if I had a terrible headache...then yes normally I can post on a discussion forum but in that state it might be significantly more difficult...the pain might be so bad I can't even get out of bed let alone turn the computer on.

I'm not doubting that people are having these problems; it just doesn't make logical sense to me when one task is a lot harder than the other

I have problems in terms of not wanting to do stuff hence I avoid doing it but if I really need to do it I can

So necessity often enables me to act and I'm wondering what triggers these other people to act

If their house caught fire would they be able to evacute the house or would their sensory issues still prevent them from acting?

I suppose I'm curious to know at what point self-preservation kicks in, if at all



It's not necessarily about either task being hard at all, it is about peoples symptoms getting in the way of them completing the tasks regardless of how hard they are. Not wanting to do something and then not doing it, and not being able to do something because you have symptoms interfering with your functioning abilities are two different things.

what I am describing would be like not being able to do something regardless of how nessisary it is. Also with the house catching fire it really depends on that individual and their sensory issues. I personally could evacuate, but I can only speak for myself.....it certainly is possible one could have impairments that would interfere with their ability to evacuate. Also maybe you should look into executive dysfunction....that can interfere with self-preservation drives and motivation.

I know all about executive dysfunction - I have problems with it myself in terms of impulse control and multi-tasking.



nessa238
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26 Apr 2012, 5:24 pm

twich wrote:
nessa238 wrote:
Sweetleaf wrote:
nessa238 wrote:
I can not feel hungry but get a headache which is my brain's way of telling me it wants food so then I will eat something, despite not really feeling like it, as my body has told me it is suffering due to lack of food. In other words I listen to what my body is telling me to do ie to eat rather than what I myself might prefer to do ie not eat


I don't get headaches just hunger pains that tell me I'm hungry, but there are times I have not appetite for food due to depression, anxiety and ptsd issues and sometimes there is even nausea...so I sometimes either have to force myself to eat or just not. but its not because I would prefer not to eat it's because symptoms are interfering with my ability to do so.

Some people do really have symptoms that interfere with their ability to function...you seem to be questioning that?


I can't comprehend it

In my mind, if a person can turn a computer on and post on a discussion forum, they easily have the intelligence necessary to be able to feed themselves, as operating a computer is a far more complex task than eating

I'm not doubting that people are having these problems; it just doesn't make logical sense to me when one task is a lot harder than the other

I have problems in terms of not wanting to do stuff hence I avoid doing it but if I really need to do it I can

So necessity often enables me to act and I'm wondering what triggers these other people to act

If their house caught fire would they be able to evacute the house or would their sensory issues still prevent them from acting?

I suppose I'm curious to know at what point self-preservation kicks in, if at all



It sounds like you don't suffer at all from executive dysfunction, and you probably have very mild sensory issues. Congrats.

Executive dysfunction is when the signals get lost between thinking about doing something to sending the signals to the right body parts needed to get said task done, it also happens when you somehow skip a step between thinking about a task, picturing it in your mind, and then carrying out that task. Those are very basic explanations and the best way I can think to explain it. It's not "Not feeling like it" or feeling lazy and it's not that people don't think it's necessary. A really good place to look for a better explanation for executive dysfunction is a book called "Living well on the spectrum" by Valerie Gaus.

I don't expect you to understand it, I do expect you to be a little less ignorant and stop acting like just because you can do something, everyone else should. I can speak French so by your logic, if I can speak French easily, it should be easy for you, too. Instead of saying "Well, I do this when this happens, why can't you?" Try thinking of something that seem to come easily to others that you find almost impossible- Not because you can't be bothered, but because you just don't know how to do it or where to start or something.


Btw, cooking is much more complicated than typing a post on a forum if you actually break it down step by step.


As for the OP- Say you learned Swedish and became very well spoken in it. When you go to Sweden, they speak it like you speak your mother language, but when you speak it you have to really put effort into it, you have to think before you can put your sentence together. They may not notice that, but you do. It requires A LOT more work on your part to "seem normal" to a Swedish community than to an English speaking one (if that's your main language) so should they decide it's not hard for you for fit in based on the fact that you, with much more effort than them, can speak their language? No, it means you work harder and are probably more emotionally drained at the end of the day. That's just an example of the social issues most of us deal with, let alone everything else. Seeming normal and being normal are two VERY different things, don't mistake them, and don't fall in with the ignorant. It affects us greatly, the "lucky" ones have just learned how to hide it until we're alone because of ignorance not allowing us to be ourselves.

I encourage you guys to look at this journal and really think before you say something to someone who "seems normal/ fine/ healthy"

On invisible disability and "passing".


We weren't talking specifically about cooking though; just finding something to eat so that you don't starve to death

I have executive dysfunction myself and I can see the extent to which it affects people varies a lot

It's impossibe for me to fully understand what goes on in other peoples' brains without experiencing it myself - reading a book about it will just be another person's experiences or interpretation of their experiences.



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26 Apr 2012, 5:47 pm

nessa238 wrote:
I can't comprehend it

In my mind, if a person can turn a computer on and post on a discussion forum, they easily have the intelligence necessary to be able to feed themselves, as operating a computer is a far more complex task than eating

I'm not doubting that people are having these problems; it just doesn't make logical sense to me when one task is a lot harder than the other



My ability to post online, my ability to feed myself (assuming no need to do grocery shopping), my ability to get a college degree, my ability to do grocery shopping, and my ability to clean are all different. Of those I'd say the only pair of those which one is simplier than the other is that posting online is simplier than getting a bachelor's degree - but that's because of the double major I'd taken. Grocery shopping, however, is not actually easier or harder than getting a bachelor's degree innately. I personally found getting a bachelor's degree far more time consuming but actually in some ways much easier than shopping and making myself food.

Completely advanced math classes is just math, that's far easier than figuring out how much water is supposed to be used for cooking different types of foods.

Quote:
So necessity often enables me to act and I'm wondering what triggers these other people to act


Necessity triggers me to act too, but sometimes acting is asking others to do what I need because I can't.

nessa238 wrote:
Tuttle wrote:
nessa238 wrote:
I don't think you understand that what I'm talking about isn't "can't be bothered", its not being lazy, its having no clue how to do these things. It's being overwhelmed by all the options and freezing and the only way to break out of that (if its possible) is to stop trying.


So if the house you were in caught fire you wouldn't be able to leave?


I never said anything about difficulty leaving a burning house, I talked about difficulty cooking. Leaving a burning house is completely different.

Quote:
Presumably you're able to overcome this inability to act to the extent that you can turn your computer on and post on this forum?


I never said I can't act at all. I said certain types of things I just don't know how to do and figuring them out doesn't work for me.

Posting is easy, taking care of my cat, feeding her and cleaning her litter box and making sure she always has water, is easy. Feeding myself is much more difficult than feeding my cat.